A Narrative Description of Disclosing Sensitive Information to Empower an HIV/AIDS Infected or Affected Child

Author(s):  
Mmule Magama ◽  
Motshedisi B. Sabone ◽  
Pelonomi Letshwiti-Macheng

Failure to disclose sensitive information to a child is a source of emotional trauma. The consequences include inability to respond to life challenges and impaired productivity. In this case, concealing sensitive information is a form of disempowerment that can result in poor adherence to therapy and resistance to the use of existing support systems. Disempowerment is displayed through disruptive behaviour, low self-esteem, and inability to make constructive decisions. This behaviour flourishes within traditional cultures in which disclosure of sensitive information to a child is considered a taboo in the pretext of protecting the child from emotional pain. Contrary to this view, it is demonstrated in this chapter that disclosure can be empowering. It can lead to self-acceptance and positive thinking that will enable a client to approach life with a positive attitude, and willingness to learn and succeed. Evidently, the child in this chapter demonstrated normal processes of child development, appreciated parental advice, and behaved more responsibly following disclosure of his and his parent's positive HIV status.

Author(s):  
Ingrid Metzler ◽  
Paul Just

Narratives of hope shape contemporary engagements with Parkinson’s disease. On the one hand, a “biomedical narrative of hope” promises that biomedical research will help to transform this treatable but incurable disease into a curable one in the future. On the other hand, a more individual “illness narrative of hope” encourages patients to influence the course of Parkinson’s disease by practicing self-care and positive thinking. This article asks how these two narratives of hope interact. It bases its argument on an analysis of data from 13 focus groups conducted in Germany in 2012 and 2014 with patients with Parkinson’s disease and their relatives. Participants were asked to have their say on clinical trials for advanced therapies for Parkinson’s disease and, while doing so, envisioned their biosocial selves in the present and the future. Three “modes of being” for patients were drawn from this body of data: a “users on stand-by” mode, an “unengaged” mode, and an “experimental pioneers” mode. Both narratives of hope were important to all three modes, yet they were mobilized at different frequencies and also had different statuses. While the biomedical narrative of hope was deemed an important “dream of the future” that participants passively supported without having to make it their own, the illness narrative of hope was a truth discourse that took an imperative form: having Parkinson’s disease implied the need to maintain a positive attitude.


2019 ◽  
Vol 11 (3) ◽  
pp. 92-97
Author(s):  
A. A. Khryanin ◽  
O. V. Reshetnikov ◽  
V. K. Bocharova ◽  
M. V. Russkikh ◽  
I. O. Marinkin

Western Siberia is one of the main regions with a large number of HIV-infected individuals. District therapists are the main link that makes the first contact with HIV infected people. However, it is not yet clear how general practitioners agree with the communication with HIV infected people. In turn, effective communication between the doctor and the patient can be crucial in the formation of a positive attitude of the patient to treatment and significantly affect the effectiveness of future treatment activities. The study was conducted in 2017 by anonymous questionnaires. The study involved 334 medical students of the 4th year of the therapeutic and pediatric faculties of the NSMU. For the survey, an adapted questionnaire was developed, based on the UNAIDS model questionnaire. It was found that medical students do not condemn HIV infected people. They do not believe that people with a positive HIV status necessarily behave immorally and therefore deserve this disease. They are ready to help these patients, although they themselves feel the fear of infection during medical manipulations. A lack of knowledge of a number of legal issues concerning HIV infected patients has been established.


Author(s):  
Hevriani Sevrika

This study was descriptive design because the writer only wanted to describe about the discipline that was used by the lecturer in the classroom. The numbers of lecturers who were as the sample of this study were two English lecturers who were teaching Grammar II subject at STKIP PGRI WEST SUMATERA. Padang, so the writer took them all as the sample through total sampling technique. To find the data in this study, the writer used some instruments which are observation checklist, video and field note. The process in taking the data which was started from coming into the classroom observed the lecturer. The writer recorded the lecturer in two meetings for each lecturer. Then writer checked the data by using observation checklist and field note.  Thus, the result of this study was all of lecturers used positive discipline in managing the classroom. Those, the lecturers used thirteen types activities of positive discipline which can be classified as following: the first type was showing a positive attitude. The lecturers show a positive attitude which was applied by two English lecturers. There were lecturer A, and B. Second, the lecturers show interest. The lecturer show interest was applied by all of the lecturers. Third, the lecturer focused on positive thinking. Fourth, the lecturer used supportive tone of voice. Fifth, they showed a sense of humour. Sixth, they listened to the students talk and taking them seriously. Seventh, acting tough the students enjoy with their jobs, it was used by all the lecturers. Eighth, used appropriate body language; it was applied by all of the lecturers. Ninth, they lowered body position. Tenth, the lecturers listened their students before judging. Eleventh, the lecturers were consistent in giving punishment and rules. Twelfth, the lecturer A separated the behaviour from the students. Thirteenth, respect diversity was applied by all the lecturers


2020 ◽  
Vol 6 (3) ◽  
pp. 205630512095517
Author(s):  
Jeremy Birnholtz ◽  
Ashley Kraus ◽  
Weiwei Zheng ◽  
David A. Moskowitz ◽  
Kathryn Macapagal ◽  
...  

Self-presentation, the process by which people disclose information about themselves to others, is fundamental to online interaction and research on communication technology. Technology often mediates the self-presentation process by obscuring who is in the audience via constrained cues and opaque feed algorithms that govern the visibility of social media content. This can make it risky to disclose sensitive or potentially stigmatizing information about oneself, because it could fall into the wrong hands or be seen by an unsupportive audience. Still, there are times when it is socially beneficial to disclose sensitive information, such as LGBTQ+ (lesbian, gay, bisexual, transgender, queer, and others) people expressing their identities or disclosing HIV status. Decisions about sensitive disclosure, moreover, can be even more complicated in today’s social media landscape with many platforms and audiences in play, particularly for younger users who often use many platforms. We lack a good understanding, however, of how people make these decisions. This article addresses questions about sensitive disclosure on social media through a survey study of adolescent men who have sex with men and their willingness to disclose on social media the use of pre-exposure prophylaxis (PrEP), an HIV prevention medication. Results suggest that perceived platform audience composition and platform features such as ephemerality play into disclosure decisions, as well as the perceived normativity of PrEP use among peers.


2012 ◽  
Vol 6 (11) ◽  
pp. 809-816 ◽  
Author(s):  
Samuel Anu Olowookere ◽  
Akinola Ayoola Fatiregun ◽  
Isaac F Adewole

Introduction:  We assessed the knowledge of and attitudes toward HIV/AIDS and antiretroviral therapy (ART) in people living with HIV/AIDS (PLWHA). Methodology: A descriptive, cross-sectional study design was employed. A structured interviewer-administered questionnaire was administered to consecutive, consenting PLWHA who had been receiving treatment for a minimum of three months. The level of ART adherence was calculated manually for each respondent. Results: In total 318 PLWHA completed the questionnaire. The mean and median time on ART was 17.8 months and 19 months respectively. The mean age of the respondents was 39.1±9.6 years. The majority of these respondents (76.9%) had completed secondary education. Over 80% of the respondents reported knowing that HIV can be transmitted through blood transfusions and unprotected sexual intercourse. Seventy-six per cent of the respondents reported knowing that ART suppresses HIV activity. However, 33% of the respondents denied being HIV positive, while 22.6% reported that they felt that taking ART was shameful. Over 32% of the respondents reported that good adherence to ART would raise suspicions about their HIV status, and 66.7% had not yet disclosed their HIV status to anyone. Most (77.7%) respondents had good knowledge of HIV/AIDS while 75.2% had good knowledge of ART. Also 78.9% had positive attitude to HIV/AIDS while 73.9%) had positive attitude to ART. Respondents with good knowledge about HIV/AIDS and a positive attitude about the disease tended to be more adherent to ART (p < 0.01). Conclusions: The majority of respondents had good knowledge of and a positive attitude toward HIV/AIDS and ART adherence.


2008 ◽  
Author(s):  
Minet de Wied ◽  
Anton van Boxtel ◽  
Walter Matthys ◽  
Wim Meeus

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