scholarly journals Perceptions of Personal Health Records in Rural Primary Health Clinics in Canada – Patient Perspectives

2021 ◽  
Author(s):  
Leanne M Currie ◽  
Kathy Rush ◽  
Lindsay Burton ◽  
Mona Mattei ◽  
Matthias Görges

Personal health records are increasingly being deployed in healthcare settings. In this study we explored patients’ perceptions of personal health records in a rural community in Canada where a primary health network is being deployed. A focus group was held and data were thematically analysed. All patients used technology on a regular basis. Themes included communication and information sharing, issues with access to prior health records, data content and data control and features and functions for continuity of care. Participants expressed desire to be owners of their own record, but described instances where they might be too ill to do so. Participants were hopeful that the functions of a personal health record might help to overcome frustrations with current fragmented information and open to using technologies as part of their care process. Personal health records are promising technologies to overcome fragmented care in rural communities.

Author(s):  
Simon Y. Liu,

Consumers, industry, and government have recently focused attention on the potential of personal health records to empower patients in the health care process, improve patient-provider relationships, facilitate patient access to health information, and improve the quality of health care. A Personal Health Record (PHR) is a private and secure digital record that is created, managed, and owned by an individual, and contains the owner’s relevant health information. The benefits of PHRs have not yet been widely realized due to several significant challenges in their adoption, including the need for privacy, security, and interoperability, and the lack of accepted standards. Although many players in the healthcare arena are beginning to offer partial solutions, none have adequately addressed the full range of challenges. The adoption of PHRs can be significantly accelerated by the development of Open Source software that enables an individual to collect, create, organize, and manage his or her own private and secure PHR, using a standardized format and controlled vocabulary.


2011 ◽  
pp. 750-772
Author(s):  
Phillip Olla ◽  
Joseph Tan

This chapter provides an overview of mobile personal health record (MPHR) systems. A Mobile personal health record is an eclectic application through which patients can access, manage, and share their health information from a mobile device in a private, confidential, and secure environment. Personal health records have evolved over the past three decades from a small card or booklet with immunizations recorded into fully functional mobile accessible portals, and it is the PHR evolution outside of the secure healthcare environment that is causing some concerns regarding privacy. Specifically, the chapter reviews the extant literature on critical evaluative components to be considered when assessing MPHR systems.


Author(s):  
Rohayati Rohayati

The e-health is information technology in the health systems that can be used by both health workers and clients. Ehealth applications can be based on computers, the internet or smartphones. This study aims to discuss the types of e-health that can be used for health monitoring using smartphones in community setting. Data collection was carried out through electronic database, namely EBSCO, Proquest, Sciencedirect, Scopus, Springerlink and Google Scholar. The e-health that can be used to carry out health promotion and monitor the health status of clients was remote mobile health monitoring. This application was integrated with the internet and smartphone so that clients and health workers can monitor the development of the client's health status. The application that can be used to document medical history was a personal health record both internet and computer integrated so that it can be accessed by clients. Community nurses and primary care institutions are expected to be able to design and use this application to monitor and record the health status of clients in the community. Keywords: e-health in community; smartphone; personal health records ABSTRAK Teknologi e-health merupakan teknologi informasi di bidang kesehatan yang dapat digunakan baik oleh petugas kesehatan maupun klien. Aplikasi e-health dapat berbasis komputer, internet maupun smartphone. Studi ini bertujuan untuk membahas jenis-jenis e-health yang dapat digunakan untuk monitoring kesehatan menggunakan smartphone. Pengumpulan data dilakukan melalui telaah literatur jurnal elektronik yaitu EBSCO, Proquest, Science direct, Scopus, Springerlink dan Google Scholar. Teknologi e-health yang dapat digunakan untuk melakukan promosi kesehatan, memonitor status kesehatan klien adalah remote mobile health monitoring. Aplikasi ini terintegrasi dengan internet dan smartphone sehingga klien dan petugas kesehatan dapat memonitor perkembangan status kesehatan klien dimanapun berada. Aplikasi yang dapat digunakan untuk melakukan dokumentasi riwayat kesehatan adalah personal health record baik terintegrasi internet maupun komputer sehingga dapat diakses oleh klien. Perawat komunitas dan institusi pelayanan primer diharapkan dapat merancang dan menggunakan aplikasi ini untuk memonitor dan mencatat status kesehatan klien di masyarakat. Kata kunci: e-health di komunitas; smartphone; personal health records


2018 ◽  
Vol 12 (12) ◽  
pp. 3445
Author(s):  
Talita Cristina Tomaz Silva ◽  
Emília Gallindo Cursino ◽  
Liliane Faria Da Silva

RESUMOObjetivo: analisar as evidências científicas quanto à utilização da Caderneta de Saúde da Criança pelos profissionais de saúde para a vigilância do crescimento e desenvolvimento infantil. Método: trata-se um estudo bibliográfico, tipo revisão integrativa, com buscas nas bases de dados LILACS e BDENF e na biblioteca virtual SCIELO, utilizando os Descritores em Ciências da Saúde; crescimento e desenvolvimento, atenção primária à saúde e registros de saúde pessoal, que foram cruzados com o descritor criança empregando-se o operador booleano and. Selecionaram-se 15 artigos publicados entre 2014 a 2018 e os resultados apresentam-se em forma de figura. Resultados: evidenciou-se, nos estudos, a precária utilização da CSC, que está relacionada à ausência e à fragilidade de registros, à dificuldade de os profissionais perceberem a relevância do preenchimento, ao conhecimento deficiente dos profissionais, à insuficiência de orientações às famílias, além da participação da família nesse processo. Conclusão: compromete-se, pela precariedade da utilização da CSC, a vigilância da saúde infantil por ser este o instrumento essencial para o acompanhamento do crescimento e do desenvolvimento da criança. Descritores: Crescimento e Desenvolvimento; Atenção Primária à Saúde; Registros de Saúde Pessoal; Criança; Atenção Integral à Saúde; Saúde da Criança.ABSTRACT Objective: to analyze the scientific evidence regarding the use of the Child Health Booklet by health professionals for the monitoring of child growth and development. Method: a bibliographical study, type integrative, with searches in LILACS and BDENF databases and in the SCIELO virtual library, using Descriptors in Health Sciences; growth and development, primary health care and personal health records, which were cross-referenced with the child descriptor employing the Boolean operator and. 15 articles published between 2014 and 2018 were selected and the results are presented in figure form. Results: the poor use of CHB was evidenced in the studies, which is related to the absence and fragility of records, the difficulty of professionals to perceive the relevance of filling, poor knowledge of professionals, insufficient guidance to families, besides the participation of the family in this process. Conclusion: due to the precarious nature of the use of CHB, it is committed to monitoring child health as this is the essential instrument for monitoring child growth and development. Descriptors: Growth and Development; Primary Health Care; Personal Health Records; Kid; Comprehensive Health Care; Child Health. RESUMEN Objetivo: analizar las evidencias científicas en cuanto a la utilización de la libreta de Salud del Niño por los profesionales de salud para la vigilancia del crecimiento y desarrollo infantil. Método: se trata de un estudio bibliográfico, tipo revisión integrativa, con búsquedas en las bases de datos LILACS y BDENF y en la biblioteca virtual SCIELO, utilizando los Descriptores en Ciencias de la Salud; crecimiento y desarrollo, atención primaria a la salud y registros de salud personal, que fueron cruzados con el descriptor niño empleándose el operador booleano and. Se seleccionaron 15 artículos publicados entre 2014 y 2018 y los resultados se presentan en forma de figura. Resultados: se evidenció, en los estudios, la precaria utilización de la CSC, que está relacionada a la ausencia y fragilidad de registros, a la dificultad de los profesionales percibir la relevancia del llenado, el conocimiento deficiente de los profesionales, la insuficiencia de orientaciones a las familias, además de la participación de la familia en ese proceso. Conclusión: se compromete, por la precariedad de la utilización de la CSC, la vigilancia de la salud infantil por ser éste el instrumento esencial para el acompañamiento del crecimiento y del desarrollo del niño. Descriptores: Crecimiento y Desarrollo; Atención Primaria a la Salud; Registros de Salud Personal; Niño; Atención Integral de Salud; Salud del Niño. 


2021 ◽  
Vol 12 (01) ◽  
pp. 041-048
Author(s):  
Matthias Görges ◽  
Kathy L. Rush ◽  
Lindsay Burton ◽  
Mona Mattei ◽  
Selena Davis ◽  
...  

Abstract Background Personal health records (PHR) provide opportunities for improved patient engagement, collection of patient-generated data, and overcome health-system inefficiencies. While PHR use is increasing, uptake in rural populations is lower than in urban areas. Objectives The study aimed to identify priorities for PHR functionality and gain insights into meaning, value, and use of patient-generated data for rural primary care providers. Methods We performed PHR preimplementation focus groups with rural providers and their health care teams from five primary care clinics in a sparsely populated mountainous region of British Columbia, Canada to obtain their understanding of PHR functionality, needs, and perceived challenges. Results Eight general practitioners (GP), five medical office assistants, two nurse practitioners (NP), and two registered nurses (14 females and 3 males) participated in focus groups held at their respective clinics. Providers (GPs, NPs, and RNs) had been practicing for a median of 9.5 (range = 1–38) years and had used an electronic medical record for 7.0 (1–20) years. Participants expressed interest in incorporating functionality around two-way communication and appointment scheduling, previsit data gathering, patient and provider data sharing, virtual care including visits using videoconferencing tools, and postvisit sharing of educational materials. Three further themes emerged from the focus groups: (1) the context in which the providers' practice matters, (2) the need for providing patients and providers with choice (e.g., which data to share, who gets to initiate/respond in communications, and processes around virtual care visits), and (3) perceived risks of system use (e.g., increased complexity for older patients and workload barriers for the health care team). Conclusion Rural primary care teams perceived PHR opportunities for increased patient engagement and access to patient-generated data, while worries about changes in workflow were the biggest perceived risk. Recommendations for PHR adoption in a rural primary health network include setting provider-patient expectations about response times, ability to share notes selectively, and automatically augmented note-taking from virtual-care visits.


2014 ◽  
Author(s):  
Pierre-Cedric Crouch ◽  
Carol PhD, RN, FAAN Dawson Rose ◽  
Mallory I. Johnson ◽  
Susan Janson

Background: The HITECH Act signed into law in 2009 requires hospitals to provide patients with electronic access to their health information through an electronic personal health record (ePHR) in order to receive Medicare/Medicaid incentive payments. Little is known about who uses these systems or the impact these systems will have on patient outcomes in HIV care. The health care empowerment model provides rationale for the hypothesis that knowledge from an electronic personal health record can lead to greater patient empowerment resulting in improved outcomes. Objective: To determine the patient characteristics and patient activation, empowerment, satisfaction, knowledge of their CD4, Viral Loads, and antiretroviral medication, and medication adherence outcomes associated with electronic personal health record use in Veterans living with HIV at the San Francisco VA Medical Center. Participants: HIV-Infected Veterans receiving care in a low volume HIV-clinic at the San Francisco VA Medical Center, divided into two groups of users and non-users of electronic personal health records. Methods: In-person surveys were completed either online or on paper and data abstraction was completed from medical records for current anti-retroviral therapy (ART), CD4 count, and plasma HIV-1 viral load. Measures: The measures included the Patient Activation Measure, Health Care Empowerment Inventory, ART adherence, provider satisfaction, current CD4 count, current plasma viral load, knowledge of current ART, knowledge of CD4 counts, and knowledge of viral load. Results: In all, 40 participants were recruited. The use of electronic personal health records was associated with significantly higher levels of patient activation and levels of patient satisfaction for getting timely appointments, care, and information. ePHR was also associated with greater proportions of undetectable plasma HIV-1 viral loads, of knowledge of current CD4 count, and of knowledge of current viral load. The two groups differed by race and computer access. There was no difference in the current CD4, provider satisfaction, Health Care Empowerment Inventory score, satisfaction with provider-patient communication, satisfaction with courteous and helpful staff, knowledge of ART, or ART adherence. Conclusions: The use of electronic personal health records is associated with positive clinical and behavioral characteristics. The use of these systems may play a role in improving the health of people with HIV. Larger studies are needed to further evaluate these associations.


2021 ◽  
Vol 9 (12) ◽  
Author(s):  
Kim Nazi

Over the last two decades, the early development of standalone Personal Health Records (PHRs), and later tethered patient portals, have had a transformative effect on engaging patients by providing them with tools to manage their health and unprecedented access to their heath data. However, despite anticipated benefits and continued high consumer demand for online access to personal health information, adoption and sustained use has been less than expected. Moreover, powerful forces are transforming healthcare, necessitating change and adaptation. This aim of this paper is to examine several significant trends that are influencing the intersection of health care and technology and provide an assessment of the impact of these trends on the future of PHRs and patient portals. An aging population with an increased prevalence of chronic disease and mental health conditions, coupled with rising consumerism and more diverse care settings, has significant implications for patient-facing tools such as patient portals. Similarly, the proliferation of data generating consumer health technology and technical advances such as artificial intelligence and emerging data standards calls for the next iteration of tools to support care delivery. Moreover, the acceleration of virtual care driven by national policy changes and the COVID 19 pandemic requires better tools to realize the promising potential of the technology in an increasingly complex and interconnected world. Taken together, these factors may provide the perfect storm that will enable a critical shift to envision a more holistic patient-centric information and resource hub that is characterized by improved architecture, optimized design and content, a robust set of well-designed tools and functions, and enhanced integration with clinical care processes and structures. This personal health portal could provide a long desired single comprehensive longitudinal personal health record with best of breed design and features to empower patients as they navigate their health journey.


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