Developing Brief Scales for Use in Clinical Practice: The Reliability and Validity of Single-Item Self-Report Measures of Depression Symptom Severity, Psychosocial Impairment Due to Depression, and Quality of Life

2006 ◽  
Vol 67 (10) ◽  
pp. 1536-1541 ◽  
Author(s):  
Mark Zimmerman ◽  
Camilo J. Ruggero ◽  
Iwona Chelminski ◽  
Diane Young ◽  
Michael A. Posternak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Clinical Practice ◽  
Symptom Severity ◽  
Reliability And Validity ◽  
Self Report ◽  
Depression Symptom ◽  
Single Item ◽  
Psychosocial Impairment

scholarly journals Physician Perspective on Incorporation of Oncology Patient Quality-of-Life, Fatigue, and Pain Assessment Into Clinical Practice

2014 ◽  
Vol 10 (4) ◽  
pp. 248-253 ◽  
Author(s):  
Joleen M. Hubbard ◽  
Axel F. Grothey ◽  
Robert R. McWilliams ◽  
Jan C. Buckner ◽  
Jeff A. Sloan
Keyword(s):  
Quality Of Life ◽  
Clinical Practice ◽  
Pain Assessment ◽  
Oncology Patient ◽  
Single Item ◽  
Physician Perspective ◽  
Work Burden

The authors conclude that single-item measures of pain, fatigue, and QOL can be incorporated into oncology clinical practice with positive implications for patients and physicians without increasing duration of visits or work burden.

scholarly journals Psychometrics and Validity of the Survey of Memory-Related Quality of Life in HIV Disease

2019 ◽  
Author(s):  
Kelli L Sullivan ◽  
Paulina A Kulesz ◽  
Steven Paul Woods
Keyword(s):  
Quality Of Life ◽  
Reliability And Validity ◽  
Self Report ◽  
Memory Problems ◽  
Incremental Value ◽  
Related Quality ◽  
And Performance ◽  
Future Work ◽  
The Impact

Abstract Objective Retrospective and prospective memory deficits are associated with lower quality of life (QoL); however, there are no validated measures that comprehensively and directly assess the impact of memory problems on QoL. The Survey of Memory-Related Quality of Life (SMRQoL) was developed as a 30-item questionnaire to measure memory-related QoL. Method Both HIV+ (n = 195) and HIV− (n = 146) participants completed the SMRQoL, a neurocognitive research battery, and validated self-report questionnaires of memory, QoL, and mood. Participants were recruited into younger (age ≤ 40 years) and older (age ≥ 50 years) groups per the parent study design. Results The SMRQoL had a unidimensional factor structure and demonstrated measurement invariance across the HIV+ and HIV− participants. Analyses of 111 clinically stable participants (e.g., persons with no incident or remitting central nervous system disorders) who returned for a 14-month follow-up visit indicated that the SMRQoL had adequate test–retest stability. There was a significant interaction of age and HIV status on the SMRQoL, such that older HIV+ participants reported the lowest memory-related QoL. SMRQoL scores were associated with validated measures of mental and physical QoL, self-reported memory and cognitive symptoms, and performance-based memory and executive functions. Conclusions The SMRQoL shows evidence of reliability and validity as a measure of memory-related QoL that can be used to assess the impact of memory problems on everyday life, but future work is needed to demonstrate the measure’s incremental value in the context of diagnosis and treatment.

scholarly journals Self-report quality of life measure for people with schizophrenia: The SQLS

2000 ◽  
Vol 177 (1) ◽  
pp. 42-46 ◽  
Author(s):  
Greg Wilkinson ◽  
Bernadette Hesdon ◽  
Diane Wild ◽  
Ron Cookson ◽  
Carole Farina ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Reliability And Validity ◽  
Internal Consistency Reliability ◽  
Self Report ◽  
Life Questionnaire ◽  
Internal Reliability ◽  
Report Quality ◽  
Sf 36 ◽  
Quality Of Life Scale

BackgroundQuality of life is the subject of growing interest and investigation.AimsTo develop and validate a short, self-report quality of life questionnaire (the Schizophrenia Quality of Life Scale, SQLS).MethodPeople with schizophrenia in Liverpool were recruited via the NHS. Items, generated from in-depth interviews, were developed into an 80-item self-report questionnaire. Data were factor analysed, and a shorter form measure was tested for reliability and validity. This measure was administered together with other self-report measures – SF–36, GHQ–12 and HADS – to assess validity.ResultsData were analysed to produce a final 30-item questionnaire, comprising three scales (‘psychosocial’, ‘motivation and energy’, and ‘symptoms and side-effects’) addressing different SQLS dimensions. Internal consistency reliability of the scale was found to be satisfactory. There was a high level of association with relevant SF–36, GHQ–12 and HADS scores.ConclusionsThe SQLS was completed within 5–10 minutes. It possesses internal reliability and construct validity, and promises to be a useful tool for the evaluation of new treatment regimes for people with schizophrenia.

Validation of the Korean Version of the Minneapolis-Manchester Quality of Life Instrument for Childhood Cancer Survivors

Blood ◽  
2008 ◽  
Vol 112 (11) ◽  
pp. 1319-1319 ◽  
Author(s):  
Hyeon Jin Park ◽  
Yoon Yi Kim ◽  
Young Ae Kim ◽  
Young Ho Yun ◽  
Byung Ho Nam ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Reliability And Validity ◽  
Childhood Cancer Survivors ◽  
Self Report ◽  
Aged Patients ◽  
Korean Version ◽  
Diagnosis Of Cancer

Abstract Purpose : Remarkable improvements in survival of children with cancer have resulted in a growing population of Korean childhood cancer survivors. However, long-term survivors are at risk for developing a broad spectrum of adverse outcomes. Therefore increasing emphasis is now being placed on health-related quality of life (HRQL) of Korean childhood cancer survivors. The Minneapolis-Manchester Quality of Life Instrument (MMQL) is a standardized patient self-report instrument designed to assess HRQL in childhood cancer survivors. In order to create an appropriate scale for the HRQL assessment of Korean childhood cancer survivors, the Korean version of MMQL-Youth Form (YF) (8 to 12 years) and MMQL-Adolescent Form (AF) (13 to 20 years) were cross-culturally adapted into Korean and its reliability and validity were evaluated. Patients and Methods : The translation procedure followed the standard Functional Assessment of Chronic Illness Therapy (FACIT) translation methodology. The patients who were given the diagnosis of cancer participated in this study. The subjects consist of 4 groups, which are 8–12 and 13–20 aged patients undergoing treatment after the diagnosis of cancer, and 8–12 and 13–20 aged patients who were more than 1 year after terminating treatment. Factor analysis uses the pattern of inter-item correlations to produce clusters of items that have substantial correlations with one another. The stability was tested by readministering the MMQL to a subset of participants of each group after a 2-week interval. Cronbach’s coefficient alpha was used to assess the internal consistency. Discriminate validity was determined by comparing children undergoing treatment with children off therapy. Construct validity was conducted by comparing the patient responses of MMQL with their mothers responses of Child Health Questionnaire Parent version (CHQ-PF50). Results : The MMQL-YF were administered to 63 children undergoing treatment and their mothers and 66 off-therapy cancer survivors and their mothers. The MMQL-AF were administered to 60 children undergoing treatment and their mothers and 85 off-therapy cancer survivors and their mothers. Test-retest reliability of MMQL-YF (Cronbach’s a=0.76) and MMQL-AF (Cronbach’s a=0.82) demonstrated that both instruments were stable in all questionnaires. For internal consistency reliability, overall Cronbach’s alpha coefficient was 0.86 for the Korean version of MMQL–YF and 0.90 for the Korean version of AF. These results indicate that the items constituting the MMQL-YF and MMQL-AF were consistent internally. The MMQL-YF and MMQL-AF were able to discriminate between children undergoing treatment and off-therapy cancer survivors. The scales of MMQL-YF and MMQL-AF were highly correlated with similar CHQ-PF50 domains. Conclusion : This study provides evidence for the reliability and validity of the Korean version of MMQL-YF and MMQL-AF as a comprehensive, multidimensional self-report instrument for measuring HRQL among Korean childhood cancer survivors.

Functional and psychosocial impairment in adults with undiagnosed ADHD

2006 ◽  
Vol 37 (1) ◽  
pp. 97-107 ◽  
Author(s):  
STEPHEN L. ABLE ◽  
JOSEPH A. JOHNSTON ◽  
LENARD A. ADLER ◽  
RALPH W. SWINDLE
Keyword(s):  
Quality Of Life ◽  
Educational Attainment ◽  
Functional Impairment ◽  
Adult Adhd ◽  
Self Report ◽  
Administrative Claims ◽  
Psychosocial Impairment ◽  
Care Plans ◽  
Lower Educational Attainment

Background. Identify a group of adults with ‘undiagnosed’ attention deficit hyperactivity disorder (ADHD) and compare their personal and family medical histories, psychosocial profiles, functional impairment and quality of life with non-ADHD controls. Additionally, compare adults with undiagnosed and diagnosed ADHD to investigate possible reasons why the undiagnosed avoid clinical detection.Method. ICD-9 codes for ADHD in administrative claims records and responses to a telephone-administered adult ADHD screener [the Adult ADHD Self-Report Scale (ASRS)] were used to classify approximately 21000 members of two large managed health-care plans as ‘undiagnosed’ (no coded diagnosis; ASRS positive) or ‘non-ADHD’ controls (no coded diagnosis; ASRS negative). Patients identified as ‘undiagnosed’ ADHD were compared with samples of non-ADHD controls and ‘diagnosed’ ADHD patients (ICD-9 coded ADHD diagnoses) on the basis of demographics, socio-economic status, past and present mental health conditions, and self-reported functional and psychosocial impairment and quality of life.Results. A total of 752 ‘undiagnosed’ ADHD subjects, 199 ‘non-ADHD’ controls and 198 ‘diagnosed’ ADHD subjects completed a telephone interview. Overall, the ‘undiagnosed’ ADHD cohort demonstrated higher rates of co-morbid illness and greater functional impairment than ‘non-ADHD’ controls, including significantly higher rates of current depression, and problem drinking, lower educational attainment, and greater emotional and interpersonal difficulties. ‘Undiagnosed’ ADHD subjects reported a different racial composition and lower educational attainment than ‘diagnosed’ ADHD subjects.Conclusion. Individuals with ‘undiagnosed’ ADHD manifest significantly greater functional and psychosocial impairment than those screening negative for the disorder, suggesting that ADHD poses a serious burden to adults even when clinically unrecognized.

scholarly journals Study protocol: A profile of physical performance variables in an outpatient adult population with narcolepsy

2020 ◽  
Vol 3 ◽  
pp. 42
Author(s):  
Ragy Tadrous ◽  
Deirdre O'Rourke ◽  
Niamh Murphy ◽  
Lisa Slattery ◽  
Gillian Quinn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Physical Fitness ◽  
Physical Performance ◽  
Symptom Severity ◽  
Performance Test ◽  
Self Report ◽  
University Hospital ◽  
Performance Variables

Background: Narcolepsy is a sleep disorder characterised by excessive daytime sleepiness and significantly impacts quality of life. People with narcolepsy demonstrate many potential barriers to being physically fit and active, such as sleepiness and social isolation. Very little is known about how physical performance variables may be affected in people with narcolepsy. This study aims to profile the physical fitness of adults with narcolepsy and to explore the relationship between physical fitness and quality of life, symptom severity and disease duration in this cohort. Methods and Analysis: In this cross-sectional observational study, participants will undergo a comprehensive physical performance test battery that will investigate cardiopulmonary fitness, objective measures of physical activity, muscle strength and endurance. Furthermore, quality of life, symptom severity and physical activity will be ascertained through self-report questionnaires. The study population will consist of adults with narcolepsy aged 18-65 years attending the National Narcolepsy Centre located in St. James’s Hospital as an outpatient. Ethics and Dissemination: Ethical approval has been obtained from the St. James’s Hospital and Tallaght University Hospital Research Ethics Committee, and this study is presently underway. The results obtained from this study will be used to help tailor exercise and possible rehabilitation strategies for this population. Dissemination will be sought through peer-reviewed journals, national and international conferences, and through engagement with service user groups. Registration: ClinicalTrials.gov Identifier NCT04419792; registered on 5 June 2020.

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