Palliative care services for Indian migrants in Australia: Experiences of the family of terminally Ill patients

AbstractObjective:Our objective was to determine the knowledge, attitudes, and practices of physicians and nurses on Palliative Care (PC) in Lebanon, across specialties.Method:We performed a cross-sectional descriptive survey using a self-administered questionnaire; the total number of completed and returned questionnaires was 868, giving a 23% response rate, including 74.31% nurses (645) and 25.69% physicians (223).Results:Significant differences were found between medical and surgical nurses and physicians concerning their perceptions of patients' and families' outbursts, concerns, and questions. Knowledge scores were statistically associated with practice scores and degree. Practice scores were positively associated with continuing education in PC, exposure to terminally ill patients, and knowledge and attitude scores. Acute critical care and oncology were found to have lower practice scores than other specialties.Significance of results:Formal education in palliative care and development of palliative care services are very much needed in Lebanon to provide holistic care to terminally ill patients.

Download Full-text

Palliative care services: views of terminally ill patients

Palliative Medicine ◽

10.1191/026921600668099835 ◽

2000 ◽

Vol 14 (2) ◽

pp. 159-160 ◽

Cited By ~ 10

Author(s):

N V Raynes ◽

J Leach ◽

B Rawlings ◽

R J Bryson

Keyword(s):

Palliative Care ◽

Terminally Ill ◽

Terminally Ill Patients ◽

Care Services ◽

Palliative Care Services

Download Full-text

Palliative Care in the Perinatal Setting

Oxford Textbook of Palliative Nursing ◽

10.1093/med/9780190862374.003.0062 ◽

2019 ◽

pp. 749-757

Author(s):

Cheryl Ann Thaxton ◽

Diana Jacobson ◽

Heather Murphy ◽

Tracey Whitley

Keyword(s):

Palliative Care ◽

Neonatal Intensive Care ◽

Psychological Symptom ◽

Culturally Competent ◽

Maternal Complications ◽

Patient Centered ◽

Care Services ◽

Nursing Communication ◽

The Family ◽

Palliative Care Services

The nurse is an essential interdisciplinary partner in the delivery of family- and patient-centered palliative care for families faced with perinatal or newborn loss in the labor and delivery (L&D) unit and in the neonatal intensive care unit (NICU). Early identification and referral of the family to perinatal and neonatal palliative care services is paramount. Improving nursing communication with the family, advocating for the family, and providing supportive nursing care, which includes physical and psychological symptom management, are emphasized. The L&D unit is an area in which patients can experience both joy and loss; it is imperative that L&D nurses receive education about palliative care in the event of maternal complications and/or congenital anomalies that lead to the death of a newborn. Principles of essential individualized, compassionate, and culturally competent palliative care interventions are reviewed using patient and family exemplars.

Download Full-text

Issues for General Practitioners Caring for Dying Patients in the Home

Australian Journal of Primary Health ◽

10.1071/py99015 ◽

1999 ◽

Vol 5 (2) ◽

pp. 9 ◽

Cited By ~ 1

Author(s):

Annette Street ◽

Jeanine Blackford ◽

Anne Turley ◽

Judy Kelso

Keyword(s):

Palliative Care ◽

General Practitioners ◽

Terminally Ill ◽

Team Approach ◽

Fee For Service ◽

Quality Health Care ◽

Care Services ◽

Dying Patients ◽

Palliative Care Services ◽

Counselling Program

General practitioners have a central role in the provision of quality health care to the terminally ill patient and family in their own homes. Staff from the Department of Human Services were concerned that GPs were experiencing stress through their increasing role in the provision of palliative care and that there was a need for a fee-for-service stress counselling program for them. A small qualitative study was conducted to verify this perceived need. Semi-structured telephone interviews were conducted with 50 GPs selected from a sample of metropolitan attendees at postgraduate educational activities or doctors known to palliative care services. GPs faced a number of issues in their care for terminally ill people in the community but a fee-for-service counselling program was deemed unnecessary. Evidence from the study confirmed that effective communication strategies between GPs, palliative care services and acute hospitals, an interdisciplinary team approach, and improved understanding between health professionals would enhance the quality of care for dying people and their caregivers.

Download Full-text

The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?

Children ◽

10.3390/children5070097 ◽

2018 ◽

Vol 5 (7) ◽

pp. 97 ◽

Cited By ~ 2

Author(s):

Wei Chin ◽

Tiina Jaaniste ◽

Susan Trethewie

Keyword(s):

Palliative Care ◽

Family System ◽

Pediatric Palliative Care ◽

Future Research ◽

Medical Conditions ◽

Disease Trajectory ◽

Care Services ◽

The Family ◽

Palliative Care Services

Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered. Factors contributing to sibling resilience are detailed, including individual, family, and broader external and social factors. Given the limited research with siblings of children with LLC, literature has also been drawn from the siblings of children with serious and/or chronic medical conditions. Implications for clinical practice and future research are considered. Pediatric palliative care services may be well placed to contribute to this body of research as they have commonly extended relationships with the families of children with LLC, which span across the child’s disease trajectory.

Download Full-text

Pain talk in palliative care: A qualitative analysis

10.21203/rs.2.13560/v1 ◽

2019 ◽

Author(s):

Yijin Wu

Keyword(s):

Palliative Care ◽

Conversation Analysis ◽

Care Provider ◽

Terminally Ill ◽

Care Providers ◽

Care Services ◽

Healthcare Settings ◽

Palliative Care Setting ◽

Palliative Care Services ◽

Problematic Experiences

Abstract Aim Using the method of Conversation Analysis (CA), this study aims to demonstrate how the palliative care provider uses different types of interactional practices to address patient’s pain concerns. Background The delivery of palliative care services could be facilitated through effective communication. The method of conversation analysis is effective in improving communication skills. Conversation analysis, used in other healthcare settings, also is a useful way to explore the interactional details between palliative care providers and terminally ill patients. Method The data showed in this study are obtained from 2 videotapes of provider-patient interaction in palliative care settings. The videos and the initial transcript of them are collected from the Alexander St website http://ctiv.alexanderstreet.com, an educational resource presenting a large collection of psycho-therapeutic videos. The data is analyzed using the method of conversation analysis. Results In this study, an illustrative analysis is demonstrated to show the potential of conversation analysis for research on pain talk in palliative care. It has been shown that conversation analysis could contribute to unfolding the interactional details regarding “pain talk” in palliative care settings. Specifically, CA could provide a detailed a description and interpretation of the conversational practices used to construct palliative care provider participation in delivering pain talk. In addition, CA could also demonstrate the interactional resources by which patients disclose their experiences of physical and spiritual pain to the palliative care provider and the way how the palliative care provider responds to patient’s problematic experiences. Conclusion This study identifies five types of interactional resources which are used to deal with patient’s pain concerns in palliative care setting. A conversation analytical study of pain talk in palliative care could provide a turn-by-turn description of how the palliative care provider communicates with the terminally ill patient in terms of pain concerns. The findings in this study could inform how the palliative care provider initiates, delivers and develops a pain talk with the terminally ill patient effectively.

Download Full-text

Users’ Views of Palliative Care Services: ethical implications

Nursing Ethics ◽

10.1177/096973300000700405 ◽

2000 ◽

Vol 7 (4) ◽

pp. 314-326 ◽

Cited By ~ 17

Author(s):

Simon Woods ◽

Kinta Beaver ◽

Karen Luker

Keyword(s):

Palliative Care ◽

Health Professionals ◽

Ethical Issues ◽

Community Services ◽

Ethical Challenges ◽

Best Interest ◽

Ethical Implications ◽

Care Services ◽

The Family ◽

Palliative Care Services

This article is based on the findings of a study that elicited the views of terminally ill patients ( n = 15), their carers ( n = 10) and bereaved carers ( n = 19) on the palliative care services they received. It explores the range of ethical issues revealed by the data. Although the focus of the original study was on community services, the participants frequently commented on all aspects of their experience. They described some of its positive and negative aspects. Of concern was the reported lack of sensitivity to the role of the family among health professionals. The family, as carers, service users and advocates, represent a challenge to professional boundaries and the ethical norms of confidentiality and best interest. The accounts reveal the complexity of the ethical issues that characterize terminal care, issuing specific ethical challenges to nurses and other health professionals involved in this field.

Download Full-text