scholarly journals The Relationships Between the Pain Beliefs and Coping Strategies of Palliative Care Patients

2021 ◽  
Author(s):  
Tugba Menekli ◽  
◽  
Runida Dogan ◽  
Cigdem Erce ◽  
Derya Atik ◽  
...  
Keyword(s):  
Palliative Care ◽  
Coping Strategies ◽  
Pain Beliefs ◽  
And Coping

Health behaviors and coping among informal caregivers of lung and colorectal cancer survivors: Distribution and interrelationships.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 229-229
Author(s):  
Erin E. Kent ◽  
Kristin Litzelman ◽  
Julia Howe Rowland
Keyword(s):  
Physical Activity ◽  
Palliative Care ◽  
Health Behaviors ◽  
Cancer Survivors ◽  
Coping Strategies ◽  
Binge Drinking ◽  
Coping Styles ◽  
Self Care ◽  
Positive Health ◽  
And Coping

229 Background: Family/informal caregivers play a critical role in the palliative care and support of cancer survivors, yet are at risk of poorer health outcomes than non-caregivers. Self-care, including positive health behaviors and coping, are important for long-term caregiver well-being, and potentially that of care recipients. This study sought to evaluate the distribution of and interrelationships among health behaviors and coping strategies among cancer caregivers. Methods: This study used data from the Cancer Care Outcomes Research & Surveillance Consortium (CanCORS). Caregivers reported by survey their health behaviors, coping, and sociodemographic and caregiving characteristics. Descriptive statistics assessed the distribution of caregivers’ health and coping behaviors, and multivariable linear regressions assessed the associations between health behaviors and coping styles. Results: Many caregivers reported positive health behaviors (i.e., moderate physical activity, adequate sleep, low rates of binge drinking). Caregivers most frequently reported using emotion-focused coping styles (religion, acceptance, positive reframing, emotional support). Caregivers reporting higher levels of physical activity or feeling less well-rested used problem-focused coping styles more frequently (Effect sizes [ES] up to 0.21, p < 0.05) . Those with some physical activity (1-149 minutes/week vs none) scored higher on emotion-focused coping, while drinkers (1+ drink in the past 30 days vs 0) and binge drinkers (5+ drinks in a row vs 0) scored lower on this subscale (ES = 0.16, 0.12, and 0.25; p < 0.05). Caregivers reporting current smoking (ES = 0.21), binge drinking (ES = 0.49), and feeling less well-rested (ES up to 0.48) scored higher on dysfunctional coping (p < 0.05). Conclusions: Caregivers’ health behaviors and coping strategies were interrelated. Interventions targeting both factors concurrently may be particularly efficacious at improving family caregiver self-care, potentially improving caregiving quality and patient-centered palliative care. Future research is needed to design and test such interventions and the potential impact on palliative care.

Community Palliative Care Nurses’ Challenges and Coping Strategies on Delivering Home-Based Pediatric Palliative Care

2016 ◽  
Vol 34 (2) ◽  
pp. 125-131 ◽  
Author(s):  
LeeAi Chong ◽  
Adina Abdullah
Keyword(s):  
Palliative Care ◽  
Coping Strategies ◽  
Organizational Support ◽  
Skills Training ◽  
Pediatric Palliative Care ◽  
Care Services ◽  
Home Based ◽  
Palliative Care Services ◽  
Communication Challenges ◽  
And Coping

Objective: The aim of this study was to explore the experience of community palliative care nurses providing home care to children. Method: A qualitative study was conducted at the 3 community palliative care provider organizations in greater Kuala Lumpur from August to October 2014. Data were collected with semistructured interviews with 16 nurses who have provided care to children and was analyzed using thematic analysis. Two categories were identified: (1) challenges nurses faced and (2) coping strategies. The themes identified from the categories are (1) communication challenges, (2) inadequate training and knowledge, (3) personal suffering, (4) challenges of the system, (5) intrapersonal coping skills, (6) interpersonal coping strategies, and (7) systemic supports. Conclusions: These results reinforces the need for integration of pediatric palliative care teaching and communication skills training into all undergraduate health care programs. Provider organizational support to meet the specific needs of the nurses in the community can help retain them in their role. It will also be important to develop standards for current and new palliative care services to ensure delivery of quality pediatric palliative care.

scholarly journals Psychosocial challenges and coping strategies of caregivers with family members under palliative care in Mufakose, Zimbabwe

2020 ◽  
Vol 10 (2) ◽  
pp. 210-220
Author(s):  
Tsitsi Mguwata
Keyword(s):  
Palliative Care ◽  
Coping Strategies ◽  
Family Relationships ◽  
Family Members ◽  
Care Givers ◽  
Effective Interventions ◽  
Home Based ◽  
Care Family ◽  
Caregiver Coping ◽  
And Coping

This study sought to unearth the challenges and coping strategies of caregivers with family members under palliative care. As a high-density suburb, Mufakose is a dwelling place for the most economically marginalised members of the Zimbabwe urban dwellers. Having a family member under palliative care while being from a low social class has its ramifications and this was what the researcher sought to find out by carrying a qualitative research on six care givers (n = 6) sampled by purposive sampling. In-depth interviews guided by a self-constructed interview guide were used to collect data and thematic analysis was used for analysis. The interviews were carried out in Shona, the local language for the participants, and responses were later translated to English. The study indicated that the caregivers encountered a myriad of challenges ranging from social, economic and health problems. Disturbed sleeping patterns, weight loss, stress, inhibited social mobility, strained family relationships, limited health information about the illness, role conflict and increased financial constraints were the major cited challenges. The research established that caregivers are proactive and numerous coping strategies are used in dealing with the challenges. The coping strategies being used can be classified into appraisal-focused, problem-focused and emotion-focused. Although some coping strategies are maladaptive, most of them are quite adaptive, and with effective interventions the fortunes and lifestyle of caregivers can be overturned.   Keywords: Palliative care, family caregiver, coping strategy, challenges, home-based care.

scholarly journals Caregiver overload and factors associated with care provided to patients under palliative care

2021 ◽  
Vol 39 (1) ◽  
Author(s):  
Alice Regina Felipe Silva ◽  
Jack Roberto Silva Fhon ◽  
Rosalina Aparecida Partezani Rodrigues ◽  
Mariane Thais Pecchi Leite
Keyword(s):  
Palliative Care ◽  
Coping Strategies ◽  
Demographic Data ◽  
Linear Regression Analysis ◽  
Cross Sectional Study ◽  
Problem Solution ◽  
Cross Sectional ◽  
Burden Scale ◽  
And Coping ◽  
Self Reporting Questionnaire

Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care. Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers’ demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory. Results. Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients’ children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear  regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload. Conclusion. Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload.

One- and two-item measures of pain beliefs and coping strategies

Pain ◽  
2003 ◽  
Vol 104 (3) ◽  
pp. 453-469 ◽  
Author(s):  
Mark P Jensen ◽  
Francis J Keefe ◽  
John C Lefebvre ◽  
Joan M Romano ◽  
Judith A Turner
Keyword(s):  
Coping Strategies ◽  
Pain Beliefs ◽  
And Coping

scholarly journals Perceptions of aging and falling ill: a study with elderly persons in palliative care

2018 ◽  
Vol 21 (6) ◽  
pp. 701-710
Author(s):  
Mariana dos Santos Ribeiro ◽  
Moema da Silva Borges
Keyword(s):  
Palliative Care ◽  
Coping Strategies ◽  
The Elderly ◽  
Elderly Persons ◽  
Spiritual Support ◽  
Structured Interviews ◽  
Life Trajectories ◽  
Perceptions Of Aging ◽  
Development And Aging ◽  
And Coping

Abstract Objective: to learn the perceptions of elderly persons in palliative care regarding coping with aging and illness. Method: an exploratory, descriptive, qualitative study was carried out. The study included 11 elderly persons in palliative care because of oncologic disease. Semi-structured interviews were carried out which were analyzed with the aid of the ALCESTE software. Results: two axes were identified from the content analysis. The first, Resist to Survive and Live, has two categories: the first, aging with integrity, portrays the positive perception of the participants regarding the aging process, and coping strategies used to deal with aging and with illness; the other category, resilient development, refers to the life trajectories of the participants and the adversities of the process of development and aging. The second axis, Resist to Die Well, has only one category and refers to the perceptions of the elderly about the stress related to illness. Conclusion: the results show that the perceptions of aging and falling ill involved resilience, as the participants focused on what they had gained rather than their losses. In this context, they used resilient coping strategies: spiritual support, cognitive restructuring, and acceptance.

Defence Mechanisms and Coping Strategies among Caregivers in Palliative Care Units

2009 ◽  
Vol 25 (3) ◽  
pp. 181-190 ◽  
Author(s):  
Marie Timmermann ◽  
Despina Naziri ◽  
Anne-Marie Etienne
Keyword(s):  
Palliative Care ◽  
Coping Strategies ◽  
Defence Mechanisms ◽  
Palliative Care Units ◽  
And Coping
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