scholarly journals From the Desk of the Guest Editor: Volume Overview

2011 ◽  
Vol 3 (2) ◽  
pp. 1-2
Author(s):  
Jana Cason

This issue of the International Journal of Telerehabilitation (IJT) contains original research evaluating the efficacy of telerehabilitation, viewpoint articles, a letter to the editor, a committee report from a working group within the American Telemedicine Association’s Telerehabilitation Special Interest Group, and an announcement from the American Telemedicine Association.  It is important to note that legislation, regulation, and policy related to telerehabilitation continues to evolve. Therefore, the information presented in this issue of the IJT is current as of the time of its publication and reflects the most recent developments in the field.


2021 ◽  
Vol 129 (03) ◽  
pp. 143-145
Author(s):  
Martin Reincke ◽  
Jürgen Honegger

AbstractThe German Society of Endocrinology (DGE) has a long-standing scientific and clinical focus on the pituitary. The pituitary working group ‘Arbeitsgemeinschaft Hypophyse’ is an interdisciplinary special interest group with a focus on advancing diagnosis and treatment of pituitary conditions. On the occasion of the English publication of the S2K clinical guideline Diagnosis and therapy of clinically hormonally inactive pituitary tumors, we present here a series of 12 articles from internationally renowned authors from inside and outside of Germany.



2017 ◽  
Vol 44 (12) ◽  
pp. 1884-1888 ◽  
Author(s):  
Esi M. Morgan ◽  
Meredith P. Riebschleger ◽  
Jennifer Horonjeff ◽  
Alessandro Consolaro ◽  
Jane E. Munro ◽  
...  

Objective.The current Juvenile Idiopathic Arthritis (JIA) Core Set was developed in 1997 to identify the outcome measures to be used in JIA clinical trials using statistical and consensus-based techniques, but without patient involvement. The importance of patient/parent input into the research process has increasingly been recognized over the years. An Outcome Measures in Rheumatology (OMERACT) JIA Core Set Working Group was formed to determine whether the outcome domains of the current core set are relevant to those involved or whether the core set domains should be revised.Methods.Twenty-four people from the United States, Canada, Australia, and Europe, including patient partners, formed the working group. Guided by the OMERACT Filter 2.0 process, we performed (1) a systematic literature review of outcome domains, (2) a Web-based survey (142 patients, 343 parents), (3) an idea-generation study (120 parents), (4) 4 online discussion boards (24 patients, 20 parents), and (5) a Special Interest Group (SIG) activity at the OMERACT 13 (2016) meeting.Results.A MEDLINE search of outcome domains used in studies of JIA yielded 5956 citations, of which 729 citations underwent full-text review, and identified additional domains to those included in the current JIA Core Set. Qualitative studies on the effect of JIA identified multiple additional domains, including pain and participation. Twenty-one participants in the SIG achieved consensus on the need to revise the entire JIA Core Set.Conclusion.The results of qualitative studies and literature review support the need to expand the JIA Core Set, considering, among other things, additional patient/parent-centered outcomes, clinical data, and imaging data.



2017 ◽  
Vol 44 (12) ◽  
pp. 1889-1893 ◽  
Author(s):  
Linda A. Rasch ◽  
Maarten Boers ◽  
Catherine L. Hill ◽  
Marieke Voshaar ◽  
Wijnanda Hoogland ◽  
...  

Objective.The Outcome Measures in Rheumatology (OMERACT) working group on the patients’ perspective on remission in rheumatoid arthritis (RA) has been working on this topic since 2010. At OMERACT 2016, progress and preliminary data on validity of measurement instruments for pain, fatigue, and independence in remission in RA were presented, and future directions were explored.Methods.A special interest group was organized, in which the current data on the patients’ perspective on remission were presented. The ongoing study that aimed to validate measurement instruments for pain, fatigue, and independence in a state of low disease activity or remission was presented, and preliminary data on construct validity and discriminative capacity were evaluated cross-sectionally.Results.At OMERACT 2016, the progress of the working group and preliminary data from 142 of the anticipated 300 patients were presented. Selected instruments significantly correlated with the Disease Activity Score in 28 joints (construct validity) and all instruments except 1 discriminated between patients in and patients not in remission. The subsequent discussion mainly focused around 3 points: (1) the formulation of patient perceived remission, (2) the duration of remission, and (3) the measurement of the domain independence. An informal vote indicated a slight preference for working toward modifying the current remission criteria by adding patient-reported outcomes (PRO), or by substituting the patient’s global assessment with 1 or more PRO.Conclusion.More evidence on measuring patients’ perspective on remission in RA is needed before an informed decision can be made regarding development or modification of remission definitions.



ASHA Leader ◽  
2011 ◽  
Vol 16 (3) ◽  
pp. 22-22
Author(s):  
Ellen R. Cohn


ASHA Leader ◽  
2012 ◽  
Vol 17 (5) ◽  
Author(s):  
Debra Suiter ◽  
Laurie Sterling ◽  
Lynne Brady Wagner




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