Quality of life of chronically ill children from a theoretical perspective

2019 ◽  
Vol LXXX (3) ◽  
pp. 175-189
Author(s):  
Karolina Wiśniewska
Keyword(s):  
Quality Of Life ◽  
Chronic Diseases ◽  
Psychosocial Functioning ◽  
Negative Impact ◽  
Theoretical Perspective ◽  
Chronically Ill ◽  
Health Condition ◽  
Point Of View ◽  
Chronically Ill Children

In the article, I emphasize the interdisciplinary nature of the quality of life concept, which is used in many scientific disciplines. The approach to this issue depends largely on the perspective of the subject that is concerned with this problem. Quality of life changes with age, the level of self-awareness, and social roles and life tasks a person takes on. That is why I have sought to outline the determinants of quality of life and its dimensions. I stress the point that these issues are particularly important from the point of view of chronically ill children, as the development of illness may have a negative impact on their physical, mental, and social spheres. Moreover, the constantly increasing number of children with chronic diseases creates a need for a closer investigation into problems in their psychosocial functioning that are determined by their health condition. The article aims to present the issues of quality of life as well as illness and its impact on the quality of life of children with chronic diseases.

scholarly journals Primary School Teachers’ Awareness of Chronic Diseases of Children

2017 ◽  
Vol 7 (3) ◽  
pp. 111-121
Author(s):  
Barbora Plisková ◽  
Petr Snopek
Keyword(s):  
Chronic Diseases ◽  
Chronically Ill ◽  
Point Of View ◽  
School Age ◽  
Structured Interviews ◽  
School Life ◽  
Common School ◽  
Chronically Ill Children ◽  
School Care

Abstract Introduction: More and more children and adolescents suffering from chronic diseases are included in common school education. Unfortunately, teachers do not feel confident enough about how to cope, fulfil and satisfy the needs of these children in the educational, social and emotional spheres. The aim ofp this part of research was to discover how teachers work with chronically ill children of younger school-age. There were three aims. The first aim was to investigate if teachers have basic awareness and knowledge about selected chronic diseases in children of younger school-age. The second aim was to discover what experience and attitudes towards chronically ill children of younger school-age teachers have. The third aim was to discover, how the quality of school care of chronically ill children of younger school-age can be improved. Methods: We used qualitative research methodology. Data were processed and gathered from semi-structured interviews. Interviews were conducted with 12 teachers. Results: Our findings revealed that teachers should be acquainted with the disease itself and its consequences in all aspects. In some cases, teachers must be acquainted also with the practical aspects of a chronic disease, e.g. first aid and application of drugs and aids in order to assist children if necessary. Discussion: The study offers unique insights into primary teachers’ views and experiences with chronically ill children, how teachers work with chronically ill pupils of younger school-age and how the quality of school care of chronically ill children of younger school-age can be improved. Limitations: The research is still being conducted and therefore, it is not possible to provide more detailed results and conclusions. However, our main aim was to draw attention to the very problem from the point of view of teachers themselves and to highlight their vivid experiences. Conclusions: It is necessary to create interconnected networks of experts and families who will cooperate and communicate and who will participate in satisfying needs of a child together. These networks will ensure that children will be integrated into common school life in spite of their disease without serious consequences affecting their development and education.

Morningness-Eveningness and Health-Related Quality of Life among Adolescents

2012 ◽  
Vol 15 (2) ◽  
pp. 613-623 ◽  
Author(s):  
Pedro Delgado Prieto ◽  
Juan Francisco Díaz-Morales ◽  
Cristina Escribano Barreno ◽  
Mª José Collado Mateo ◽  
Christoph Randler
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Health Indicators ◽  
Well Being ◽  
Health Condition ◽  
Health Related Quality ◽  
School Work ◽  
Related Quality ◽  
Health Related

Accumulating evidence suggests that evening-type adolescents are exposed to a number of determinants that might have a negative impact on their health condition. Given that few studies have investigated the association between chronotype and quality of life measures in large samples of adolescents, the aim of this study was to assess the relationship between morningness-eveningness and health-related quality of life among 1600 adolescents (aged 12-16 years). Adolescents completed the Veçú et Santé Perçue de L'adolescent (VSP-A) and the Morningness-Eveningness Scale for Children (MESC). Girls and older adolescents reported worse health indicators and were more evening oriented. Evening-type adolescents obtained lower scores on vitality, physical and psychological well-being, body image, relations with parents, relations with teachers, school work and global health scale.

scholarly journals Deskripsi Perilaku Kesehatan (Health Behavior) Dan Kualitas Hidup Lansia Suku Dayak Tomun Di Desa Sungai Buluh, Kab. Lamandau, Prov. Kalimantan Tengah

2021 ◽  
Vol 6 (2) ◽  
Author(s):  
Yohana Pera ◽  
Desi Desi ◽  
Dennys Christovel Dese
Keyword(s):  
Quality Of Life ◽  
Health Behavior ◽  
Interpersonal Relationships ◽  
Aging Process ◽  
Social Role ◽  
Negative Impact ◽  
Good Health ◽  
The Elderly ◽  
Health Condition

AbstractBackground: The aging process makes the elderly experience physiological changes, susceptible to various diseases and physical deterioration. Elderly who do not have good health behavior will have a negative impact on their health. The negative impact of the aging process, for example a decline in physical condition, can reduce the level of independence of the elderly, lose their social role in society and mentally they feel inferior because they feel useless. The aging process has a negative impact on the quality of life of the elderly. Purpose: The purpose of this study was to examine the description of health behavior (Health Behavior) and the quality of life of the elderly Dayak Tomun tribe. Methods: This study uses qualitative methods with an approach through in-depth interviews in a semi-structured form. Respondents in this study were taken by purposive sampling amounting to 10 elderly people of the Dayak Tomun Tribe. Results: A supportive environment affects the quality of life of the elderly in the Dayak Tomun tribe, conditions and efforts to maintain / improve physical health, self-image, emotional color and spirituality of the elderly, social values in elderly interpersonal relationships, and elderly health behavior (aspects of knowledge, aspects of attitude and aspects of action). Conclusion: Health behavior of elderly respondents in the Dayak Tomun tribe is seen from the aspects of knowledge, aspects of attitude and aspects of good action. Meanwhile, the quality of life of the respondents is analyzed from 4 aspects, the elderly feel comfortable with their environment, the elderly are able to maintain their health condition, the elderly are able to accept themselves,achieve spiritual prosperity,and have good social relationships. Keywords: Elderly, Quality of Life and Health Behavior

A difference in perception of quality of life in chronically ill children was found between parents and pediatricians

2005 ◽  
Vol 58 (5) ◽  
pp. 495-502 ◽  
Author(s):  
A.J. Janse ◽  
C.S.P.M. Uiterwaal ◽  
R.J.B.J. Gemke ◽  
J.L.L. Kimpen ◽  
G. Sinnema
Keyword(s):  
Quality Of Life ◽  
Chronically Ill ◽  
Perception Of Quality ◽  
Chronically Ill Children

scholarly journals Kualitas Hidup ODHA Di Kecamatan Bongas

2019 ◽  
Vol 7 (2) ◽  
pp. 96-109
Author(s):  
Wenny Nugrahati Carsita ◽  
Mirah Asmi Kusmiran
Keyword(s):  
Quality Of Life ◽  
Quantitative Research ◽  
Negative Impact ◽  
Life Quality ◽  
Sampling Technique ◽  
Health Condition ◽  
Treatment Programs ◽  
People Living With Hiv ◽  
Hiv Aids

HIV / AIDS is a chronic disease that can affect all aspects of a person's life. Bongas is a sub-district with the highest number of cases compared to other sub-districts in Indramayu Regency. HIV / AIDS is reported to not only cause symptoms and complications but also has a negative impact on quality of life. Quality of life will affect the health condition of people living with HIV, especially in treatment programs. The aim of this study was to determine the quality of life of PLWHA in Bongas. This study used a quantitative research with descriptive approach. The sample amounted to 165 respondents with taking consecutive sampling technique. The results of the study were 118 (71.5%) respondents had a good quality of life in physical domain, 84 (50.9%) respondents had a good quality of life in psychological domain, 124 (75.2%) respondents had a good quality of life in social domain, 93 (56.4%) had a good quality of life in the independence domain, 86 (52.1%) respondents had a good quality of life in the environmental domain, and 86 (52.1%) respondents had a good quality of life in the spiritual domain. The conclusion of this study is that PLWHA in Bongas have a good quality of life. Keywords:   Quality of Life, PLWHA

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