Abstract
Background
Previous studies revealed patients with genetic disease have more frequent and longer hospitalizations and therefore higher healthcare costs. To understand the financial impact of genetic disease on a pediatric accountable care organization (ACO), we analyzed medical claims from 2014 provided by Partners for Kids, an ACO in partnership with Nationwide Children’s Hospital (Columbus, Ohio, USA).
Methods
Study population included claims from 258,399 children. We assigned patients to four different categories (1-A, 1-B, 2, & 3) based on the strength of genetic basis of disease.
Results
We identified 22.7% patients as category 1A&B- having a disease with a “strong genetic basis” (e.g., single gene diseases, chromosomal abnormalities). Total ACO paid claims for 2014 were $379M, of which $161M (42.5%) was attributed to category 1 patients. Category 1 patients experienced significantly more inpatient admissions (odds ratio = 4.12), emergency room visits, and outpatient visits compared to patients in category 3- those without genetic disease.
Conclusion
Nearly half (42.5%) of healthcare paid claims cost in 2014 for this study population were accounted for by patients with genetic diseases. These findings precede and support a need for an ACO to plan for effective healthcare strategies and capitation models for children with genetic disease.