Psychometric properties of the Chinese version of the Reproductive Concerns After Cancer Scale (RCAC) for young female cancer survivors

2016 ◽  
Vol 25 (4) ◽  
pp. 1263-1270 ◽  
Author(s):  
Ting-ting Qiao ◽  
Wei Zheng ◽  
Wei Xing ◽  
Li-xia Zhang ◽  
Wei Zhang ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Psychometric Properties ◽  
Young Female ◽  
Chinese Version ◽  
Reproductive Concerns ◽  
After Cancer ◽  
Female Cancer Survivors

scholarly journals Cultural adaptation and psychometric evaluation of the Swedish version of the Reproductive Concerns After Cancer (RCAC) scale

2020 ◽  
Author(s):  
Poorna Anandavadivelan ◽  
Maria Wiklander ◽  
Lars E. Eriksson ◽  
Lena Wettergren ◽  
Claudia Lampic
Keyword(s):  
Cancer Survivors ◽  
Psychometric Properties ◽  
Cultural Adaptation ◽  
Convergent Validity ◽  
Breast Cancer Survivors ◽  
Psychometric Evaluation ◽  
Confirmatory Factor ◽  
Reproductive Concerns ◽  
After Cancer ◽  
Child Wish

Abstract Background Reproductive concerns are common among young cancer survivors and include worries related to different aspects of fertility and parenthood. The Reproductive Concerns After Cancer (RCAC) scale is an 18-item scale with six dimensions, developed to capture a variety of such concerns. The aim of the present study was to culturally adapt the RCAC scale into Swedish and evaluate its psychometric properties among young women with cancer experience. Methods The RCAC was forward-translated from English into Swedish and assessed for cultural adaptation based on a two-panel approach followed by cognitive interviews with representatives of the target group. For the psychometric evaluation, a Swedish cohort of 181 young adult breast cancer survivors completed a survey including the RCAC scale approximately 1.5 years post-diagnosis. Investigation of the psychometric properties included analyses of construct validity (confirmatory factor analysis and convergent validity), data quality (score distribution, floor and ceiling effects), reliability (Cronbach’s α) and known-groups validity based on current child wish. Results The breast cancer survivors had a mean age of 36.5 (SD 4.1) years and a third of them expressed a current wish for (additional) children. The confirmatory factor analysis yielded a satisfactory fit (RMSEA 0.08, SRMR 0.09, CFI 0.92). Convergent validity was demonstrated by a negative correlation with moderate effect size (-0.361) between the RCAC total score and the emotional functional scale of EORTC QLQ-C30. Reliability was in the acceptable range (α= 0.78-0.92) for four of the dimensions, nearly acceptable for Personal health (α, 0.68) and poor for Becoming pregnant (α= 0.54). Known-groups validity was indicated by significantly higher RCAC mean score differences (MD), reflecting more concerns, among women with a certain (MD 4.56 [95% CI 3.13 to 5.99]) or uncertain (MD 3.41 [95% CI 1.68 to 5.14]) child wish, compared to those with no wish for (additional) children. Conclusion The Swedish RCAC scale demonstrated satisfactory reproducibility of the original RCAC scale with acceptable convergent and known-groups validity, but satisfactory reliability was not achieved for all dimensions. The Swedish RCAC scale exhibits adequate psychometric properties and could be useful for assessment of reproductive concerns in young adult female cancer survivors in Sweden.

scholarly journals Young adult female cancer survivors' unmet information needs and reproductive concerns contribute to decisional conflict regarding posttreatment fertility preservation

Cancer ◽  
2016 ◽  
Vol 122 (13) ◽  
pp. 2101-2109 ◽  
Author(s):  
Catherine Benedict ◽  
Bridgette Thom ◽  
Danielle N. Friedman ◽  
Debbie Diotallevi ◽  
Elaine M. Pottenger ◽  
...  
Keyword(s):  
Young Adult ◽  
Cancer Survivors ◽  
Fertility Preservation ◽  
Adult Female ◽  
Information Needs ◽  
Decisional Conflict ◽  
Reproductive Concerns ◽  
Female Cancer Survivors

Adaptation and feasibility of a multimodal mindfulness-based intervention to promote sexual health in cancer survivorship

2021 ◽  
Author(s):  
Jessica R Gorman ◽  
Julia H Drizin ◽  
Fatima A Al-Ghadban ◽  
Katharine A Rendle
Keyword(s):  
Sexual Health ◽  
Cancer Survivors ◽  
Healthcare Providers ◽  
Community Setting ◽  
Key Informant ◽  
Initial Intervention ◽  
Implementation And Dissemination ◽  
Quantitative Results ◽  
After Cancer ◽  
Female Cancer Survivors

Abstract Sexual health concerns after cancer are common and distressing, and mindfulness-based interventions (MBIs) are effective in supporting women experiencing these concerns. The goals of this study were to: (i) systematically adapt and document modifications to a mindfulness-based sexual health intervention for cancer survivors in a community setting and (ii) assess feasibility, appropriateness, and acceptability, and to identify strategies to increase reach for future implementation and dissemination. Following the ADAPT-ITT model, we first conducted key informant interviews with 10 female cancer survivors and four healthcare providers to obtain feedback on perceived need and feasibility of the intervention approach, and preferences for content, structure, and delivery format. This feedback informed initial intervention adaptations, which we then pretested with five female cancer survivors. We tracked and coded intervention adaptations. Key informant cancer survivors and providers confirmed the lack of sexual health services, acceptability of a sexual health MBI, and identified initial adaptations including modifying the intervention for delivery in a community, rather than clinical, setting. Pretest participants (aged 48–57) were survivors of breast (n = 4) and cervical (n = 1) cancer. All participants completed the intervention attending an average of 7.2 of 8 weekly sessions. Qualitative and quantitative results suggest the intervention was feasible, appropriate and acceptable. Engaging stakeholders in the adaptation process is essential for creating a feasible, appropriate, and acceptable intervention. Tracking intervention modifications contributes to our overall understanding of how MBIs can be adapted for new populations and contexts.

scholarly journals Self-collected dried blood spots as a tool for measuring ovarian reserve in young female cancer survivors

2016 ◽  
Vol 31 (7) ◽  
pp. 1570-1578 ◽  
Author(s):  
S.C. Roberts ◽  
S.M. Seav ◽  
T.W. McDade ◽  
S.A. Dominick ◽  
J.R. Gorman ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Ovarian Reserve ◽  
Dried Blood Spots ◽  
Young Female ◽  
Blood Spots ◽  
Female Cancer Survivors

scholarly journals Psychometric Properties of the Chinese Version of the Eating Attitudes Test in Young Female Patients with Eating Disorders in Mainland China

2017 ◽  
Vol 25 (6) ◽  
pp. 613-617 ◽  
Author(s):  
Qing Kang ◽  
Raymond C.K. Chan ◽  
Xiaoping Li ◽  
Jon Arcelus ◽  
Ling Yue ◽  
...  
Keyword(s):  
Eating Disorders ◽  
Psychometric Properties ◽  
Mainland China ◽  
Young Female ◽  
Eating Attitudes ◽  
Chinese Version ◽  
Eating Attitudes Test ◽  
Female Patients

Young adult female cancer survivors’ concerns about genetic cancer risk in offspring.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 121-121
Author(s):  
Nirupa Jaya Raghunathan ◽  
Bridgette Thom ◽  
Danielle Novetsky Friedman ◽  
Catherine Benedict ◽  
Joanne Frankel Kelvin
Keyword(s):  
Young Adult ◽  
Cancer Risk ◽  
Cancer Survivors ◽  
Adult Female ◽  
Genetic Diagnosis ◽  
Family Health ◽  
Genetic Mutations ◽  
Accurate Information ◽  
Reproductive Concerns ◽  
Female Cancer Survivors

121 Background: More than 362,000 female cancer survivors under 40 years old live in the US. Research consistently shows no increased cancer risk among offspring of cancer survivors in the absence of a hereditary cancer. Still survivors voice concerns over the health of future children. This analysis explores young adult female cancer survivors’ (YAFCS) perceptions of genetic cancer risk and related reproductive concerns. Methods: Eligible females were aged 18-35, at least one year post-treatment. Participants were recruited using social media posts from 17 young adult cancer advocacy groups and directed to an anonymous web-based survey that included the Reproductive Concerns after Cancer Scale (RCACS), with a 3-item “Concerns about Future Child Health” subscale. Results: 346 YAFCS completed the full survey, and based on logic-based branching, 192 respondents could have completed the RCACS: 177 (92%) completed the entire scale and 187 (97%) completed the child’s health subscale. Mean RCACS score was 58.5 (sd = 11.6; range 22-86); mean child’s health score was 11.3 (sd = 3.3; range 3-15), with a negative skew. At the item-level, 65% of the sample worried about passing along cancer risk to offspring; 71% worried about family health history affecting future children; and 60% were afraid their children would have a high chance of getting cancer. RCACS and child’s health subscale scores did not vary by age, race, education, income, or diagnosis. Further, mean scores did not vary between survivors of family cancer syndromes (breast, ovarian, colorectal) and those with other diagnoses (RCACS: t = 1.4, df = 175, p = .14; child’s health: t = 0.02, df = 185, p = .99). Conclusions: Despite studies showing minimal genetic cancer risk in offspring of survivors, many YAFCS have concerns about the health of future children. This may be related to mistaken beliefs that genetic mutations within tumor cells are transmissible or unawareness of availability of pre-implantation genetic diagnosis for embryo selection in those with transmissible genetic mutations. There is a need to educate patients about these issues to enable them to make family building choices based on accurate information about genetic risk.

The prevalence of self-reported reproductive impairment in young female cancer survivors throughout California

2010 ◽  
Vol 94 (4) ◽  
pp. S10 ◽  
Author(s):  
J.M. Letourneau ◽  
P.M. Katz ◽  
J.F. Smith ◽  
K. Oktay ◽  
M.I. Cedars ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Young Female ◽  
Reproductive Impairment ◽  
Female Cancer Survivors

scholarly journals Toward a theoretical understanding of young female cancer survivors’ decision-making about family-building post-treatment

2020 ◽  
Vol 28 (10) ◽  
pp. 4857-4867 ◽  
Author(s):  
Catherine Benedict ◽  
Alexandria L. Hahn ◽  
Alyssa McCready ◽  
Joanne F. Kelvin ◽  
Michael Diefenbach ◽  
...  
Keyword(s):  
Decision Making ◽  
Cancer Survivors ◽  
Young Female ◽  
Post Treatment ◽  
Theoretical Understanding ◽  
Family Building ◽  
Female Cancer Survivors
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