Social inequalities in supportive care needs and quality of patient-centered care of cancer patients in Mexico

2020 ◽  
Author(s):  
Svetlana V. Doubova ◽  
Ingrid Patricia Martinez-Vega ◽  
Claudia Infante-Castañeda ◽  
Carlos E. Aranda-Flores ◽  
Felicia M Knaul ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Patients ◽  
Social Inequalities ◽  
Patient Centered Care ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Patient Centered ◽  
Centered Care

scholarly journals Cross-cultural adaptation and validation of the cancer survivors’ unmet needs measure among gynecological cancer patients in Indonesia

2020 ◽  
Vol 26 (2) ◽  
pp. 23-29
Author(s):  
Haryani Haryani ◽  
Yati Afiyanti ◽  
Besral Besral ◽  
Dewi Gayatri ◽  
Kemala Wahidi ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Survivors ◽  
Cancer Patients ◽  
Cultural Adaptation ◽  
Unmet Needs ◽  
Gynecological Cancer ◽  
Cross Cultural ◽  
Supportive Care Needs ◽  
Care Needs

Background: The number of gynecological cancer survivors in Indonesia is growing, yet little is recognized about their supportive care needs due to a lack of validated assessment to measure them. This study aimed to culturally adapt the Cancer survivors? unmet needs into Indonesian language and to test its validity and reliability for Indonesian gynecological cancer patients. Methods: We performed the translation and adaptation of the Cancer survivors? unmet needs based on Beaton?s cross-cultural adaptation process of self-report measure. We then evaluated the psychometric properties of Cancer survivors? unmet needs -Indonesian with 298 participants from three hospitals across Indonesia. Results: Five factors were extracted from Exploratory Factor Analysis with factor loading >0.4. Cancer survivors? unmet needs - Indonesian had negative correlations with The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-C30, indicating that the higher score of unmet needs resulted in the lower score of quality of life. The Cronbach?s ? coefficient for the Cancer survivors? unmet needs - Indonesian ranged from 0.75-0.95. Conclusions: The Cancer survivors? unmet needs - Indonesian version offers a valid and reliable scale for assessing supportive care needs among Indonesian gynecological cancer patients. The Cancer survivors? unmet needs-Indonesian could help clinicians to assess supportive care needs among Indonesian gynecological cancer patients. The low-resource countries such as Indonesia could use the evidence from the Cancer survivors? unmet needs assessment to develop the supportive care service in the clinical settings.

scholarly journals Pattern and Predictors of Unmet Supportive Care Needs in Cancer Patients

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 117s-117s
Author(s):  
P. Okediji ◽  
O. Salako ◽  
O. Fatiregun
Keyword(s):  
Quality Of Life ◽  
Supportive Care ◽  
Cancer Patients ◽  
Cancer Care ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Emotional Instability ◽  
Care Needs ◽  
Wide Range

Background: The incidence of cancers is increasing, and this is associated with an increase in the burden of the disease. Patients with cancer have to deal with reduced physical functioning, emotional instability, difficulty in concentrating, and an overall diminished feeling of well-being. This creates deficits that have not been well catered for by traditional cancer care, leading to an overall dissatisfaction with care, and a reduced quality of life. Aim: This review aims at assessing the pattern of unmet needs in cancer patients and to provide information as to the factors that influence the perception of unmet needs. Methods: Studies directly focused on unmet needs in cancer patients were retrieved from MEDLINE, PubMed, PsychINFO, Embase, and Google Scholar; from the earliest records until 2016. Unmet needs in cancer patients have been measured with a wide variety of tools, with the Supportive Care Needs Survey (SCNS) being the most commonly used as a result of its strong psychometric properties, ease of use, responsiveness, and its coverage of all the domains of unmet needs. Results: The most common unmet needs were in the domains of health system and information, psychological, and physical and daily living. These needs were influenced by sociodemographic factors such as age, sex, marital status, income level; and clinical factors such as location of cancer, stage of disease, and tumor size. Conclusion: It is clear that cancer patients experience a wide range of unmet supportive needs, for which efforts need to be desperately made to improve the supportive care services for these patients and their quality of life. While it may not be possible to meet all the needs of every cancer patient, routine and regular monitoring of unmet needs using the appropriate tools is crucial so that cancer care and other health professionals can develop, implement, and streamline specific aspects of cancer care to strategically meet the specific needs of their patients.

Head and neck cancer patients want us to support them psychologically in the posttreatment period: Survey results

2013 ◽  
Vol 12 (6) ◽  
pp. 481-493 ◽  
Author(s):  
Melissa Henry ◽  
Laura-Anne Habib ◽  
Matthew Morrison ◽  
Ji Wei Yang ◽  
Xuejiao Joanna Li ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Head And Neck Cancer ◽  
Supportive Care ◽  
Head And Neck ◽  
Cancer Patients ◽  
Neck Cancer ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs

AbstractObjectives:No study systematically has investigated the supportive care needs of general head and neck cancer patients using validated measures. These needs include physical and daily living needs, health system and information needs, patient care and support needs, psychological needs, and sexuality needs. Identifying the unmet needs of head and neck cancer patients is a necessary first step to improving the care we provide to patients seen in our head and neck oncology clinics. It is recommended as the first step in intervention development in the Pan-Canadian Clinical Practice Guideline of the Canadian Partnership Against Cancer (see Howell, 2009). This study aimed to identify: (1) met and unmet supportive care needs of head and neck cancer patients, and (2) variability in needs according to demographics, disease variables, level of distress, and quality-of-life domains.Methods:Participants were recruited from the otolaryngology–head and neck surgery clinics of two university teaching hospitals. Self-administered questionnaires included sociodemographic and medical questions, as well as validated measures such as the Supportive Care Needs Survey–Short Form (SCNS-SF34), the Hospital Anxiety and Depression Scale (HADS), and the Functional Assessment of Cancer Therapy–General (FACT-G) and Head and Neck Module (FACT-H&N) (quality of life measures).Results:One hundred and twenty-seven patients participated in the survey. 68% of them experienced unmet needs, and 25% revealed a clinically significant distress level on the HADS. The highest unmet needs were psychological (7 of top 10 needs). A multiple linear regression indicated a higher level of overall unmet needs when patients were divorced, had a high level of anxiety (HADS subscale), were in poor physical condition, or had a diminished emotional quality of life (FACT-G subscales).Significance of results:The results of this study highlight the overwhelming presence of unmet psychological needs in head and neck cancer patients and underline the importance of implementing interventions to address these areas perceived by patients as important. In line with hospital resource allocation and cost-effectiveness, one may also contemplate screening patients for high levels of anxiety, as well as target patients who are divorced and present low levels of physical well-being, as these patients may have more overall needs to be met.

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