Breast cancer-related lymphedema patient and healthcare professional experiences in lymphedema self-management: a qualitative study

2021 ◽  
Author(s):  
Huihui Zhao ◽  
Yanni Wu ◽  
Chunlan Zhou ◽  
Wenji Li ◽  
Xiaojin Li ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Healthcare Professional ◽  
Qualitative Study ◽  
Self Management ◽  
Professional Experiences ◽  
Breast Cancer Related Lymphedema

scholarly journals Healthcare Professional Experiences of Clinical Incident in Hong Kong: A Qualitative Study

2021 ◽  
Vol Volume 14 ◽  
pp. 947-957
Author(s):  
Leung Andrew Luk ◽  
Fung Kam Iris Lee ◽  
Chi Shan Lam ◽  
Hing Yu So ◽  
Yuk Yi Michelle Wong ◽  
...  
Keyword(s):  
Hong Kong ◽  
Healthcare Professional ◽  
Qualitative Study ◽  
Professional Experiences

scholarly journals The effectiveness of an interactive theatre intervention on improving patient adherence to self-management regimens for breast cancer-related lymphedema

2016 ◽  
Author(s):  
◽  
Pamela L. Ostby
Keyword(s):  
Breast Cancer ◽  
Health Care Providers ◽  
Symptom Management ◽  
Patient Adherence ◽  
Self Regulation ◽  
Alternative Methods ◽  
Self Management ◽  
Care Providers ◽  
Interactive Theatre ◽  
Breast Cancer Related Lymphedema

Breast cancer survivors are at lifetime risk for the development of breast cancer-related lymphedema (BCRL), a chronic, potentially-debilitating, and -disfiguring condition that requires life-long symptom management. Adherence to BCRL self-management is critical to preventing BCRL progression and complications; however, barriers to effective self-management, including complexities of treatment, can negatively affect adherence. Preliminary work for this study has identified physiological, psychological, and psychosocial barriers to successful BCRL self-management. One of the main barriers identified was lack of BCRL education and support for both patients and health care providers, suggesting a need for alternative methods of providing education and support. Currently, printed information is commonly used for patient education and support. This randomized study compared printed information about BCRL to printed information about BCRL and attendance at an Interactive Theatre (IT) performance (n = 36 participants; 19/17). Circumferential and perometric measures were taken at baseline to document BCRL status and valid, reliable questionnaires relevant to symptom management, self-efficacy, and self-regulation were administered pre- and post-intervention. An interactive approach to BCRL education and support with self-management has potential to improve patient outcomes of adherence and coping with BCRL.

scholarly journals Effect of lymphedema self-management group-based education compared with social network-based education on quality of life and fear of cancer recurrence in women with breast cancer: a randomized controlled clinical trial

2020 ◽  
Vol 29 (7) ◽  
pp. 1789-1800 ◽  
Author(s):  
Zahra Omidi ◽  
Masoomeh Kheirkhah ◽  
Jamileh Abolghasemi ◽  
Shahpar Haghighat
Keyword(s):  
Breast Cancer ◽  
Social Network ◽  
Cancer Recurrence ◽  
Fear Of Cancer Recurrence ◽  
Self Management ◽  
The Social ◽  
Main Effect ◽  
Breast Cancer Related Lymphedema ◽  
Fear Of Cancer

Abstract Background Breast cancer-related lymphedema (BCRL) and its associated symptoms harm the quality of life (QoL) of cancer survivors and can stimulate fear of cancer recurrence (FCR). Self-management education for lymphedema has been introduced as an effective method in controlling FCR. This study investigates the effect of lymphedema group-based education compared to the social network-based and control group on QoL and FCR in breast cancer patients. Methods This three-arm clinical trial studied 105 patients with breast cancer-related lymphedema referred to Seyed_Khandan rehabilitation center. Sampling was done by random allocation method in blocks of 3 with 35 subjects in each group. All subjects received routine lymphedema treatments. The group-based education (GE) and social network-based education (SNE) groups received self-management education in the clinic and Telegram™ messenger channel, respectively. Impairment in QoL and mean score of FCR were assessed before, immediately after, and three months after the intervention by using the Persian version of Lymphedema Life Impact Scale (LLIS) and Fear of Progression Questionnaire-Short Form (FoPQ-SF), respectively. Mixed-model ANOVA was applied for statistical analysis. Results There was a significant time effect on total LLIS (P = 0.007), psychosocial (P = 0.038) and functional (P = 0.024) subscale changes in three groups of study. Interaction between the main effect of group and time on psychosocial subscale changes was statistically significant (P = 0.017). The multicomparison results illustrated that the main effect of time, the main effect of group, and interaction of them on the mean score of FCR were P = 0.084, P = 0.380, and P = 0.568, respectively. Conclusion Despite no significant reduction in the FCR score, results showed the improvement of most QoL aspects after three months of intervention. Although the social network-based education method was effective, the group-based education method was more beneficial. Applying these educational methods in lymphedema treatment protocols needs cost-effectiveness studies. Trial registration This study was registered at the Iranian Registry of Clinical Trials (IRCT2017052834176N1).

Psychosocial factors associated with adherence for self-management behaviors in women with breast cancer-related lymphedema

2015 ◽  
Vol 24 (1) ◽  
pp. 139-146 ◽  
Author(s):  
Jessica Alcorso ◽  
Kerry A. Sherman ◽  
Louise Koelmeyer ◽  
Helen Mackie ◽  
John Boyages
Keyword(s):  
Breast Cancer ◽  
Psychosocial Factors ◽  
Self Management ◽  
Factors Associated ◽  
Breast Cancer Related Lymphedema ◽  
Management Behaviors

Self-management Strategies for Risk Reduction of Subclinical and Mild Stage of Breast Cancer–Related Lymphedema

2020 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Fei Liu ◽  
Fenglian Li ◽  
Mei R. Fu ◽  
Quanping Zhao ◽  
Yingxin Wang ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Risk Reduction ◽  
Management Strategies ◽  
Self Management ◽  
Breast Cancer Related Lymphedema

scholarly journals Patient Perceptions of Barriers to Self-Management of Breast Cancer–Related Lymphedema

2017 ◽  
Vol 40 (12) ◽  
pp. 1800-1817 ◽  
Author(s):  
Pamela L. Ostby ◽  
Jane M. Armer ◽  
Kandis Smith ◽  
Bob R. Stewart
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Health Care Providers ◽  
Breast Cancer Survivors ◽  
Institutional Review Board ◽  
Self Management ◽  
Care Providers ◽  
Perceived Needs ◽  
Institutional Review ◽  
Breast Cancer Related Lymphedema

Breast cancer survivors are at lifetime risk for the development of breast cancer–related lymphedema, a chronic, potentially debilitating condition that requires life-long symptom management. Suboptimal self-management rates suggest that health care providers may not be offering educative-support options that are customized to patient-perceived needs. An Institutional Review Board–approved focus group ( N = 9) and mailed surveys ( N = 15) were used to identify (a) barriers to lymphedema self-management, (b) how breast cancer survivors with lymphedema defined education and support, (c) what type of education and support they had received, and (d) what kind of education and support they wanted. Physiological, psychological, and psychosocial factors were identified as barriers to successful lymphedema self-management. One of the main barriers identified was lack of education about lymphedema treatment and risk reduction. In addition, more than half defined support as “prescriptions” and “referrals”; therefore, it is unclear whether patients were exposed to support other than medical treatment.

The Remotivation Process as a Telehealth OT Program to Promote Self-Management in Women With Breast-Cancer-Related Lymphedema

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512515332p1-7512515332p1
Author(s):  
Kaye Rubio ◽  
Patricia Bowyer ◽  
Sherry Hite ◽  
Vidya Pingale ◽  
Wyona Freysteinson ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Outcome Measures ◽  
Self Management ◽  
Breast Cancer Related Lymphedema ◽  
Motivational Needs ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Lymphedema affects 65% of women with breast cancer. Self-management programs (SMPs) are used to manage lymphedema. The study explored the effect of the Remotivation Process on the motivation of 12 women to perform a SMP every day. It was provided through a telehealth platform. Analysis showed significant changes in motivation and outcome measures. This study found that the Remotivation Process is a potentially useful OT intervention to address the motivational needs of women with lymphedema. Primary Author and Speaker: Kaye Rubio Contributing Authors: Patricia Bowyer, Sherry Hite, Vidya Pingale, Wyona Freysteinson, Gayle Hersch, and Christine Raber

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