scholarly journals The effectiveness of an interactive theatre intervention on improving patient adherence to self-management regimens for breast cancer-related lymphedema

2016 ◽  
Author(s):  
◽  
Pamela L. Ostby
Keyword(s):  
Breast Cancer ◽  
Health Care Providers ◽  
Symptom Management ◽  
Patient Adherence ◽  
Self Regulation ◽  
Alternative Methods ◽  
Self Management ◽  
Care Providers ◽  
Interactive Theatre ◽  
Breast Cancer Related Lymphedema

Breast cancer survivors are at lifetime risk for the development of breast cancer-related lymphedema (BCRL), a chronic, potentially-debilitating, and -disfiguring condition that requires life-long symptom management. Adherence to BCRL self-management is critical to preventing BCRL progression and complications; however, barriers to effective self-management, including complexities of treatment, can negatively affect adherence. Preliminary work for this study has identified physiological, psychological, and psychosocial barriers to successful BCRL self-management. One of the main barriers identified was lack of BCRL education and support for both patients and health care providers, suggesting a need for alternative methods of providing education and support. Currently, printed information is commonly used for patient education and support. This randomized study compared printed information about BCRL to printed information about BCRL and attendance at an Interactive Theatre (IT) performance (n = 36 participants; 19/17). Circumferential and perometric measures were taken at baseline to document BCRL status and valid, reliable questionnaires relevant to symptom management, self-efficacy, and self-regulation were administered pre- and post-intervention. An interactive approach to BCRL education and support with self-management has potential to improve patient outcomes of adherence and coping with BCRL.

scholarly journals Patient Perceptions of Barriers to Self-Management of Breast Cancer–Related Lymphedema

2017 ◽  
Vol 40 (12) ◽  
pp. 1800-1817 ◽  
Author(s):  
Pamela L. Ostby ◽  
Jane M. Armer ◽  
Kandis Smith ◽  
Bob R. Stewart
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Health Care Providers ◽  
Breast Cancer Survivors ◽  
Institutional Review Board ◽  
Self Management ◽  
Care Providers ◽  
Perceived Needs ◽  
Institutional Review ◽  
Breast Cancer Related Lymphedema

Breast cancer survivors are at lifetime risk for the development of breast cancer–related lymphedema, a chronic, potentially debilitating condition that requires life-long symptom management. Suboptimal self-management rates suggest that health care providers may not be offering educative-support options that are customized to patient-perceived needs. An Institutional Review Board–approved focus group ( N = 9) and mailed surveys ( N = 15) were used to identify (a) barriers to lymphedema self-management, (b) how breast cancer survivors with lymphedema defined education and support, (c) what type of education and support they had received, and (d) what kind of education and support they wanted. Physiological, psychological, and psychosocial factors were identified as barriers to successful lymphedema self-management. One of the main barriers identified was lack of education about lymphedema treatment and risk reduction. In addition, more than half defined support as “prescriptions” and “referrals”; therefore, it is unclear whether patients were exposed to support other than medical treatment.

scholarly journals Pilot Study Evaluating the Usability and Acceptability of a Mobile App for Overactive Bladder Disease Management (Preprint)

2018 ◽  
Author(s):  
Connor Devoe ◽  
Sunetra Bane ◽  
Jaclyn Hirschey ◽  
Ramya Palacholla ◽  
Amanda Centi ◽  
...  
Keyword(s):  
Overactive Bladder ◽  
Health Care Providers ◽  
Symptom Management ◽  
Primary Care Providers ◽  
Mobile App ◽  
Perceived Usefulness ◽  
Self Management ◽  
Free Text ◽  
Care Providers ◽  
Participant Engagement

BACKGROUND Overactive bladder (OAB), defined by urinary urgency with or without urge urinary incontinence (UI), usually with frequency and nocturia, can significantly impact patient’s quality of life. Tracking symptoms is an important part of OAB management and has been shown to assist in enhancing patient interaction with health care providers (HCP) when discussing solutions for symptom management. OBJECTIVE The primary goal of this study was to assess the usability and acceptability of an Android smartphone mobile app designed to help participants learn about OAB symptom management through tracking and self-management. Secondarily, we also assessed engagement with the app over the three-month study period. METHODS Eligible participants were experiencing OAB symptoms without an existing enlarged prostate or urinary tract infection (BPH/UTI), and enrolled through referrals from within the Partners Healthcare network. The mobile app was installed at the enrollment visit, and participants were instructed to complete monthly, 3-day symptom journals, as well as surveys and optional free-text notes for 12 weeks. Additionally, medication reminders, Kegel and bladder training exercises were available for use in the app. A visit with their HCP was scheduled between weeks 6 and 12 of the study for the HCP and participant to review collected symptom data via an app-linked portal. Qualitative input from the HCP, closeout participant interviews and app usage data (percent viewed and number of hits) were used to assess participant engagement. Closeout interviews (n=10) also assessed usability of the various app features. Demographic and usability satisfaction data were collected via questionnaires developed by investigators. Descriptive analyses were conducted to present the demographic and usability data. NVivo for Mac (version 11) was used to conduct a thematic analysis on qualitative data. RESULTS Of the total enrolled (n=33), 26 participants completed the study. Participant engagement with the app was 100% for months one and two of the study then dropped to 72% by month three. Most participants (80%) reported using the app as needed vs regularly. As a group, female participants >50 years demonstrated the highest engagement (75%) at closeout. The most used app feature was the free-text diary feature (100%; 5516 hits), followed by the “event log” (100%; 2105 hits). The majority of other app features were also rated as useful by participants (52-100%). Participant interviews found the app was a valuable OAB information source, simplifying symptom tracking and follow-through on clinician recommendations. Perceived usefulness of the portal varied between primary care providers and specialists. Participants indicated the app was “Easy to Learn” (96%), “Simple to Use” (92%), useful for understanding changes in symptoms (91%), enabled better symptom tracking (96%), and facilitated communication with their HCP (75%). CONCLUSIONS A mobile app to increase awareness of OAB symptoms improved confidence in self-management for participants and increased access to data for decision making and participant communication for specialists. Participant-reported outcomes indicate that the tracking void frequency and urgency features were very useful, while other features such as medication reminders, pad usage, bladder and Kegel trainings were used less frequently among participants.

scholarly journals Gestational diabetes mellitus: a qualitative study of lived experiences of South Asian immigrant women and perspectives of their health care providers in Melbourne, Australia

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Mridula Bandyopadhyay
Keyword(s):  
Health Care ◽  
Gestational Diabetes ◽  
South Asian ◽  
Health Care Providers ◽  
Lived Experiences ◽  
Lifestyle Modification ◽  
Self Management ◽  
Asian Women ◽  
Care Providers ◽  
South Asian Women

Abstract Background South Asian women are at a high risk of developing gestational diabetes mellitus than other women in Australia. Gestational diabetes affects up to 14–19% of all pregnancies among South Asian, South East Asian, and Arabic populations placing women at risk of adverse pregnancy outcomes. Although, gestational diabetes resolves after childbirth, women with gestational diabetes are up to seven times more likely to develop type 2 diabetes within five to ten years of the index pregnancy. Increasingly, South Asian women are being diagnosed with gestational diabetes in Australia. Therefore, we aimed to gain a better understanding of the lived experiences of South Asian women and their experiences of self-management and their health care providers’ perspectives of treatment strategies. Methods Using an ethnographic qualitative research methodology, semi-structured one-on-one, face-to-face interviews were conducted with 21 health care providers involved in gestational diabetes management and treatment from the three largest tertiary level maternity hospitals in Melbourne, Victoria, Australia. In-depth interviews were conducted with 23 South Asian women post diagnosis between 24–28 weeks gestation in pregnancy. Results Health care providers had challenges in providing care to South Asian women. The main challenge was to get women to self-manage their blood glucose levels with lifestyle modification. Whilst, women felt self-management information provided were inadequate and inappropriate to their needs. Women felt ‘losing control over their pregnancy’, because of being preoccupied with diet and exercise to control their blood glucose level. Conclusions The gestational diabetes clinical practice at the study hospitals were unable to meet consumer expectations. Health care providers need to be familiar of diverse patient cultures, rather than applying the current ‘one size fits all’ approach that failed to engage and meet the needs of immigrant and ethnic women. Future enabling strategies should aim to co-design and develop low Glycaemic Index diet plans of staple South Asian foods and lifestyle modification messages.

scholarly journals Managing Sexual Dysfunction For Women With Breast Cancer: The Perspective Of Health Care Providers In North East Malaysia.

2021 ◽  
Author(s):  
Siti Balqis Chanmekun ◽  
Maryam Mohd Zulkifli ◽  
Rosediani Muhamad ◽  
Norhasmah Mohd Zain ◽  
Wah Yun Low ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Sexual Dysfunction ◽  
Sexual Health ◽  
Health Care Providers ◽  
Thematic Analysis ◽  
Healthcare Providers ◽  
Phenomenological Approach ◽  
Care Providers ◽  
North East ◽  
East Malaysia

Abstract Purpose: Management of female sexual dysfunction (FSD) is vital for women with breast cancer due to the devastating consequences, which include marital disharmony and reduced quality of life. We explore healthcare providers’ (HCPs) perceptions and experiences in managing FSD for women living with breast cancer using phenomenological approach. Methods: This qualitative study was conducted using a face-to-face interview method to HCPs from two tertiary hospitals in North East Malaysia. The interviews were recorded, transcribed verbatim, and transferred to NVivo ® for data management. The transcriptions were analyzed using thematic analysis. Results: Three key barriers were identified through the thematic analysis: a scarcity of related knowledge; the influence of socio-cultural ideas about sex; and the speciality-centric nature of the healthcare system. Most HCPs interviewed had a very narrow understanding of sexuality, were unfamiliar with the meaning of FSD, and felt their training on sexual health issues to be very limited. They viewed talking about sex to be embarrassing to both parties that is, both to HCPs and patients and was therefore not a priority. They focused more on their specialty hence limited the time to discuss sexual health and FSD with their patients. Conclusion: Therefore, interventions to empower the knowledge, break the sociocultural barriers and improve the clinic settings are crucial for HCPs in managing FSD confidently.

scholarly journals Patients’ Views on Self-Management of Chronic Musculoskeletal Pain

2020 ◽  
Vol 5 (4) ◽  
pp. 254-266
Author(s):  
Barbka Huzjan ◽  
Ivana Hrvatin
Keyword(s):  
Health Care ◽  
Chronic Pain ◽  
Musculoskeletal Pain ◽  
Health Care Providers ◽  
Multidisciplinary Approach ◽  
Research Question ◽  
Chronic Musculoskeletal Pain ◽  
Self Management ◽  
Care Providers ◽  
The Individual

Research Question (RQ): Chronic musculoskeletal pain is a complex condition and one of the most important causes of suffering of modern times. Self-management refers to the individual’s ability to manage the symptoms, treatment, physical and psychosocial consequences and life style changes inherent in living with a chronic condition. The research question is; what is the view on the selfmanagement of chronic musculoskeletal pain from the patient's perspective? Purpose: The purpose of this literature review was to review original articles that reported how selfmanagement educational programmes are viewed from the patient’s perspective. Method: We used an integrative review of the literature. The search was conducted from November 2019 to March 2020 on the PubMed, PEDro and OTseeker databases. We included original studies, written in English that examined the patients’ point of view on self-management. The included studies, needed to be conducted on adult patients of both sexes, that were suffering from chronic pain and were educated on self-management of their pain. Two authors independently searched for original studies. Results: Nine article were included in the review. Most of the studies included a multidisciplinary approach. Patients reported they more frequently used passive strategies to manage their pain. They want to be included in the management and be able to communicate with the provider of selfmanagement. There are several positive aspects of a multidisciplinary and groups approach. Organization: Health care providers can encourage an individual to proactively behave through ongoing processes of communication, partnerships and the creation of appropriate self-management plans over time. Society: We assume that the analysis will help to identify the social responsibility of the individual and society in the common concern for the health of the population and the individual within it. Originality: The research provides an up-to-date, new overview of the patients' perspective on self management on chronic pain. The review can be helpful to health care providers s they can compare their expectations with patients's. Limitations / further research: Further research would focus on high quality studies, and specific forms of multidisciplinary approach, and finding what patients use at a home setting and how to help them continue in the self management of their pain. Limitations of this review include the lack of risk of bias assessment and the fact that this is not a systematic review.

scholarly journals Provider perspectives on barriers and facilitators to adjuvant endocrine therapy-related symptom management.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 155-155
Author(s):  
Cleo A. Samuel ◽  
Kea Turner ◽  
Heidi AS Donovan ◽  
G J. Van Londen
Keyword(s):  
Health Care ◽  
Endocrine Therapy ◽  
Health Care Providers ◽  
Symptom Management ◽  
Adjuvant Endocrine Therapy ◽  
Barriers And Facilitators ◽  
System Level ◽  
Care Providers ◽  
Provider Perspectives ◽  
Related Symptom

155 Background: Adjuvant endocrine therapy (AET)-related symptom management (SM) among breast cancer survivors (BCS) typically involves a multidisciplinary team of health care providers; yet few studies have examined provider perspectives on AET-related SM. The purpose of this study was to examine provider perspectives on the barriers and facilitators to AET-related SM among BCS and opportunities for improvement. Methods: We conducted 3 focus groups (FGs) with a multidisciplinary group of health care providers (n = [6] physician; n = [7] non-physician) experienced in caring for BCS undergoing AET. We utilized semi-structured discussion guides to elicit provider perspectives on AET-related SM and its barriers and facilitators as well as recommendations for improvement. All FGs were held at the University of Pittsburgh, audiotaped, and transcribed. We analyzed FG transcripts using qualitative software to identify key themes. Results: Providers described patient-, provider-, and system- level facilitators and barriers to AET-related SM. At the patient-level, facilitators included social support and provider communication about symptoms while cancer-related distress, misinformation and misinterpretation of online information were identified as barriers. Provider-level facilitators included strong relationships with other providers and ongoing communication with patients; however, lack of time, insufficient resources, and challenges distinguishing AET-related symptoms from other conditions were key provider-level barriers. Finally, at the system-level, electronic health records were described as both a facilitator and barrier to SM. Moreover, poor care coordination among different providers and lack of clear guidelines on which provider “owns” AET-related SM emerged as key system-level barriers. Conclusions: Findings suggest that efforts to improve AET-related SM should span multiple levels, in order to address patient-, provider-, and system-level barriers to SM. Recommendations include increased education for patients, greater access to clinical decision support tools for providers, and improved coordination of survivorship resources within hospitals.

scholarly journals FAKTOR YANG BERHUBUNGAN DENGAN PERILAKU IBU RUMAH TANGGA MELAKUKAN PEMERIKSAAN PAYUDARA SENDIRI (SADARI)

2018 ◽  
Vol 12 (2) ◽  
pp. 143
Author(s):  
Alvita Brilliana R. Arafah ◽  
Hari Basuki Notobroto
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Health Care Providers ◽  
Early Stage ◽  
Health Providers ◽  
Care Providers ◽  
Cross Sectional ◽  
Information Accessibility ◽  
Breast Examination ◽  
Access Information

Breast cancer is cancer with the number of new cases and deaths highest in Indonesia. According to the Data Center and Information Ministry of a health Indonesia in the year 2013, the number of new cases of breast cancer of 819 and the number of deaths amounted to 217. In general, breast cancer known after stepping on an advanced stage. So the methods of early detection of breast cancer are focused on the detection of early stage tumors that are usually small with self-breast examination (SADARI). The purpose of this research is to predict the factors related to the behavior of self-breast examination (SADARI) the housewives aged 40–50 years. This research is an observational study with cross sectional approach. Sample research totaling 100 people  housewife in Kelurahan Sidotopo Wetan Kenjeran Subdistrict Surabaya. The measurement was done by providing a questionnaire to obtain information about the research variables. Variable independent research is k nowledge, attitudes, information accessibility, support health providers and descent with breast cancer. The results of this research showed the variables that are associated with the  SADARI behavior of the housewifes is attitude (p = 0.000), accessibility of information (p = 0.000), and health care providers support (p = 0.010). The majority of housewives in Kelurahan Sidotopo Wetan Kenjeran Sub-district Surabaya showed a good attitude and support toward SADARI. In the area surrounding the residence h ousewife get access information easily. There are no support for doing SADARI from health care providers.

scholarly journals MALAYSIAN DIABETES PATIENTS’ PERCEPTIONS, ATTITUDES AND PRACTICES IN RELATION TO SELF-CARE AND ENCOUNTERS WITH PRIMARY HEALTH CARE PROVIDERS

2018 ◽  
Vol 2 (3) ◽  
pp. 1-10
Author(s):  
Lim Shiang Cheng ◽  
Jens Aagaard-Hansen ◽  
Feisul Idzwan Mustapha ◽  
Ulla Bjerre-Christensen
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Health Care Providers ◽  
Self Management ◽  
Care Providers ◽  
Attitudes And Practices ◽  
Primary Health ◽  
Primary Health Care Providers ◽  
Primary Healthcare Clinics ◽  
Diabetes Patients

Introduction: Studies from many parts of the world have explored factors associated with poor diabetes self-management including Diabetes Self-Management Education (DSME). Research Methodology: This study was conducted among 162 diabetes patients at primary healthcare clinics in Malaysia using semi-structured exit-interviews to explore their perceptions, attitudes and practices in relation to self-care and encounters with primary health care providers. Results and Discussion: Generally, the patients had limited knowledge, lack of motivation and encountered difficulties in diabetes self-management. The DSME was inadequate due to limited time allocated for consultations with doctors, language barriers and the lack of interpersonal and communication skills of HCPs. Conclusion: In view of the positive effects of quality DSME on the health outcomes and quality of life among diabetes patients, it is important for the primary healthcare clinics in Malaysia to strengthen the diabetes services through training in communication of all HCPs, awareness of language difference and task shifting.

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