scholarly journals Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports

2015 ◽  
Vol 46 (4) ◽  
pp. 1368-1378 ◽  
Author(s):  
Jinkuk Hong ◽  
Lauren Bishop-Fitzpatrick ◽  
Leann E. Smith ◽  
Jan S. Greenberg ◽  
Marsha R. Mailick
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Self Report ◽  
Subjective Quality Of Life ◽  
Adults With Autism ◽  
Factors Associated ◽  
Maternal Reports

Socio-emotional determinants of depressive symptoms in adolescents and adults with autism spectrum disorder: A systematic review

Autism ◽  
2020 ◽  
Vol 24 (4) ◽  
pp. 995-1010 ◽  
Author(s):  
Isaac C Smith ◽  
Susan W White
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Autism Spectrum Disorder ◽  
Social Motivation ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adults With Autism ◽  
Symptoms Of Depression ◽  
Adolescents And Adults

Co-occurring problems with mood and anxiety among adolescents and adults on the autism spectrum are highly prevalent and contribute to poor outcomes and diminished quality of life. The current study’s principal aim was to evaluate variation in the presentation of depression symptomatology among adolescents and adults with autism spectrum disorder, specifically to determine if social motivation may be implicated in an autism spectrum disorder–specific subtype of depression. A systematic review was conducted, with an initial search conducted in February 2018 and a search update conducted in November 2019, yielding 48 articles which met inclusion criteria. Results support other recent work indicating that symptoms of depression are highly prevalent among adolescents and adults with autism spectrum disorder. Coding of study variables related to core autism spectrum disorder symptoms provided initial evidence for the proposition of a conceptual model implicating social motivation in the etiology of depression among a subset of individuals with autism spectrum disorder. Lay abstract Many adolescents and adults with autism spectrum disorder experience difficulty with symptoms of depression. These symptoms can contribute to poor quality of life and lack of independence for adolescents and adults. To better understand these symptoms, we conducted a review of articles that examined the presentation of depression specific to autism spectrum disorder. Our goals in conducting this study were (1) to examine whether depression may be associated with symptoms that are common among people with autism spectrum disorder, such as loneliness or poor social motivation; (2) to determine whether people with autism spectrum disorder experience depression in a different way than the general population; and (3) to add to other recent studies that have examined how common depression is in autism spectrum disorder and how it is typically measured. Our study reviewed 48 papers on this topic. Results showed that a substantial proportion of people with autism spectrum disorder experience significant symptoms of depression. We related our results to social factors commonly studied in this field (i.e. social motivation) and proposed a new model for the development of depression in this population.

scholarly journals Participation in recreational activities buffers the impact of perceived stress on quality of life in adults with autism spectrum disorder

2017 ◽  
Vol 10 (5) ◽  
pp. 973-982 ◽  
Author(s):  
Lauren Bishop-Fitzpatrick ◽  
Leann Smith DaWalt ◽  
Jan S. Greenberg ◽  
Marsha R. Mailick
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Perceived Stress ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adults With Autism ◽  
Recreational Activities ◽  
The Impact

scholarly journals The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability

Autism ◽  
2017 ◽  
Vol 22 (6) ◽  
pp. 703-711 ◽  
Author(s):  
Lauren Bishop-Fitzpatrick ◽  
Carla A Mazefsky ◽  
Shaun M Eack
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Autism Spectrum Disorder ◽  
Perceived Stress ◽  
Intervention Development ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adults With Autism ◽  
Community Volunteers

Identifying modifiable correlates of good quality of life in adults with autism spectrum disorder is of paramount importance for intervention development as the population of adults with autism spectrum disorder increases. This study sought to examine social support and perceived stress as potential modifiable correlates of quality of life in adults with autism spectrum disorder. We hypothesized that adults with autism spectrum disorder without co-occurring intellectual disabilities ( N = 40; aged 18–44 years) would report lower levels of social support and quality of life than typical community volunteers who were matched for age, sex, and race ( N = 25). We additionally hypothesized that social support would buffer the effect of perceived stress on quality of life in adults with autism spectrum disorder. Results indicated that adults with autism spectrum disorder reported significantly lower levels of social support and quality of life than matched typical community volunteers. In addition, findings showed significant direct effects of social support and perceived stress on quality of life in adults with autism spectrum disorder. Social support did not buffer the effect of perceived stress on quality of life. Interventions that teach adults with autism spectrum disorder skills to help them better manage stress and cultivate supportive social relationships have the potential to improve quality of life.

scholarly journals Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis

2016 ◽  
Vol 46 (8) ◽  
pp. 2707-2719 ◽  
Author(s):  
Lauren Bishop-Fitzpatrick ◽  
Jinkuk Hong ◽  
Leann E. Smith ◽  
Renee A. Makuch ◽  
Jan S. Greenberg ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Latent Class Analysis ◽  
Latent Class ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Class Analysis ◽  
Adults With Autism ◽  
Objective Quality

Clinical and social predictors of quality of life in children and young adults with autism spectrum disorder

2020 ◽  
Vol 83/116 (4) ◽  
pp. 382-393
Author(s):  
Pavlína Danhofer ◽  
Hedvika Dušková ◽  
Lenka Knedlíková ◽  
Nela Nováková ◽  
Ondřej Horák ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Young Adults ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adults With Autism ◽  
Social Predictors ◽  
Children And Young Adults ◽  
Young Adults With Autism

scholarly journals Assessing the convergence of self-report and informant measures for adults with autism spectrum disorder

Autism ◽  
2020 ◽  
Vol 24 (8) ◽  
pp. 2256-2268
Author(s):  
Rachel K Sandercock ◽  
Elena M Lamarche ◽  
Mark R Klinger ◽  
Laura G Klinger
Keyword(s):  
Autism Spectrum Disorder ◽  
Daily Living ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Self Report ◽  
Daily Living Skills ◽  
Service Needs ◽  
Adults With Autism ◽  
Living Skills

Self-report measures are widely used for research and clinical assessment of adults with autism spectrum disorder. However, there has been little research examining the convergence of self- and informant-report in this population. This study examined agreement between 40 pairs of adults with autism spectrum disorder and their caregivers on measures of symptom severity, daily living skills, quality of life, and unmet service needs. In addition, this study examined the predictive value of each reporter for objective independent living and employment outcomes. Caregiver and self-report scores were significantly positively correlated on all measures (all r’s >0.50). Results indicated that there were significant differences between reporter ratings of daily living skills, quality of life, and unmet service needs, but no significant differences between ratings of symptom severity. Combining caregiver-report and self-report measures provided significantly higher predictive value of objective outcomes than measures from a single reporter. These findings indicate that both informants provide valuable information and adults with autism spectrum disorder should be included in reporting on their own symptoms and experiences. Given that two reporters together were more predictive of objective outcomes; however, a multi-informant assessment may be the most comprehensive approach for evaluating current functioning and identifying service needs in this population. Lay Abstract Self-report measures are frequently used for research and clinical assessments of adults with autism spectrum disorder. However, there has been little research examining agreement between self-report and informant-report in this population. Valid self-report measures are essential for conducting research with and providing high quality clinical services for adults with autism spectrum disorder. This study collected measures from 40 pairs of adults with autism spectrum disorder and their caregivers on measures of symptom severity, daily living skills, quality of life, and unmet service needs. Caregiver and self-report responses were highly associated with one another on all measures, though there were significant gaps between scores on the measures of daily living skills and quality of life. It is also important to understand how each informant’s responses relate to outcomes in the areas of employment and independent living. Using self-report and caregiver-report together better predicted outcomes for the adult with autism spectrum disorder than scores from either individual reporter alone. These findings show that there is unique and valuable information provided by both adults with autism spectrum disorder and their caregivers; a multi-informant approach is important for obtaining the most comprehensive picture of current functioning, identifying unmet service needs, and creating treatment plans. This research also highlights the importance of including and prioritizing self-report perspectives in shaping service planning.

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