Daily Living Skills in Adolescent and Young Adult Males With Fragile X Syndrome

By adulthood, most males with fragile X syndrome (FXS) require support to navigate day-to-day settings. The present study cross-sectionally: (1) characterized the profile of daily living skills in males with FXS and (2) examined associated participant characteristics (i.e., fragile X mental retardation protein [FMRP] expression, nonverbal cognition, language, autism symptomatology, and anxiety symptomatology) using the Waisman-Activities of Daily Living questionnaire. Males with FXS (n = 57, ages 15–23 years) needed more help/support in the areas of domestic and community daily livings skills, than in the area of personal daily living skills. Significant associations were observed between reduced daily living skills and lower nonverbal cognition, receptive language, expressive language, and increased autism symptomatology. Receptive language emerged as the strongest unique predictor of daily living skill performance.

Choosing Performance-Based Outcome Measures of Daily Living Skills and Socialization for Clinical Trials in Autistic Children

Importance: Robust and psychometrically sound performance-based outcome measures are needed for clinical trials of occupational therapy interventions for children with autism. Objective: To demonstrate a systematic approach for choosing psychometrically sound performance-based outcome measures of daily living skills and socialization for use in clinical trials of occupational therapy interventions for children with autism. Design: Rapid literature review to identify appropriate measures for studies with this population followed by quality indicator ratings and a nominal group process. Setting: University. Participants: Four experts in autism and pediatric outcome measurement. Outcomes and Measures: Twenty-one outcome measures of daily living skills and socialization were identified and reviewed. Results: Seven measures met the inclusion criteria. The Assessment of Motor and Process Skills and the Evaluation of Social Interaction–Second Edition, received the highest ratings and group consensus. Several other measures were also scored highly. Conclusions and Relevance: Careful assessment of psychometric properties is an important component of choosing outcome measures for a clinical trial, but burden of assessment and study objectives are important considerations. What This Article Adds: This project demonstrates use of a systematic process for choosing outcome measures for a planned clinical trial.

Strategi Mengajarkan Keterampilan Hidup Sehari-Hari Untuk Anak dan Remaja Dengan Retardasi Mental: Sebuah Review Literatur

Educational programs for students with mental retardation emphasize the preparation of students to live independently after finishing school. One educational strategy for children and adolescents with mental retardation is to teach daily life skills. The purpose of this study is to conduct a literature review on strategies to teach daily life skills to children and adolescents with mental retardation. Literature searches were carried out on seven databases, namely ERIC, SpringerLink, ScienceDirect, SAGE, JSTOR, Emerald Insight and Google Schoolar. The keywords used in this search are "teaching daily living skills" and "mental retardation"; "Teaching daily living skills" and "intellectual disability". A total of 5 articles (N = 614) will be reviewed through a screening process based on inclusive and exclusive criteria. The results show that there are strategies to teach daily life skills to children and adolescents with mental retardation by using video prompting, video modeling, constant-time delay and most-to-least prompt. Keyword: daily living skills; mental retardation; video prompting; video modeling; constant-time delay; most-to-least prompt procedures; literature review