Fathers Raising Children on the Autism Spectrum: Lower Stress and Higher Self-Efficacy Following SMS (Text2dads) Intervention

Author(s):  
Chris D. May ◽  
Jennifer M. St George ◽  
Shelly Lane
2021 ◽  
pp. 003329412199102
Author(s):  
Ashleigh Hillier ◽  
Nataliya Poto ◽  
David Schena ◽  
Jessica Dorey ◽  
Abigail Buckingham ◽  
...  

There is considerable need to identify effective service provision models to support adults on the autism spectrum as they seek to lead independent lives. This study outlines an individualized life skills coaching program for adults with autism, “LifeMAP”, and the experiences and perspectives of the coaches. Responses on a tailored questionnaire provided detailed insight into how the coaches were performing their job, the strategies they utilized, reasons for client success and difficulty, challenges faced by the coaches, and ways they were supported by program staff. Coaches’ job self-efficacy and satisfaction were also examined. This study serves as a preliminary examination of individualized coaching for adults with autism from the coaches’ perspective.


2018 ◽  
Vol 56 (2) ◽  
pp. 345-358 ◽  
Author(s):  
Iris Manor-Binyamini

Although children across the world experience autism spectrum disorder (ASD), most research on ASD has been conducted using Western cultural perspectives and has focused primarily on mothers, leaving significant gaps in the literature. This study aimed to address these gaps by exploring the experiences of fathers raising children with ASD in a Bedouin community. To this end, a sample of 19 fathers of children (aged 6–15 years) with ASD living in recognized and unrecognized Bedouin settlements in the Negev participated in ethnographic, semi-structured interviews designed to investigate their experiences with raising a child with ASD in their community. Two major themes emerged: the challenges that Bedouin fathers of children with ASD face, and the influence of socio-demographic and cultural characteristics on their experience. Findings reflect the complex experiences of fathers raising children with ASD in the Bedouin community, stemming from their socio-cultural context and the limited knowledge and support services that are available in the community for these children. This article concludes with recommendations on how to enhance professional sensitivity and provide more culturally tailored services for parents of children with ASD.


2018 ◽  
Vol 2018 ◽  
pp. 1-10 ◽  
Author(s):  
Rosa Román-Oyola ◽  
Verónica Figueroa-Feliciano ◽  
Yoliannie Torres-Martínez ◽  
Jorge Torres-Vélez ◽  
Keyshla Encarnación-Pizarro ◽  
...  

Background. Play serves as an essential medium for parent-child interaction; however, engaging children with ASD through play can be a challenge for parents.Purpose. The purpose of this phenomenological study was to explore the perspectives of parents with children on the autism spectrum regarding play experiences and self-efficacy during play encounters.Method. Semistructured interviews were administered to 8 parents of children 3–7 years of age with ASD. The analysis was guided by the constant comparison method.Findings. Parental narratives denoted playful experiences reflecting components of Skard and Bundy’s model of playfulness. The facilitation of framing and suspension of reality were generally more challenging than facilitating intrinsic motivation and internal control. Participants associated self-efficacy during play with their perceived ability to interact with their child and with positive emotions experienced during play. Fathers generally derived a greater sense of self-efficacy from play encounters than mothers, and this was explained by differences in fathers’ and mothers’ motivations for playing. Mothers were motivated to play for outcome-oriented reasons (e.g., promote the child’s progress) whereas fathers’ motivations depicted greater emotional emphasis, reflecting a better match between motivation and perceived indicators of efficacy during play.Conclusion. The results suggest that a good match between motivation for playing and perceived indicators of efficacy during play is important for a parental sense of self-efficacy. Occupational therapists should utilize coaching strategies to increase parents’ understanding of play and playfulness and how they can affect a sense of parental self-efficacy.


Author(s):  
Susan L. Parish ◽  
Kathleen C. Thomas ◽  
Christianna S. Williams ◽  
Morgan K. Crossman

Abstract We examined the relationship between family financial burden and children's health insurance coverage in families (n  =  316) raising children with autism spectrum disorders (ASD), using pooled 2000–2009 Medical Expenditure Panel Survey data. Measures of family financial burden included any out-of-pocket spending in the previous year, and spending as a percentage of families' income. Families spent an average of $9.70 per $1,000 of income on their child's health care costs. Families raising children with private insurance were more than 5 times as likely to have any out-of-pocket spending compared to publicly insured children. The most common out-of-pocket expenditure types were medications, outpatient services, and dental care. This study provides evidence of the relative inadequacy of private insurance in meeting the needs of children with ASD.


2020 ◽  
Vol 10 (9) ◽  
pp. 12
Author(s):  
Constance E. McIntosh ◽  
Maria E. Hernandez-Finch ◽  
Cynthia M. Thomas ◽  
W. Holmes Finch ◽  
Asia R. Hulse ◽  
...  

Background: This present research was conducted to evaluate the efficacy of a clinical simulation where senior nursing students cared for a standardized patient with Autism Spectrum Disorder (ASD). The goal of the simulation was to teach the nursing students how to work with children with autism. In addition, the study aimed to determine if individual differences in personality affect students’ abilities to complete the simulation and how a student’s personality may affect their perceptions of the simulation. Projected outcomes included learning the use of appropriate communication strategies, improved assessment skills, prioritization of care, development of problem-solving skills, and decision-making abilities when dealing with children with ASD.Methods: Simulations are verified as effective training mechanisms to increase students’ self-efficacy in multiple nursing settings. Therefore, seventy-five senior baccalaureate nursing students completed the standardized patient simulation for care of an individual with ASD. The effect on the students’ self-efficacy was measured using the Occupational and Academic Self-Efficacy for Nursing Measure, the IPEP-NEO short form, and an ASD simulation study questionnaire.Results and conclusions: Logistic regression was used to investigate the relationship between personality measures and experience with ASD. The higher the openness and extraversion scores the more likely respondents were to disclose positive benefits in relation to expectations, communication strategies, teamwork, and reflection.


Autism ◽  
2019 ◽  
Vol 23 (7) ◽  
pp. 1645-1654 ◽  
Author(s):  
Jamal M Al Khateeb ◽  
Louise Kaczmarek ◽  
Muna S Al Hadidi

Four databases were searched to identify studies published by Arab researchers on parents’ perceptions of autism spectrum disorder and studies conducted by US researchers and published in systematic reviews of this topic. The electronic search resulted in 14 studies published by Arab researchers and 55 studies published by US researchers. The results showed that autism spectrum disorder has many of the same effects on Arab and American families. Six major areas were identified in the results. Financial difficulties associated with raising children with autism spectrum disorder were mentioned more in Arab studies than in US studies. Arab studies had more emphasis on gender than US studies. The results related to quality of life of parents of children with autism spectrum disorder in Arab studies were equivocal. US studies included comparisons with families without a child with autism spectrum disorder, and addressed factors that were associated with quality of life indicators. More health, educational, and social services were available in United States than in Arab countries, but some frustration was reported by US parents in obtaining appropriate services in some studies. A higher percentage of Arab studies mentioned the role of religious faith than US studies. Finally, social stigma was evidenced in both cultures, but not much research was available.


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