A Survey of Patients’ Experiences with the Cancer Genetic Counseling Process: Recommendations for Cancer Genetics Programs

2006 ◽  
Vol 15 (6) ◽  
pp. 409-431 ◽  
Author(s):  
Dana T. Kausmeyer ◽  
Eugene J. Lengerich ◽  
Brenda C. Kluhsman ◽  
Dorothy Morrone ◽  
Gregory R. Harper ◽  
...  
Keyword(s):  
Genetic Counseling ◽  
Cancer Genetics ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Counseling Process

scholarly journals Assessment of the Use and Feasibility of Video to Supplement the Genetic Counseling Process: A Cancer Genetic Counseling Perspective

2005 ◽  
Vol 14 (3) ◽  
pp. 235-243 ◽  
Author(s):  
J. E. Axilbund ◽  
L. A. Hamby ◽  
D. B. Thompson ◽  
S. J. Olsen ◽  
C. A. Griffin
Keyword(s):  
Genetic Counseling ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Counseling Process

Test of InheRET, an online tool to facilitate NCCN Guideline compliant referrals for cancer genetic counseling.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. 1530-1530
Author(s):  
Lynn McCain ◽  
Kara J. Milliron ◽  
Amanda Cook ◽  
Lee Schroeder ◽  
James Arthurs ◽  
...  
Keyword(s):  
Primary Care ◽  
Genetic Counseling ◽  
Family History ◽  
Cancer Genetics ◽  
Ease Of Use ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Increased Risk ◽  
The Family ◽  
The Impact

1530 Background: Identifying the ~60 million unaffected persons in the US at risk for inherited cancers has the potential to reduce their cancer risk by up to 95%. However, most of these individuals are not identified currently because of multifactorial deficits in the 3-generation pedigree collection in clinical settings. Methods: Here we evaluated the impact InheRET, an online family history gathering and risk assessment reporting tool, has on facilitating National Comprehensive Cancer Network (NCCN) Guideline-compliant referrals for cancer genetic counseling/genetic evaluation by decreasing and/or removing the barriers of 1) in-clinic 3-generation family history collection, and 2) interpretation of the family and personal history in light of current NCCN Guidelines. Patients enrolled from primary care and specialty clinics completed the family health history from a web-enabled devices using InheRET Inherited Risk Evaluation Tool. Results: Of 255 enrolled patients, 78.4% completed the history form and, of these, 86.5% completed the feedback survey. 39.2% of primary care and 79.9% of specialty cancer genetics patients were found to be at increased risk. Patients with ≤ HS education ranked InheRET at 4.7/5.0 for Understandability and 3.33/5.0 for Ease of Use. Following the addition of clarifying directions, they ranked InheRET at 5.0 and 4.0, respectively. Pts. <60 ranked InheRET between 3.5 and 3.8 on Ease of Use, while those 60-69 and 70+ ranked it 3.0 and 2.7, respectively, potentially reflective of lower technical skills. Age did not impact Understandability. In the cancer genetics clinic, 86% of pts. completed the online survey, in ~ 1 week, compared to paper forms, which required reminders, and >4 weeks to obtain. Conclusions: In this pilot, InheRET accelerated appropriate referrals and efficient utilization of genetic counseling services; improvements to navigation are being implemented prior to dissemination.

Cancer Genetic Counseling by Humanoid Robot

2020 ◽  
Author(s):  
Shuo Zhou ◽  
Prasanth Murali ◽  
Meghan Underhill-Blazey ◽  
Timothy Bickmore
Keyword(s):  
Genetic Counseling ◽  
Humanoid Robot ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic

Correlates of Depressive Symptoms Among Women Seeking Cancer Genetic Counseling and Risk Assessment at a High-Risk Cancer Clinic

2006 ◽  
Vol 15 (4) ◽  
pp. 267-276 ◽  
Author(s):  
Molly Middlecamp Kodl ◽  
Judith W. Lee ◽  
Alicia K. Matthews ◽  
Shelly A. Cummings ◽  
Olufunmilayo I. Olopade
Keyword(s):  
Risk Assessment ◽  
Genetic Counseling ◽  
Depressive Symptoms ◽  
High Risk ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
High Risk Cancer ◽  
Cancer Clinic

Acceptability of Telemedicine and Other Cancer Genetic Counseling Models of Service Delivery in Geographically Remote Settings

2013 ◽  
Vol 23 (2) ◽  
pp. 221-228 ◽  
Author(s):  
Eileen McDonald ◽  
Amanda Lamb ◽  
Barbara Grillo ◽  
Lee Lucas ◽  
Susan Miesfeldt
Keyword(s):  
Genetic Counseling ◽  
Service Delivery ◽  
Cancer Genetic Counseling ◽  
Cancer Genetic ◽  
Models Of Service Delivery

Downstream Revenue Generated by a Cancer Genetic Counselor

2021 ◽  
pp. OP.20.00464 ◽  
Author(s):  
Caitlin B. Mauer ◽  
Brian D. Reys ◽  
Reece E. Hall ◽  
Connor L. Campbell ◽  
Sara M. Pirzadeh-Miller
Keyword(s):  
Genetic Counseling ◽  
Cancer Genetics ◽  
Healthcare Systems ◽  
Pathogenic Variant ◽  
Full Time ◽  
Cancer Genetic ◽  
Pathogenic Variants ◽  
Cancer Susceptibility Genes ◽  
Relative Value ◽  
Management Recommendations

QUESTION ASKED: How much downstream revenue do cancer genetic counselors (GCs) generate when they identify patients with hereditary breast and ovarian cancer (HBOC) ( BRCA1/BRCA2) and Lynch syndrome (LS) pathogenic variants? SUMMARY ANSWER: Over a 10-year period, the downstream revenue generated from cancer GCs’ identification of patients with HBOC and LS was $32.79 million in US dollars (USD) (mean/year = $3.25 million USD and mean/patient = $77,000 USD). One full-time GC would generate $1.49-$1.86 million USD in revenue per year ($1.26-$1.58 million USD for HBOC-positive patients and $227-$284,000 USD for LS-positive patients per year). WHAT WE DID: Expected reimbursement and work relative value units (wRVUs) were collected from all hospital and ambulatory or outpatient encounters for patients with HBOC or LS identified in the Cancer Genetics clinic. Total revenue was calculated for each patient after they met with a GC; patients were stratified into categories of affected or unaffected status and new or established patients in the hospital system. WHAT WE FOUND: The downstream revenue generated from 425 patients with HBOC or LS mutations totaled $32,798,000 USD and 73,957 work relative value units after their cancer genetics appointments. Patients unaffected with cancer (n = 176) generated $8,453,000 USD, whereas naïve patients (n = 96), defined as those whose first visit to the institution was for a genetic counseling consultation, generated $5,933,000 USD. BIAS, CONFOUNDING FACTOR(S): This study solely focuses on revenue generated from patients with HBOC or LS. However, with the advent of next-generation sequencing panels, many pathogenic variants are being identified in other genes, resulting in enhanced management recommendations. Therefore, the revenue brought in by a GC likely surpasses the data provided here. Additionally, these data focus strictly on downstream revenue generated from patients receiving follow-up care at our institution. Patient adherence to compliance of management recommendations can affect the overall amount of revenue generated. REAL-LIFE IMPLICATIONS: To our knowledge, this is the first study to describe the amount of revenue generated for an institution downstream of the identification of pathogenic variant carriers in cancer susceptibility genes by a GC. These data will aid healthcare systems and oncology practices in determining if there is standalone fiscal value to the downstream effect of genetic counseling services or if services need to be supplemented through other avenues. By identifying clinic demographics and volumes, test uptake rate, and positive pathogenic variant rate, cancer GCs and healthcare systems or oncology practices can determine the expected revenue generated from HBOC and LS pathogenic variant carriers at their own institution to justify positions and growth of their genetic counseling departments ( Fig. 1 ).

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