Research Participant Recruitment in Hispanic Communities: Lessons Learned

2009 ◽  
Vol 13 (2) ◽  
pp. 352-360 ◽  
Author(s):  
Michele G. Shedlin ◽  
Carlos U. Decena ◽  
Thenral Mangadu ◽  
Angela Martinez
Keyword(s):  
Research Participant ◽  
Lessons Learned ◽  
Participant Recruitment

scholarly journals Lessons learned: intentional implementation of second makerspaces

2019 ◽  
Vol 47 (1) ◽  
pp. 37-47 ◽  
Author(s):  
Heather Moorefield-Lang
Keyword(s):  
Design Methodology ◽  
Design Thinking ◽  
Planning Process ◽  
Research Participant ◽  
Lessons Learned ◽  
The Body ◽  
Planning Study ◽  
Content Type ◽  
Scholarly Publications ◽  
Study Results

Purpose What happens when a librarian outgrows their maker learning location or transfers to a new library? The purpose of this study is to explore the planning process for second and/or new library makerspaces. Is the planning more intentional? Is there more focus on how the makerspace should be put together for the community served? Is the community further involved? This study will explore those questions and more. Design/methodology/approach Using content analysis, the perspectives of practicing librarians in the achievement of subsequent makerspaces are examined. Data include librarian interviews, an analysis using NVivo 11 through the lens of design thinking, and a final review using member checking by each research participant. Findings Makerspaces continue to grow in popularity in school and public/community libraries. What is unexplored is the moving from a first makerspace to the implementation of a second and/or new maker learning location. More intentional planning is involved. The community served by the library is further engaged in the planning. Study results illustrate the value that community insight and intentional planning play in the design and implementation of makerspaces. Originality/value Makerspaces in libraries continue to grow in popularity; in turn, the body of peer-reviewed, scholarly publications also continues to grow. Librarians in the field are beginning to move from their first to second makerspaces. This study investigates those perspectives. Much can be gained from the experiences of those who have implemented their second or third makerspace.

Intervention Fidelity in a Translational Study: Lessons Learned

2013 ◽  
Vol 27 (2) ◽  
pp. 131-148 ◽  
Author(s):  
Bernice C. Yates ◽  
Karen L. Schumacher ◽  
Joseph F. Norman ◽  
Kaye Stanek Krogstrand ◽  
Jane Meza ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Behavioral Intervention ◽  
Intervention Studies ◽  
Research Participant ◽  
Lessons Learned ◽  
Intervention Fidelity ◽  
Research Staff ◽  
Translational Study ◽  
Design Component ◽  
Clinical Environments

This article examined the intervention fidelity strategies used and lessons learned in a translational study. In this study, the behavioral intervention was delivered within an existing clinical practice environment, outpatient cardiac rehabilitation (CR). The primary lessons learned were that the fidelity components of design, training, and delivery of the intervention were the most different from fidelity strategies used in typical intervention studies. The design component needed to take into account the unique characteristics of the clinical environments where the study was conducted and build these unique differences into the study design. Training and delivery of the intervention was different because existing CR staff delivered the intervention in this study; which is unlike typical intervention studies where research staff are trained to deliver the intervention. Monitoring receipt and enactment fidelity components were similar to monitoring in usual intervention studies probably because these components focus on monitoring the behaviors of the research participant. Translational research presents unique challenges and requires the development of a flexible and novel intervention fidelity plan tailored to a particular study.

scholarly journals Pathways to research participant recruitment in a challenging information behaviour context: South African cold case investigators as exemplar

2020 ◽  
Author(s):  
Naaliah Parbhoo-Ebrahim ◽  
◽  
Ina Fourie ◽  
Keyword(s):  
South African ◽  
Information Search ◽  
Research Participant ◽  
Snowball Sampling ◽  
Participant Recruitment ◽  
Information Behaviour ◽  
Novel Approach ◽  
Search Heuristics ◽  
Behaviour Study ◽  
Cold Case

Introduction. Research participant recruitment is challenging – especially in vulnerable, stigmatised, high security, poorly demarcated contexts and contexts with diverse and interchangeable job labelling and poorly centralised reporting infrastructures. Cold case investigators in South Africa is an example of the latter. Method. Scoping literature review of information behaviour and other disciplines to note challenges and solutions in research participant recruitment. Analysis. Brief review of challenges noted in research methodology textbooks and applied thematic analysis mapped to problems and correlating solutions for research participant recruitment (various disciplines including information behaviour). Results. There are many challenges and solutions noted across disciplines including information behaviour e.g. job confidentiality, poor context demarcation, diverse and interchangeable job labels for the same context. Solutions reported include exploring related job/role labels, snowball sampling, non-intrusive social media methods. Conclusion. Based on experience with information search heuristics we suggest an additional novel approach for information behaviour research (and other) participant recruitment; a South African cold case investigator information behaviour study serves as exemplar to demonstrate how search heuristics can be used to identify potential research participants and solicit referrals for research participant recruitment.

scholarly journals Use of Rideshare Services to Increase Participant Recruitment and Retention in Research: Participant Perspectives

10.2196/11166 ◽  
2019 ◽  
Vol 21 (4) ◽  
pp. e11166 ◽  
Author(s):  
Eleanor Ladd Schneider Leavens ◽  
Elise Marie Stevens ◽  
Emma Irene Brett ◽  
Neil Molina ◽  
Thad Ryan Leffingwell ◽  
...  
Keyword(s):  
Research Participant ◽  
Participant Recruitment ◽  
Recruitment And Retention ◽  
Participant Perspectives

Comprehension Testing of Product Safety Symbols: Lessons Learned

2007 ◽  
Vol 51 (17) ◽  
pp. 1020-1024 ◽  
Author(s):  
Elaine C. Wisniewski ◽  
Judith J. Isaacson ◽  
Steven M. Hall
Keyword(s):  
Sample Size ◽  
Lessons Learned ◽  
Product Safety ◽  
Participant Recruitment ◽  
Recruitment Methods ◽  
Statistical Equivalence ◽  
Questionnaire Administration ◽  
Symbol Comprehension ◽  
Pros And Cons ◽  
Practical Guidance

Standards and existing literature provide guidance regarding methodologies for symbol comprehension testing, but practical guidance for the practitioner conducting this type of testing is scarce. This paper shares observations and experiences gained over the course of multiple symbol testing projects. Specifically, the paper addresses pros and cons of written vs. oral questionnaire administration and resulting comprehension scores, sample size and the concept of “statistical equivalence” to ANSI Z535.3 criteria, various participant recruitment methods and interview locations, and the importance of explaining the context in which a symbol appears. The lessons learned and tips provided in this paper begin to fill the information gaps that practitioners encounter when making numerous design, methodological, and practical decisions required for safety symbol comprehension studies.

Strategies for research participant engagement: A synthetic review and conceptual framework

2021 ◽  
pp. 174077452110110
Author(s):  
Charlene A Wong ◽  
William B Song ◽  
Megan Jiao ◽  
Emily O’Brien ◽  
Peter Ubel ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Clinical Trials ◽  
Conceptual Framework ◽  
Research Participant ◽  
Behavioral Strategies ◽  
Participant Recruitment ◽  
Recruitment And Retention ◽  
Participant Engagement ◽  
Cochrane Reviews ◽  
Changing Attitudes

Background: Research participant engagement, which we define as recruitment and retention in clinical trials, is a costly and challenging issue in clinical research. Research teams have leveraged a variety of strategies to increase research participant engagement in clinical trials, although a framework and evidence for effective participant engagement strategies are lacking. We (1) developed a novel conceptual framework for strategies used to recruit and retain participants in clinical trials based on their underlying behavioral principles and (2) categorized empirically tested recruitment and retention strategies in this novel framework. Methods: We conducted a synthetic analysis of interventions tested in studies from two Cochrane reviews on clinical trial recruitment and retention, which included studies from 1986 to 2015. We developed a conceptual framework of behavioral strategies for increasing research participant engagement using deductive and inductive approaches with the studies included in the Cochrane reviews. Reviewed interventions were then categorized using this framework. We examined the results of reviewed interventions and categorized the effects on clinical trial recruitment and retention as significantly positive, null, or significantly negative; summary statistics are presented for the frequency and effects of each behavioral strategy type. Results: We analyzed 141 unique interventions across 96 studies: 91 interventions targeted clinical trial research participant recruitment and 50 targeted retention. Our framework included 14 behavioral strategies to improve research participant engagement grouped into four general approaches: changing attitudes by appealing to social motivators, changing attitudes by targeting individual psychology, reducing barriers and cognitive burdens, and providing incentives. The majority of interventions (54%) aimed to reduce barriers or cognitive burdens, with improving comprehension (27%) as the most common specific strategy identified. For recruitment, the most common behavioral strategies tested were building legitimacy or trust (38%) and framing risks and benefits (32%), while financial or material incentives (32%) and reducing financial, time, and social barriers (32%) were most common for retention interventions. Among interventions tested in randomized controlled trials, 51% had a null effect on research participant engagement, and 30% had a statistically significant positive effect. Discussion: Clinical researchers have tested a wide range of interventions that leverage distinct behavioral strategies to achieve improved research participant recruitment and retention. Common behavioral strategies include building legitimacy or trust between research teams and participants, as well as improving participant comprehension of trial objectives and procedures. The high frequency of null effects among tested interventions suggests challenges in selecting the optimal interventions for increasing research participant engagement, although the proposed behavioral strategy categories can serve as a conceptual framework for developing and testing future interventions.

scholarly journals A comprehensive approach to community recruitment for clinical and translational research

2018 ◽  
Vol 2 (4) ◽  
pp. 249-252
Author(s):  
Andrew L. Sussman ◽  
Carla Cordova ◽  
Mark R. Burge
Keyword(s):  
Translational Research ◽  
Underserved Populations ◽  
Research Participant ◽  
Medically Underserved ◽  
Science Center ◽  
Community Based ◽  
Participant Recruitment ◽  
University Of New Mexico ◽  
The University ◽  
Clinical And Translational Research

Recruitment and engagement for clinical and translational research is challenging, especially among medically underserved and ethnic or racial minority populations. We present a comprehensive model developed through the Clinical and Translational Science Center at the University of New Mexico (UNM) Health Sciences Center that addresses 3 critical aspects of participant recruitment. The components of the model are: (1) Recruitment from within UNM to UNM-centered studies, (2) recruitment from within UNM to community-based studies, and (3) recruitment from outside UNM to UNM-centered studies. This model has increased research participant recruitment, especially among medically underserved populations, and offers generalizable translational solutions to common clinical and translational research challenges, especially in settings with similar demographic and geographic characteristics.

scholarly journals Threats of Bots and Other Bad Actors to Data Quality Following Research Participant Recruitment Through Social Media: Cross-Sectional Questionnaire (Preprint)

2020 ◽  
Author(s):  
Rachel Pozzar ◽  
Marilyn J Hammer ◽  
Meghan Underhill-Blazey ◽  
Alexi A Wright ◽  
James A Tulsky ◽  
...  
Keyword(s):  
Social Media ◽  
Data Quality ◽  
Health Research ◽  
Data Integrity ◽  
Research Participant ◽  
The United States ◽  
Quality Data ◽  
Participant Recruitment ◽  
Research Participants ◽  
Social Media Platforms

BACKGROUND Recruitment of health research participants through social media is becoming more common. In the United States, 80% of adults use at least one social media platform. Social media platforms may allow researchers to reach potential participants efficiently. However, online research methods may be associated with unique threats to sample validity and data integrity. Limited research has described issues of data quality and authenticity associated with the recruitment of health research participants through social media, and sources of low-quality and fraudulent data in this context are poorly understood. OBJECTIVE The goal of the research was to describe and explain threats to sample validity and data integrity following recruitment of health research participants through social media and summarize recommended strategies to mitigate these threats. Our experience designing and implementing a research study using social media recruitment and online data collection serves as a case study. METHODS Using published strategies to preserve data integrity, we recruited participants to complete an online survey through the social media platforms Twitter and Facebook. Participants were to receive $15 upon survey completion. Prior to manually issuing remuneration, we reviewed completed surveys for indicators of fraudulent or low-quality data. Indicators attributable to respondent error were labeled suspicious, while those suggesting misrepresentation were labeled fraudulent. We planned to remove cases with 1 fraudulent indicator or at least 3 suspicious indicators. RESULTS Within 7 hours of survey activation, we received 271 completed surveys. We classified 94.5% (256/271) of cases as fraudulent and 5.5% (15/271) as suspicious. In total, 86.7% (235/271) provided inconsistent responses to verifiable items and 16.2% (44/271) exhibited evidence of bot automation. Of the fraudulent cases, 53.9% (138/256) provided a duplicate or unusual response to one or more open-ended items and 52.0% (133/256) exhibited evidence of inattention. CONCLUSIONS Research findings from several disciplines suggest studies in which research participants are recruited through social media are susceptible to data quality issues. Opportunistic individuals who use virtual private servers to fraudulently complete research surveys for profit may contribute to low-quality data. Strategies to preserve data integrity following research participant recruitment through social media are limited. Development and testing of novel strategies to prevent and detect fraud is a research priority.

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