scholarly journals Next of kin’s quality of life before and after implementation of a knowledge-based palliative care intervention in nursing homes

2019 ◽  
Vol 28 (12) ◽  
pp. 3293-3301 ◽  
Author(s):  
Christina Bökberg ◽  
Lina Behm ◽  
Gerd Ahlström
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Nursing Homes ◽  
Knowledge Based ◽  
Care Intervention ◽  
Before And After

scholarly journals Intervenção em cuidados paliativos: conhecimento e percepção dos enfermeiros

2018 ◽  
Vol 12 (5) ◽  
pp. 1325
Author(s):  
Hashilley Alberto da Silva ◽  
Gleice Kelle Beserra Viana ◽  
Ana Karine Girão Lima ◽  
Carla Monique Lopes Mourão ◽  
Ana Luiza Almeida de Lima
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Care Hospital ◽  
Chi Square ◽  
Calidad De Vida ◽  
Before And After ◽  
Data Collection Instrument ◽  
Post Test ◽  
Nursing Quality

RESUMOObjetivo: avaliar a percepção dos enfermeiros sobre cuidado paliativo antes e depois de uma intervenção. Método: estudo quantitativo, quase experimental, desenvolvido nas unidades de um hospital de atenção secundária. O instrumento de coleta de dados foi adaptado de um estudo realizado com anestesiologistas, esses foram analisados no programa Excel e organizados em tabelas, sendo aplicado o teste estatístico de qui-quadrado de Pearson, com tabelas que apresentam os valores obtidos dentro de categorias distintas, mas que eram relacionáveis. Foi calculada, também, a proporção das diferenças entre as respostas do pré-teste e pós-teste, sendo considerados significantes os resultados com p<0,05. Resultados: houve predominância dos profissionais antes da intervenção que escolheram a expressão Morte Digna para designar cuidado paliativo (72,9%). Após a intervenção, os profissionais escolheram a expressão Qualidade de Vida (55,9%). Conclusão: a percepção dos enfermeiros acerca dos cuidados paliativos foi deficiente. Esse fato esteve associado à deficiência na formação técnico-científica ainda na graduação. A intervenção realizada promoveu melhoria da compreensão de conceitos relacionados ao cuidado paliativo colaborando para a assistência diferenciada e promotora da qualidade de vida dos profissionais. Descritores: Cuidados Paliativos; Enfermagem; Qualidade de Vida; Assistência Hospitalar.ABSTRACTObjective: to evaluate nurses' perception of palliative care before and after an intervention. Method: quantitative, almost experimental study, developed in the units of a secondary care hospital. The data collection instrument was adapted from a study carried out with anesthesiologists, these were analyzed in the Excel program and organized into tables, being applied the statistical test of chi-square of Pearson, with tables that present the values obtained within distinct categories, but that they were relatable. The proportion of differences between pre-test and post-test responses was also calculated, and the results with p <0.05 were considered significant. Results: there was a predominance of professionals before the intervention who chose the term Digned Death to designate palliative care (72.9%). After the intervention, professionals chose the term Quality of Life (55.9%). Conclusion: nurses' perception about palliative care was deficient. This fact was associated to the deficiency in the technical-scientific formation still in the graduation. The intervention promoted an improvement of the understanding of concepts related to palliative care collaborating for differentiated assistance and promoting the quality of life of professionals  Descriptors: Palliative Care, Nursing, Quality of Life, Hospital Care.RESUMENObjetivo: evaluar la percepción de los enfermeros sobre el cuidado paliativo antes y después de una intervención. Método: estudio cuantitativo, casi experimental, desarrollado en las unidades de un hospital de atención secundaria. El instrumento de recolección de datos fue adaptado de un estudio realizado con anestesiólogos, se analizaron en el programa Excel y organizados en tablas, siendo aplicado el test estadístico de chi-cuadrado de Pearson con tablas que presentan los valores obtenidos dentro de categorías distintas, pero que eran relacionables. Se calculó, también, la proporción de las diferencias entre las respuestas del pre-test y post-test, siendo considerados significantes los resultados con p <0,05. Resultados: hubo predominancia de los profesionales antes de la intervención que eligieron la expresión Muerte Digna para designar cuidado paliativo (72,9%). Después de la intervención, los profesionales escogieron la expresión Calidad de Vida (55,9%). Conclusión: la percepción de los enfermeros acerca de los cuidados paliativos fue deficiente. Este hecho estuvo asociado a la deficiencia en la formación técnica-científica aún en la graduación. La intervención realizada promovió la mejora de la comprensión de conceptos relacionados al cuidado paliativo, colaborando para la asistencia diferenciada y promotora de la calidad de vida de los profesionales. Descriptores: Cuidados Paliativos, Enfermeira, Calidad de Vida, Atención Hospitalaria.

scholarly journals Evaluating person‐centredness for frail older persons in nursing homes before and after implementing a palliative care intervention

Nursing Open ◽  
2019 ◽  
Vol 7 (1) ◽  
pp. 439-448 ◽  
Author(s):  
Christina Bökberg ◽  
Lina Behm ◽  
Birgitta Wallerstedt ◽  
Gerd Ahlström
Keyword(s):  
Palliative Care ◽  
Nursing Homes ◽  
Older Persons ◽  
Care Intervention ◽  
Before And After ◽  
Frail Older Persons

scholarly journals Patterns of Change in Quality of Life with a Palliative Care Intervention for Patients with Advanced Heart Failure: Insights from PAL-HF

2019 ◽  
Vol 25 (8) ◽  
pp. S154-S155
Author(s):  
Luxi Wan ◽  
Christopher O'Connor ◽  
Amanda Stebbins ◽  
Brooke Alhanti ◽  
Marc D. Samsky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Palliative Care ◽  
Advanced Heart Failure ◽  
Care Intervention

scholarly journals Nurse-led, screening-triggered, early specialised palliative care intervention programme for patients with advanced lung cancer: study protocol for a multicentre randomised controlled trial

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e037759
Author(s):  
Daisuke Fujisawa ◽  
Shigeki Umemura ◽  
Ayumi Okizaki ◽  
Eriko Satomi ◽  
Takuhiro Yamaguchi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Palliative Care ◽  
Randomised Controlled Trial ◽  
Controlled Trial ◽  
Advanced Lung Cancer ◽  
Intervention Programme ◽  
Care Intervention ◽  
Randomised Controlled

IntroductionIt has been suggested that palliative care integrated into standard cancer treatment from the early phase of the disease can improve the quality of life of patients with cancer. In this paper, we present the protocol for a multicentre randomised controlled trial to examine the effectiveness of a nurse-led, screening-triggered, early specialised palliative care intervention programme for patients with advanced lung cancer.Methods and analysisA total of 206 patients will be randomised (1:1) to the intervention group or the control group (usual care). The intervention, triggered with a brief self-administered screening tool, comprises comprehensive need assessments, counselling and service coordination by advanced-level nurses. The primary outcome is the Trial Outcome Index of the Functional Assessment of Cancer Therapy (FACT) at 12 weeks. The secondary outcomes include participants’ quality of life (FACT-Lung), depression (Patient Health Questionnaire-9), anxiety (Generalized Anxiety Disorder-7), illness perception (Prognosis and Treatment Perceptions Questionnaire), medical service use and survival. A mixed-method approach is expected to provide an insight about how this intervention works.Ethics and disseminationThis study has been approved by the Institutional Review Board of the National Cancer Center Japan (approval number: 2016-235). The findings will be disseminated through peer-reviewed publications and conference presentations and will be reflected on to the national healthcare policy.Trial registration numberUMIN000025491.

scholarly journals A randomized trial of a specialist palliative care intervention for patients undergoing surgery for cancer: rationale and design of the Surgery for Cancer with Option of Palliative Care Expert (SCOPE) Trial

Trials ◽  
2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Myrick C. Shinall ◽  
Aimee Hoskins ◽  
Alexander T. Hawkins ◽  
Christina Bailey ◽  
Alaina Brown ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Randomized Controlled Trial ◽  
Cancer Patients ◽  
Controlled Trial ◽  
Specialist Palliative Care ◽  
Randomized Controlled ◽  
Care Intervention ◽  
Scope Trial

Abstract Background In medical oncology settings, early specialist palliative care interventions have demonstrated improvements in patient quality of life and survival compared with usual oncologic care. However, the effect of early specialist palliative care interventions in surgical oncology settings is not well studied. Methods The Surgery for Cancer with Option for Palliative Care Expert (SCOPE) Trial is a single-center, prospective, single-blind, randomized controlled trial of a specialist palliative care intervention for cancer patients undergoing non-palliative surgery. It will enroll 236 patients scheduled for major abdominal operations for malignancy, who will be randomized 1:1 at enrollment to receive usual care (control arm) or specialist palliative care consultation (intervention arm). Intervention arm patients will receive consultations from a palliative care specialist (physician or nurse practitioner) preoperatively and postoperatively. The primary outcome is physical and functional wellbeing at 90 days postoperatively. Secondary outcomes are quality of life at 90 days postoperatively, posttraumatic stress disorder symptoms at 180 days postoperatively, days alive at home without an emergency room visit in the first 90 postoperative days, and overall survival at 1 year postoperatively. Participants will be followed for 3 years after surgery for exploratory analyses of their ongoing quality of life, healthcare utilization, and mortality. Discussion SCOPE is an ongoing randomized controlled trial evaluating specialist palliative care interventions for cancer patients undergoing non-palliative oncologic surgery. Findings from the study will inform ways to identify and improve care of surgical patients who will likely benefit from specialist palliative care services. Trial registration ClinicalTrials.gov Identifier: NCT03436290 First Registered: 16 February 2018 Enrollment Began: 1 March 2018 Last Update: 20 December 2018

scholarly journals Pengaruh Perawatan Paliatif Terhadap Peningkatan Kualitas Hidup Penderita Karsinoma Nasofaring Stadium Lanjut di RSUP Dr. Kariadi Semarang

2019 ◽  
Vol 6 (2) ◽  
pp. 125-130
Author(s):  
Muyassaroh Muyassaroh ◽  
Tri Lestari
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Nasopharyngeal Carcinoma ◽  
T Test ◽  
Screening Criteria ◽  
Key Word ◽  
Before And After ◽  
Observational Cohort ◽  
End Stage

Background: Palliative care can improve the quality of life for patients with end stage nasopharyngeal carcinoma (NPC). Palliative care includes handling nutrition, relieving pain and reducing the severity of symptoms from the disease, side effects of therapy or other complaints. It also improve psychological, social and spiritual aspects. The purpose of this study was to analyze the effect of palliative care on improving the quality of life for end stage NPC patients. Methods: Observational cohort study in 15-70 years old NPC patients included in the screening criteria for palliative care (total score 4). The sample was divided into 2 groups, 20 sampels per group. Quality of life was assessed with modified Gill scale questionnaire. Data was analyzed with t test. Results: The quality of life of NPC patients increased after palliative care (score 31,8 to 35,6). Decreased in groups without palliative care (score 33,0 to 30,9). Statistical analysis found significant differences between before and after palliative care (p = 0.055). Conclusion: Palliative care improves the quality of life for end stage NPC patients. Key word: Quality of life, Palliative care, Nasopharyngeal carcinoma   Latar belakang : Perawatan paliatif dapat meningkatkan kualitas hidup penderita karsinoma nasofaring (KNF) stadium lanjut. Perawatan paliatif meliputi penanganan nutrisi, menghilangkan nyeri dan mengurangi keparahan gejala yang timbul akibat penyakit tersebut ataupun akibat efek samping terapi atau keluhan lain yang tidak lagi responsif terhadap terapi kuratif, serta mengupayakan  perbaikan  dalam  aspek psikologis, sosial dan spiritual. Tujuan penelitian ini adalah menganalisis pengaruh perawatan paliatif terhadap peningkatan kualitas hidup penderita KNF stadium lanjut. Metode : Penelitian kohort observasional pada penderita KNF stadium lanjut usia 15 – 70 tahun yang masuk dalam kriteria penapisan perawatan paliatif (total skor 4). Sampel dibagi menjadi 2 kelompok yaitu kelompok perlakuan dan kelompok kontrol. Besar sampel ditentukan sebanyak 20 tiap kelompok. Kualitas hidup dinilai dengan kuesioner modifikasi skala mc Gill. Analisis data dengan Uji t test. Hasil : Kualitas hidup penderita KNF meningkat setelah dilakukan perawatan paliatif (skor 31,8 menjadi 35,6). Menurun pada kelompok tanpa perawatan paliatif (skor 33,0 menjadi 30,9). Analisis statistik didapatkan perbedaan bermakna antara sebelum dan sesudah dilakukan perawatan paliatif p=0,055.  Simpulan : Perawatan paliatif meningkatkan kualitas hidup penderita KNF stadium lanjut. Key word : Kualitas hidup, Perawatan paliatif, Karsinoma Nasofaring

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