scholarly journals Hearing Parents’ Voices: Parental Refusal of Cochlear Implants and the Zone of Parental Discretion

Author(s):  
Owen M. Bradfield

AbstractIt has been forty years since the first multi-channel cochlear implant was used in Australia. While heralded in the hearing world as one of the greatest inventions in modern medicine, not everyone reflects on this achievement with enthusiasm. For many people in the Deaf community, they see the cochlear implant as a tool that reinforces a social construct that pathologizes deafness and removes Deaf identity. In this paper, I set out the main arguments for and against cochlear implantation. While I conclude that, on balance, cochlear implants improve the well-being and broaden the open futures of deaf children, this does not justify mandating implants in circumstances where parents refuse them because this may compound unintended harms when society interferes in the parent-child relationship. For this reason, I argue that parental refusal of cochlear implantation falls within Gillam’s concept of the zone of parental discretion.

2013 ◽  
Vol 127 (9) ◽  
pp. 854-858 ◽  
Author(s):  
W-K Low ◽  
C A Tham ◽  
V-D D'Souza ◽  
S-W Teng

AbstractObjective:Except for a single case report, musical ear syndrome in cochlear implantees has not been studied. We aimed to study the prevalence and nature of musical ear syndrome among adult cochlear implant patients, as well as the effect on their emotional well-being.Study design, patients and intervention:A cross-sectional survey of patients aged 18 years and above who had received cochlear implants for profound hearing loss between 1997 and 2010.Results:Of the 82 patients studied, 18 (22 per cent) were found to have experienced musical ear syndrome. Seven and 11 patients had musical ear syndrome prior to and after cochlear implantation, respectively. The character of musical ear syndrome symptoms was described as instrumental music (n = 2), singing (6) or both (10). Fourteen patients reported an adverse emotional effect, with three expressing ‘intolerance’.Conclusions:In this study, 22 per cent of cochlear implantees experienced musical ear syndrome. These symptoms affected patients' emotional state, but most coped well. Musical ear syndrome can occur prior to and after cochlear implantation.


2015 ◽  
Vol 35 (1) ◽  
Author(s):  
Tracey Edelist

<span>Cochlear implants and auditory-verbal therapy are the latest techniques and technologies used to make deaf people learn to listen and speak. This paper provides a genealogical analysis of the Cochlear Implant Program at SickKids Hospital in Toronto, Ontario, Canada and shows how this program exemplifies the medicalization of deafness while denying deaf children the opportunity to learn sign language. Using Foucault's concept of governmentality, the relations between power, knowledge, truth and their influences on the program's practices are revealed in order to provide insight into Canadian society's conceptions of deafness. This analysis reveals the Cochlear Implant Program as a capitalist establishment that is supported by unquestioned reverence of modern medicine and technology, oriented by a quest for normalcy. The paper concludes by encouraging members of the Deaf community and their supporters to challenge the hegemony of normalcy by utilizing alternate research-based knowledge-truths of cochlear implants and sign language.</span>


1997 ◽  
Vol 111 (11) ◽  
pp. 1008-1017 ◽  
Author(s):  
Mohammad Jamal A. Makhdoum ◽  
Ad F. M. Snik ◽  
Paul van den Broek

AbstractThe field of cochlear implantation is developing rapidly. In subjects with bilateral profound deafness who gain no benefit from conventional hearing aids the aim of cochlear implantation is to provide a means for them to receive auditory sensations. Throughout the world, most cochlear implant centres are still continuing their research efforts to improve the results with this technique. Although it is still difficult to predict how an individual will perform with a cochlear implant, the success of cochlear implantation can no longer be denied. In this paper, we review some recent papers and reports, and the results of the various Nijmegen cochlear implant studies. Data about subject selection, examinations, surgery and the outcome are discussed. Our results were in good agreement with those of other authors. It can be concluded once again that cochlear implantation is an effective treatment for postlingually deaf adults and children, and for prelingually (congenital or acquired) deaf children with profound bilateral sensorineural deafness.


10.18060/1881 ◽  
2012 ◽  
Vol 13 (1) ◽  
pp. 51-66 ◽  
Author(s):  
Staci J. Jensen-Hart ◽  
Jeff Christensen ◽  
Lacey Dutka ◽  
J. Corey Leishman

Military families experience increased stress when facing issues of deployment, separation, and reunification. The increased stress impacts the parent-child relationship as well as child behavioral and emotional well-being. Although recognizing the resiliency of military families, research points to the need to monitor parental stress both pre- and post-deployment and highlights the inherent risks that separation and reunification pose for the parent-child relationship bond. This pilot study was designed to explore the effectiveness of the Child Parent Relationship Therapy (CPRT) Training Model as a proactive method of enhancing parent-child relationships, reducing parental stress, and preventing negative impact of military separations on children.


2021 ◽  
Author(s):  
Nickola Overall ◽  
Valerie Chang ◽  
Rachel S. T. Low ◽  
Annette M E Henderson ◽  
Caitlin McRae ◽  
...  

Are parents and families struggling with the ongoing demands of the pandemic, or are parents resilient and adjusted to the ‘new normal’? Assessing average risk versus resilience requires examining how parents and families have fared across the pandemic, beyond the initial months examined in prior investigations. The current research examines average levels of risk versus resilience in parents’ health and functioning over the first 1.5 years of the pandemic. Parents (N = 272) who had completed general assessments prior to the pandemic completed reassessments of psychological and physical health, couple and family functioning, and parenting within two lockdowns involving mandatory home confinement: at the beginning of the pandemic (26 March–28 April 2020) and 17 months later (18 August–21 September 2021). On average, parents exhibited declines in psychological and physical health (greater depressive symptoms; reduced well-being, energy and physical health) and in couple and family functioning (reduced commitment and family cohesion; greater problem severity and family chaos). By contrast, parent-child relationship quality and parenting practices were resilient with no average differences across the lockdowns. Declines in health and couple/family functioning generally occurred irrespective of pre-existing vulnerabilities (poor health and functioning prior to the pandemic) and external stress (reported impact of the pandemic). Partner support, however, tended to buffer declines in couple/family functioning. The results emphasize that attending to the challenges parents and couples face in the home will be important targets to mitigate the ongoing risks of the pandemic to parents’ and children’s well-being.


Author(s):  
Gillian Robyn Kerr ◽  
Seppo Tuomi ◽  
Alida Müller

Cochlear implantation is an expensive but effective lifelong intervention for individuals with a severe-to-profound hearing loss. The primary aim of this study was to survey the short- and long-term costs of cochlear implantation. Individuals (N=154) using cochlear implants obtained from the University of Stellenbosch-Tygerberg Hospital Cochlear Implant Unit in Cape Town, South Africa were surveyed using a questionnaire and patient record review. The questionnaire used a combination of closed and open-ended questions to gather both quantitative and qualitative information. Costs were categorised as short- and long-term costs. All costs were converted to constant rands (June 2010) using the Consumer Price Index to allow for comparison in real terms over time. In the first 10 years of implantation the average estimated costs incurred by adults totalled R379 626, and by children R455 225. The initial purchase of the implant system was the most substantial cost, followed by upgrading of the processor. Travel and accommodation costs peaked in the first 2 years. On average the participants spent R2 550 per year on batteries and spares. Rehabilitation for children cost an average of R7 200. Insurance costs averaged R4 040 per year, and processor repairs R3 000 each. In addition to the upfront expense of obtaining the cochlear implant system, individuals using a cochlear implant in South Africa should be prepared for the long-term costs of maintenance, accessing the unit, support services and additional costs associated with use. Knowledge of these costs is important to ensure that individuals are successful users of their cochlear implants in the long term.


2016 ◽  
Vol 39 (1) ◽  
pp. 209-229 ◽  
Author(s):  
Esther S. Chang

The current study is based on the responses of 153 married Korean mothers accompanying their youth in the United States or in New Zealand while their spouses remained in Korea. Kirogi means “wild geese” in Korean and has come to refer to split-family transnational living for the sake of children’s education. Spillover, or a positive correlation, between indicators assessing marital and parent–child relationship quality was tested within the transnational family context. It was also hypothesized that mother–child relationship quality and youth’s educational progress would be positively and uniquely predictive of indicators of maternal well-being when compared with marital quality due to education-focused Confucian values among Koreans. Results indicated positive correlations between indicators of marital and parent–child relationship quality; and only measures of marital quality had unique associations with maternal well-being.


2020 ◽  
Vol 48 (6) ◽  
pp. 030006052092985
Author(s):  
Xiao-Feng Qiao ◽  
Qian Ren ◽  
Xin Li ◽  
Tong-Li Li ◽  
Redentor S. Mariano

Objective We aimed to explore the educational outcome and influencing factors of ongoing verbal rehabilitation training together with inclusive education among prelingually deaf children with a cochlear implant. Methods Prelingually deaf children who underwent cochlear implantation, rehabilitation, and had inclusive education placement were randomly divided into two groups: one group received continuous verbal rehabilitation training under inclusive education status; the other group did not receive this training. Speech discrimination scores were determined. Results Among 60 included children, subjectively perceived academic adaptability, peer relations, initiative communication, and teacher’s involvement under inclusive education, as well as speech discrimination scores, were all significantly different between groups. Continuous verbal rehabilitation training influenced the subjective perception of children and resulted in higher speech discrimination scores and more positive subjective perception. Subjective perception was not significantly correlated with chronological age, sex, age at the time of cochlear implantation, or duration of inclusive education. Conclusion Ongoing verbal rehabilitation training within inclusive education can largely improve the education placement outcomes of prelingually deaf children with cochlear implants.


2020 ◽  
pp. 107755952098115
Author(s):  
Susan Yoon ◽  
Kathryn Maguire-Jack ◽  
Jerica Knox ◽  
Alexa Ploss

While there is a growing body of research examining resilient development in adolescents with a history of maltreatment, it remains unclear whether youth resilient functioning changes over time and what factors predict such change. The current study aimed to identify the socio-ecological predictors of the change in resilient functioning over time among adolescents with a history of maltreatment. Multinomial logistic regression analyses were conducted with a sample of 771 adolescents drawn from the National Survey of Child and Adolescent Well-Being (NSCAW-II). Over 18 months, 23.2% of the adolescents remained in the less resilience group, 45.4% stayed in the greater resilience group, 17.4% moved from the greater resilience group to the less resilience group, and 14.0% moved from the less resilience group to the greater resilience group. Younger age, better parent-child relationship quality, and neighborhood safety were associated with stable and continued resilient functioning over time. Conversely, child physical abuse, affiliation with deviant peers, and receipt of behavioral services were negatively associated with continued resilience. Our findings suggest that interventions that support adolescents in building positive relationships with their parents and peers may prevent a loss of resilience over time and ensure continued resilient functioning in child welfare-involved adolescents.


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