scholarly journals Dementia care model: Promoting personhood through co-production

2019 ◽  
Vol 81 ◽  
pp. 59-73 ◽  
Author(s):  
Alessandro Bosco ◽  
Justine Schneider ◽  
Donna Maria Coleston-Shields ◽  
Martin Orrell
Keyword(s):  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Isabella Bablok ◽  
◽  
Harald Binder ◽  
Dominikus Stelzer ◽  
Klaus Kaier ◽  
...  

Abstract Background Most people with dementia (PwD) are cared for at home, with general practitioners (GPs) playing a key part in the treatment. However, primary dementia care suffers from a number of shortcomings: Often, diagnoses are made too late and therapies by GPs do not follow the guidelines. In cases of acute crises, PwD are too often admitted to hospital with adverse effects on the further course of the disease. The aim of this study is to implement and evaluate a new GP-based, complex dementia care model, DemStepCare. DemStepCare aims to ensure demand-oriented, stepped care for PwD and their caregivers. Methods/design In a cluster randomized controlled trial, the care of PwD receiving a complex intervention, where the GP is supported by a multi-professional team, is compared to (slightly expanded) usual care. GPs are clustered by GP practice, with 120 GP practices participating in total. GP practices are randomized to an intervention or a control group. 800 PwD are to be included per group. Recruitment takes place in Rhineland-Palatinate, Germany. In addition, a second control group with at least 800 PwD will be formed using aggregated routine data from German health insurance companies. The intervention comprises the training of GPs, case management including repeated risk assessment of the patients’ care situation, the demand-oriented service of an outpatient clinic, an electronic case record, external medication analyses and a link to regional support services. The primary aims of the intervention are to positively influence the quality of life for PwD, to reduce the caregivers’ burden, and to reduce the days spent in hospital. Secondary endpoints address medication adequacy and GPs’ attitudes and sensitivity towards dementia, among others. Discussion The GP-based dementia care model DemStepCare is intended to combine a number of promising interventions to provide a complex, stepped intervention that follows the individual needs of PwD and their caregivers. Its effectiveness and feasibility will be assessed in a formative and a summative evaluation. Trial registration German Register of Clinical Trials (Deutsches Register Klinischer Studien, DRKS), DRKS00023560. Registered 13 November 2020 - Retrospectively registered. HTML&TRIAL_ID=DRKS00023560.


Author(s):  
Catherine Dolan ◽  
Brian Lawlor

This chapter examines the prevalence and pathways to the diagnosis of dementia, as well as dementia care infrastructure, in the Republic of Ireland. The economic burden of dementia in Ireland is explored, including both formal and informal costs. Dementia care in the community, residential, and acute hospital settings is described. Associated policy, legislation, standards, and guidelines relevant to dementia care in Ireland are addressed. Current funding structures are examined. The contributions of dementia-specific educational efforts and relevant research in Ireland are highlighted. Challenges encountered in moving from a more traditional medical model of dementia care to a psycho-social, person-centred care model in Ireland, including inequitable funding allocation, are outlined.


2014 ◽  
Vol 10 ◽  
pp. P577-P577
Author(s):  
Mei Sian Chong ◽  
Colin Tan ◽  
Cindy Yeo ◽  
Kang Yih Low ◽  
Philomena Anthony ◽  
...  

2014 ◽  
Vol 17 (7) ◽  
pp. A771
Author(s):  
R. Hanrinth ◽  
N. Sooksai ◽  
P. Rangseekajee ◽  
S. Namtatsanee ◽  
C. Wisedsorn ◽  
...  

2019 ◽  
Vol 5 ◽  
pp. 233372141984434 ◽  
Author(s):  
Jing Wang ◽  
Bei Wu ◽  
Barbara J. Bowers ◽  
Michael J. Lepore ◽  
Ding Ding ◽  
...  

We conducted a bilingual literature review of the existing studies focusing on person-centered dementia care in China. We synthesized key findings from included articles according to three overarching themes: Chinese cultural relevance of person-centered care (PCC), perceived needs for PCC for older adults in China, implementation and measurement of PCC in China, and person-centered dementia care model. We also drew on frameworks, theories, and other contents from the examined articles to develop a person-centered dementia care model with specific relevance to China. The model is a good starting point to help us operationalize globally relevant core principles of PCC in the specific sociocultural context of China. The framework will be informed by more empirical studies and evolve with the ongoing operationalization of PCC. Although PCC is a new concept and has not been vigorously or systematically studied in China, it is attracting increasing attention from Chinese researchers. More empirical studies are needed to link PCC to measurable outcomes, enrich the framework for applying PCC, and construct assessment and evaluation systems to facilitate the provision of PCC across countries and cultures. Global consortia and collaborations with multidisciplinary expertise to develop a PCC common data infrastructure that is internationally relevant for data sharing and comparison are needed.


2011 ◽  
Vol 7 ◽  
pp. S635-S635
Author(s):  
Margaret Noel ◽  
Margaret Noel

2020 ◽  
Vol 41 (1) ◽  
pp. 52-68
Author(s):  
Yan Zhang

The increasing number of dementia sufferers in China has transformed dementia care from a private issue to a public concern. Nationwide dementia-friendly campaigns have intensified debates about what constitutes “good” care. In response to these campaigns, the Shanghai government proposes a systematic care model, which stresses the need for dementia-care units and professionalization. Non-state actors, however, focus on the relational care model, which integrates western humanitarian ethics with Confucian values. This article employs cultural and structural frameworks to examine why and how a specific form of “good” care is constructed in China. The debates about the establishment of dementia-care units and the professionalization of eldercare enable us to understand how politics shape certain forms of care.


2011 ◽  
Vol 68 (2) ◽  
pp. 113-118 ◽  
Author(s):  
Cornelia Bläuer ◽  
Otmar Pfister ◽  
Christa Bächtold ◽  
Therese Junker ◽  
Rebecca Spirig

Patienten mit Herzinsuffizienz (HI) sind in ihrer Lebensqualität stark eingeschränkt, haben eine schlechte Prognose und müssen häufig hospitalisiert werden. Die Forschung hat gezeigt, dass die Gesundheitsresultate dieser Patientengruppe durch ein gutes Selbstmanagement verbessert werden können. Eine Möglichkeit zur Verbesserung des Selbstmanagements sind ambulante Diseasemangementprogramme, welche die Lebensqualität verbessern und Kosten reduzieren helfen. Solchen Programmen liegt meist das von der WHO entwickelte Chronic Care Model zu Grunde, welches auf die Betreuung chronisch Kranker mit einem hohen Selbstmanagementbedarf ausgerichtet ist. Um ein gutes Selbstmanagement entwickeln zu können braucht es bedürfnissorientierte Patientenschulung und -beratung, denn die Betroffenen benötigen nicht nur Wissen zur Krankheit sondern müssen handlungsfähig werden. In der Schweiz fehlt es an etablierten Modellen und Programmen zur Betreuung von chronisch Kranken, insbesondere HI-Betroffenen. Aus diesem Grund hat eine schweizerische Expertengruppe für HI eine Modell zur „vernetzten Betreuung“ erstellt. In Anlehnung daran bietet die Schweizerische Herzstiftung seit 2009 ein Schulungsprogramm zur Unterstützung von Ärzten, Betroffenen und deren Angehörige an. Eine erste Evaluation hat unterschiedliche Resultate von Seiten der Ärzte gezeigt. Von den Betroffenen waren die Rückmeldungen äußerst positiv. Sie beurteilten die Schulungen als bedürfnissorientiert und unterstützend. (Geschlechtsbestimmende Begriffe stehen immer stellvertretend für beide Geschlechter)


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