scholarly journals The Canadian Pediatric Cardiology Research Network: A Model National Data-Sharing Organization to Facilitate the Study of Pediatric Heart Diseases

CJC Open ◽  
2020 ◽  
Author(s):  
Frederic Dallaire ◽  
Marie-Claude Battista ◽  
Steven C. Greenway ◽  
Kevin Harris ◽  
Emilie Jean St-Michel ◽  
...  
Keyword(s):  
Data Sharing ◽  
Pediatric Cardiology ◽  
Heart Diseases ◽  
Research Network ◽  
National Data

Pediatric Cardiology

PEDIATRICS ◽  
1958 ◽  
Vol 21 (1) ◽  
pp. 165-165
Author(s):  
PAUL R. LURIE
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Rheumatic Fever ◽  
Harvard Medical School ◽  
Congenital Heart ◽  
Pediatric Cardiology ◽  
Heart Diseases ◽  
Medical Center ◽  
Rapid Development ◽  
Laboratory Diagnosis

Many books on rheumatic fever, congenital heart disease, laboratory diagnosis of heart diseases, and lengthy sections on cardiologic subjects in pediatric textbooks have been written but until now there is no comprehensive textbook in the field of pediatric cardiology. It is fortunate that the first book to appear to fill this real need is an excellent one. Dr. Nadas, of the Children's Medical Center in Boston and Harvard Medical School, is a recognized authority in the field of cardiology and has contributed much to its recent rapid development.

scholarly journals Arrhythmias and Conduction Disturbances in Children at the Department of Child Health, School of Medicine University of North Sumatra/Dr. Pirngadi Hospital Medan

2018 ◽  
Vol 29 (3-4) ◽  
pp. 52-63
Author(s):  
Dalan Keriahen Keliat ◽  
Berlian Hasibuan ◽  
Abdullah Afif Siregar ◽  
Sahat Halim
Keyword(s):  
Pediatric Cardiology ◽  
Sinus Tachycardia ◽  
Heart Diseases ◽  
Antiarrhythmic Agents ◽  
Age Group ◽  
Intraventricular Conduction ◽  
Conduction Disturbances ◽  
School Of Medicine ◽  
North Sumatra ◽  
Overall Mortality

A retrospective study on arrhythmias and conduction disturbances was conducted in 1986 in the Division of Pediatric Cardiology of Dr. Pirngadi Hospital, Medon. There were 106 (35.33%) cases with arrhythmias and conduction disturbances out of 300 patients studied. The most common type of arrhytmia among the patients under 5 was intraventricular conduction defects, whilst in the age group of 5-10 were sinus tachycardia and intraventricular conduction defects, and in the age group of 10-15 was first degree A-V block.Rheumatic heart diseases and VSD were the most common cardiac diseases associated with arrhythmias, where the frequency were 18.86% and 10.37%, respectively. Arrhythmias associated with several extracardiac diseases were found in 60 (56.61%). Two out of 7 cases who was rreated with antia"hythmic agents died with SVT associated with bronchopneumonia, and atria/fibrillation associated with gastroenteritis, dehydration and malnutrition. Treatment against the main diseases (without antiarrhythmic agents) was done in the remainders. Even though the overall mortality rate was 13.20%, it was not due to arrhythmia itself but most of them died of non-arrhythmic origin.

scholarly journals Reducing dairy data inconsistency through Regional Modeling Approach (RMA): a case from North-Western part of Bangladesh

2021 ◽  
Vol 49 (2) ◽  
pp. 128-141
Author(s):  
MM Uddin ◽  
A Akter ◽  
M Tanzin ◽  
MN Sultana ◽  
ABM Khaleduzzaman ◽  
...  
Keyword(s):  
Milk Production ◽  
Regional Level ◽  
The Other ◽  
Research Network ◽  
Regional Modeling ◽  
National Data ◽  
Modeling Approach ◽  
Lactating Cows ◽  
Data Inconsistency ◽  
North Western

In Bangladesh, the transformation of dairy farming from livelihood-oriented to enterprise-driven farming system might require deeper understanding on the regional differences in terms of regional potential for further dairy development. This, however, entails detailed data on dairy farm at regional level. Since the data are relatively very scarce in one hand and on the other hand, even available, are contradicting among various sources in terms of data accuracy and precision, the application of the regional modeling on the data and extrapolates to the national data and vice-versa is one of the ways to identify the possible options to improve the data availability and quality. Considering this, the current study was undertaken to assess the data inconsistency by comparing the dairy herd structure and its milk production at regional level and propose a validation tool to arrive at the national data by using the regional findings. The International Farm Comparison Network (IFCN) Regional Modeling Approach (RMA) along with the locally developed Integrated Dairy Research Network (IDRN) farm model was used. The primary data was collected from three divisions (9 districts) from the North-Western part of the country. The results revealed that proportion of household farm dominates over family and business farm while considering the total dairy cow as unit for defining the farm type. The share of the cross bred cows to the local cows is 74.6% and 24.4%, respectively. However, the proportion of lactating cows over dry cows and heifer seems to be higher in local cows (48.8%) than cross breed cows (34.2%). The average milk production for all regions is 4.49 lit/day/cow while that for cross breed is 6.23 lit and local 1.71 lit/day/cow. Using regional model and its coefficient on average milk production, herd composition, proportion of lactating cows on total milk production of DLS and IDRN revealed that IDRN new model estimates 36.5% lower milk than the DLS in 2019 and 33.5% lower in 2018. The IDRN version 1.0 and 2.0 model difference was found to 15.4% and 18.3% lower for 2018 and 2019, respectively. The model setup, calibration and validation are time-demanding and challenging tasks for these large set of data, given the scale intensive data requirements, and the need to ensure the reliability data from multiple regions. This study concludes that regional modeling is quite useful for validating the regional share of the milk production and national milk production. However, this study would recommend for using standardized for data collection, validation and thus conducting further study on the other regions and finally including all regions of the country. Bang. J. Anim. Sci. 2020. 49 (2): 128-141

P-290 Role of Computed Tomography in Pediatric Cardiology for Neonates with Congenital Heart Diseases

2009 ◽  
Vol 4 ◽  
pp. S134
Author(s):  
Jia-Kan Chang ◽  
Kai-Sheng Hsieh ◽  
Chu-Chuan Lin ◽  
Ta-Cheng Hwang ◽  
Ching-Yen Pan ◽  
...  
Keyword(s):  
Computed Tomography ◽  
Congenital Heart ◽  
Pediatric Cardiology ◽  
Heart Diseases ◽  
Congenital Heart Diseases

scholarly journals mapMECFS: a portal to enhance data discovery across biological disciplines and collaborative sites

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Ravi Mathur ◽  
Megan U. Carnes ◽  
Alexander Harding ◽  
Amy Moore ◽  
Ian Thomas ◽  
...  
Keyword(s):  
Data Integration ◽  
Data Sharing ◽  
Complex Disease ◽  
Chronic Fatigue ◽  
Research Community ◽  
Research Network ◽  
Data Repository ◽  
Data Repositories ◽  
Public Data ◽  
Data Portal

Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating disease which involves multiple body systems (e.g., immune, nervous, digestive, circulatory) and research domains (e.g., immunology, metabolomics, the gut microbiome, genomics, neurology). Despite several decades of research, there are no established ME/CFS biomarkers available to diagnose and treat ME/CFS. Sharing data and integrating findings across these domains is essential to advance understanding of this complex disease by revealing diagnostic biomarkers and facilitating discovery of novel effective therapies. Methods The National Institutes of Health funded the development of a data sharing portal to support collaborative efforts among an initial group of three funded research centers. This was subsequently expanded to include the global ME/CFS research community. Using the open-source comprehensive knowledge archive network (CKAN) framework as the base, the ME/CFS Data Management and Coordinating Center developed an online portal with metadata collection, smart search capabilities, and domain-agnostic data integration to support data findability and reusability while reducing the barriers to sustainable data sharing. Results We designed the mapMECFS data portal to facilitate data sharing and integration by allowing ME/CFS researchers to browse, share, compare, and download molecular datasets from within one data repository. At the time of publication, mapMECFS contains data curated from public data repositories, peer-reviewed publications, and current ME/CFS Research Network members. Conclusions mapMECFS is a disease-specific data portal to improve data sharing and collaboration among ME/CFS researchers around the world. mapMECFS is accessible to the broader research community with registration. Further development is ongoing to include novel systems biology and data integration methods.

scholarly journals Impact of a Virtual Clinic in a Paediatric Cardiology Network on Northeast Brazil

2015 ◽  
Vol 2015 ◽  
pp. 1-4 ◽  
Author(s):  
Juliana Sousa Soares de Araújo ◽  
Adalberto Vieira Dias Filho ◽  
Renata Grigório Silva Gomes ◽  
Cláudio Teixeira Regis ◽  
Klecida Nunes Rodrigues ◽  
...  
Keyword(s):  
Congenital Heart ◽  
Pediatric Cardiology ◽  
Neonatal Period ◽  
Positive Impact ◽  
Heart Diseases ◽  
Heart Defects ◽  
Neonatal Morbidity ◽  
Outpatient Clinics ◽  
Screening Process ◽  
Live Births

Introduction. Congenital heart diseases (CHD) affect approximately 1% of live births and is an important cause of neonatal morbidity and mortality. Despite that, there is a shortage of paediatric cardiologists in Brazil, mainly in the northern and northeastern regions. In this context, the implementation of virtual outpatient clinics with the aid of different telemedicine resources may help in the care of children with heart defects.Methods. Patients under 18 years of age treated in virtual outpatient clinics between January 2013 and May 2014 were selected. They were divided into 2 groups: those who had and those who had not undergone a screening process for CHD in the neonatal period. Clinical and demographic characteristics were collected for further statistical analysis.Results. A total of 653 children and teenagers were treated in the virtual outpatient clinics. From these, 229 had undergone a neonatal screening process. Fewer abnormalities were observed on the physical examination of the screened patients.Conclusion. The implementation of pediatric cardiology virtual outpatient clinics can have a positive impact in the care provided to people in areas with lack of skilled professionals.

scholarly journals Fostering ecological data sharing: collaborations in the International Long Term Ecological Research Network

Ecosphere ◽  
2015 ◽  
Vol 6 (10) ◽  
pp. art204 ◽  
Author(s):  
Kristin L. Vanderbilt ◽  
Chau-Chin Lin ◽  
Sheng-Shan Lu ◽  
Abd Rahman Kassim ◽  
Honglin He ◽  
...  
Keyword(s):  
Data Sharing ◽  
Research Network ◽  
Ecological Research ◽  
Ecological Data ◽  
Long Term Ecological Research

scholarly journals Organization of specialized care for children with cardiovascular diseases at the republican heart center in Republic of Bashkortostan

2015 ◽  
Vol 96 (4) ◽  
pp. 633-635
Author(s):  
I E Nikolaeva ◽  
R R Rayanova ◽  
L V Yakovleva ◽  
L R Shaybakova ◽  
D V Onegov ◽  
...  
Keyword(s):  
Cardiac Surgery ◽  
Cardiovascular Diseases ◽  
Medical Care ◽  
Children And Adolescents ◽  
Congenital Heart ◽  
Pediatric Cardiology ◽  
Heart Diseases ◽  
Congenital Heart Diseases ◽  
Republic Of Bashkortostan ◽  
Heart Center

The organization of cardiologic and cardio surgical care for children and adolescents in Republican Heart Center of Republic of Bashkortostan is characterized. The hospital has a united block for providing specialized medical care. Departments of cardio surgery, pediatric cardiology and intensive care unit №1 are based on the same floor. The advantages of staged approach and continuity of care for children and adolescents with cardiovascular diseases is emphasized. Registers for prenatal diagnosis of congenital heart diseases (includes 7894 children and adolescents by December 31, 2012), for pulmonary hypertension are developed and used in the Republican Heart Center for timely cardio surgery in patients with congenital heart diseases. The main directions of medical care for children with cardiovascular diseases in Republic heart center are cardiac surgery of congenital heart diseases, pediatric cardiology, radiosurgery of congenital heart diseases, emergency cardiology and cardiac surgery, and neonatal cardiac surgery. 4500 cardiovascular surgeries are performed annually, including 398 on children aged 0-17 years, among them 224 on assisted circulation. Department of cardio surgery annually performs about 100 surgeries on infant patients with «critical» congenital heart diseases, contributing up to 35% of all children who underwent surgery, including 30 surgeries per year on newborns. The outpatient clinics examines over 15 thousand children per year. The basis of the successful maintaining the public health is good teamwork of highly specialized professionals in the atmosphere of a clear motivation, enthusiasm and high morals.

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