Views on provision of personalised cancer risk information: A qualitative interview study with members of the public

2016 ◽  
Vol 42 (11) ◽  
pp. S234
Author(s):  
Juliet Usher-Smith ◽  
Barbora Silarova ◽  
Artitaya Lophatananon ◽  
Robbie Duschinsky ◽  
Jackie Campbell ◽  
...  
2017 ◽  
Vol 17 (1) ◽  
Author(s):  
Juliet A. Usher-Smith ◽  
Barbora Silarova ◽  
Artitaya Lophatananon ◽  
Robbie Duschinsky ◽  
Jackie Campbell ◽  
...  

2021 ◽  
Author(s):  
Elien Colman ◽  
Marta Wanat ◽  
Herman Goosens ◽  
Sarah Tonkin-Crine ◽  
Sibyl Anthierens

Objectives: To explore the views and experiences of scientists working on government advisory boards during the COVID-19 pandemic, with the aim to learn lessons for future pandemic management and preparedness. Design: Explorative qualitative interview study. Participants: Twenty one scientists with an official government advisory role during the COVID-19 pandemic in Belgium, the Netherlands, UK, Sweden or Germany. Methods: Online video or telephone semi-structured interviews took place between December 2020 and April 2021. They were audio recorded and transcribed, and analyzed using a combination of inductive and deductive thematic analysis techniques. Results: Scientists found working on the advisory boards during the COVID-19 pandemic to be a rewarding experience. However, they identified numerous challenges including learning to work in an interdisciplinary way, ensuring that evidence is understood and taken on board by governments, and dealing with media and public reactions. Scientists found themselves taking on new roles, the boundaries of which were not clearly defined. Consequently, they received substantial media attention and were often perceived and treated as a public figure. Conclusions: Scientists working on advisory boards in European countries faced similar challenges, highlighting key lessons to be learnt. Future pandemic preparedness efforts should focus on building interdisciplinary collaboration within advisory boards; ensuring transparency in how boards operate; defining and protecting boundaries of the scientific advisor role; and supporting scientists to inform the public in the fight against disinformation, whilst dealing with potential hostile reactions.


2019 ◽  
Vol 17 (6) ◽  
pp. 764-783
Author(s):  
Frederike Ambagtsheer ◽  
Linde Van Balen

This article presents the results of a qualitative interview study amongst 41 Dutch transplant professionals. The overarching aim was to acquire in-depth understanding of transplant professionals’ experiences with and attitudes towards patients who purchase kidneys. We found that transplant professionals occasionally treat patients who are suspected of kidney purchases abroad. However, they turn a blind eye to their patients’ suspected purchases. Secrecy and silence function as a tacit agreement between patients and their caregivers that keeps the subject of kidney purchase at a safe distance and allows transplant professionals to ignore its suspected occurrence. They thus participate in the building of walls of secrecy and silence in the organ trade.


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