P140: Permanent dark ink radiotherapy tattoos and its psychological impact on breast cancer survivors - Novel approach using social media platforms

In the United States, about 11% (26,393) of those diagnosed with breast cancer in 2016 will be young or less than 45 years old. Young breast cancer survivors, compared to older cancer survivors, are a disparate group that experience higher incidence of advanced disease, greater mortality, and poorer quality of life, and are often faced with difficulty locating support that meet the unique needs of young women. The Gulf States Young Breast Cancer Survivor Network, composed of three sister networks, formed a partnership aimed at harnessing the power of social media to reach and impact the lives of young women with breast cancer. The collaborative partnership framework and the power of synergy are shown in merging two existing programs and incorporating a third new program.

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Challenges associated with longitudinal survivorship research: attrition and a novel approach of reenrollment in a 6-year follow-up study of older breast cancer survivors

Journal of Cancer Survivorship ◽

10.1007/s11764-008-0049-y ◽

2008 ◽

Vol 2 (2) ◽

pp. 95-103 ◽

Cited By ~ 14

Author(s):

Kerri M. Clough-Gorr ◽

Aliza K. Fink ◽

Rebecca A. Silliman

Keyword(s):

Breast Cancer ◽

Cancer Survivors ◽

Breast Cancer Survivors ◽

Follow Up Study ◽

Novel Approach

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Evaluation of the Pathways for Survivors program to address breast cancer survivorship associated distress

10.21203/rs.3.rs-335346/v1 ◽

2021 ◽

Author(s):

Saumya Umashankar ◽

Matina Elise Mamounas ◽

Madeline Matthys ◽

Edward Kenji Hadeler ◽

Emily Claire Wong ◽

...

Keyword(s):

Breast Cancer ◽

Cancer Survivors ◽

Breast Cancer Survivors ◽

Psychological Impact ◽

Reference Population ◽

Anxiety And Depression ◽

Measurement Information ◽

Behavioral Strategies ◽

Breast Cancer Patients ◽

Patient Reported

Abstract Purpose: Breast cancer patients not infrequently experience escalation of anxiety after completing curative treatment. This study evaluated the acceptability and psychological impact of a one-day workshop emphasizing behavioral strategies involving intention and self-efficacy.Methods: Breast cancer survivors attending a one-day Pathways for Survivors workshop, provided feedback, and completed electronic quality of life (QOL) questionnaires at baseline, 1- and 6-weeks, and 6-months post workshop. Attendees’ baseline QOL scores were compared to follow up (FUP) scores. Scores from patients receiving routine FUP care were also compiled as a reference population.Results: Seventy-seven patients attended one of nine workshops. Mean satisfaction was 9.7/10 with the workshop, and 9.96/10 with the moderator. Participants’ baseline mean Patient-Reported Outcomes Measurement Information System (PROMIS) anxiety and depression scores were 57.8 ± 6.9 and 55.3 ± 7.5, significantly higher than routine FUP care patients (49.1 ± 8.3 and 47.3 ± 8 respectively). PROMIS anxiety and depression scores decreased and Happiness Index Profile (HIP-10), measuring intention and resiliency, increased significantly at 1- and 6-week FUPs.Conclusions: Pathways for Survivors was favorably received. Anxiety and depression decreased significantly at 1- and 6-weeks post workshop and remained below baseline at 6 months. Increased HIP-10 scores support that patients incorporated skills from the workshop. A one-day workshop led by a lay moderator significantly improved several psychological measures, suggesting it may be a useful and time-efficient strategy to improve QOL in breast cancer survivors. We are investigating whether an abbreviated “booster” of the intervention at a later date could further improve and maintain QOL gains.

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Feasibility of smartphone application and social media intervention on breast cancer survivors’ health outcomes

Translational Behavioral Medicine ◽

10.1093/tbm/iby002 ◽

2018 ◽

Vol 9 (1) ◽

pp. 11-22 ◽

Cited By ~ 26

Author(s):

Zachary Pope ◽

Jung Eun Lee ◽

Nan Zeng ◽

Hee Yun Lee ◽

Zan Gao

Keyword(s):

Breast Cancer ◽

Social Media ◽

Health Outcomes ◽

Cancer Survivors ◽

Breast Cancer Survivors ◽

Smartphone Application ◽

Media Intervention

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Evaluation of the Pathways for Survivors program to address breast cancer survivorship associated distress (Preprint)

10.2196/preprints.31756 ◽

2021 ◽

Author(s):

Saumya Umashankar ◽

Matina Elise Mamounas ◽

Madeline Matthys ◽

Edward Kenji Hadeler ◽

Emily Claire Wong ◽

...

Keyword(s):

Breast Cancer ◽

Cancer Survivors ◽

Breast Cancer Survivors ◽

Psychological Impact ◽

Reference Population ◽

Anxiety And Depression ◽

Measurement Information ◽

Behavioral Strategies ◽

Breast Cancer Patients ◽

Patient Reported

UNSTRUCTURED Purpose: Breast cancer patients not infrequently experience escalation of anxiety after completing curative treatment. This study evaluated the acceptability and psychological impact of a one-day workshop emphasizing behavioral strategies involving intention and self-efficacy. Methods: Breast cancer survivors attending a one-day Pathways for Survivors workshop, provided feedback, and completed electronic quality of life (QOL) questionnaires at baseline, 1- and 6-weeks, and 6-months post workshop. Attendees’ baseline QOL scores were compared to follow up (FUP) scores. Scores from patients receiving routine FUP care were also compiled as a reference population. Results: Seventy-seven patients attended one of nine workshops. Mean satisfaction was 9.7/10 with the workshop, and 9.96/10 with the moderator. Participants’ baseline mean Patient-Reported Outcomes Measurement Information System (PROMIS) anxiety and depression scores were 57.8±6.9 and 55.3±7.5, significantly higher than routine FUP care patients (49.1±8.3 and 47.3±8 respectively). PROMIS anxiety and depression scores decreased and Happiness Index Profile (HIP-10), measuring intention and resiliency, increased significantly at 1- and 6-week FUPs. Conclusions: Pathways for Survivors was favorably received. Anxiety and depression decreased significantly at 1- and 6-weeks post workshop and remained below baseline at 6 months. Increased HIP-10 scores support that patients incorporated skills from the workshop. A one-day workshop led by a lay moderator significantly improved several psychological measures, suggesting it may be a useful and time-efficient strategy to improve QOL in breast cancer survivors. We are investigating whether an abbreviated “booster” of the intervention at a later date could further improve and maintain QOL gains.

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