Self-care needs and practices for the older adult caregiver: An integrative review

2020 ◽  
Author(s):  
Kathryn Sabo ◽  
Elizabeth Chin
Keyword(s):  
Older Adult ◽  
Self Care ◽  
Integrative Review ◽  
Care Needs ◽  
Adult Caregiver

scholarly journals Starting an Older Adult Lecture for First Semester Nursing Students With a Truth or Myth Game

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 14-14
Author(s):  
Lynn Brown ◽  
Pao-feng Tsai
Keyword(s):  
Older Adults ◽  
Health Care ◽  
Nursing Students ◽  
Older Adult ◽  
Care Needs ◽  
Final Exam ◽  
Negative Stereotypes ◽  
First Semester ◽  
Positive Attitudes ◽  
New Information

Abstract False ideas about the physical and psychosocial characteristics of older adults exist in America. It is especially important that nurses are not susceptible to myths and stereotypes as these myths can affect the quality of patient care. For example, some people stereotype older adults as forgetful, disabled, ill, and unable to understand new information. Misconceptions and negative stereotypes are also present in first year nursing students. It is vital that students assess their own attitudes about older adults to form positive attitudes and gain knowledge about aging and health care needs. To achieve this goal, the older adult lecture in a first semester theory and fundamental course begins with a PowerPoint slide presentation asking students to distinguish truths and myths. The truth or myth topics include a) developmental tasks; b) common physiological changes; c) a comparison of delirium, dementia, and depression; and d) addressing health concerns of older adults. Active discussion follows the activity. Seventy to ninety percent of students correctly answered nine of ten questions related to older adult content on the final exam. Considering the increasing number of older adults in the health care setting, nurse educators must dismantle negative stereotypes with creative teaching strategies.

scholarly journals Integrative Review of the Supportive Care Needs of Arab People Affected by Cancer

2016 ◽  
Vol 0 (0) ◽  
pp. 0 ◽  
Author(s):  
Ibrahim Alananzeh ◽  
Janelle Levesque ◽  
Cannas Kwok ◽  
Bronwyn Everett
Keyword(s):  
Supportive Care ◽  
Supportive Care Needs ◽  
Integrative Review ◽  
Care Needs ◽  
Arab People

Incongruent Perceptions of Older Adult/Caregiver Dyads

1990 ◽  
Vol 39 (1) ◽  
pp. 63 ◽  
Author(s):  
Nancy Zweibel ◽  
Lois A. Lydens
Keyword(s):  
Older Adult ◽  
Adult Caregiver

scholarly journals Using an Interactive App for Symptom Reporting and Management Following Pancreatic Cancer Surgery to Facilitate Person-Centered Care: Descriptive Study

10.2196/17855 ◽  
2020 ◽  
Vol 8 (6) ◽  
pp. e17855 ◽  
Author(s):  
Tina Gustavell ◽  
Kay Sundberg ◽  
Ann Langius-Eklöf
Keyword(s):  
Health Care ◽  
Pancreatic Cancer ◽  
Self Care ◽  
Symptom Burden ◽  
Symptom Reporting ◽  
Activity Levels ◽  
Care Needs ◽  
Person Centered Care ◽  
Centered Care ◽  
Care Activity

Background Pancreatic and periampullary cancers are rare but have high mortality rates. The only hope for cure is surgical removal of the tumor. Following pancreatic surgery, the patients have a great deal of responsibility for managing their symptoms. Patients report a lack of sufficient knowledge of self-care and unmet supportive care needs. This necessitates a health care system responsive to these needs and health care professionals who pay close attention to symptoms. Person-centered care is widely encouraged and means a shift from a model in which the patient is the passive object of care to a model involving the patient as an active participant in their own care. To address the challenges in care following pancreatic cancer surgery, an interactive app (Interaktor) was developed in which patients regularly report symptoms and receive support for self-care. The app has been shown to reduce patients’ symptom burden and to increase their self-care activity levels following pancreaticoduodenectomy due to cancer. Objective The aim of the study was to describe how patients used the Interaktor app following pancreaticoduodenectomy due to cancer and their experience with doing so. Methods A total of 115 patients were invited to use Interaktor for 6 months following pancreaticoduodenectomy. Of those, 35 declined, 8 dropped out, and 46 did not meet the inclusion criteria after surgery, leaving 26 patients for inclusion in the analysis. The patients were instructed to report symptoms daily through the app for up to 6 months following surgery. In case of alerting symptoms, they were contacted by their nurse. Data on reported symptoms, alerts, and viewed self-care advice were logged and analyzed with descriptive statistics. Also, the patients were interviewed about their experiences, and the data were analyzed using thematic analysis. Results The patients’ median adherence to symptom reporting was 82%. Fatigue and pain were the most reported symptoms. Alerting symptoms were reported by 24 patients, and the most common alert was fever. There were variations in how many times the patients viewed the self-care advice (range 3-181 times). The most commonly viewed advice concerned pancreatic enzyme supplements. Through the interviews, the overarching theme was “Being seen as a person,” with the following 3 sub-themes: “Getting your voice heard,” “Having access to an extended arm of health care,” and “Learning about own health.” Conclusions Interaktor proved to be well accepted. It made patients feel reassured at home and offered support for self-care. The app facilitated person-centered care by its multiple features targeting individual supportive care needs and enabled participation in their own care. This supports our recent studies showing that patients using the app had less symptom burden and higher self-care activity levels than patients receiving only standard care.

Self-Care Needs of Caregivers Dealing with Stroke

2006 ◽  
Vol 38 (1) ◽  
pp. 31-36 ◽  
Author(s):  
Amanda M. Cook ◽  
Linda L. Pierce ◽  
Barbara Hicks ◽  
Victoria Steiner
Keyword(s):  
Self Care ◽  
Care Needs

Abstract 245: Demonstrating the Effectiveness of an Outpatient Occupational Therapy Program for Individuals with Heart Failure

2017 ◽  
Vol 10 (suppl_3) ◽  
Author(s):  
Olivia Carroll ◽  
Kristin Nxumalo ◽  
Amber Bennett ◽  
Whitney Pike
Keyword(s):  
Heart Failure ◽  
Occupational Therapy ◽  
Care Management ◽  
Assessment Tool ◽  
Lifestyle Modification ◽  
Self Care ◽  
The Self ◽  
Lifestyle Modifications ◽  
Care Needs ◽  
Therapy Program

Objective: To demonstrate the effectiveness of an outpatient occupational therapy program on improving self-care for individuals with heart failure. Background: Hospitalizations for heart failure (HF) are the largest Medicare expenditure, and 12% of these admissions are considered preventable. Effective self-management of the debilitating symptoms associated with HF (shortness of breath, fatigue, fluid retention, cognitive decline) helps keep patients out of the hospital. Individuals often experience difficulty incorporating self-care management activities into their daily lives. Occupational therapy (OT) is well suited to address the self-care needs of people with HF by increasing patient self-efficacy and facilitating lifestyle modification through the incorporation of new habits, roles, and routines. Methods: Participants with HF (n=11, ages 40-86) enrolled in an outpatient OT program focusing on self-care management. Participants received weekly, bi-weekly or monthly one-hour treatments over a six-month period. Sessions addressed the following topics: low sodium diet adherence, medication management, activity tolerance, symptom monitoring and psychosocial coping strategies. The Self-Care of Heart Failure Index (SCHFI) was administered at evaluation and upon completion of the program. The SCHFI is a reliable and valid assessment tool that measures self-care maintenance, management and confidence in people with HF. Results: All participants who received two or more treatments demonstrated 33.33% (16.67 of 49.99) to 190.01% (63.33 of 33.33) improvement in maintenance of self-care routines based on pre and post SCHFI scores. Additionally, half of these participants demonstrated 28.47% (22.16 of 77.84) to 85.33% (38.4 of 45) improvement in confidence with self-care management based on pre and post SCHFI scores. Conclusion: Participation in an outpatient OT program that focused on incorporating lifestyle modifications into daily routines was effective at improving self-care for people with HF, specifically maintenance of self-care routines and confidence with ability to self-manage their chronic condition.

The conscious state of the dying patient: An integrative review

2021 ◽  
pp. 1-13
Author(s):  
Tricia O'Connor ◽  
Catherine Paterson ◽  
Jo Gibson ◽  
Karen Strickland
Keyword(s):  
Case Series ◽  
Conscious State ◽  
Integrative Review ◽  
World Health ◽  
Holistic Care ◽  
Cochrane Library ◽  
Cognitive State ◽  
Care Needs ◽  
Research Perspectives ◽  
Dying Patient

Abstract Objectives The cognitive state of the dying in the last days of life may deteriorate, resulting in a reduced ability to communicate their care needs. Distressing symptoms, physical and existential, may go unrecognized and untreated. The objectives of this integrative review were to systematically interrogate the literature to determine the changing conscious state of dying adults and to identify changes in their care needs. Methods An integrative review protocol was registered with PROSPERO (CRD42020160475). The World Health Organization definition of palliative care informed the review. CINAHL, MEDLINE (OVID), Scopus, PsycINFO, Cochrane Library, and PubMed were searched from inception to October 2019 using search strategies for each database. Inclusion and exclusion criteria were applied. Methodological quality was appraised using the Joanna Briggs Institute Checklist for the Case Series appraisal tool. Extracted data were synthesized using a narrative approach. Results Of 5,136 papers identified, 11 quantitative case series studies were included. Six themes were identified: conscious state and change over time, awareness, pain, absence of holistic care, the voiceless patient, and signs and symptoms of dying. Significance of results In the last days of life, the physical and conscious state of the dying patient declines, resulting in an inability to express their care needs. Dignity in dying and freedom from pain and suffering are both an imperative and a human right; and unvoiced care needs can result in unnecessary suffering and distress. This review revealed that little is known about how healthcare professionals assess holistic care needs at this vulnerable time. Although much has been written about palliative and end-of-life care, the assessment of care needs when patients are no longer able to voice their own needs has largely been ignored, with little attention from clinical, educational, or research perspectives. This gap in evidence has important implications for the dying and their families.

Abstract P096: Effectiveness of a Comprehensive Care Delivery System on Readmission Rates and Self-Care in Older Adult Patients with Heart Failure

Circulation ◽  
2015 ◽  
Vol 131 (suppl_1) ◽  
Author(s):  
Linda L Tavares
Keyword(s):  
Heart Failure ◽  
Older Adult ◽  
Delivery System ◽  
Care Delivery ◽  
Self Care ◽  
Comprehensive Care ◽  
Remote Patient Monitoring ◽  
Readmission Rates ◽  
Patients With Heart Failure ◽  
Remote Patient

Background: Telemedicine interventions to prevent readmissions in patients with heart failure (HF) have shown inconsistent results in their effectiveness on HF-related and all-cause rehospitalization. Team-based interventions geared toward patient-centric care delivery in concert with comprehensive care coordination that enhances patient self-care may help to prevent unplanned hospitalizations in patients with HF. Objective: To evaluate the outcomes of a comprehensive care delivery system using a team-based high-touch coaching and remote patient monitoring intervention designed for older adult patients with heart failure in a community hospital setting. Design: A descriptive cross-sectional observational design was used to measure readmission rates. A one-group pretest-posttest design using the Self-care of Heart Failure Index was used to measure self-care outcomes. Correlation analysis was performed to determine relationships between the coaching and outcomes. Patients: Participants were older adult patient hospitalized with heart failure and followed for 30-days. Patients were excluded if they were unwilling to participate, non- English speaking, had end-stage renal disease, a terminal illness, debilitating neuro-psychological disorder, or lived greater than 30 miles away. Results: The 30-patients were primarily Caucasian, female with a mean age of 77.5 years. The majority of patients had medically optimized NYHA class II or III HF with an ejection fraction ≤ 40%. HF readmission rate was zero, and 6% for all cause. Patient self-care scores improved (p < .0001). Team based coaching was correlated with improvement in self-care maintenance scores (p =.009). Conclusion: A comprehensive care delivery system leveraging remote patient monitoring and health coaching significantly reduced 30-day readmission and enhanced patient self-care management. Implications: Patient centric team based care models leveraging technology should continue to be developed and implemented to transform care delivery for older adults with HF. Table 1. Change in Mean Self-Care of Heart Failure Index Scores p < .0001 p < .0001 p < .0001

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