The Lived Experience of a Mind-Body Intervention for People Living With HIV

2008 ◽  
Vol 19 (3) ◽  
pp. 192-199 ◽  
Author(s):  
Stephanie K. Andrade ◽  
Elizabeth H. Anderson
Keyword(s):  
Lived Experience ◽  
People Living With Hiv ◽  
Living With Hiv

scholarly journals Gendered Experiences of Living with HIV in Australia

Sexes ◽  
2021 ◽  
Vol 2 (3) ◽  
pp. 244-255
Author(s):  
Vicki Hutton
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Case Reports ◽  
Economic Status ◽  
Geographic Location ◽  
Geographic Region ◽  
Gender And Sexuality ◽  
Economic Consequences ◽  
People Living With Hiv ◽  
Living With Hiv

Globally, women represent more than half the people living with HIV. This proportion varies by country, with an over-representation of HIV among men who have sex with men (MSM) in some regions. For example, in Australia, MSM account for over 60% of transmissions, with heterosexual sex accounting for almost a quarter of transmissions. Irrespective of geographic region, there is evidence that women can have a different lived experience of HIV due to their unequal social and economic status in society, while MSM can have a different lived experience depending on the laws and customs of their geographic location. Gender differences related to risk factors, stigma, access to services, mental health, health-related quality of life and economic consequences have been consistently reported globally. This paper explores the subjective lived experience of gender and sexuality disparities among three individuals living with HIV in Australia: a male who identified as gay, and a male and female who each identified as heterosexual. Analysis of themes from these three case reports indicated discernible differences by gender and sexuality in four areas: access to medical services, social support, stigma and mental health. It is argued that knowledge and understanding of potential gender and sexuality disparities must be factored into supportive interventions for people living with HIV in Australia.

“I’m Just Forgetting and I Don’t Know Why”: Exploring How People Living With HIV-Associated Neurocognitive Disorder View, Manage, and Obtain Support for Their Cognitive Difficulties

2018 ◽  
Vol 28 (6) ◽  
pp. 859-872 ◽  
Author(s):  
Alexander R. Terpstra ◽  
Catherine Worthington ◽  
Francisco Ibáñez-Carrasco ◽  
Kelly K. O’Brien ◽  
Aiko Yamamoto ◽  
...  
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Professionals ◽  
Management Strategies ◽  
Well Being ◽  
People Living With Hiv ◽  
Neurocognitive Disorder ◽  
Cognitive Difficulties ◽  
Hiv Associated Neurocognitive Disorder ◽  
Living With Hiv

HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with community members living with HIV, focused on how cognitive difficulties manifested and progressed, impacted well-being, and were discussed with others. We analyzed interview transcripts using a team-based, thematic approach. Participants described concentration, memory, and multitasking difficulties that fluctuated over time, as well as potential risk factors, management strategies, and psychosocial consequences. They reported they seldom discussed cognitive impairment with health care professionals, and that receiving a HAND diagnosis was validating, informative, yet somewhat disconcerting. Conversations between health care professionals and people living with HIV about HAND may provide opportunities for education, assessment, and support.

scholarly journals The Lived Experience of PLWHA and Partner’s Responses toward the Fulfillment of Sexual Needs

2018 ◽  
Vol 7 (2) ◽  
pp. 79
Author(s):  
I Gede Nyoman Ardi Supartha ◽  
Agung Waluyo ◽  
I Made Kariasa
Keyword(s):  
Lived Experience ◽  
Sexual Desire ◽  
People Living With Hiv ◽  
Normal Person ◽  
Snowball Sampling ◽  
Single Person ◽  
Qualitative Descriptive ◽  
Living With Hiv ◽  
Depth Interviews

Background: Every single person including people living with HIV/AIDS (PLWHA) have five basic needs; one of which is a physiological sexual need. Unfortunately, PLWHA face many difficulties in fulfilling their sexual needs due to the stigma and fear of infecting their partner.Purpose: The purpose of this study was to explore the lived experience of PLWHA and partner’s responses toward the fulfillment of sexual needs.Methods: This study was a qualitative descriptive phenomenological research, which collected data through in-depth interviews from fourteen PLWHA in Paramacitta Spirit Foundation, Denpasar. The participants were recruited through snowball sampling, informed and gave consent for their voluntary participation. The data were analyzed using Colaizzi’s phenomenological method.Results: The study revealed five themes describing the sexual experiences of PLWHA, including: (1) the fulfillment of sexual need of PLWHA, (2) the roles of partner for PLWHA, (3) various perceived stimuli which could increase the sexual desire, (4) the perceived factors which could incapacitate the ability and quality of sexual desire, and (5) the efforts to increase sexual capability and quality.  Conclusion: Sex was an important need for PLWHA to meet. Despite having a virus, after undergoing anti-retroviral (ARV) treatment, PLWHA felt healthier, and thus they could meet their sexual need like a normal person in general.

A Photovoice Exploration of the Lived Experience of Intersectional Stigma among People Living with HIV

2021 ◽  
Author(s):  
Michelle Teti ◽  
Tyler Myroniuk ◽  
Shane Epping ◽  
Kaleea Lewis ◽  
Linda Liebenberg
Keyword(s):  
Lived Experience ◽  
People Living With Hiv ◽  
Living With Hiv

scholarly journals Creating Productive Tensions: Clinicians Working with Patients as Peer Researchers in a Community-Based Participatory Research Study of the Lived Experience of HIV-Associated Neurocognitive Disorder (HAND)

2018 ◽  
Vol 19 (3) ◽  
pp. 53-72
Author(s):  
Francisco Ibáñez-Carrasco ◽  
Alexander Roy Terpstra ◽  
Sean Rourke ◽  
Aiko Yamamoto ◽  
Soo Ying Chan Carusone ◽  
...  
Keyword(s):  
Knowledge Transfer ◽  
Lived Experience ◽  
People Living With Hiv ◽  
Neurocognitive Disorder ◽  
Community Based ◽  
Community Based Research ◽  
Knowledge Transfer And Exchange ◽  
Hiv Associated Neurocognitive Disorder ◽  
Peer Researchers ◽  
Living With Hiv

About 50% of people living with HIV will develop HIV-associated neurocognitive disorder (HAND) during their lifetime, and we know that cognitive issues are a concern for people living with HIV. However, limited information exists regarding how HAND is managed and coped with, or how cognitive issues are discussed with others, including health care professionals. Following a community-based research approach, we conducted 25 interviews in 2016 aimed to (1) build the capacity of people living with HIV, (2) facilitate participant recruitment and data collection, (3) increase the validity and reliability of our data analysis results, and (4) facilitate knowledge transfer and exchange regarding HAND. After thorough training, we engaged a number of peer researchers living with HAND in the analysis and knowledge transfer and exchange (KTE) phases of the study. This engagement prompted a number of tensions between the clinicians and the peers that we learned to navigate and make productive. We conclude that it is possible to engage patients and providers only if careful attention, time and human resources are provided to navigating the emerging tensions. The outcomes of our study suggest that engaging an interdisciplinary team across multiple sites with PRAs is a valuable method for comprehensively exploring the lived experience of a complex chronic condition such as HAND. 

Ageing with HIV/AIDS: a scoping study among people aged 50 and over living in Quebec

2012 ◽  
Vol 33 (7) ◽  
pp. 1212-1242 ◽  
Author(s):  
ISABELLE WALLACH ◽  
SHARI BROTMAN
Keyword(s):  
Lived Experience ◽  
Significant Proportion ◽  
Intergenerational Relationships ◽  
Phenomenological Approach ◽  
People Living With Hiv ◽  
Structural Factors ◽  
Individual Interviews ◽  
Relational Work ◽  
Living With Hiv ◽  
The Impact

ABSTRACTThe population of people aged 50 and over represents a significant proportion of people living with HIV in Western nations. While the number of older people living with HIV is rapidly increasing in Canada, research originating in this country remains relatively scarce. This article therefore proposes to describe the impact of the intersection of HIV and ageing on the identities and lived experiences of people living with HIV of 50 and over (PLHIV50+), both on an individual and social level, in order to offer a picture of their lived experience. Using a phenomenological approach, nine semi-structured individual interviews with PLHIV50+ (men and women) were undertaken. Data analysis identified several central themes which constituted the essence of their experience of the intersection of HIV and ageing, such as the experience of premature ageing, the impact of HIV on intergenerational relationships, the shrinking of one's social network, rejection experienced by the older population, a difficult return to work and a deterioration in living conditions. The results of this research highlight the many challenges faced by PLHIV50+, on physical, relational, work and economic levels. Even though some of the problems faced by PLHIV50+ were related to the experience of corporal changes and a deterioration of health, our research was able to highlight the societal and structural factors underlying the stigma of HIV and ageing.

scholarly journals A patient-centred approach to deprescribing antiretroviral therapy in people living with HIV

2020 ◽  
Vol 75 (12) ◽  
pp. 3425-3432
Author(s):  
Giovanni Guaraldi ◽  
Jovana Milic ◽  
Simone Marcotullio ◽  
Cristina Mussini
Keyword(s):  
Quality Of Life ◽  
Antiretroviral Therapy ◽  
Drug Interactions ◽  
Precision Medicine ◽  
Lived Experience ◽  
People Living With Hiv ◽  
Drug Regimens ◽  
Long Acting ◽  
Living With Hiv

Abstract Only a few studies have explored the benefit of deprescribing in people living with HIV (PLWH), focusing on the discontinuation of non-antiretrovirals (non-ARVs) used for HIV-associated comorbidities (co-medications), or the management of drug–drug interactions (DDIs) between ARVs or between ARVs and co-medications. The availability of modern single-tablet regimens, two-drug regimens and long-acting therapy opens a discussion regarding ARV deprescribing strategies. The objective of this article is to discuss ARV deprescribing strategies in the context of medication-related burden and patients’ lived experience with medicine (PLEM) and to suggest indications for whom, when, how and why to consider these ARV options in PLWH. A PLEM construct helps to better interpret these strategies and provides a patient-centred precision-medicine approach. There are several safe and virologically effective ARV deprescribing strategies, but the ultimate benefits of these interventions still need to be further explored in terms of the overall health and quality of life of patients.

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