163 Sexual Concerns of Female Partners of Prostate Cancer Patients: Novel Data from an Online Health Community

Abstract Background Prostate cancer is often labelled a couple’s disease wherein the partner plays an important role in the man’s illness management and related health promotion activities. The aim of this study was to explore partner experiences of prostate cancer patients’ engagement with a community-based football program. Methods Eight audio-visual recorded semi-structured focus group interviews were conducted with a total of 39 female partners of men with prostate cancer who participated in a community-based football program as part of the nationwide FC Prostate Community Trial (NCT02430792). Data was managed with the software program Nvivo 11 and analysed inductively to derive thematic findings. Results The four thematic findings were: 1) ‘Hope of a new beginning’ which included stories of hope that football would mitigate the negative effects of men’s prostate cancer treatment [s]; 2) ‘My new partner’ was characterized by attributing connections between physical activity and elevated mood as a by-product of men’s involvement in the program; 3) ‘Football first’ included assertions of the couples mutual commitment to the football program; and 4) ‘Invisible needs’ contrasted insecurity, and unforeseen challenges for partners feeling somewhat neglected. Overall, the results confirm the need for cohesion and flexibility amongst couple-dyads to ensure partners and men with prostate cancer benefit from their involvement in football programs. Conclusions This study indicates that partners of prostate cancer survivors’ engaging with community-based football align to idealized gender relations, roles and identities. In many instances, these gendered dimensions aided positive dyadic coping and long-term exercise adherence.

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Using data from an online health community to examine the impact of prostate cancer on sleep

BJU International ◽

10.1111/bju.14986 ◽

2020 ◽

Vol 125 (5) ◽

pp. 634-635 ◽

Cited By ~ 1

Author(s):

Rebecca Robbins ◽

Girardin Jean-Louis ◽

Nicholas Chanko ◽

Penelope Combs ◽

Nataliya Byrne ◽

...

Keyword(s):

Prostate Cancer ◽

Online Health Community ◽

Health Community ◽

Using Data ◽

The Impact

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Coping Patterns and Psychosocial Distress in Female Partners of Prostate Cancer Patients

Psychosomatics ◽

10.1176/appi.psy.50.4.375 ◽

2009 ◽

Vol 50 (4) ◽

pp. 375-382 ◽

Cited By ~ 21

Author(s):

Jeremy Couper ◽

Sidney Bloch ◽

Anthony Love ◽

Gillian Duchesne ◽

Michelle MacVean ◽

...

Keyword(s):

Prostate Cancer ◽

Cancer Patients ◽

Psychosocial Distress ◽

Female Partners ◽

Coping Patterns

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AN OBSERVATIONAL STUDY OF CANCERS AMONG FEMALE PARTNERS OF UK-RESIDENT PROSTATE CANCER PATIENTS

European Urology Supplements ◽

10.1016/s1569-9056(06)60577-0 ◽

2006 ◽

Vol 5 (2) ◽

pp. 165

Author(s):

N. Ragavan ◽

P. Gorver ◽

S.P. Balasubramanian ◽

A.C. Hindley ◽

S.S. Matanhelia ◽

...

Keyword(s):

Prostate Cancer ◽

Observational Study ◽

Cancer Patients ◽

Female Partners

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The Information Needs of Chinese Family members of Cancer Patients in the Online Health Community: What and Why?

Information Processing & Management ◽

10.1016/j.ipm.2021.102517 ◽

2021 ◽

Vol 58 (3) ◽

pp. 102517

Author(s):

Dan Ma ◽

Meiyun Zuo ◽

Liu Liu

Keyword(s):

Cancer Patients ◽

Information Needs ◽

Family Members ◽

Chinese Family ◽

Online Health Community ◽

Health Community

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Female partner experiences of prostate cancer patients’ engagement with a community-based football intervention: a qualitative study

10.21203/rs.3.rs-37615/v1 ◽

2020 ◽

Author(s):

Julie Midtgaard ◽

Tine Tjørnhøj-Thomsen ◽

Mette Rørth ◽

Malene Kronborg ◽

Eik D. Bjerre ◽

...

Keyword(s):

Prostate Cancer ◽

Cancer Patients ◽

Exercise Adherence ◽

Negative Effects ◽

Community Based ◽

Prostate Cancer Survivors ◽

Female Partners ◽

New Beginning ◽

Group Interviews ◽

Football Programs

Abstract Background Prostate cancer is often labelled a couple’s disease wherein the partner plays an important role in the man’s illness management and related health promotion activities. The aim of this study was to explore partner experiences of prostate cancer patients’ engagement with a community-based football program. Methods Eight audio-visual recorded semi-structured focus group interviews were conducted with a total of 39 female partners of men with prostate cancer who participated in a community-based football program as part of the nationwide FC Prostate Community Trial (NCT02430792). Data was managed with the software program Nvivo 11 and analysed inductively to derive thematic findings. Results The four thematic findings were: 1) ‘Hope of a new beginning’ which included stories of hope that football would mitigate the negative effects of men’s prostate cancer treatment[s]; 2) ‘My new partner’ was characterized by attributing connections between physical activity and elevated mood as a by-product of men’s involvement in the program; 3) ‘Football first’ included assertions of the couples mutual commitment to the football program; and 4) ‘Invisible needs’ contrasted insecurity, and unforeseen challenges for partners feeling somewhat neglected. Overall, the results confirm the need for cohesion and flexibility amongst couple-dyads to ensure partners and men with prostate cancer benefit from their involvement in football programs. Conclusions This study indicates that prostate cancer survivors’ engagement with community-based football are intricately connected to gender relations, roles and identities. In many instances, these gendered dimensions aided positive dyadic coping and long-term exercise adherence.

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Female Partner Experiences of Prostate Cancer Patients’ Engagement With A Community-Based Football Intervention: A Qualitative Study

10.21203/rs.3.rs-42744/v1 ◽

2020 ◽

Author(s):

Julie Midtgaard ◽

Tine Tjørnhøj-Thomsen ◽

Mette Rørth ◽

Malene Kronborg ◽

Eik Dybboe Bjerre ◽

...

Keyword(s):

Prostate Cancer ◽

Cancer Patients ◽

Exercise Adherence ◽

Negative Effects ◽

Community Based ◽

Prostate Cancer Survivors ◽

Female Partners ◽

New Beginning ◽

Group Interviews ◽

Football Programs

Abstract BackgroundProstate cancer is often labelled a couple’s disease wherein the partner plays an important role in the man’s illness management and related health promotion activities. The aim of this study was to explore partner experiences of prostate cancer patients’ engagement with a community-based football program. MethodsEight audio-visual recorded semi-structured focus group interviews were conducted with a total of 39 female partners of men with prostate cancer who participated in a community-based football program as part of the nationwide FC Prostate Community Trial (NCT02430792). Data was managed with the software program Nvivo 11 and analysed inductively to derive thematic findings. ResultsThe four thematic findings were: 1) ‘Hope of a new beginning’ which included stories of hope that football would mitigate the negative effects of men’s prostate cancer treatment[s]; 2) ‘My new partner’ was characterized by attributing connections between physical activity and elevated mood as a by-product of men’s involvement in the program; 3) ‘Football first’ included assertions of the couples mutual commitment to the football program; and 4) ‘Invisible needs’ contrasted insecurity, and unforeseen challenges for partners feeling somewhat neglected. Overall, the results confirm the need for cohesion and flexibility amongst couple-dyads to ensure partners and men with prostate cancer benefit from their involvement in football programs.ConclusionsThis study indicates that prostate cancer survivors’ engagement with community-based football are intricately connected to gender relations, roles and identities. In many instances, these gendered dimensions aided positive dyadic coping and long-term exercise adherence.

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Adverse effects of COVID-19 vaccination among cancer patients: Results from an Internet-based survey.

Journal of Clinical Oncology ◽

10.1200/jco.2021.39.15_suppl.2621 ◽

2021 ◽

Vol 39 (15_suppl) ◽

pp. 2621-2621

Author(s):

Brian Loew ◽

Richard Tsai ◽

John Hervey ◽

Kathleen D. Hoffman ◽

John Novack ◽

...

Keyword(s):

Clinical Trial ◽

General Population ◽

Cancer Patients ◽

Joint Pain ◽

Rapid Development ◽

Booster Vaccination ◽

Self Report ◽

Online Health Community ◽

Health Community ◽

Clinical Trial Results

2621 Background: The rapid development of safe and effective vaccines against SARS-CoV-2 may stem the global COVID-19 pandemic. However, since individuals with cancer were under-represented during clinical vaccine trials, experience with COVID-19 vaccines among cancer patients is limited. Methods: An internet-based survey was conducted January 15 - February 10, 2021 among members of the Inspire online health community. The 63-item survey was emailed to members of the Inspire community who had opted-in for research. Results: Out of 19,152 respondents, 4895 (25%) self-reported a cancer diagnosis. Of these, 1337 (27%) were receiving active therapy. Cancer respondents were 66% female, 77% white, 44% college educated, with a median age range 55-65 years. 88% had solid tumors and 12% hematologic malignancies. 241 (5%) had prior COVID-19 and 148 (3%) thought they had had it but were not tested. Among cancer patients with COVID-19 approximately 30% reported ongoing late symptoms. At the time of survey, 1335 (27%) cancer patients had received a COVID-19 vaccine (Moderna 51% Pfizer-BioNTech 46%, Astra-Zeneca 3%, Other/unknown >1%). Following the first injection, 63% had local adverse events (AEs): injection site pain (51%), swelling (8%), redness (6%), and itching (4%). 34% reported systemic AEs including myalgia (32%), fatigue (18%), headache (12%), joint pain (5%), and chills (5%). 199 (15%) had received the second (booster) vaccination. 76% reported local AEs including pain (69%), swelling (14%), itching (8%), and redness (7%). 67% reported systemic AEs including fatigue (49%), myalgia (30%), headache (29%), chills (23%), fever (16%), joint pain (15%), and nausea (12%). AEs were comparable to the clinical trial results obtained from the general population (fda.gov/media/144245/download & 144434/download). Conclusions: In this internet-based survey drawn from the Inspire online health community 1335 cancer patients reported receiving COVID-19 vaccinations. By self-report the vaccines were well tolerated with AEs patterns mimicking clinical trial results conducted in the general population. These safety results should be reassuring to cancer patients although attention to COVID-19 vaccine efficacy is required (and will be studied during follow-up surveys).[Table: see text]

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