scholarly journals Prevalence of dysphagia symptoms in Cretan children and adolescents with neurological disorders

2022 ◽  
Author(s):  
Nikos Rikos ◽  
Gerasimos Milathianakis ◽  
Terpsithea Zafeiriou ◽  
Christothea Zervoudaki ◽  
Ioannis Tzortzakis ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Neurological Disorders

Neurological disorders in children and adolescents

2008 ◽  
Vol 76 (2) ◽  
pp. 139-146 ◽  
Author(s):  
Tapas K. Banerjee ◽  
Avijit Hazra ◽  
Atanu Biswas ◽  
Jayanta Ray ◽  
Trishit Roy ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Neurological Disorders

Opinia rodziców dzieci z mózgowym porażeniem dziecięcym na temat stosowanych form rehabilitacji

2019 ◽  
Vol 23 (2) ◽  
Author(s):  
Katarzyna Sędek ◽  
Marcin Bonikowski ◽  
Mariusz Pawłowski ◽  
Jakub S. Gąsior
Keyword(s):  
Cerebral Palsy ◽  
Children And Adolescents ◽  
Neurological Disorders ◽  
Treatment Process ◽  
Young Patients ◽  
Rehabilitation Process ◽  
Study Results ◽  
Wide Range ◽  
Days Of Therapy ◽  
Speech Therapist

Introduction. The knowledge about the opinion of parents/legal caregivers of young patients with cerebral palsy (CP) on the methods of rehabilitation is important in the treatment process because they know children’s needs and are their daily observers which allows for continuous verification of the health status discrepancies. Aim. The aim of this study was to describe parents’/legal caregivers’ opinion on the quality and the effectiveness of the selected forms of rehabilitation in children and adolescents with CP. Material and methods. The parents’/legal caregivers’ opinions were collected using a self-developed questionnaire. A total of 120 parents/legal guardians of the children and adolescents with a wide range of neurological disorders participated in the study. Results. According to the respondents answers, the number of days of therapy during the year is insufficient, which encourages to look for additional, paid forms of therapy. In addition, the parents clearly emphasized the essence of communication with the therapist and the willingness to be informed about the therapy. In their opinion, additional therapies with a psychologist, speech therapist and occupational therapist are an important element of the rehabilitation process. A significant number of parents/legal caregivers expressed their interest in the possibility of meeting a therapeutic team. Conclusions. It can also be concluded that parents/legal caregivers do not know both the nomenclature used by therapists and the results of scientific researches. Among the rehabilitation methods hydrotherapy and the NDT-Bobath method were considered the most effective.

Feasibility of functional MRI in children and adolescents with neurological disorders – the Vogtareuth experience

2010 ◽  
Vol 41 (02) ◽  
Author(s):  
A Zsoter ◽  
M Wilke ◽  
H Eitel ◽  
S Kessler ◽  
A Karlmeier ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Functional Mri ◽  
Neurological Disorders

scholarly journals P.121 Leading the Way to the Future: Implementing Novel Therapeutics for Rare Pediatric Neurological Disorders

2021 ◽  
Vol 48 (s3) ◽  
pp. S54-S54
Author(s):  
E Nigro ◽  
E Law
Keyword(s):  
Children And Adolescents ◽  
Neurological Disorders ◽  
Positive Impact ◽  
Muscular Atrophy ◽  
Neuronal Ceroid Lipofuscinosis ◽  
Implementation Process ◽  
Standard Of Care ◽  
Funding Agencies ◽  
Neurogenetic Disorders ◽  
Health Canada

Background: Children and Adolescents with rare neurogenetic disorders often have no known cure or disease modifying treatments. Recent advancements in treatments are offering much needed hope to these patients and families. However, these treatments are extremely costly, have complex administration requirements and have many unknown long-term risks and outcomes. Methods: In this presentation, we will discuss our experiences with the implementation process, including developing intricate care pathways, collaborating with multiple disciplines and services, supporting and advocating for our patients and families, and interacting with government agencies and pharmaceutical companies. Case studies will highlight the positive impact these treatments are making on the lives of children and adolescents with rare neurological disorders. Results: Spinal muscular atrophy and Neuronal Ceroid Lipofuscinosis Type 2 are both rare and devastating neurodegenerative conditions with significant morbidity and mortality. Health Canada and government funding agencies recently approved Nusinersen, Onasemnogene abeparvovec for the treatment of SMA and Cerliponase alfa for the treatment of CLN2, leading us to swiftly integrate these treatments into our standard of care. Conclusions: While implementing these novel therapies into clinical practice can be both challenging and rewarding, neuroscience nurses are positioned at the forefront to be leaders in this process at both organizational, national, and international levels.

scholarly journals Family Management and socioeconomic situation of children and adolescents with neurological disorders

2020 ◽  
Vol 73 (4) ◽  
Author(s):  
Gisele Weissheimer ◽  
Verônica de Azevedo Mazza ◽  
Fernanda Cassanho Teodoro ◽  
Regina Szylit ◽  
Carolliny Rossi de Faria Ichikawa ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Neurological Disorders ◽  
Family Income ◽  
Statistical Tests ◽  
Family Members ◽  
Family Management ◽  
Management Skills ◽  
Management Information ◽  
Childhood Disease ◽  
Disease Impact

ABSTRACT Objectives: to identify the relation between family management and socioeconomic situation of children and adolescents with neurological disorders. Methods: a descriptive and correlational study with 141 family members who answered a questionnaire on socioeconomic and family management information. Data collection took place between May and September 2016 in a pediatric neurology center. A descriptive and analytical analysis was carried out with the use of statistical tests in order to assess the relation of the variables researched. Results: a higher early childhood disease time was related with higher scores of management difficulty. There was relation between the highest family income and management skills and the lowest scores of family difficulty. The highest schooling level of mothers was associated with the lowest scores of disease impact view and family difficulty. Conclusions: family members with unfavorable socioeconomic situation had more difficulty with family management.

scholarly journals Features of the course of depressive disorders in children and adolescents with neurological disorders

2019 ◽  
Vol 27 (3) ◽  
pp. 84-87
Author(s):  
Iemiliia Mykhailova ◽  
Tetiana Matkovska ◽  
Dmytro Mitelyov
Keyword(s):  
Children And Adolescents ◽  
Therapeutic Intervention ◽  
Neurological Disorders ◽  
Depressive Disorders ◽  
Neurological Diseases ◽  
Biological Factors ◽  
Recurrent Depression ◽  
Social Psychological ◽  
Key Word ◽  
Clinical Variants

The research represents a clinical and psychopathological assessment of the phenomenology of symptoms and clinical variants of children depression in the age aspect. The signifi cance of comorbidity phenomenon in depression formation and course is determined. Clinical, social-psychological, biological factors of children depression formation and recurrent course are systematized. The search for objective markers of depression and causes of children recurrent depression at diff erent stages of child ontogenetic development can be used for the timely diagnosis of these disorders and the strategy of eff ective therapeutic intervention and psychoprophylaxis of aff ective disease progression in adolescence. Key word: depression, comorbility with neurological diseases, children, adolescents

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