scholarly journals Prospective Evaluation Of Patient-Centered Care In Short-Term Cancer Survivors, At One And Two Years Post Treatment, Through The Patient Assessment Of Chronic Illness Care Questionnaire

2017 ◽  
Vol 20 (9) ◽  
pp. A519
Author(s):  
A Escobar ◽  
A Bilbao ◽  
E Perez-Ruiz ◽  
A Rueda ◽  
Md Trujillo-Martin
Keyword(s):  
Chronic Illness ◽  
Cancer Survivors ◽  
Patient Centered Care ◽  
Post Treatment ◽  
Chronic Illness Care ◽  
Prospective Evaluation ◽  
Patient Assessment ◽  
Short Term ◽  
Patient Centered ◽  
Centered Care

Patient-Centered Medicine: Who, What, and How?

2016 ◽  
Author(s):  
Mark D. Sullivan
Keyword(s):  
Health Care ◽  
Chronic Illness ◽  
Clinical Problem ◽  
Chronic Illness Care ◽  
Patient Centered ◽  
Patient Agency ◽  
Centered Care ◽  
Primary Means ◽  
Patient Centered Medicine ◽  
Clear Idea

We don’t have a clear idea where health comes from. Our efforts to reform health care to make it more patient-centered and more responsive to the challenges of chronic illness have been too superficial. Three lessons for chronic illness care are derived: 1) we cannot assume that death and disease are the most important targets for health care, 2) we must draw on the patient’s perspective to define the nature of the clinical problem and the criteria of success for our clinical interventions, and 3) we must always aim toward increasing the patient’s capacity for self-care. The patient-centered care of chronic disease requires that we recognize the patient as the primary perceiver and producer of health. We must move not only from the passive patient to the informed and activated patient, but to the autonomous patient. Patient agency is both the primary means and primary end of health care.

scholarly journals Patient-centered care during the last year of life: adaptation and validation of the German PACIC short form for bereaved persons as proxies (PACIC-S9-proxy)

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Vera Vennedey ◽  
Gloria Dust ◽  
Nicolas Schippel ◽  
Arim Shukri ◽  
Julia Strupp ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Short Form ◽  
Treatment Plan ◽  
Patient Centered Care ◽  
Psychological Needs ◽  
Care Organization ◽  
Cronbach’S Alpha ◽  
Patient Centered ◽  
Cronbach's Alpha ◽  
Centered Care

Abstract Background Providing patient-centered care (PCC) during the last year of life (LYOL) can be challenging due to the complexity of the patients’ medical, social and psychological needs, especially in case of chronic illnesses. Assessing PCC can be helpful in identifying areas for improvements. Since not all patients can be surveyed, a questionnaire for proxy informants was developed in order to retrospectively assess patient-centeredness in care during the whole LYOL. This study aimed to evaluate the feasibility and validity of an adapted version of the German Patient Assessment of Chronic Illness Care (PACIC) for surveying bereaved persons in order to assess PCC during the decedents’ LYOL. Methods The German PACIC short form (11 items) was adapted to a nine-item version for surveying bereaved persons on the decedent’s LYOL (PACIC-S9-Proxy). Items were rated on a five-point Likert scale. The PACIC adaptation and validation was part of a cross-sectional survey in the region of Cologne. Participants were recruited through self-selection and active recruitment by practice partners. Sociodemographic characteristics and missing data were analyzed using descriptive statistics. An exploratory factor analysis was conducted in order to assess the structure of the PACIC-S9-Proxy. Internal consistency was estimated using Cronbach’s alpha. Results Of the 351 informants who participated in the survey, 230 (65.52%) considered their decedent to have suffered from chronic illness prior to death. 193 of these informants (83.91%) completed ≥5 items of the questionnaire and were included in the analysis. The least answered item was item (74.09%) was item 4 (encouragement to group & classes for coping). The most frequently answered item (96.89%) was item 2 (satisfaction with care organization). Informants rated the item” Given a copy of their treatment plan” highest (mean 3.96), whereas “encouragement to get to a specific group or class to cope with the condition” (mean 1.74) was rated lowest. Cronbach’s alpha was 0.84. A unidimensional structure of the questionnaire was found (Kaiser-Meyer-Olkin 0.86, Bartlett’s test for sphericity p < 0.001), with items’ factor loadings ranging from 0.46 to 0.82. Conclusions The nine-item questionnaire can be used as efficient tool for assessing PCC during the LYOL retrospectively and by proxies. Trial registration The study was registered in the German Clinical Trials Register (DRKS00011925) on 13 June 2017.

Patient-centered care and breast cancer survivors’ satisfaction with information

2005 ◽  
Vol 57 (3) ◽  
pp. 342-349 ◽  
Author(s):  
Julie B. Mallinger ◽  
Jennifer J. Griggs ◽  
Cleveland G. Shields
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Breast Cancer Survivors ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Centered Care

scholarly journals Patient Assessment of Chronic Illness Care (PACIC) and Improved Patient-centered Outcomes for Chronic Conditions

2007 ◽  
Vol 23 (1) ◽  
pp. 77-80 ◽  
Author(s):  
Julie Schmittdiel ◽  
David M. Mosen ◽  
Russell E. Glasgow ◽  
Judith Hibbard ◽  
Carol Remmers ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Chronic Conditions ◽  
Chronic Illness Care ◽  
Patient Assessment ◽  
Patient Centered

Preferences for patient-centered care among cancer survivors 5 years post-diagnosis

2020 ◽  
Vol 103 (8) ◽  
pp. 1601-1605
Author(s):  
Caryn Mei Hsien Chan ◽  
Danielle Blanch-Hartigan ◽  
Nur Aishah Taib ◽  
Lei Hum Wee ◽  
Edward Krupat ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Centered Care

scholarly journals Patient Assessment and Chronic Pain Self-Management in Ethnomedicine: Seasonal and Ecosystemic Embodiment in Ayurvedic Patient-Centered Care

2020 ◽  
Vol 17 (8) ◽  
pp. 2842
Author(s):  
Vinita Agarwal
Keyword(s):  
Chronic Pain ◽  
Pain Management ◽  
Patient Centered Care ◽  
Self Management ◽  
Seasonal Cycles ◽  
Chronic Pain Management ◽  
Patient Assessment ◽  
Patient Centered ◽  
Centered Care ◽  
The Individual

Background: Ayurveda’s preventive focus complements its strength with the interventionist approach of the biomedical in chronic pain self-management. Patient-centered care (PCC) using ethnomedicine promises greater patient self-management; however, few studies have examined environmental relationships and PCC in self-management of chronic pain through Ayurveda. Objective: To examine how Ayurveda’s philosophical focus on whole system frameworks describes the integration of the individual and the ecological in tailoring an integrative patient-centered diagnostic and prognostic approach to chronic pain management. Methods: This qualitative case study conducted in-depth semi-structured interviews of Ayurvedic physicians from India (N = 10) and a qualitative inductive content analytic approach. Findings: The diagnostic and interpretational framework of the doshas supports the integration of the individual and the ecological through (a) the circadian and seasonal cycles relating mind-body awareness with diet, lifestyle (e.g., yoga), and breath (e.g., pranayama), and (b) biogeographical and ecosystemic regions relating the biogeographical and the ecological (e.g., desh) with the regulatory principle of pain and its physiological and anatomical perception (vata) in an approach that goes beyond treating pain etiology to a whole person PCC approach. Conclusions: The study highlights how circadian and seasonal cycles and evolutionary spatial-temporal factors of biogeographical and ecological regions are employed in patient assessment and self-management to support patient involvement. Recommendations for PCC in integrative chronic pain management include supporting patient ownership of their care through the dosha framework that relates the individual and the ecological in the patient’s own life-context and supports co-creation of a collaborative plan of care using an ethnomedical framework.

scholarly journals Psychometric evaluation of patient assessment of chronic illness care among Korean cancer survivors

PLoS ONE ◽  
2021 ◽  
Vol 16 (8) ◽  
pp. e0256119
Author(s):  
Soo Hyun Kim ◽  
Bo Gyeong Lee ◽  
Yu Hyeon Choe
Keyword(s):  
Chronic Illness ◽  
Cancer Survivors ◽  
Internal Consistency ◽  
Chronic Care ◽  
Psychometric Evaluation ◽  
Chronic Illness Care ◽  
Validity And Reliability ◽  
Patient Assessment ◽  
Cronbach’S Alpha ◽  
Cronbach's Alpha

Background The Patient Assessment of Chronic Illness Care (PACIC) was developed in the United States to assess the implementation of the Chronic Care Model (CCM)-based intervention from the patient’s perspective. Although the psychometric properties of the PACIC have been reported in other chronically ill patients, it has not been reported in cancer survivors. Our aim was to evaluate the acceptability, validity, and reliability of a Korean version of the PACIC among cancer survivors (K-PACIC-CS). Methods Among 204 cancer survivors at a university-based hospital in South Korea, we performed psychometric evaluation of the K-PACIC-CS according to acceptability (descriptive statistics, missing values, and floor and ceiling effects), validity (confirmative factor analysis [CFA] and convergent validity), and reliability (internal consistency, i.e., Cronbach’s alpha). Results The item response was high (missing rate = 0.5%). The floor effect was 3.9%– 43.6% and the ceiling effect was 6.9%– 41.2%. The CFA revealed good indices of fit and confirmed the five structures predetermined in the original version of PACIC. The K-PACIC-CS scores had significant positive relationships with cancer survivors’ self-efficacy and health-related quality of life. The total K-PACIC-CS showed excellent internal consistency (Cronbach’s alpha = .94) and those of the subscales were acceptable (Cronbach’s alpha = .76 -.86). Conclusions This study suggests that the K-PACIC-CS is a valid and reliable instrument for measuring implementation of CCM-based chronic care from the survivor’s perspective.

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