Patient-centered approach in clinical guidelines; a position paper of the guideline international network (G-I-N) allied health community

Physiotherapy ◽  
2015 ◽  
Vol 101 ◽  
pp. e1575-e1576
Author(s):  
S.A. van Dulmen ◽  
P.J. van der Wees ◽  
M.W.G. Nijhuis-Van der Sanden
2013 ◽  
Vol 18 (5) ◽  
pp. 1543-1558 ◽  
Author(s):  
Simone A. van Dulmen ◽  
Sue Lukersmith ◽  
Josephine Muxlow ◽  
Elaine Santa Mina ◽  
Maria W.G. Nijhuis-van der Sanden ◽  
...  

Author(s):  
Junghwa Bahng ◽  
Chang Heon Lee

Hearing loss is the most common human sensory deficit, affecting normal communication. Recently, patients with hearing loss or at risk of hearing loss are increasingly turning to the online health community for health information and support. Information on health-related topics exchanged on the Internet is a useful resource to examine patients’ informational needs. The ability to understand the patients’ perspectives on hearing loss is critical for health professionals to develop a patient-centered intervention. In this paper, we apply Latent Dirichlet Allocation (LDA) on electronic patient-authored questions on social question-and-answer (Q&A) sites to identify patients’ perceptions, concerns, and needs on hearing loss. Our results reveal 21 topics, which are both representative and meaningful, and mostly correspond to sub-fields established in hearing science research. The latent topics are classified into five themes, which include “sudden hearing loss”, “tinnitus”, “noise-induced hearing loss”, “hearing aids”, “dizziness”, “curiosity about hearing loss”, “otitis media” and “complications of disease”. Our topic analysis of patients’ questions on the topic of hearing loss allows achieving a thorough understanding of patients’ perspectives, thereby leading to better development of the patient-centered intervention.


2014 ◽  
Vol 171 (2) ◽  
pp. R33-R46 ◽  
Author(s):  
Luca Giovanella ◽  
Penelope M Clark ◽  
Luca Chiovato ◽  
Leonidas Duntas ◽  
Rossella Elisei ◽  
...  

Differentiated thyroid cancer (DTC) is the most common endocrine cancer and its incidence has increased in recent decades. Initial treatment usually consists of total thyroidectomy followed by ablation of thyroid remnants by iodine-131. As thyroid cells are assumed to be the only source of thyroglobulin (Tg) in the human body, circulating Tg serves as a biochemical marker of persistent or recurrent disease in DTC follow-up. Currently, standard follow-up for DTC comprises Tg measurement and neck ultrasound combined, when indicated, with an additional radioiodine scan. Measurement of Tg after stimulation by endogenous or exogenous TSH is recommended by current clinical guidelines to detect occult disease with a maximum sensitivity due to the suboptimal sensitivity of older Tg assays. However, the development of new highly sensitive Tg assays with improved analytical sensitivity and precision at low concentrations now allows detection of very low Tg concentrations reflecting minimal amounts of thyroid tissue without the need for TSH stimulation. Use of these highly sensitive Tg assays has not yet been incorporated into clinical guidelines but they will, we believe, be used by physicians caring for patients with DTC. The aim of this clinical position paper is, therefore, to offer advice on the various aspects and implications of using these highly sensitive Tg assays in the clinical care of patients with DTC.


2018 ◽  
Vol 2 (2-3) ◽  
pp. 37-49 ◽  
Author(s):  
Vincent Launay-Vacher ◽  
Florian Scotté ◽  
Hanno Riess ◽  
Neil Ashman ◽  
Philip McFarlane ◽  
...  

Cancer & the Kidney International Network was created in 2014. The aim was to improve the management of cancer patients by developing clinical and scientific knowledge on the main topic of cancer and the kidney. Therefore, the Cancer & the Kidney International Network created a special working group: the Thrombosis, Kidney Disease, and Cancer working Group. The first step of this force was to produce a position paper on this topic by investigating the association of chronic kidney disease and venous thromboembolism in cancer patients, focusing particularly on the anticoagulant management of patients presenting these three comorbidities. The use of low-molecular-weight heparins, vitamin K agonists and oral direct anticoagulants in cancer patients with chronic kidney disease was reviewed.


2018 ◽  
Vol 32 (6) ◽  
pp. 827-840 ◽  
Author(s):  
Lisa J Cameron ◽  
Lisa M Somerville ◽  
Catherine E Naismith ◽  
Dina Watterson ◽  
Valentina Maric ◽  
...  

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