A Scoping Review of Self-Management Interventions for Adults With Multiple Sclerosis

PM&R ◽  
2011 ◽  
Vol 3 (3) ◽  
pp. 251-262 ◽  
Author(s):  
Matthew A. Plow ◽  
Marcia Finlayson ◽  
Maggie Rezac
Arthritis ◽  
2018 ◽  
Vol 2018 ◽  
pp. 1-8 ◽  
Author(s):  
Shabana Amanda Ali ◽  
Kristina M. Kokorelias ◽  
Joy C. MacDermid ◽  
Marita Kloseck

Systematic reviews of self-management programs for osteoarthritis suggest minimal evidence of benefit and indicate substantial heterogeneity in interventions. The purpose of this scoping review was to describe the nature of self-management interventions provided to patients with osteoarthritis focusing on the inclusion and type of education and social support components. We searched PsycINFO, EMBASE, MEDLINE, and Cochrane Library databases from 1990 to 2016 to identify studies addressing community-based management strategies for osteoarthritis that included aspects of disease-specific education and ongoing social support. Results are presented as a narrative synthesis to facilitate integration of diverse evidence. Data were extracted from 23 studies that met our inclusion and exclusion criteria, describing complex, multicomponent interventions for osteoarthritis. All studies included education components, and 18 of these were osteoarthritis-specific. Social support was most often offered through peers and health care professionals, but also through exercise trainers/instructors and researchers, and lasted between 5 and 52 weeks. We charted positive social interaction offered by peers in group settings and emotional/informational support offered by health care professionals. Overall, descriptions of self-management provided limited documentation of the rationale or content of the programs. This suggests that more precise definitions of the theoretical underpinnings, components, and mechanisms would be useful for greater insight into best practices for osteoarthritis self-management programs.


2014 ◽  
Vol 28 (11) ◽  
pp. 1067-1077 ◽  
Author(s):  
Julie Richardson ◽  
Adalberto Loyola-Sanchez ◽  
Susanne Sinclair ◽  
Jocelyn Harris ◽  
Lori Letts ◽  
...  

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512515324p1
Author(s):  
Elizabeth B. Albritton ◽  
Josephine Fish ◽  
Jeffrey Henkel ◽  
Shelby Lee ◽  
Rachel Luttrell ◽  
...  

Author(s):  
Ena Niño de Guzmán Quispe ◽  
Laura Martínez García ◽  
Carola Orrego Villagrán ◽  
Monique Heijmans ◽  
Rosa Sunol ◽  
...  

2018 ◽  
Vol 15 (1) ◽  
pp. 15-30 ◽  
Author(s):  
Elena D. Dimova ◽  
Ashleigh Ward ◽  
Vivien Swanson ◽  
Josie M.M. Evans

Background: People’s personal perceptions, or illness representations, of type 2 diabetes can act as barriers to successful self-management. </P><P> Introduction: Understanding patients’ subjective perceptions of type 2 diabetes can aid the design of evidence-based care and appropriate educational programmes. This scoping review provides a narrative account of previous knowledge of patients’ illness representations of type 2 diabetes. Methods: Quantitative and qualitative studies that explored patients’ illness representations of type 2 diabetes, as defined by Leventhal’s Common Sense Model, were included. Results: Thirty four studies were identified for this review, but only 14 studies were carried out in a general population of people with diabetes. Illness representations varied across study populations. While it is clear that the perceptions of ethnic minorities and marginalised groups are embedded in their historical and cultural backgrounds, it is also important to understand the views of the wider population. Conclusion: The review highlights the need for self-management interventions to reflect the target population’s representations of type 2 diabetes in order to inform interventions and clinical practice.


2013 ◽  
Vol 1 (2) ◽  
pp. 457 ◽  
Author(s):  
Francesca Deibel ◽  
Michelle Edwards ◽  
Adrian Edwards

Background: Self-management is a process increasingly promoted for the management of long term conditions, both for ethical reasons of enhancing autonomy and for likely cost-effectiveness, but the nature and scope of self-management strategies are currently highly variable.Objective: To identify patients’, carers’ and clinicians’ current experiences of self-management in multiple sclerosis (MS) and their recommendations for the development of a future MS-specific self-management interventionMethods: Qualitative study using focus groups and semi-structured one-to-one interviews with a purposive sample. Three focus groups were held with 25 patients with moderate to advanced multiple sclerosis and 4 carers. Ten clinicians were interviewed. Data underwent thematic analysis.Results: Participants perceived multiple aspects of MS to be amenable to self-management, but identified a current lack of service provision to support their abilities to self-manage. Participants felt that to address both the physical and psychosocial challenges posed by MS required better information provision, a strong relationship with healthcare professionals and a toolkit of self-management skills. Participants expressed concern at the lack of consideration currently given to carers, which should be addressed in future provision.Conclusion: The diverse experiences of patients living with MS warrant a multidisciplinary, flexible and proactive approach to improve their self-management capabilities, acknowledging both patients’ and carers’ unmet needs. The findings can be used to guide the development of future self-management interventions specific to individuals with multiple sclerosis.


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