scholarly journals Partnership with social care professionals as a context for promoting self-determination among people with intellectual disabilities

2020 ◽  
Vol 99 ◽  
pp. 103602
Author(s):  
Annick Cudré-Mauroux ◽  
Geneviève Piérart ◽  
Carla Vaucher
Keyword(s):  
Intellectual Disabilities ◽  
Social Care ◽  
Self Determination ◽  
People With Intellectual Disabilities

Identifying the invisible: The experiences of prostitution among persons with intellectual disabilities: Implications for social work

2011 ◽  
Vol 13 (2) ◽  
pp. 123-140 ◽  
Author(s):  
Jari Kuosmanen ◽  
Mikaela Starke
Keyword(s):  
Social Work ◽  
Intellectual Disabilities ◽  
Social Services ◽  
Well Being ◽  
Research Area ◽  
Complex Problem ◽  
Self Determination ◽  
Special Schools ◽  
People With Intellectual Disabilities ◽  
Group Interviews

• Summary: This article explores a relatively uncharted research area. The focus of the analysis is on how professionals working in care provision units, specialized prostitution units, the police, social services and special schools detect and deal with prostitution among people with intellectual disabilities. The data were obtained primarily through focus group interviews. The study shows that organizational specialization in different authorities and services makes it difficult to identify and work with this group. Clients with complex problems tend to find themselves in between the jurisdictional fields of different authorities, meaning that many do not receive the support that they need. • Findings: In recent decades social work has undergone increasing balkanization and specialization. Each particular organization is regulated by specific legislation, regulations, forms of knowledge and normative assumptions. Professionals working with people with intellectual disabilities have difficulties in detecting prostitution among their clients, whilst those who work with prostitution lack the knowledge and methods to work with intellectual disabilities. At the same time, social work with these individuals is conducted within a field of tension between the client′s right of self-determination and professionals’ responsibilities for their well-being. • Applications: The study demonstrates that, with this type of complex problem, it is important to establish different types of collaboration between different organizations. However, due to the risk of increased control being detrimental to clients, collaboration needs to be founded on the client’s needs and right to self-determination.

scholarly journals Ageing people with intellectual disabilities and the association between frailty factors and social care: A Swedish national register study

2021 ◽  
pp. 174462952110371
Author(s):  
Gerd Ahlström ◽  
Eva Flygare Wallén ◽  
Magnus Tideman ◽  
Marianne Holmgren
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Residential Care ◽  
Social Care ◽  
Age Groups ◽  
National Strategic Plan ◽  
Severe Intellectual Disability ◽  
Home Help ◽  
The Social ◽  
People With Intellectual Disabilities

The aim of this study was to describe the social care provided for different age groups of people with intellectual disability, 55 years or above, and to investigate the association between such care and frailty factors for those with diagnosed level of intellectual disabilities. Descriptive and logistic regression analyses were used. Commonest forms of social care among the 7936 people were Residential care, Daily activities and Contact person. Home help and Security alarm increased with age. The frailty factors significantly associated with increased social care were age, polypharmacy and severe levels of intellectual disabilities. Persons most likely to be in residential care were in the age group 65–79 with polypharmacy and severe disability. The results indicate a need for further research of how frailty factors are considered in social care and longstanding medication, especially then severe intellectual disability hinders communication. A national strategic plan for preventive interventions should be developed to ensure the best possible healthy ageing.

Exploring a non-universal understanding of waged work and its consequences: sketching out employment activation for people with an intellectual disability

2021 ◽  
Author(s):  
Kim Dearing
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Supported Employment ◽  
Social Care ◽  
Employment Policy ◽  
Employment Services ◽  
Policy Consequence ◽  
Policy Shift ◽  
People With Intellectual Disabilities ◽  
Employment Rates

Background: Supported Employment has been advocated for by successive governments and policymakers alike as the best approach to employment inclusion for people with an intellectual disability who are in receipt of social care. Yet only 5.2% of this demographic are in any form of work and these numbers have been persistently stagnant for many years.Aims: This study aimed to explore the employment landscape and grapple with the intersecting layers of policy consequence for people who have an intellectual disability, and are in receipt of social care, who wish to engage with work preparation employment support.Methods: As an active participant in the field, this study was ethnographic and conducted at a new job club that had been established in England. In addition, three further sites of complementary data were explored in Wales, through interviews and focus groups.Findings: This study demonstrates that there is a mismatch between how evidence informs policy, and how funding is allocated to support with work preparation. Those unable to secure Supported Employment services are, instead, navigating extreme employment disadvantage and scant opportunities, in the open labour market. Further, bound up in this analysis is evidence of a non-universal understanding of waged work where any form of financial remuneration is welcome.Discussion and conclusion: Overall, with a mismatch between evidence that informs policy, policy rhetoric, realistic employment prospects, and available work, without a fundamental employment policy shift, the very low employment rates within this demographic will not increase.<br />Key messages<ul><li>People with intellectual disabilities can experience extreme employment exclusion;</li><br /><li>There is a mismatch between how evidence informs policy and the allocation of funding and work preparation support;</li><br /><li>People with intellectual disabilities can be taken advantage of and work for little or no pay;</li><br /><li>Ethnographic research methods can capture complex and nuanced data to support social change.</li></ul>

Mental health services for people with intellectual disability in the United Kingdom

2018 ◽  
Vol 12 (3/4) ◽  
pp. 91-98 ◽  
Author(s):  
Bhathika Perera ◽  
Ken Courtenay
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Intellectual Disabilities ◽  
Social Care ◽  
Community Support ◽  
Content Type ◽  
Health And Social Care ◽  
People With Intellectual Disabilities ◽  
The Uk

Purpose Services for people with intellectual disabilities in the UK have evolved over the years from hospital-based care to more community provision. There are multiple reasons for these changes, however, often it was due to changes in social policy or following a scandal in provision. The paper aims to discuss these issues. Design/methodology/approach Providing services to meet the health and social care needs of people with intellectual disabilities is well-established in the four countries of the UK with support from legislation. There are often specialist mental health and social care teams. Dedicated professionals work with people with intellectual disabilities who experience mental health problems with a focus on support in the community. A range of services for children and adults and for offenders exist across the UK that often vary in composition and structure. Findings The challenges in providing mental health services for children and adults with intellectual disabilities in the future include recruitment and training of the workforce with the remit of enhancing community support and reduced in-patient care. Practical implications This paper helps the reader to understand how ID mental health services are organised in the UK. Originality/value This paper gives a summary of the ID mental health services in the UK. Even though there are various papers looking at different aspects of mental health services for people with ID in the UK, this paper brings all that information together to help reader get a better understanding of the mental health services for people with ID.

Is health a priority? Examining health-related support needs in adults with intellectual disability through a self-determination framework

2021 ◽  
pp. 174462952110096
Author(s):  
Romina Rinaldi ◽  
Jordan Duplat ◽  
Marie-Claire Haelewyck
Keyword(s):  
Intellectual Disabilities ◽  
Psychological Health ◽  
Self Determination ◽  
Health Needs ◽  
Support Needs ◽  
Major Health ◽  
Health Related ◽  
People With Intellectual Disabilities ◽  
A Priority ◽  
Adults With Intellectual Disabilities

Background: People with intellectual disabilities experience inequities in healthcare. Those are maintained by individual limitations as well as environmental factors. In this context, health needs are less likely to be expressed, identified and met. Method: We led a survey in 832 adults with intellectual disabilities to identify if health was set as a priority and if so, what were their major health-related support needs (in terms of physical, social and psychological health). Results: 67.1% of participants reported at least one need. Most frequently, two or more types of needs were reported with gender and living facility having an effect on whether participants would report these needs, but these did not affect which type of needs were reported. Conclusions: Health-related support needs are highly prevalent and diversified in people with intellectual disabilities. This study emphasizes the importance to consider health as a global concept as well as the relationships between health and self-determination.

scholarly journals Experiences of the Medication Use Process by People with Intellectual Disabilities. What a Pharmacist Should Know!

Pharmacy ◽  
2021 ◽  
Vol 9 (1) ◽  
pp. 24
Author(s):  
Bernadette Flood ◽  
Martin C. Henman
Keyword(s):  
Intellectual Disabilities ◽  
Medication Use ◽  
Self Determination ◽  
Theory Approach ◽  
Structured Interviews ◽  
Risk Patients ◽  
People With Intellectual Disabilities ◽  
Grounded Theory Approach ◽  
Expert Patients

There is a scarcity of information about the experience of people with intellectual disabilities in the medication use process. Six people with intellectual disabilities consented to be interviewed by a pharmacist to determine their knowledge and views of medication use. Data from semi-structured interviews were analysed using a grounded theory approach. Self-determination and risk to the quality of the medication use process were identified as theories. Literature review provided two explanations—vulnerabilities of people with intellectual disabilities in healthcare and pharmacists have a role to play in ensuring a quality medication use process for people with intellectual disabilities. People with intellectual disabilities may be ‘expert patients’ and can provide valuable insights into their experience of medication use. They may be ‘high risk’ patients but may not be recognized as such by pharmacists.

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