Measuring quality of life across countries: A multiple indicators and multiple causes approach

AbstractThis study aims to detect DIF (differential item functioning) on a quality of life measurement tool that measures one aspect, namely social quality of life. Social quality of life contains 24 items developed from the Patient Reported Outcomes Measurement Information System (PROMIS) by a National Institutes of Health (NIH). This measuring tool measures the quality of life in the social function domain of adolescent patients suffering from diseases or chronic medical conditions. Detection of DIF in this study uses a special case approach from CFA, namely CFA with covariate or multiple indicator multiple causes (MIMIC) models. This study involved 322 participants, 117 (36%) male participants and 205 (64%) female participants, with an age range between 13-23 years in Riau Province. Based on the results of the first order CFA on a set of social quality of life items there are 22 valid items. Then the MIMIC model analysis results found that the model is fit with data where the value of RMSEA = 0.048, so it is known two items that contain DIF, namely item 5 (0.135, P = 0.002) "I have a close friend" and item 23 (0.308, P = 0.002 ) "I hope to have lots of friends".Keywords: Social quality of life, MIMIC model, differential item functioningAbstrakPenelitian ini bertujuan untuk mendeteksi DIF (differential item functioning) pada alat ukur quality of life yang mengukur salah satu aspek yaitu social quality of life. Social quality of life berisi 24 item yang dikembangkan dari Patient Reported Outcomes Measurement Information System (PROMIS) oleh sebuah badan National Institutes of Health (NIH). Alaalat ukur ini mengukur kualitas hidup pada domain fungsi sosial pasien remaja yang menderita penyakit atau kondisi medis kronis. Pendeteksian DIF pada penelitian ini menggunakan pendekatan kasus khusus dari CFA, yakni CFA with covariate atau multiple indicator multiple causes (MIMIC) model. Penelitian ini melibatkan 322 partisipan, yakni sebanyak 117 (36%) partisipan laki-laki dan 205 (64%) partisipan perempuan, dengan rentang usia antara 13-23 tahun di Propinsi Riau. Berdasarkan hasil first order CFA pada sekumpulan item-item social quality of life terdapat 22 item yang valid. Kemudian hasil analisis model MIMIC ditemukan bahwa model fit dengan data dimana nilai RMSEA = 0.048, sehingga diketahui dua item yang mengandung DIF, yaitu item 5 (0.135, P = 0.002) “saya memiliki teman dekat” dan item 23 (0.308, P = 0.002) “saya berharap mempunyai banyak teman”.Kata kunci: Social quality of life, MIMIC model, differential item functioning

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Self-Compassion and Quality of Life in Adults Who Stutter

American Journal of Speech-Language Pathology ◽

10.1044/2020_ajslp-20-00055 ◽

2020 ◽

Vol 29 (4) ◽

pp. 2097-2108

Author(s):

Robyn L. Croft ◽

Courtney T. Byrd

Keyword(s):

Quality Of Life ◽

Social Connectedness ◽

The Self ◽

Future Research ◽

Self Compassion ◽

Adults Who Stutter ◽

And Gender ◽

Relationship Of ◽

The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

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Misophonia: An Evidence-Based Case Report

American Journal of Audiology ◽

10.1044/2020_aja-19-00111 ◽

2020 ◽

Vol 29 (4) ◽

pp. 685-690

Author(s):

C. S. Vanaja ◽

Miriam Soni Abigail

Keyword(s):

Quality Of Life ◽

Case Report ◽

Case History ◽

Pure Tone ◽

Physiological Responses ◽

Evidence Based ◽

Management Option ◽

Pure Tone Audiogram

Purpose Misophonia is a sound tolerance disorder condition in certain sounds that trigger intense emotional or physiological responses. While some persons may experience misophonia, a few patients suffer from misophonia. However, there is a dearth of literature on audiological assessment and management of persons with misophonia. The purpose of this report is to discuss the assessment of misophonia and highlight the management option that helped a patient with misophonia. Method A case study of a 26-year-old woman with the complaint of decreased tolerance to specific sounds affecting quality of life is reported. Audiological assessment differentiated misophonia from hyperacusis. Management included retraining counseling as well as desensitization and habituation therapy based on the principles described by P. J. Jastreboff and Jastreboff (2014). A misophonia questionnaire was administered at regular intervals to monitor the effectiveness of therapy. Results A detailed case history and audiological evaluations including pure-tone audiogram and Johnson Hyperacusis Index revealed the presence of misophonia. The patient benefitted from intervention, and the scores of the misophonia questionnaire indicated a decrease in the severity of the problem. Conclusions It is important to differentially diagnose misophonia and hyperacusis in persons with sound tolerance disorders. Retraining counseling as well as desensitization and habituation therapy can help patients who suffer from misophonia.

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Quality of Life of Youth With Hearing Loss

ASHA Leader ◽

10.1044/leader.ftr3.15152010.5 ◽

2010 ◽

Vol 15 (15) ◽

pp. 5-6

Author(s):

Anne Skalicky ◽

Brenda Schick ◽

Donald Patrick

Keyword(s):

Quality Of Life ◽

Hearing Loss

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Assessing Quality of Life With Aphasia: An Annotated Bibliography

Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders ◽

10.1044/nnsld15.4.15 ◽

2005 ◽

Vol 15 (4) ◽

pp. 15-18 ◽

Cited By ~ 2

Author(s):

Katherine B. Ross

Keyword(s):

Quality Of Life ◽

Annotated Bibliography

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Thinking Beyond Language: Intervention for Severe Aphasia

Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders ◽

10.1044/nnsld19.1.15 ◽

2009 ◽

Vol 19 (1) ◽

pp. 15-22 ◽

Cited By ~ 3

Author(s):

Nina Simmons-Mackie

Keyword(s):

Quality Of Life ◽

Communication Training ◽

Language Intervention ◽

Specific Training ◽

Environmental Support ◽

Total Communication ◽

Communication Partners

Abstract Purpose: This article addresses several intervention approaches that aim to improve life for individuals with severe aphasia. Because severe aphasia significantly compromises language, often for the long term, recommended approaches focus on additional domains that affect quality of life. Treatments are discussed that involve increasing participation in personally relevant life situations, enhancing environmental support for communication and participation, and improving communicative confidence. Methods: Interventions that have been suggested in the aphasia literature as particularly appropriate for people with severe aphasia include training in total communication, training of communication partners, and activity specific training. Conclusion: Several intervention approaches can be implemented to enhance life with severe aphasia.

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Chronic Refractory Cough: A Case Study

Perspectives of the ASHA Special Interest Groups ◽

10.1044/persp2.sig3.57 ◽

2017 ◽

Vol 2 (3) ◽

pp. 57-62

Author(s):

Anna Maria Siciliano

Keyword(s):

Quality Of Life ◽

Adult Female ◽

Chronic Cough ◽

Treatment Regime ◽

Speech Language Pathology ◽

Old Adult ◽

Language Pathology

This paper presents a successful behavioral case study in treatment of chronic refractory cough in a 60-year-old adult female. The efficacy for speech-language pathology treating chronic cough is discussed along with description of treatment regime. Discussion focuses on therapy approaches used and the patient's report of changes in quality of life and frequency, duration, and severity reduction of her cough after treatment.

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