Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature

2004 ◽  
Vol 11 (1) ◽  
pp. 78-86 ◽  
Author(s):  
Susanne King ◽  
Rachel Teplicky ◽  
Gillian King ◽  
Peter Rosenbaum
Keyword(s):  
Cerebral Palsy ◽  
Review Of The Literature ◽  
Children With Cerebral Palsy ◽  
Family Centered

Exploring the process of health in mothers of children with cerebral palsy: Changing “clinical reasoning”

2021 ◽  
pp. 030802262110206
Author(s):  
Leila Dehghan ◽  
Hamid Dalvand ◽  
Mohammad Reza Hadian Rasanani ◽  
Greg Kelly
Keyword(s):  
Cerebral Palsy ◽  
Clinical Settings ◽  
Theory Approach ◽  
Analysis Method ◽  
Children With Disability ◽  
Theoretical Sampling ◽  
Children With Cerebral Palsy ◽  
Constant Comparative Analysis ◽  
Grounded Theory Approach ◽  
Family Centered

Introduction The issue of the health status of mothers of children with disability is one that is beginning to be addressed more fully. This study aimed to explore the process of health in mothers during caregiving of children with cerebral palsy (CP). Method A qualitative research method with a grounded theory approach was used, including purposive and theoretical sampling. A constant comparative analysis method was adopted, and data were gathered from 15 mothers with CP children through interviews. Results The results were grouped into six main categories: Self-neglecting of their health, facing challenges in caring their children, physical and psychosocial damages, perceiving threat of health problems from concern to action, trying to regain their health, and caring in a complex context. “Facing challenges in caring” was extracted as a core concept. Conclusion Results showed an urgent need to establish family-centered services in clinical settings and change the “way of thinking” of the health provider system.

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