Hubungan Pengetahuan dan Stigma pada Keluarga dengan Beban Keluarga Dalam Merawat Pasien Skizofrenia di Wilayah Kerja Puskesmas Nanggalo Padang

Families have a heavy burden in caring for ODS. Heavy load perceived by the family due to the level of family knowledge and family stigma. This study aims to determine the relationship knowledge and stigma on families with family burdens in caring schizophrenia patient in the working area of ​​Puskesmas Nanggalo Padang. Types of research this is correlation with the approach cross sectional. The population in this study is a family who cares for ODS in the working area of ​​Puskemas Nanggalo Padang and a sample of 87 people taken withPurposive Sampling. Data collection using a questionnaire Family Interview Scale / Stigma Items, questionnaire knowledge, and a questionnaire Zarit Burden Interview (ZBI). Research result It was found that more than half (59.8%) of the families experienced a heavy burden, more than half (57.5%) of families have a lower or higher level of knowledge half (52.9%) of families experienced high stigma. There is a relationship meaning between the stigma in the family and the family burden (p =0,000). There is no significant relationship between the level of family knowledge with family burden (p =0.110). It is expected that health workers, especially nurses soul in society to provide health education to the community regarding Schizophrenia. So that society no longer gives stigma to families who will make the family embarrassed in caring for ODS.

ASSESSMENT OF THE CORRELATION BETWEEN FAMILY BURDEN IN PRIMARY CAREGIVERS AND DISABILITY IN PATIENTS WITH SCHIZOPHRENIA

Background: Schizophrenia is one of the most devastating, and a chronic, relapsing mental illness associated with increased morbidity, poor quality of life and low recovery rates. In India, families are the major providers of long-term care and they represent an important supportive, social network for patients with schizophrenia. Indian families experience significant degrees of burden in the care of their relatives with schizophrenia. Illness severity and patients' disability have a direct positive relationship with perceived family burden. Methods: This study is a cross-sectional study, done to assess the correlation between family burden in primary caregivers and disability in patients with schizophrenia. 60 patients with schizophrenia and their primary caregivers were recruited from the outpatient and inpatient units of Department of Psychiatry, Government Rajaji Hospital, Madurai. IDEAS (Indian Disability Evaluation Assessment Scale) scale was used to assess the disability of patients with schizophrenia and BAS (Burden Assessment Schedule) of SCARF (Schizophrenia Research Foundation) was used to assess the family burden in their primary caregivers. Results: Among the 60 primary caregivers, (48.3%) were having caregiver burden between 50 and 70%. (56.4%) of female caregivers had burden range 50- 70%. (56.5%) of caregivers delivering care for patients with illness between 15 and 20 years experienced burden >70%. Statistical analysis revealed that the correlation between caregiver burden and disability was statistically significant. Conclusions: The severity of caregiver burden increases with increasing grades of disability and indicates that caregiver burden affects the overall outcome of schizophrenia Keywords: Schizophrenia, Caregiver burden, Disability, Outcome

Psychosocial Impact of Congenital Heart Diseases on Patients and Their Families: A Parent's Perspective

Background Currently, over 90% of children with congenital heart disease (CHD) survive into adulthood. As a consequence the psychosocial impact on children and their families has become an important outcome measure. Therefore, the goal of this study was to assess the psychosocial impact from a parent's perspective and to identify possible predictors. Methods We included all parents of children who underwent open-heart surgery in the years 2010 and 2011 at the Department of Cardiothoracic Surgery at University Hospital Heidelberg and invited them to complete standardized questionnaires. Psychosocial outcome was measured via parent self- and proxy reporting of family burden (Family Burden Questionnaire, FaBel), health-related quality of life (KidScreen-10), developmental problems (Five-to-Fifteen, FTF), and mental health problems (Strength and Difficulties Questionnaire, SDQ). Results In total, 113 families returned the questionnaires completely (71.5%). The Aristotle Basic Complexity score and the STAT 2020 Score overall did not predict the psychosocial impact, whereas the number of surgical operations did significantly predict psychosocial impact across all domains in this study cohort. Conclusions These data suggest that the number of surgical operations might be a relevant predictor for the long-term psychosocial impact on families suffering from CHD and a potential connecting factor for specialized psychological support. When setting up screening instruments or support programs the entire family must be considered.

Factors Affecting the Family Burden of the Palliative Family

The process of palliative patient care indirectly causes a burden on the family. This study aims to determine the description of the family burden in caring for palliative patients. This study is a qualitative research with a phenomenological study design. Participant criteria are families who care for patients for at least 6 months. The number of respondents in this study were 4 respondents as care givers of palliative patients. The research method using the analysis method used includes categorizing themes, compiling sub-categorization of themes and the last is the coding process. The results of the study showed that there was a description of the family burden of palliative patients and a description of the factors that influenced palliative patients including economic status, patient complaints, family support, family perception, availability of treatment support tools, and the ability of families to manage family burdens. The burden on the family can be reduced by training the family to manage the existing factors.

Factors Influencing Decision-Making of Terminally Ill Cancer Patients and Their Families Regarding Where to Stay and Receive Final-Month Care: A Preliminary Study

Background:Advance care planning is essential for a better terminal phase, although many patients do not make a choice regarding the place of receiving terminal care even one month before the expected end of life. This study explores the factors that influence patients with a life-expectancy of less than one month when they are admitted to the palliative care ward or other terminal care institutions.Methods: Self-administered questionnaire surveys were completed by patients and caregiver questionnaire surveys were completed by patients and caregivers. We assessed patient symptoms using Support Team Assessment Schedule-Japan (STAS-J), and all patients’ families answered the self-reported questionnaire, Caregiver Reaction Assessment-Japan (CRA-J).Results: The family care burden score for “Impact on schedule” was significantly higher for the palliative care ward inpatient group than for the non-inpatient group (21.0±1.5 vs. 17.6±1.8; ρ <0.01).Conclusions: Family burden might influence the choice of facility when patients with a survival prognosis of less than one month are admitted to the palliative care ward for reducing the burden of long-term care. Nurses should take care of family caregiver’s physical and psychosocial health, especially before the patient’s admission to the palliative care ward. The results of this study show that caregiver support is needed to reduce the feeling of family burden related to impact on schedule, enabling them to choose the best place for terminal care.

Hubungan Kualitas Hidup Lansia Dengan Food Satisfaction di PTSW Ina Kaka Provinsi Maluku

AbstrakMenjadi tua merupakan sebuah proses yang tak terelakkan namun pencapaian kualitas hidup lansia masih menjadi tantangan. Salah satu faktor yang mengakibatkan tidak tercapainya kualitas hidup pada lansia adalah adanya stigma. Bagi lansia stigma sebagai beban keluarga mendorong mereka untuk tinggal di panti werdha. Stigma juga bisa berpengaruh pada pemenuhan gizi lansia. Pemenuhan pangan oleh pihak panti werdha dapat berdampak pada kepuasan makan lansia. Penelitian ini bertujuan untuk mengeksplorasi hubungan antara kualitas hidup lansia dengan food satisfaction di PTSW Ina Kaka Provinsi Maluku. Metode yang digunakan dalam penelitian ini adalah kuantitatif dengan desain deskriptif correlation. Instrument yang digunakan dalam penelitian ini adalah kuesioner WHOQOL-BREF dan kuesioner SWFL (Satisfaction With Food-Related Life) yang diterjemahkan ke Bahasa Indonesia serta diadaptasikan menggunakan dialek Ambon. Data yang diperoleh diolah menggunakan program SPSS 20 dengan menggunakan uji korelasi Pearson Product Moment. Hasil penelitian menunjukan kualitas hidup lansia di PTSW Ina Kaka Provinsi Maluku berada pada tingkat sedang sedangkan untuk food satisfaction tingkat kepuasannya puas. Kesimpulan dari penelitian ini adalah adanya hubungan antara kualitas hidup lansia dengan food satisfaction yang mengarah ke arah positif (r = 0,332 * , p = 0,048).Kata kunci: Lansia, Kualitas hidup, Food SatisfactionAbstractThe aging process can become a challenge for elderly to gain quality of life. In addition stigma can become one factor to unsuccessful quality of life. Older people who experience as family burden urge them to stay at nursing homes. Moreover, stigma can cause a unbalance nutrition condition. The diet requirement from nursing homes can affect a food satisfaction. This study aims to explore the relationship between the quality of life of the elderly with food satisfaction at PTSW Ina Kaka, Maluku Province. The method used in this research is quantitative with descriptive correlation design. This study used WHOQOL-BREF questionnaire and the SWFL (Satisfaction With Food-Related Life) in Indonesia and adapted using the Ambon dialect. The data analysis used the SPSS 20 program with the Pearson Product Moment correlation test. The result showed the quality of life of the elderly in PTSW Ina Kaka, Maluku Province was at a moderate level, while for food satisfaction the level of satisfaction was satisfied. The conclusion there is a relationship between the quality of life of the elderly with food satisfaction (r = 0,332 * , p = 0,048). Keywords: Elderly, Quality of Life, Food Satisfaction