S1060 Perceived Stigma As a Predictor of Inflammatory Bowel Disease (IBD) Patient Concerns

Background: Improving Quality of Life (QOL) is an essential objective in the management of inflammatory bowel disease. An accumulating body of research has been conducted to explore the association between perceived stigma and QOL among patients with chronic illness. Still, underlying mechanisms behind this pathway have not been thoroughly examined.Objective: To investigate (a) the effect of perceived stigma on QOL among patients with inflammatory bowel disease; and (b) the mediating role of resilience in the association between perceived stigma and QOL.Methods: This cross-sectional study included a convenient sample of patients diagnosed with inflammatory bowel disease from four tertiary hospitals in Jiangsu Province, China. Patients completed the Perceived Stigma Scale in Inflammatory Bowel Disease (PSS-IBD), the Resilience Scale for Patients with Inflammatory Bowel Disease (RS-IBD), and the Inflammatory Bowel Disease Questionnaire (IBDQ). A bootstrapping analysis was implemented using the SPSS macro PROCESS.Results: A total of 311 patients with Cohn's disease and ulcerative colitis participated in this study, and 57.6% were men. The mean disease duration was 3.51 ± 1.04 years. Approximately 40% of the sample exceeded the criterion score for moderate stigma. Patients who perceived moderate or severe stigma reported lower QOL compared with those with mild stigma. After controlling for sociodemographic and clinical variables, we observed that perceived stigma was negatively associated with resilience. Moreover, resilience was found to mediate the relationship between perceived stigma and all aspects of QOL.Conclusions: These findings suggested that QOL of patients with inflammatory bowel disease was associated with perceived stigma and resilience and identified the mediating effects of resilience in the relationship between perceived stigma and QOL. Furthermore, this suggests that integrating intervention techniques to target resilience into the QOL improvement program of individuals with perceived stigma is possible.

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Impact of perceived stigma on inflammatory bowel disease patient outcomes

Inflammatory Bowel Diseases ◽

10.1002/ibd.20864 ◽

2009 ◽

Vol 15 (8) ◽

pp. 1224-1232 ◽

Cited By ~ 67

Author(s):

Tiffany H. Taft ◽

Laurie Keefer ◽

Christoph Leonhard ◽

Michele Nealon-Woods

Keyword(s):

Inflammatory Bowel Disease ◽

Patient Outcomes ◽

Bowel Disease ◽

Inflammatory Bowel Disease Patient ◽

Disease Patient ◽

Perceived Stigma ◽

Inflammatory Bowel

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MMR, autism and inflammatory bowel disease: responding to patient concerns using an evidence‐based framework

The Medical Journal of Australia ◽

10.5694/j.1326-5377.2001.tb143058.x ◽

2001 ◽

Vol 175 (3) ◽

pp. 127-128 ◽

Cited By ~ 2

Author(s):

C Raina Maclntyre ◽

Peter B Mclntyre

Keyword(s):

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Evidence Based ◽

Inflammatory Bowel ◽

Patient Concerns

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Worries and Concerns among Inflammatory Bowel Disease Patients Followed Prospectively over One Year

Gastroenterology Research and Practice ◽

10.1155/2011/492034 ◽

2011 ◽

Vol 2011 ◽

pp. 1-8 ◽

Cited By ~ 32

Author(s):

Lars-Petter Jelsness-Jørgensen ◽

Bjørn Moum ◽

Tomm Bernklev

Keyword(s):

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Energy Levels ◽

Validity And Reliability ◽

Bivariate Correlation ◽

Rating Form ◽

Inflammatory Bowel ◽

Analyse Data ◽

One Year ◽

Patient Concerns

Disease-related worries are frequently reported in inflammatory bowel disease (IBD), but longitudinal assessments of these worries are scarce. In the present study, patients completed the rating form of IBD patient concerns (RFIPC) at three occasions during one year. One-way analysis of variance (ANO VA),t-tests, bivariate correlation, and linear regression analyses were used to analyse data. The validity and reliability of the Norwegian RFIPC was tested. A total of 140 patients were included (V1), ulcerative colitis (UC)n= 92, Crohn's disease (CD)n= 48, mean age 46.9 and 40.0-year old, respectively. The highest rated worries included having an ostomy bag, loss of bowel control, and reduced energy levels. Symptoms were positively associated with more worries. A pattern of IBD-related worries was consistent over a period of one year. Worries about undergoing surgery or having an ostomy bag seemed to persist even when symptoms improved. The Norwegian RFIPC is valid and reliable.

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