scholarly journals E.06 Developing and evidence-based palliative care curriculum for neurology resident trainees

Author(s):  
JY Laiwah ◽  
A Sarpal ◽  
V Schulz ◽  
TE Gofton

Background: Graduating neurology residents require general palliative care skills. This study aims to develop an evidence-based palliative care curriculum to provide neurology residents with the general palliative care skills required for providing patient care along the continuum of life. Methods: A needs assessment of the palliative skills necessary for a neurology resident was performed. Focus groups were held with physicians, allied health care and senior residents. Semi-structured interviews were held with patients and their caregivers. Interviews analysed using qualitative thematic analysis techniques. The Kolb learning style inventory will determine the learning style of neurology residents and inform the curricular design. Results: Qualitative analysis identified 3 overarching challenges for neurology residents: 1) uncertainty regarding disease trajectory in neurology and timing of palliative care discussions; 2) cohesiveness of the health care team regarding end of life issues; 3) the role of the resident in initiating palliative care. Other principals identified for inclusion were: symptom management, communication, psychosocial aspects of care, care coordination and access, and myths and pitfalls in palliative care. Conclusions: This project will identify the current best evidence and expert opinion in palliative care neurology. The data will be used to develop a novel Canadian neurological palliative care curriculum.

Author(s):  
JA Yeung Laiwah ◽  
A Sarpal ◽  
V Schulz ◽  
T Gofton

Background: Palliative care is a cornerstone of the management of progressive neurological illness, but there lacks a standardized evidence-based curriculum to teach the unique aspects of neurology-based palliative care to current learners. Methods: A needs assessment involving focus groups with patients, physicians, interdisciplinary members, and trainees was conducted to identify gaps in the current curriculum. The Kolb Learning Style Inventory identified learning strategies among neurology residents. A Palliative Medicine Comfort and Confidence Survey and knowledge pre-test was distributed to determine current learner needs. The curriculum was delivered during academic time, and feedback was obtained for further content revision. Results: Qualitative analysis was used to develop the curriculum with the key principles of symptom management, end-of life communication, psychosocial components of care, and community coordination. Learning styles varied, but preference for active experimentation and concrete experience was noted. Learners identified as comfortable with withdrawal of medical interventions, but requiring support on home palliative care referral, and management of terminal delirium and dyspnea. Further teaching was requested for end of life ethics and communication skills. Conclusions: By integrating current best evidence-based practice in palliative neurology with learner feedback, this project aims to create a comprehensive palliative care curriculum for neurology learners.


2004 ◽  
Vol 10 (2) ◽  
pp. 4-9

In today’s health care environment, end-of-life issues frequently recur with patients, families and those who care for them. And, as with many such issues, some health care teams address them well and others do not. Accordingly, we gathered three hospice nurses, an ICU nurse and a retired internist to discuss the myths, misconceptions and obstacles to patients receiving appropriate palliative care. Hospice care veteran Jane Robles, a member of the Creative Nursing Journal editorial board, led the roundtable discussion.


Author(s):  
Lisa Humphrey

This article reflects on the lessons about grief and dying acquired by a palliative care and hospice physician over the course of her training and career. The article describes how she views, engages, and incorporates grief into her work as a health-care provider based on her personal experiences and lessons learned from mentors, patients, and families. It describes ways to better understand the types of loss one can personally experience and need to “tag your baggage” as a way of loss experiences before patient discussions. The article then emphasizes the importance of managing one’s expectations when working with a patient and/or family facing end-of-life issues, citing a pervasive concept in palliative and hospice care known as the “good death.” Finally, it discusses the role of communication and supportive skills in dealing with dying patients and their families, along with debriefing and self-care.


Author(s):  
TE Gofton ◽  
S Stewart ◽  
J Yeung Laiwah ◽  
VN Schulz ◽  
A Sarpal

Background: Graduating residents require general palliative care skills. In Canada, there is no standardized palliative care curriculum for specialty trained residents. The objective of this research is to develop an evidence-based palliative care curriculum designed to provide neurology residents with the general palliative care skills required for providing patient care along the continuum of life. Methods: A needs assessment was performed in Neurology at Western University using qualitative analysis techniques. Residents completed the following:. A curricular outline was developed based on the Kolb learning style inventory (LSI), a knowledge pre-test, the Palliative Medicine Comfort and Confidence Survey and a review of the literature. Two iterations of the curriculum have been developed. Results: Residents identified a need for additional training in supportive and palliative care skills. Based on the Kolb LSI, 9/16 (56.3%) of neurology residents are “accommodators”. General principles identified for inclusion included: symptom management, communication, psychosocial aspects of care, care coordination and access, and myths and pitfalls in palliative care. Conclusions: This project is designed to identify the current palliative educational needs for Neurology residents. The results suggest that specialty trained residents are receptive to embedding training in the principles of palliative care within their training programs.


2012 ◽  
Vol 15 (9) ◽  
pp. 1019-1026 ◽  
Author(s):  
Yael Schenker ◽  
Alicia Fernandez ◽  
Kathleen Kerr ◽  
David O'Riordan ◽  
Steven Z. Pantilat

2017 ◽  
pp. 621-633
Author(s):  
Rashmi Khadilkar ◽  
Hilary Yehling ◽  
Quill Timothy E.

2015 ◽  
Vol 11 (2) ◽  
pp. 163
Author(s):  
Bente Bjørsland ◽  
Reidun Hov

Health services are constantly met by greater demands on offering the best treatment and care based on quality and research. For that reason health workers and teachers in health care institutions and universities are working evidence-based. Hedmark University College and Hamar municipality have collaborated in two projects. The aim of this article is to illuminate the students’ learning outcomes in palliative care after participated in two evidence-based projects. Different written guides for conversations with patients, next of kin and staff, a log-book and an evaluation form were developed. Results show that the students learned about the significance of continuity in patients’ pain relief, spiritual and existential needs, and about palliative care in the municipality. The students concluded that they in some areas experienced greater learning outcomes from working with evidence-based practice than in their ordinary practice in the municipality.


2018 ◽  
Vol 46 (4) ◽  
pp. 478-487 ◽  
Author(s):  
Caroline Westerlund ◽  
Carol Tishelman ◽  
Inger Benkel ◽  
Carl Johan Fürst ◽  
Ulla Molander ◽  
...  

Objective: The aim of this study was to investigate the awareness of palliative care (PC) in a general Swedish population. Design: We developed an e-survey based on a similar study conducted in Northern Ireland, consisting of 10 questions. Closed questions were primarily analyzed using descriptive statistics. Open questions were subject to inductive qualitative analysis. Subjects: The study utilized a population sample of 7684 persons aged 18–66, of which 2020 responded, stratified by gender, age and region. Results: Most participants reported ‘no’ ( n = 827, 41%) or ‘some’ ( n = 863, 43%) awareness of PC. Being female or older were associated with higher levels of awareness, as was a university-level education, working in a healthcare setting and having a friend or family member receiving PC. Most common sources of knowledge were the media, close friends and relatives receiving PC, as well as working in a healthcare setting. Aims of PC were most frequently identified as ‘care before death’, ‘pain relief’, ‘dignity’ and a ‘peaceful death’. The preferred place of care and death was one’s own home. The main barriers to raising awareness about PC were fear, shame and taboo, along with perceived lack of information and/or personal relevance. The term ‘palliative care’ was said to be unfamiliar by many. A number of strategies to enhance awareness and access to PC were suggested, largely reflecting the previously identified barriers. Conclusions: This survey found limited awareness of palliative care in an adult sample of the Swedish general public ≤ 66 years, and points to a more widespread disempowerment surrounding end-of-life issues.


Author(s):  
Stephy Sabu

The review article presents the obstacles and the solutions towards the implementation of Evidence Based Practice among the nurses in India by merging the content and concept from a few set of related articles by the experts and those include 1. K Gitumoni and K Jyasree. The barriers and challenges of conducting nursing research and communicatoing findings into practice. 2. Daphne c duncombe. A study of perceived barriers and faciliattors to implement evidenced based practice. 3. Joan and Warren. A crosssectional study to assess the strength and challenges to implement ebp in nursing. 4. B Mauricio, Implementing evidence based practice: a challenge for the nursing practice. 5. M Neda and B naser. Nurses faculties knowledge and attitude on evidence based practice. The successful utilization of best evidence into practice depends on the knowledge of nurses, understanding the concepts, and its application. There exists various barriers and facilitators as well to the application of EBP among nurses. The practice can be a successful and routine process in an organization only if there could be support, encouragement and recognition by the administration. The health care team in India must provide an indispensible support to eliminate those barriers and facilitate the optimal care through best evidences in the health care facilities. Thus the article comprises a cross cut view on the obstacles in the application of best evidences in the clinical setting.


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