scholarly journals The changing epidemiology of Ebstein’s anomaly and its relationship with maternal mental health conditions: a European registry-based study

2016 ◽  
Vol 27 (4) ◽  
pp. 677-685 ◽  
Author(s):  
Breidge Boyle ◽  
Ester Garne ◽  
Maria Loane ◽  
Marie-Claude Addor ◽  
Larraitz Arriola ◽  
...  

AbstractObjectivesThe aim of this study was to describe the epidemiology of Ebstein’s anomaly in Europe and its association with maternal health and medication exposure during pregnancy.DesignWe carried out a descriptive epidemiological analysis of population-based data.SettingWe included data from 15 European Surveillance of Congenital Anomalies Congenital Anomaly Registries in 12 European countries, with a population of 5.6 million births during 1982–2011.ParticipantsCases included live births, fetal deaths from 20 weeks gestation, and terminations of pregnancy for fetal anomaly.Main outcome measuresWe estimated total prevalence per 10,000 births. Odds ratios for exposure to maternal illnesses/medications in the first trimester of pregnancy were calculated by comparing Ebstein’s anomaly cases with cardiac and non-cardiac malformed controls, excluding cases with genetic syndromes and adjusting for time period and country.ResultsIn total, 264 Ebstein’s anomaly cases were recorded; 81% were live births, 2% of which were diagnosed after the 1st year of life; 54% of cases with Ebstein’s anomaly or a co-existing congenital anomaly were prenatally diagnosed. Total prevalence rose over time from 0.29 (95% confidence interval (CI) 0.20–0.41) to 0.48 (95% CI 0.40–0.57) (p<0.01). In all, nine cases were exposed to maternal mental health conditions/medications (adjusted odds ratio (adjOR) 2.64, 95% CI 1.33–5.21) compared with cardiac controls. Cases were more likely to be exposed to maternal β-thalassemia (adjOR 10.5, 95% CI 3.13–35.3, n=3) and haemorrhage in early pregnancy (adjOR 1.77, 95% CI 0.93–3.38, n=11) compared with cardiac controls.ConclusionsThe increasing prevalence of Ebstein’s anomaly may be related to better and earlier diagnosis. Our data suggest that Ebstein’s anomaly is associated with maternal mental health problems generally rather than lithium or benzodiazepines specifically; therefore, changing or stopping medications may not be preventative. We found new associations requiring confirmation.

2020 ◽  
Author(s):  
Steven Gillard ◽  
Ceri Dare ◽  
Jackie Hardy ◽  
Patrick Nyikavaranda ◽  
Rachel Rowan Olive ◽  
...  

AbstractPurposeResearch is beginning to quantify the impact of COVID-19 on people with pre-existing mental health conditions. Our paper addresses a lack of in-depth qualitative research exploring their experiences and perceptions of how life has changed at this time.MethodsWe used qualitative interviews (N=49) to explore experiences of the pandemic for people with pre-existing mental health conditions. In a participatory, coproduced approach, researchers with lived experiences of mental health conditions conducted interviews and analysed data as part of a multi-disciplinary research team.ResultsExisting mental health difficulties were exacerbated for many people. People experienced specific psychological impacts of the pandemic, struggles with social connectedness, and inadequate access to mental health services, while some found new ways to cope and connect to community. New remote ways to access mental health care, including digital solutions, provided continuity of care for some but presented substantial barriers for others. People from black and ethnic minority (BAME) communities experienced heightened anxiety, stigma and racism associated with the pandemic, further impacting their mental health.ConclusionThere is a need for evidence-based solutions to achieve accessible and effective mental health care in response to the pandemic, especially remote approaches to care. Further research should explore the long-term impacts of COVID-19 on people with pre-existing mental health conditions. Particular attention should be paid to understanding inequalities of impact on mental health, especially for people from BAME communities.


2021 ◽  
Author(s):  
Prisha Shah ◽  
Jackie Hardy ◽  
Mary Birken ◽  
Una Foye ◽  
Rachel Rowan Olive ◽  
...  

Purpose: We sought to understand how the experiences of people in the UK with pre-existing mental health conditions had developed during the course of the COVID-19 pandemic. Methods: In September-October 2020 we interviewed adults with mental health conditions pre-dating the pandemic whom we had previously interviewed three months earlier. Participants had been recruited through online advertising and voluntary sector community organisations. Interviews were conducted by telephone or video-conference by researchers with lived experience of mental health difficulties and explored changes over time in experiences of participants of the pandemic. Results: We interviewed 44 people, achieving diversity of demographic characteristics and a range of mental health conditions and service use among our sample. Three overarching themes were derived from interviews. The first theme Spectrum of adaptation: to difficulties in access to, or the quality of, statutory mental health services, through developing new personal coping strategies or identifying alternative sources of support. The second theme is Accumulating pressures: from pandemic-related anxieties and sustained disruption to social contact and support, and to mental health treatment. The third theme Feeling overlooked: A sense of people with pre-existing mental health conditions being overlooked during the pandemic by policy-makers at all levels. The latter was compounded for people from ethnic minority communities or with physical health problems. Conclusion: Our study highlights the need to support marginalised groups who are at risk of increased inequalities, and to maintain crucial mental and physical healthcare and social care for people with existing mental health conditions, notwithstanding challenges of the pandemic.


Author(s):  
Steven Gillard ◽  
◽  
Ceri Dare ◽  
Jackie Hardy ◽  
Patrick Nyikavaranda ◽  
...  

Abstract Purpose Research is beginning to quantify the impact of COVID-19 on people with pre-existing mental health conditions. Our paper addresses a lack of in-depth qualitative research exploring their experiences and perceptions of how life has changed at this time. Methods We used qualitative interviews (N = 49) to explore experiences of the pandemic for people with pre-existing mental health conditions. In a participatory, coproduced approach, researchers with lived experiences of mental health conditions conducted interviews and analysed data as part of a multi-disciplinary research team. Results Existing mental health difficulties were exacerbated for many people. People experienced specific psychological impacts of the pandemic, struggles with social connectedness, and inadequate access to mental health services, while some found new ways to cope and connect to the community. New remote ways to access mental health care, including digital solutions, provided continuity of care for some but presented substantial barriers for others. People from black and ethnic minority (BAME) communities experienced heightened anxiety, stigma and racism associated with the pandemic, further impacting their mental health. Conclusion There is a need for evidence-based solutions to achieve accessible and effective mental health care in response to the pandemic, especially remote approaches to care. Further research should explore the long-term impacts of COVID-19 on people with pre-existing mental health conditions. Particular attention should be paid to understanding inequalities of impact on mental health, especially for people from BAME communities.


2018 ◽  
Author(s):  
Elyse Williams ◽  
Genevieve Dingle ◽  
Jolanda Jetten ◽  
Christian Rowan

People experiencing chronic mental health conditions often report feeling socially marginalised. There is emerging evidence that social and mental wellbeing can be enhanced through arts-based programs. In this paper, a social identity theoretical approach was applied to explore how participation in the arts may improve mental health in a longitudinal study. A one-year prospective study of 34 choir members and 25 creative writing group members (Mage = 46, 51% female) with chronic mental health conditions, involved three assessments of participants’ group identification and mental wellbeing, measured by the Warwick Edinburgh Mental Wellbeing Scale. The programs were community-based and facilitated by arts professionals. Multilevel modelling analyses demonstrated that participants’ mental wellbeing significantly improved over time. Greater identification with their arts based group was significantly related to an increased rate of improvement in mental wellbeing. The trajectory of improvement in mental wellbeing did not differ between participants partaking in the choir or creative writing group. This study demonstrates that participation in arts-based groups can be effective in improving mental wellbeing in adults with chronic mental health problems, particularly for those who strongly identify with the group. This study supports arts-based group participation as an accessible component of mental health services.


2018 ◽  
Vol 4 ◽  
pp. 205520761876220 ◽  
Author(s):  
Alice Verran ◽  
Ayesha Uddin ◽  
Rachel Court ◽  
Frances Taggart ◽  
Paul Sutcliffe ◽  
...  

Objective To describe the latest evidence of effectiveness and impact of networked communication interventions for young people with mental health conditions. Methods Searching five databases from 2009 onwards, we included studies of any design investigating two-way communication interventions for the treatment of young people (mean age 12–25) with a chronic mental health disorder. The data were synthesised using narrative summary. Results Six studies met the inclusion criteria, covering a range of mental health conditions (depression, psychosis, OCD). Interventions included an online chat room ( n = 2), videoconferencing ( n = 3) and telephone ( n = 1). Where studies compared two groups, equivalence or a statistically significant improvement in symptoms was observed compared to control. Views of patients and clinicians included impact on the patient-clinician interaction. Clinicians did not feel it hindered their diagnostic ability. Conclusion Networked communication technologies show promise in the treatment of young people with mental health problems but the current available evidence remains limited and the evidence base has not advanced much since the previous inception of this review in 2011. Practice implications Although the available research is generally positive, robust evidence relating to the provision of care for young persons via these technologies is lacking and healthcare providers should be mindful of this.


2019 ◽  
Vol 3 (2) ◽  
pp. 66
Author(s):  
Shilpa R. Hampole ◽  
Steven H. S. Nguyen ◽  
Erin L. Woodhead

Aim: The current study compared disclosure of mental health problems to staff, faculty, and peers among college students from different ethnic backgrounds. Background: Although there are differences in mental health stigma between college students from different ethnic backgrounds, there is limited research on whether these differences are associated with negative experiences disclosing mental health conditions on campus. Methods: The sample (N = 66) was 71% female; average age was 19.03 years (SD = 1.14). Participants identified as Latino/a (35.4%), Asian American (33.8%), Caucasian (13.8%), or other/mixed ethnicity (16.9%). Results: For disclosure to staff, there was a main effect of ethnicity. Post-hoc analyses found that Latino/a students were significantly more comfortable disclosing mental health problems to staff than Asian American students. There were no significant effects for disclosure to faculty or peers. Conclusions: This preliminary study suggests that universities must optimize outreach and mental health services for different ethnic groups to improve campus experience around mental health conditions.


Author(s):  
Ahmed Samei Huda

There is increased risk caused by social difficulties and/or childhood trauma for developing both general medical and mental health conditions, with overlap in similarity of magnitude of some increased risks, although intermediary mechanisms may differ. Social factors are the most important determinants of health status. Reducing social adversity and childhood trauma would improve the physical and mental health of the population. Life events and stresses/hassles are a more specific risk factor for mental health problems. Social factors are often inadequate to explain the nature and severity of people’s mental health problems without taking into account psychobiological factors. Given the greater effect of culture on how mental health conditions are expressed, there is some overlap between psychiatric and general medical diagnostic constructs rather than near total overlap. Mental health conditions do seem associated with greater stigma (some of this seems related to the categorical nature of diagnostic constructs) and also with greater use of coercion than for general medical conditions, but this also occurs for general medical conditions hence the conclusion of some overlap.


10.2196/14825 ◽  
2020 ◽  
Vol 7 (5) ◽  
pp. e14825
Author(s):  
Lay San Too ◽  
Liana Leach ◽  
Peter Butterworth

Background Mental health support and interventions are increasingly delivered on the web, and stepped care systems of mental health services are embracing the notion of a digital gateway through which individuals can have access to information, assessment, and services and can be connected with more intensive services if needed. Although concerns have been raised over whether people with mental health problems are disadvantaged in terms of their access to the internet, there is a lack of representative data on this topic. Objective This study aimed to examine the relationship between mental health and internet access, particularly lack of access because of affordability issues. Methods Data from wave 14 of the Household, Income, and Labour Dynamics in Australia survey were used (n=15,596) in the analyses. Sample weights available in the survey were used to calculate the proportion of those with or without internet access for those with and without mental health problems and more severe long-term mental health conditions. These proportions were also calculated for those with and without internet access due, specifically, to affordability issues. Multinomial logistic regression analyses assessed the relationship between mental health status and internet access/affordability issues, adjusting for a range of covariates. Results Access to the internet was poorer for those with mental health problems (87.8%) than those without mental health problems (92.2%), and the difference was greater when a measure of more severe mental health conditions was used (81.3% vs 92.2%). The regression models showed that even after adjusting for a broad range of covariates, people with mental ill health were significantly more likely to have no internet access because of unaffordability than those without mental ill health (mental health problems: relative risk ratio [RRR] 1.68; 95% CI 1.11-2.53 and severe mental health conditions: RRR 1.92; 95% CI 1.16-3.19). Conclusions As Australia and other nations increasingly deliver mental health services on the web, issues of equity and affordability need to be considered to ensure that those who most need support and assistance are not further disadvantaged.


2016 ◽  
Author(s):  
Alastair G Canaway ◽  
Christopher J Sampson

Background. Interventions and services for people with mental health problems can have broad remits: they are often designed to treat people with a variety of diagnoses. Furthermore, addressing mental health problems can have long term implications for economic, social and health outcomes. This represents a challenge for economic evaluation, where long term trial data can be lacking. In this review we will seek to identify how analysts have sought to tackle this problem. We will review the methods used to extrapolate costs and outcomes for the purpose of economic evaluation, where long term trial data are not available. Methods/design. We will carry out a review of the medical and economic literature evaluating long-term costs and outcomes for mental health interventions and services designed to treat or prevent more than two mental health conditions. We will search the key health economic databases, including: OVID Medline, Embase, Psycinfo, CINAHL, and EconLit. The two authors will independently screen the returned results. Any discrepancies will be resolved by deliberation between the two authors. Key information will be extracted from the papers which successfully pass through the screening process. The findings will be highlighted through a narrative analysis and tabulated data. Discussion. This review will shed light on the existing methods used to model into the future when multiple mental health conditions are considered. The review will discuss the strengths and weakness within current methodologies, highlight existing flaws, and provide guidance for future economic evaluations of interventions targeting multiple mental health conditions.


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