The mental health of adolescents and pre-adolescents living with inherited arrhythmia syndromes: a systematic review of the literature

2018 ◽  
Vol 28 (5) ◽  
pp. 621-631
Author(s):  
Patricia E. Longmuir ◽  
Margaret Sampson ◽  
Jennifer Ham ◽  
Makenzie Weekes ◽  
Bhavika J. Patel ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Systematic Review ◽  
Implantable Cardioverter Defibrillator ◽  
Emotional Health ◽  
Bodily Pain ◽  
Quality Data ◽  
Cardioverter Defibrillator ◽  
Inherited Arrhythmia

AbstractPotentially fatal arrhythmias add to the mental health challenges of adolescence. This systematic review sought to summarise current knowledge regarding the mental health of adolescents and pre-adolescents diagnosed with inherited arrhythmia syndromes. Searches combining psychological problems with inherited cardiac arrhythmia diagnoses identified 16 studies with paediatric (<18 years) inherited arrhythmia patients. All studies were cross-sectional; 8/16 required an implantable cardioverter defibrillator. Methods were quantitative (n=11), qualitative (n=4), or mixed (n=1), with 14–100% of participants having an inherited arrhythmia syndrome. Mean/median age in 13/16 studies was 12–16 years. Patients and parents reported lower quality of life, particularly in relation to physical function, social relationships, restriction of peer activities, bodily pain, and mental and emotional health. Self-perceptions and behaviour were similar to healthy populations. Rates of anxiety and depression (15–33% of these patients) were not increased in these studies where patients were assessed 2+ years after diagnosis. Higher mental health risk occurred among patients who have a diagnosed sibling, those with cardiomyopathy, and those who report decreased quality of life. Mental health research among youth with inherited arrhythmias is extremely limited and of low quality. Data, primarily from patients 2–4 years after diagnosis or treatment with an implantable cardioverter defibrillator, indicate that quality of life may be decreased and 15–33% experience mental health issues. Future research is required to examine the mental health and quality of life of paediatric patients with inherited arrhythmia syndromes, whether or not they have an implantable cardioverter defibrillator, from time of diagnosis.

scholarly journals Quality of Life in Patients with an Implantable Cardioverter Defibrillator: A Systematic Review

2015 ◽  
Vol 2 ◽  
Author(s):  
Juliane Tomzik ◽  
Katharina C. Koltermann ◽  
Markus Zabel ◽  
Stefan N. Willich ◽  
Thomas Reinhold
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Implantable Cardioverter Defibrillator ◽  
Cardioverter Defibrillator

Quality of life and psychological co-morbidities in children and adolescents with cardiac pacemakers and implanted defibrillators: a cohort study in Eastern Germany

2020 ◽  
Vol 30 (4) ◽  
pp. 549-559
Author(s):  
Christian Paech ◽  
Victoria Ebel ◽  
Franziska Wagner ◽  
Stephanie Stadelmann ◽  
Annette M. Klein ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Implantable Cardioverter Defibrillator ◽  
Mental Health Problems ◽  
Reference Group ◽  
Health Problems ◽  
Anxiety Symptoms ◽  
Cardioverter Defibrillator ◽  
Significant Difference

AbstractIntroduction:The implantation of a pacemaker or an implantable cardioverter-defibrillator during childhood may reduce quality of life and lead to mental health problems. This study aimed to evaluate potential mental health problems (i.e., depressive and anxiety symptoms) and quality of life in children with cardiac active devices in comparison to healthy peers.Methods:We analysed data of children with pacemakers or implantable cardioverter-defibrillators aged 6–18 years. Quality of life, depressive and anxiety symptoms were assessed by standardised questionnaires. The results were compared to age-matched reference groups.Results:Children with implantable cardioverter-defibrillator showed significant lower quality of life in comparison to reference group (p = 0.03), but there was no difference in quality of life between children with pacemaker and reference group. There was no significant difference in depressive symptoms between children with a cardiac rhythm device compared to reference group (self-report: p = 0.67; proxy report: p = 0.49). There was no significant difference in anxiety (p = 0.53) and depressive symptoms (p = 0.86) between children with pacemaker and children with implantable cardioverter-defibrillator.Conclusions:Living with an implantable cardioverter-defibrillator in childhood seems to decrease the patients’ quality of life. Although children with pacemaker and implantable cardioverter-defibrillator don’t seem to show more depressive and anxiety symptoms in comparison to their healthy peers, there still can be an increased risk for those children to develop mental health problems. Therefore, treating physicians should be aware of potential mental health problems and provide the patients and their families with appropriate therapeutic offers.

scholarly journals Quality of life in patients with implantable cardioverter–defibrillator: systematic review of randomized controlled trials

2017 ◽  
Vol 17 (3) ◽  
pp. 196-206 ◽  
Author(s):  
Katia Regina da Silva ◽  
Roberto Costa ◽  
Clarissa Garcia Rodrigues ◽  
Andi Schasechter ◽  
Moacyr Cuce Nobre ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Randomized Controlled Trials ◽  
Implantable Cardioverter Defibrillator ◽  
Cochrane Library ◽  
Controlled Trials ◽  
Icd Therapy ◽  
Cardioverter Defibrillator ◽  
Randomized Controlled

Background: Implantable cardioverter–defibrillator (ICD) therapy significantly improves the survival of patients who are at high risk for sudden cardiac death. However, it is unclear whether this survival is accompanied by impairment on quality of life (QoL). Objectives: This systematic review sought to describe whether ICD therapy, as compared with standard treatment, can have an impact on QoL outcomes. Methods: Extensive literature searches were carried out in PubMed, EMBASE, LILACS and Cochrane Library. Eligible studies were randomized controlled trials (RCTs) of ICD versus medical therapy that reported valid and reliable measures of QoL. Included studies were reviewed to determine baseline patient characteristics, mean duration of follow-up, questionnaires used to assess QoL and association between QoL scores and ICD shock therapy. Results: Seven studies, enrolling a total of 5,701 patients, were included in this review. The analyzed trials showed conflicting results about the impact of ICD on QoL outcomes. Among the secondary prevention studies, CIDS reported a clear benefit from ICD and AVID showed no difference between ICD and amiodarone groups. Of the primary prevention trials, AMIOVIRT, MADIT II, DEFINITE, and SCD-HeFT found no evidence of impaired QoL in patients with an ICD. Evidence for an association between ICD shocks and QoL was mixed and seemed to depend on the interval between shocks and QoL assessment. Conclusion: There was no evidence of impaired QoL in patients with an ICD. However, ICD patients must be educated of all possible risks and benefits, including transitory declines in QoL after ICD shocks.

scholarly journals P1742Assessment of quality of life and ICD shock-related anxiety in patients with implantable cardioverter defibrillator: the PainFree SST study

EP Europace ◽  
2017 ◽  
Vol 19 (suppl_3) ◽  
pp. iii379-iii379
Author(s):  
Y. Kondo ◽  
S. Sasaki ◽  
S. Sears ◽  
M. Okamoto ◽  
B. Gerritse ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Implantable Cardioverter Defibrillator ◽  
Cardioverter Defibrillator ◽  
Icd Shock

scholarly journals Effect of Instructing Care Program Through Group Discussion on the Quality of Life of the Parents of the Children Afflicted With Leukemia

2015 ◽  
Vol 8 (5) ◽  
pp. 197 ◽  
Author(s):  
Fariba Asadi Noughabi ◽  
Daryoush Iranpoor ◽  
Hadi Yousefi ◽  
Hakimeh Abrakht ◽  
Fatemeh Ghani Dehkordi
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Emotional Health ◽  
Group Discussion ◽  
Bodily Pain ◽  
Care Program ◽  
Role Of Parents ◽  
The Impact ◽  
Taking Care

<p><strong>PURPOSE</strong><strong>:</strong> Children long-term involvement with cancer may have a negative impact on the quality of life their parents. Design and implementation of training programs for parents whose children have been diagnosed with leukemia, as the primary caregivers of children, will have a special significance and can contribute to better taking care of such children. The main purpose of the present study was to examine the impact of conducting group discussion, as care program training, on the quality of life parents whose children were suffering from leukemia.</p><p><strong>METHODS: </strong>This quasi-experimental before-after intervention study encompassed two groups of parents (in total 41) of leukemia children. To collect data, a demographic questionnaire and the shortened version of SF-36 questionnaire were used to determine the quality of life of parents. Both groups completed the quality of life questionnaires before and two months after the intervention.</p><p><strong>RESULTS: </strong>Comparison of the parents’ quality of life mean scores, obtained before and two months after training, showed that promotion in 6 domains of bodily pain, general health, emotional health, role limitation due to emotional problems, social functioning, and vitality were occurred. (P &lt;0.05)</p><p><strong>CONCLUSIONS: </strong>Considering the important role of parents in taking care of children suffering from leukemia, introduction of care program training can be a positive step to help these parents and empower them to manage their children’s problems more systematically and will ultimately lead to improved quality of life of parents.</p>

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