Gute Lebens- und Sterbensqualität – Versorgung und Versorgungslücken von Palliative Care in der Schweiz

2017 ◽  
Vol 74 (1) ◽  
pp. 805-811 ◽  
Author(s):  
Tanja Krones ◽  
Settimio Monteverde

Zusammenfassung. Der medizinische Fortschritt erforderte eine grundlegenden Neubesinnung über das Verhältnis von Medizin und Tod. Paradigmatisch vollzogen wurde diese erstmals durch das Wirken der Krankenschwester, Sozialarbeiterin und Ärztin Cicely Saunders, die das Zulassen und das Gestalten des letzten Lebensabschnitts als genuinen Auftrag der Medizin verstand, klinisch konsequent umsetzte und erforschte. Durch die WHO-Definition der Palliative Care wurde die globale, kultur- und systemübergreifende Bedeutung des Themas ins Bewusstsein gerufen. Bald schon konnte die Forschung die Wirksamkeit von Palliative Care auf die Lebensqualität unheilbar kranker und sterbender Menschen belegen. Aber auch Faktoren wie die Belastung pflegender Angehöriger oder der wirksame Einsatz von Gesundheitsressourcen können durch Palliative Care positiv beeinflusst werden. Auch in der Schweiz hat sich Palliative Care in den Versorgungsstrukturen des Gesundheitswesens gut etabliert, was dem Zusammenwirken verschiedener Akteure aus der Ebene der Gesundheitspolitik, der Patientenversorgung und der privaten Initiative zu verdanken ist. Trotzdem belegt die Schweiz in der Quality of Death Studie des „Economist“ weltweit keinen der vorderen Plätze, wofür gemäss Studie gerade auch Finanzierungslücken in der Palliative Care verantwortlich gemacht werden. Dieser Beitrag zeigt, wie schwierig es ist, Palliative Care als Teil einer flächendeckenden Gesundheitsversorgung zu verstehen und umzusetzen. Auch die mit Palliative Care verbundene finanzielle Belastung für Einzelne und Haushalte ist dabei nicht ausser Acht zu lassen. Aufbauend auf bisherigen Bemühungen sind weitere Schritte in Richtung flächendeckender Implementierung nötig, die dem Motto „The palliative care team follows the patient“ („engl. „Das Palliative Care Team folgt dem Patienten“) folgen und problematische implizite Steuerungseffekte aufgrund bestehender Finanzierungslücken aufdecken. Als Möglichkeit einer solchen integrierten, patientenzentrierten Palliative Care Versorgung wird das Konzept des Advance Care Planning ausgeführt.

Praxis ◽  
2021 ◽  
Vol 110 (15) ◽  
pp. 925-931 ◽  
Author(s):  
Barbara Loupatatzis ◽  
Isabelle Karzig-Roduner

Zusammenfassung. Der Wunsch vieler Menschen in der Schweiz ist es, zu Hause sterben zu können. Der vorliegende Praxisbericht zeigt beispielhaft, wie die Zusammenarbeit von Hausärztinnen und Hausärzten und einem spezialisierten Palliative- Care-Team sowie die Anwendung eines individuell auf das Therapieziel und die Grundkrankheit der Patientin/des Patienten adaptierten Notfallplans die Umsetzung dieses Wunsches unterstützen können. Eine gute Koordination der gesundheitlichen Vorausplanung (Advance Care Planning) durch einen individualisierten, patientenzentrierten Notfallplan sowie die gemeinsame Umsetzung der Betreuung durch das interdisziplinäre, multiprofessionelle Behandlungsteam und die Organisation eines gutes Betreuungsnetzwerks sind essenzielle Bestandteile, damit ungewollte Notfallhospitalisationen am Lebensende vermieden werden können.


2018 ◽  
Vol 17 (1) ◽  
pp. 15-19 ◽  
Author(s):  
Charles L. Rhee ◽  
Michael Cuttica

Pulmonary hypertension (PH) is a progressive disease with high associated morbidity and mortality despite the development of novel therapies. Palliative care is a multidisciplinary field focused on optimization of quality of life and overall supportive care for patients and their families in the setting of life-limiting illness. Although the benefits of palliative care in oncology are well described, there are few studies regarding the timing and involvement of palliative care in PH patients. In this paper, we describe the importance of longitudinal advance care planning, including suggestions for addressing difficult topics such as end-of-life care, and the role of palliative care providers in helping guide these discussions throughout the course of the illness.


2003 ◽  
Vol 18 (7) ◽  
pp. 1345-1352 ◽  
Author(s):  
S. D. Weisbord ◽  
S. S. Carmody ◽  
F. J. Bruns ◽  
A. J. Rotondi ◽  
L. M. Cohen ◽  
...  

PLoS ONE ◽  
2018 ◽  
Vol 13 (11) ◽  
pp. e0208564 ◽  
Author(s):  
Arianne Brinkman-Stoppelenburg ◽  
Frederika E. Witkamp ◽  
Lia van Zuylen ◽  
Carin C. D. van der Rijt ◽  
Agnes van der Heide

PLoS ONE ◽  
2018 ◽  
Vol 13 (8) ◽  
pp. e0201191 ◽  
Author(s):  
Arianne Brinkman-Stoppelenburg ◽  
Frederika E. Witkamp ◽  
Lia van Zuylen ◽  
Carin C. D. van der Rijt ◽  
Agnes van der Heide

2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Leonard L. Sokol ◽  
Michael J. Young ◽  
Jack Paparian ◽  
Benzi M. Kluger ◽  
Hillary D. Lum ◽  
...  

AbstractRecent discoveries support the principle that palliative care may improve the quality of life of patients with Parkinson’s disease and those who care for them. Advance care planning, a component of palliative care, provides a vehicle through which patients, families, and clinicians can collaborate to identify values, goals, and preferences early, as well as throughout the disease trajectory, to facilitate care concordant with patient wishes. While research on this topic is abundant in other life-limiting disorders, particularly in oncology, there is a paucity of data in Parkinson’s disease and related neurological disorders. We review and critically evaluate current practices on advance care planning through the analyses of three bioethical challenges pertinent to Parkinson’s disease and propose recommendations for each.


2021 ◽  
pp. 026921632110012
Author(s):  
Rik Stoevelaar ◽  
Arianne Stoppelenburg ◽  
Rozemarijn L van Bruchem-Visser ◽  
Anne Geert van Driel ◽  
Dominic AMJ Theuns ◽  
...  

Background: Little is known about the last phase of life of patients with implantable cardioverter defibrillators and the practice of advance care planning in this population. Aim: To describe the last phase of life and advance care planning process of patients with an implantable cardioverter defibrillator, and to assess relatives’ satisfaction with treatment and care. Design: Mixed-methods study, including a survey and focus group study. Setting/participants: A survey among 170 relatives (response rate 59%) reporting about 154 deceased patients, and 5 subsequent focus groups with 23 relatives. Results: Relatives reported that 38% of patients had a conversation with a healthcare professional about implantable cardioverter defibrillator deactivation. Patients’ and relatives’ lack of knowledge about device functioning and the perceived lack of time of healthcare professionals were frequently mentioned barriers to advance care planning. Twenty-four percent of patients experienced a shock in the last month of life, which were, according to relatives, distressing for 74% of patients and 73% of relatives. Forty-two to sixty-one percent of relatives reported to be satisfied with different aspects of end-of-life care, such as the way in which wishes of the patient were respected. Quality of death was scored higher for patients with a deactivated device than those with an active device (6.74 vs 5.67 on a 10-point scale, p = 0.012). Conclusions: Implantable cardioverter defibrillator deactivation was discussed with a minority of patients. Device shocks were reported to be distressing to patients and relatives. Relatives of patients with a deactivated device reported a higher quality of death compared to relatives of patients with an active device.


2021 ◽  
Author(s):  
Iris Doorne ◽  
Dick L. Willems ◽  
Nadine Baks ◽  
Jelle Kuijper ◽  
Bianca. M. Buurman ◽  
...  

Abstract Background: Specialist palliative care teams (PCT) are consulted during hospital admission for advice on complex palliative care. These consultations need to be timely to prevent symptom burden and maintain quality of life. Insight into specialist PCTs may help improve the outcomes of palliative care. Methods: In this retrospective observational study, we analyzed qualitative and quantitative data of palliative care consultations in a six-month period in four general hospitals in the northwestern part of the Netherlands. Data were obtained from electronic medical records. Results: We extracted data from 336 consultations. The most common diagnoses were cancer (54.8%) and organ failure (26.8%). 40.2% of patients were restricted to a chair or bed and 52.3% had an estimated life expectancy of less than three months. Within two weeks after consultation, 53.2% of the patients died, and the median time until death was 11 days (range 191) after consultation. Most patients died in hospital (49.4%) but only 7.5% preferred to die in hospital. Consultations were mostly requested for advance care planning (31.6%). End-of-life preferences focused on last wishes and maintaining quality of life. Conclusion: This study shows that palliative care consultations focus on terminal care and are more crisis-oriented than prevention-oriented. Death often occurs too quickly after consultation for end-of-life preferences to be met and these preferences tend to focus on dying. Educating healthcare professionals on when to initiate palliative care would promote a more prevention-oriented approach. Factors that indicate the need for timely PCT consultation should be defined.


Sign in / Sign up

Export Citation Format

Share Document