Family Caregivers of Elderly Persons

GeroPsych ◽  
2010 ◽  
Vol 23 (4) ◽  
pp. 195-206 ◽  
Author(s):  
Pasqualina Perrig-Chiello ◽  
Sara Hutchison
Keyword(s):  
Home Care ◽  
Family Caregivers ◽  
Health Resources ◽  
Primary Objective ◽  
Reporting Bias ◽  
Elderly Persons ◽  
Questionnaire Data ◽  
Resource Model ◽  
Perceived Burden ◽  
Self Reports

In light of the mixed findings concerning the determinants of family caregivers’ burden and using a stress-resource model, we present questionnaire data from 311 family caregivers (partners and children) and 311 home-care professionals of the same elderly carereceiver. The differentiation between gender and kinship demonstrates the complexity and at the same time the disparity of investment and perceived burden among family caregivers. Although caregiving children are confronted with less primary objective stressors and have better health resources than caregiving partners, they report more primary subjective stressors and seem generally more burdened, especially caring daughters. The comparison of caregivers’ self-reports and professionals’ appraisals provide important insights into a gender and cohort reporting bias.

Smart technology-assisted Home Nursing Care Program for Persons with Dementia or Hip Fracture: Implementation Difficulties: Thematic Analysis (Preprint)

2020 ◽  
Author(s):  
Yea-Ing Shyu ◽  
Chung-Chih Lin ◽  
Ching-Tzu Yang ◽  
Pei-Ling Su ◽  
Jung-Ling Hsu
Keyword(s):  
Hip Fracture ◽  
Family Caregivers ◽  
Nursing Care ◽  
Care Program ◽  
Wearable Devices ◽  
Elderly Persons ◽  
Home Nursing ◽  
Smart Technology ◽  
Smart Clothing ◽  
Home Nursing Care

BACKGROUND Wearable devices have been developed and implemented to improve data collection in remote health care and smart care. Wearable devices have the advantage of always being with individuals, enabling easy detection of their movements. In this study, we developed and implemented a smart-care system using smart clothing for persons with dementia and with hip fracture. We conducted a preliminary study to understand family caregivers’ and care receivers’ experiences of receiving a smart technology-assisted (STA) home-nursing care program. OBJECTIVE This paper reports the difficulties we encountered and strategies we developed during the feasibility phase of studies on the effectiveness of our STA home-nursing care program for persons with dementia and hip fracture. METHODS Our care model, a STA home-nursing care program for persons with dementia and those with hip fracture included a remote-monitoring system for elderly persons wearing smart clothing was used to facilitate family caregivers’ detection of elderly persons’ movements. These movements included getting up at night, staying in the bathroom for more than 30 minutes, not moving more than 2 hours during the day, leaving the house, and daily activities. Participants included 13 families with 5 patients with hip fracture and 7 with dementia. Research nurses documented the difficulties they encountered during the process. RESULTS Difficulties encountered in this smart-care study were categorized into problems setting up the smart-care environment, problems running the system, and problems with participant acceptance/adherence. These difficulties caused participants to drop out, the system to not function or delayed function, inability to collect data, extra costs of manpower, and financial burden. Strategies to deal with these problems are also reported. CONCLUSIONS During the implementation of smart care at home for persons with dementia or hip fracture, different aspects of difficulties were found and strategies were taken. The findings of this study can provide a reference for future implementation of similar smart-home devices.

scholarly journals Facilitating co-production in public services: Empirical evidence from a co-design experience with family caregivers living in a remote and rural area

2020 ◽  
pp. 095148482097145
Author(s):  
Eleonora Gheduzzi ◽  
Niccolò Morelli ◽  
Guendalina Graffigna ◽  
Cristina Masella
Keyword(s):  
Home Care ◽  
Family Caregivers ◽  
Empirical Evidence ◽  
Rural Area ◽  
Public Service ◽  
Rural Areas ◽  
Crucial Role ◽  
Care Agency ◽  
Home Care Agency ◽  
Design Experience

The involvement of vulnerable actors in co-production activities is a debated topic in the current public service literature. While vulnerable actors should have the same opportunities to be involved as other actors, they may not have the needed competences, skills and attitudes to contribute to this process. This paper is part of a broader project on family caregivers’ engagement in remote and rural areas. In particular, it investigates how to facilitate co-production by looking at four co-design workshops with family caregivers, representatives of a local home care agency and researchers. The transcripts of the workshops were coded using NVivo, and the data were analysed based on the existing theory about co-production. Two main findings were identified from the analysis. First, the adoption of co-production by vulnerable actors may occur in conjunction with other forms of engagement. Second, the interactions among facilitators and providers play a crucial role in encouraging the adoption of co-production. We identified at least two strategies that may help facilitators and providers achieve that goal. However, there is a need for an in-depth understanding of how facilitators and providers should interact to enhance implementation of co-production.

scholarly journals HEALTHCARE PROVIDERS’ EXPERIENCES IN CARING FOR OLDER ADULTS WITH MULTIPLE CHRONIC CONDITIONS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S317-S318
Author(s):  
Jenny Ploeg ◽  
Marie-Lee Yous ◽  
Kimberly Fraser ◽  
Sinéad Dufour ◽  
Sharon Kaasalainen ◽  
...  
Keyword(s):  
Older Adults ◽  
Primary Care ◽  
Home Care ◽  
Family Caregivers ◽  
Chronic Conditions ◽  
Care Delivery ◽  
Healthcare Providers ◽  
Multiple Chronic Conditions ◽  
Team Approach ◽  
Personal Support

Abstract The management of multiple chronic conditions (MCC) in older adults living in the community is complex. Little is known about the experiences of interdisciplinary primary care and home providers who care for this vulnerable group. The aim of this study was to explore the experiences of healthcare providers in managing the care of community-living older adults with MCC and to highlight their recommendations for improving care delivery for this group. A qualitative interpretive description design was used. A total of 42 healthcare providers from two provinces in Canada participated in semi-structured interviews. Participants represented diverse disciplines (e.g., physicians, nurses, social workers, personal support workers) and settings (e.g., primary care and home care). Thematic analysis was used to analyze interview data. The experiences of healthcare providers managing care for older adults with MCC were organized into six major themes: (1) managing complexity associated with MCC, (2) implementing person-centred care, (3), involving and supporting family caregivers, (4) using a team approach for holistic care delivery, (5) encountering rewards and challenges in caring for older adults with MCC, and (6) recommending ways to address the challenges of the healthcare system. Healthcare providers highlighted the need for a more comprehensive integrated system of care to improve care management for older adults with MCC and their family caregivers. Specifically, they suggested increased care coordination, more comprehensive primary care visits with an interprofessional team, and increased home care support.

The perceived burden among Chinese family caregivers of people with schizophrenia

2007 ◽  
Vol 16 (6) ◽  
pp. 1151-1161 ◽  
Author(s):  
Wai-Tong Chien ◽  
Sally WC Chan ◽  
Jean Morrissey
Keyword(s):  
Family Caregivers ◽  
Chinese Family ◽  
Perceived Burden

The Longitudinal Israeli Study of Twins (LIST)—An Integrative View of Social Development

2012 ◽  
Vol 16 (1) ◽  
pp. 197-201 ◽  
Author(s):  
Reut Avinun ◽  
Ariel Knafo
Keyword(s):  
Social Behavior ◽  
Parenting Styles ◽  
Molecular Genetic ◽  
Developmental Study ◽  
Questionnaire Data ◽  
Parental Questionnaire ◽  
Integrative View ◽  
Self Reports ◽  
Pro Social Behavior ◽  
Advance Knowledge

The Longitudinal Israeli Study of Twins (LIST) is a social developmental study, which implements social-developmental, molecular genetic, epigenetic, and behavioral genetic methods to advance knowledge on the development of individual differences in social behavior. Twins are followed from the age of three and both observational and parental-questionnaire data are collected on their empathy, temperament, and pro-social behavior. The parenting styles of parents are also evaluated using self-reports and observations and DNA samples are collected from parents and twins. In the current paper, we provide a review of our recent work and discuss the future aims of the LIST.

Symptom Experiences: Perceptual Accuracy Between Advanced-Stage Cancer Patients and Family Caregivers in the Home Care Setting

2002 ◽  
Vol 20 (16) ◽  
pp. 3495-3507 ◽  
Author(s):  
Michelle M. Lobchuk ◽  
Lesley F. Degner
Keyword(s):  
Home Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Care Setting ◽  
Physical Symptoms ◽  
Absolute Difference ◽  
Advanced Stage ◽  
Convenience Sample ◽  
Symptom Experiences ◽  
Advanced Stage Cancer

PURPOSE: This study used a comparative descriptive design to compare family caregivers’ and advanced-stage cancer patients’ perceptions of patients’ multidimensional symptom experiences on presence, frequency, severity, and distress. PATIENTS AND METHODS: A convenience sample of 98 dyads, composed of advanced-stage heterogeneous cancer patients and their caregivers, completed the Memorial Symptom Assessment Scale in the home care setting on a one-time basis. This scale is a 32-item Likert-type scale for assessing the presence, frequency, severity, and distress arising from symptoms in cancer patients. RESULTS: There was confirmation of trends previously described in related studies where, for example, caregivers tend to overreport on symptom experiences. However, the degree of absolute difference between patient and caregiver responses was normally around 1 unit (on a theoretical range of 0 to 4 units). Levels of patient-caregiver agreement were better on more concrete questions related to symptom frequency, severity, and distress than on broad questions related to the presence of a symptom. Patients and caregivers achieved better levels of agreement on physical versus psychological symptoms. CONCLUSION: The findings indicated that family caregivers can provide reasonable proxy or complementary reports on patient symptom experiences of frequency, severity, and distress. However, family caregivers have greater difficulty in achieving high levels of accuracy on psychological versus physical symptoms.

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