Supplemental Material for Childhood Cancer Physical Symptom Burden and Parent Distress: The Role of Parent Rumination

2021 ◽  
Keyword(s):  
Childhood Cancer ◽  
Symptom Burden ◽  
Physical Symptom ◽  
Parent Distress

Childhood cancer physical symptom burden and parent distress: The role of parent rumination.

2021 ◽  
Author(s):  
Rachel S. Fisher ◽  
Megan N. Perez ◽  
Nathan L. Basile ◽  
Morgan Pepper ◽  
Kaitlyn L. Gamwell ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Symptom Burden ◽  
Physical Symptom ◽  
Parent Distress

Pain relief with elastic therapeutic taping

2021 ◽  
pp. bmjspcare-2021-003381
Author(s):  
Ekta Gupta ◽  
Courtland Lee ◽  
Amy Ng ◽  
Eduardo Bruera
Keyword(s):  
Rating Scale ◽  
Symptom Burden ◽  
Substantial Improvement ◽  
Functional Mobility ◽  
Background Information ◽  
Symptom Improvement ◽  
Plantar Surface ◽  
Pain Rating Scale ◽  
Pain Improvement

Background and purposeChemotherapy-induced peripheral neuropathy (CIPN) occurs in 19%–85% of patients undergoing cancer treatment. Due to the high symptom burden, specifically pain in the soles of feet, we explore the role of elastic therapeutic (ET) taping for treatment of CIPN.Case descriptionWe report two cases of patients with CIPN-induced foot pain while admitted to the hospital. Their background information, including chemotherapy history, treatments trialed and effects of ET on their pain, is discussed. Each patient underwent ET using the epidermis, dermis, fascia technique for CIPN. An occupational therapist applied ET to the plantar surface of both feet to the ankle with 0% stretch on the tape for 24–96 hours. We also showed the effect of symptom improvement in their individualized rehabilitation session following application of ET.OutcomesPain score, verbally documented by 10 point numerical pain rating scale, decreased by >50% in both patients within 24 hours of application. This reflects a substantial improvement in pain with the intervention of ET. This allowed for improved tolerance in engaging in functional mobility, with improvement in distances ambulated.DiscussionET taping of the distal leg and foot showed pain improvement for these two patients. Our findings suggest that a clinical trial aimed at better characterising the role of ET in these patients is justified.

scholarly journals The role of rehabilitation measures in reintegration of children with brain tumours or leukaemia and their families after completion of cancer treatment: a study protocol

BMJ Open ◽  
2017 ◽  
Vol 7 (8) ◽  
pp. e014505 ◽  
Author(s):  
Mona Leandra Peikert ◽  
Laura Inhestern ◽  
Corinna Bergelt
Keyword(s):  
Observational Study ◽  
Cancer Treatment ◽  
Childhood Cancer ◽  
Quantitative Study ◽  
Prospective Observational Study ◽  
Daily Life ◽  
Oncological Rehabilitation ◽  
Rehabilitation Measures

IntroductionFor ill children as well as for their parents and siblings, childhood cancer poses a major challenge. Little is known about the reintegration into daily life of childhood cancer survivors and their families. The aim of this prospective observational study is to further the understanding of the role of rehabilitation measures in the reintegration process of childhood leukaemia or brain tumour survivors and their family members after the end of cancer treatment.Methods and analysisThis prospective observational study consists of three study arms: a quantitative study in cooperation with three German paediatric oncological study registries (study arm 1), a quantitative study in cooperation with a rehabilitation clinic that offers a family-oriented paediatric oncological rehabilitation programme (study arm 2) and a qualitative study at 12-month follow-up including families from the study arms 1 and 2 (study arm 3). In study arm 1, children, parents and siblings are surveyed after treatment (baseline), 4–6 months after baseline measurement and at 12-month follow-up. In study arm 2, data are collected at the beginning and at the end of the rehabilitation measure and at 12-month follow-up. Families are assessed with standardised questionnaires on quality of life, emotional and behavioural symptoms, depression, anxiety, fear of progression, coping and family functioning. Furthermore, self-developed items on rehabilitation aims and reintegration into daily life are used. Where applicable, users and non-users of rehabilitation measures will be compared regarding the outcome parameters. Longitudinal data will be analysed by means of multivariate analysis strategies. Reference values will be used for comparisons if applicable. Qualitative data will be analysed using thematic analysis.Ethics and disseminationThis study has been approved by the medical ethics committee of the Medical Chamber of Hamburg. Data will be published in peer-reviewed journals and presented at conferences.

scholarly journals Avascular necrosis of bone in childhood cancer patients: a possible role of genetic susceptibility

2015 ◽  
Vol 116 (05) ◽  
pp. 289-295
Author(s):  
L. Geczova ◽  
A. Soltysova ◽  
J. Gecz ◽  
S. Sufliarska ◽  
J. Horakova ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Genetic Susceptibility ◽  
Cancer Patients ◽  
Avascular Necrosis ◽  
Avascular Necrosis Of Bone

Role of radiotherapy and chemotherapy in the risk of leukemia after childhood cancer: An international pooled analysis

2020 ◽  
Author(s):  
Rodrigue S. Allodji ◽  
Margaret A. Tucker ◽  
Michael M. Hawkins ◽  
Marie‐Cécile Le Deley ◽  
Cristina Veres ◽  
...  
Keyword(s):  
Childhood Cancer ◽  
Pooled Analysis

The Role of PT, OT, and Other Therapies in Palliative Care for Seriously Ill Patients

2019 ◽  
pp. 682-689
Author(s):  
Dennis Lin ◽  
Megan Borjan ◽  
Seanell D. San Andres ◽  
Christina Kelly
Keyword(s):  
Palliative Care ◽  
Terminal Illness ◽  
Symptom Burden ◽  
Speech Language Pathology ◽  
Functional Impairments ◽  
Recreation Therapy ◽  
Rehabilitation Team ◽  
Language Pathology ◽  
Seriously Ill Patients

This chapter describes the roles of physical therapy, occupational therapy, speech language pathology, and recreation therapy in providing rehabilitation for patients receiving palliative care. Palliative rehabilitation should be included as part of a comprehensive interdisciplinary effort to support patients who experience functional impairments or symptoms that impact daily life and that result from terminal illness. Palliative rehabilitation focuses on creating collaborative goals that address disability and easing symptom burden to maximize or maintain function throughout every stage of disease. Patients receiving the appropriate rehabilitative interventions can adapt to the changes and foster an optimal quality of life. Nurses collaborate with the rehabilitation team so that patients and their caregivers can achieve a greater benefit from their palliative care.

scholarly journals Oncology and Palliative Care Integration: Cocreating Quality and Value in the Era of Health Care Reform

2017 ◽  
Vol 13 (9) ◽  
pp. 580-588 ◽  
Author(s):  
Tara L. Kaufmann ◽  
Arif H. Kamal
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Symptom Burden ◽  
Routine Care ◽  
Care Integration ◽  
Usual Clinical Practice ◽  
Oncology Care ◽  
The Right ◽  
Treatment Complexity

Recent payment reforms in health care have spurred thinking regarding how strengthened partnerships can cocreate quality and value. Oncology is an important area in which to consider further collaborations in patient care, as a result of increasing treatment complexity from an expanding armamentarium of interventions, large resource expenditures related to cancer care, and a growing disease prevalence related to an aging population. Many have highlighted the important role of palliative care in the routine care of patients with advanced cancer and high symptom burden. Yet, how integration can occur that translates research into usual clinical practice while prioritizing the right patients and settings to maximize outcomes of interest has been inadequately described. We review the evidence for integration of palliative care into routine oncology care and then map the benefits to the requirements put forward by the Centers for Medicare and Medicaid Services Oncology Care Model as a use case; we also discuss applications to other evolving payment models.

scholarly journals Family Members Dealing With Childhood Cancer: A Study on the Role of Family Functioning and Cancer Appraisal

2019 ◽  
Vol 10 ◽  
Author(s):  
Marieke Van Schoors ◽  
Annick Lena De Paepe ◽  
Koenraad Norga ◽  
Veerle Cosyns ◽  
Hanne Morren ◽  
...  
Keyword(s):  
Family Functioning ◽  
Childhood Cancer ◽  
Family Members
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