Dementia Caregiver Positive Feeling Scale 21-Item Version

2021 ◽  
Author(s):  
Taiga Fuju ◽  
Tetsuya Yamagami ◽  
Haruyasu Yamaguchi ◽  
Tsuneo Yamazuki
Keyword(s):  
Positive Feeling ◽  
Dementia Caregiver ◽  
Feeling Scale

scholarly journals Dementia Caregiver Satisfaction and Utilization of a Telehealth App: Results From the FamTechCare Trial

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 149-149
Author(s):  
Kristine Williams ◽  
Clarissa Shaw ◽  
Yelena Perkhounkova ◽  
Maria Hein ◽  
Carissa Coleman
Keyword(s):  
Mixed Methods ◽  
Support Groups ◽  
Expert Panel ◽  
Video Recording ◽  
Ease Of Use ◽  
Attention Control ◽  
Caregiver Satisfaction ◽  
Dementia Caregiver ◽  
Severity Of Dementia ◽  
Person With Dementia

Abstract Technology can enhance support for families caring for persons with dementia but must be acceptable to be adopted. In the FamTechCare trial, caregivers used an app to videorecord care encounters that were reviewed by an expert panel who provided tailored feedback. The intervention reduced caregiver depression and improved caregiver competence. This mixed methods study reports caregiver satisfaction and utilization of the intervention and evaluation of the intervention by the expert panel. A convergent parallel mixed methods design was used to evaluate the satisfaction, usability, and feasibility of the intervention. Caregiver-person with dementia dyads were randomized to the FamTechCare video support or telephone attention control support groups. Caregivers completed a satisfaction survey at the completion of the 3-month trial. The number and duration of videos submitted and calls received by caregivers were used to evaluate utilization. Relationships between participant characteristics and satisfaction and utilization were evaluated. Feasibility and future directions for the intervention were assessed through interviews with the expert panel. The majority of caregivers in both groups reported benefits from participation. More FamTechCare caregivers found the interventionist support to be helpful (p=.001) and effective (p=.020) compared to attention control caregivers. FamTechCare caregivers of persons with more severe dementia were more likely to report that video recording intruded on their privacy (p=.050). Age, gender, education, dyad relationship, rural status, and type and severity of dementia were not associated with ratings of acceptability, ease of use, or intervention utilization. The expert panel rated FamTechCare as useful and identified adaptations to enhance feasibility.

scholarly journals German Adaptation of the Subjective Vitality Scales (SVS-G)

2020 ◽  
Vol 2 (1) ◽  
pp. 57-75
Author(s):  
Alex Bertrams ◽  
Thomas H. Dyllick ◽  
Chris Englert ◽  
Ann Krispenz
Keyword(s):  
Psychometric Properties ◽  
Individual Difference ◽  
State Level ◽  
Well Being ◽  
The State ◽  
Self Control ◽  
Subjective Vitality ◽  
Positive Feeling ◽  
The Individual ◽  
Correlated Factors

AbstractSubjective vitality is a positive feeling of aliveness and energy, and it is a crucial aspect of well-being. The Subjective Vitality Scales (SVS) have been developed to measure subjective vitality both at the individual difference level and the state level in English-speaking samples. We translated the SVS into German (the SVS-G) and examined their psychometric properties. In Study 1 (N=260), we found that two correlated factors (Factor 1: individual difference level; Factor 2: state level) with five items each constituted a useful structure for the SVS-G. Moreover, the scores on the individual difference scale were more stable than the scores on the state scale. We also found partial evidence for the measurement invariance over a period of three weeks. Conforming to our expectations, Study 2 (N=296) revealed that the SVS-G scores were related to positive and negative affect but could still be distinguished from the affect variables. In line with previous findings, Study 3 (N=203) showed that SVS-G scores are related to well-being variables (happiness and joviality) and the perceived capacity to actively perform effortful tasks (attentiveness and capacity for self-control). Across all the studies, the SVS-G showed satisfying inner consistency, and the two consideration levels (individual differences vs. state) could be differentiated. The initial evidence suggests that overall, the SVS-G have good psychometric properties.

scholarly journals The Generational Impact on Meaning Making and Well-being of Adult Children Caregivers in Dementia Caregiving

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 908-908
Author(s):  
Vivian Lou ◽  
Daniel W L Lai ◽  
Daniel Fu-Keung Wong ◽  
Doris Yu ◽  
Shuangzhou Chen ◽  
...  
Keyword(s):  
Generation X ◽  
Meaning Making ◽  
Well Being ◽  
Ageing Society ◽  
Making Sense ◽  
Dementia Caregiver ◽  
Care Recipients ◽  
Care And Support ◽  
Significant Difference ◽  
Two Generations

Abstract Children caregivers contributed significantly to care and support dementia parents globally. In the caregiving journey, making sense of providing care plays significant role in their caregiving journey. In an ageing society such as Hong Kong, different generations of children caregivers take up dementia caregiver roles. We hypothesized that from studying baby boomers (BB, born in 1946-1964) and generation X (GX, born in 1965-1980), generations have impacts on their meaning making and well-being outcomes. 601 Caregivers completed a paper or online battery of questionnaires on burden (ZBI-4), mental well-being (PHQ-9), caregiving factors (ADL, IADL, caregiving hours, Positive Aspect of Caregiving; PAC) and the meaning making factors (Finding Meaning Through Caregiving; FMTC). Results showed that significant difference between caregivers from two generations. GX have significantly lower meaning made, measured by PAC affirming self and enriching life, as well as FMTC provisional meaning. While they spent less caregiving hours for the more independent care recipients, they suffered from higher burden, higher FMTC loss/powerless and worse psychological well-being (PHQ). The findings demonstrated generation X caregiver suffered from lower level of the meaning made and worse psychological wellbeing outcomes than BB caregivers. Future caregiver studies should take generational effect into account and services shall be provided in a generation-responsive approach.

Factors of Dementia Caregiver Burden Differentially Contribute to Desire to Institutionalize

2021 ◽  
pp. 089198872110361
Author(s):  
John T. Martin ◽  
Kimberly R. Chapman ◽  
Christopher Was ◽  
Mary Beth Spitznagel
Keyword(s):  
Factor Analysis ◽  
Linear Regression ◽  
Factor Structure ◽  
Caregiver Burden ◽  
Living Arrangements ◽  
Regression Analyses ◽  
Loved One ◽  
Dementia Caregiver ◽  
Future Work ◽  
Made In

The experience of dementia caregiver burden is multidimensional. Little is known about how different aspects of burden contribute to the consideration of moving a loved one to a structured living facility. In the present study, caregiver burden (Zarit Burden Interview; ZBI) and consideration of structured living arrangements (Desire to Institutionalize Scale; DIS) were self-reported by 339 caregivers. Exploratory factor analysis was used to determine the ZBI factor structure; these factors were then examined via hierarchical linear regression for prediction of DIS. Factor analysis indicated a 4-factor ZBI solution: Impact on Life, Guilt, Embarrassment/Frustration, and Escape/Uncertainty. Regression analyses indicated that only Escape/Uncertainty ( p < .001) was associated with DIS. Of the 4 identified factors of caregiver burden, desire to escape the caregiving role was most related to consideration of structured living arrangements. Future work should explore longitudinal contribution of this factor to determine its role in actual changes made in living arrangements.

scholarly journals Dementia Caregiving, Care Recipient Health, and Financial Burdens

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 56-56
Author(s):  
Rashmita Basu
Keyword(s):  
Physical Health ◽  
Healthcare Costs ◽  
Financial Burden ◽  
Care Recipient ◽  
Positive Feeling ◽  
Nationally Representative ◽  
Financial Burdens ◽  
Health Deterioration ◽  
Retirement Study

Abstract Objective: While about 75% of people with ADRD receive care informally by their family members, relatively little is known about the effect of the quality of caregiving on maintaining carerecipient’s health and financial burden of out-of-pocket (OOP) healthcare costs. The goal of this study is to examine the quality of caregiving on the out-of-pocket healthcare costs among ADRD patients and if caregiving prevents deterioration of physical health of carerecipients. Data and Sample: We used a nationally representative sample of people diagnosed with ADRD from the Aging Demographic and Memory Study, subsample of the Health and Retirement Study. The study sample includes carerecipients whose caregivers participated in the survey (N=261). Outcome measures: Primary outcomes were deterioration of carerecipients’ health (1=yes, 0=no) and annual OOP healthcare costs. The quality of caregiving is captured by if caregiving made them feel good, feel useful and fee closer to carerecipients. More than 70% caregivers reported that caregiving make them feel good or useful. About 60% of carerecipients’ physical health was maintained, and average out-of-pocket costs was $3,701/year ($0-$31,051). Multivariable logit for binary health outcome and OLS regression for OOP cost were estimated. Results: The likelihood of health deterioration was significantly lower for carerecipients whose caregivers reported that caregiving made them feel useful (AOR=5.1, 95% CI: 1.9- 14.5) and lower OOP remained significantly associated with presence of usefulness of caregiving (cost decrease, $3000 [95% CI: $6309-$918). Positive feeling of caregiving is independently associated with lower OOP cost and deterioration of physical health among ADRD patients.

P1-437: Developing a Community Outreach In-Home Dementia Caregiver Program in Korea

2016 ◽  
Vol 12 ◽  
pp. P602-P602
Author(s):  
Myonghwa Park ◽  
Mi-Hyun Lee ◽  
Song Ja Lee ◽  
Seon Hwa Kim ◽  
Jinha Kim ◽  
...  
Keyword(s):  
Community Outreach ◽  
Dementia Caregiver

scholarly journals The Going to Stay at Home program: combining dementia caregiver training and residential respite care

2018 ◽  
Vol 30 (11) ◽  
pp. 1697-1706 ◽  
Author(s):  
Meredith Gresham ◽  
Megan Heffernan ◽  
Henry Brodaty
Keyword(s):  
Unmet Needs ◽  
Respite Care ◽  
Behavioral Symptoms ◽  
Caregiver Training ◽  
Dementia Caregivers ◽  
Home Program ◽  
Caregiver Depression ◽  
Dementia Caregiver ◽  
And Function ◽  
At Home

ABSTRACTBackground:Caring for persons with dementia is stressful for family caregivers. Caregiver training programs and respite care can reduce this stress and help maintain persons with dementia living longer in the community. We evaluated a program that combines caregiver training with a residential respite stay.Methods:In total, 90 dyads of persons with dementia and their caregivers, in groups of 3–6 dyads, volunteered to participate in a five-day residential training program and were followed-up 6 and 12 months later. The primary outcome was caregiver depression; secondary outcomes were measures of caregiver burden, unmet needs, person with dementia behavioral symptoms, and the quality of life and function.Results:Caregiver depression and burden were unchanged, despite decreasing function in persons with dementia. Caregivers’ unmet needs and behavioral symptoms in persons with dementia decreased significantly. Compared to a group of persons with dementia admitted for routine residential respite care, there was a marked reduction in permanent placement over 12 months.Conclusions:The Going to Stay at Home Program is a feasible and practicable model with benefits for caregivers and persons with dementia. It may lead to delay in institutionalization and may be applicable to other chronic conditions.

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