Palliative und spirituelle Aspekte der psychosozialen Onkologie

2011 ◽  
Vol 30 (03) ◽  
pp. 158-163 ◽  
Author(s):  
E. Frick ◽  
P. Heußner

ZusammenfassungSpiritual Care und palliative Care machen sowohl auf Seiten des Patienten als auch des therapeutischen Teams eine mehrdimensionale Blickweise erforderlich, die die Grenzen des rein Somatischen überschreitet. Ihnen gemeinsam ist die Sorge für den Betroffenen – eine Perspektive, die der Medizin immanent sein könnte, aber nicht immer als selbstverständliche, nicht zu delegierende Aufgabe angesehen wird. Dabei gilt der Grundsatz der Subsidiarität: Priorität haben immer die Bewältigungsressourcen des Patienten und seines Umfeldes, die von den professionell und ehrenamtlich Helfenden unterstützt werden. In der Herausforderung dieses Arbeitsumfeldes geraten die Professionellen unweigerlich in die Konfrontation mit der eigenen Endlichkeit des Lebens, den damit verbundenen existenziellen Ängsten und den eigenen Widerständen. Diese Auseinandersetzung mit der Unheimlichkeit des Lebensendes, ihr respektvoll zu begegnen und nicht angstvoll zu verdrängen, kann im positiven Sinne als Burnout-Prophylaxe wirksam werden.

2021 ◽  
Vol 28 (4) ◽  
pp. 2699-2707
Author(s):  
Maggie C. Robinson ◽  
Maryam Qureshi ◽  
Aynharan Sinnarajah ◽  
Srini Chary ◽  
Janet M. de Groot ◽  
...  

Palliative care has an interdisciplinary tradition and Canada is a leader in its research and practice. Yet even in Canada, a full interdisciplinary complement is often lacking, with psychosocial presence ranging from 0–67.4% depending on the discipline and region. We sought to examine the most notable gaps in care from the perspective of Canadian palliative professionals. Canadian directors of palliative care programs were surveyed with respect to interdisciplinary integration. Participants responded in writing or by phone interview. We operationalized reports of interdisciplinary professions as either “present” or “under/not-represented”. The Vaismoradi, Turunen, and Bondas’ procedure was used for content analysis. Our 14 participants consisted of physicians (85.7%), nurses (14.3%), and a social worker (7.1%) from Ontario (35.7%), British Columbia (14.3%), Alberta (14.3%), Quebec (14.3%), Nova Scotia (14.3%), and New Brunswick (7.1%). Psychology and social work were equally and most frequently reported as “under/not represented” (5/14, each). All participants reported the presence of medical professionals (physicians and nurses) and these groups were not reported as under/not represented. Spiritual care and others (e.g., rehabilitation and volunteers) were infrequently reported as “under/not represented”. Qualitative themes included Commonly Represented Disciplines, Quality of Multidisciplinary Collaboration, Commonly Under-Represented Disciplines, and Special Concern: Psychosocial Care. Similar to previous reports, we found that (1) psychology was under-represented yet highly valued and (2) despite social work’s relative high presence in care, our participants reported a higher need for more. These finding highlight those psychosocial gaps in care are most frequently noted by palliative care professionals, especially psychology and social work. We speculate on barriers and enablers to addressing this need.


2015 ◽  
Vol 14 (1) ◽  
Author(s):  
Kevin Massey ◽  
Marilyn JD Barnes ◽  
Dana Villines ◽  
Julie D Goldstein ◽  
Anna Lee Hisey Pierson ◽  
...  

Author(s):  
Daniel Bche ◽  
Urs Martin Ltolf ◽  
Simon Peng-Keller

2022 ◽  
Vol 75 (1) ◽  
Author(s):  
Carla Braz Evangelista ◽  
Maria Emília Limeira Lopes ◽  
Solange Fátima Geraldo da Costa ◽  
Patrícia Serpa de Souza Batista ◽  
Marcella Costa Souto Duarte ◽  
...  

ABSTRACT Objectives: to analyze nurses’ role in assisting patients in palliative care, with emphasis on the spiritual dimension, in the light of Theory of Human Caring. Methods: this is an exploratory, qualitative study, carried out in a hospital in João Pessoa, Paraíba, between August and December 2019, with 10 nurses. For data collection, semi-structured interviews were used. For analysis, we opted for content analysis. Results: the spiritual dimension of care is contemplated by several religious and spiritual practices. These are respected and encouraged by nurses, although there is difficulty in providing care for the spiritual dimension. Final Considerations: nurses have attitudes consistent with Jean Watson’s Theory and apply the Caritas Process elements during assistance to patients’ spiritual dimension in palliative care.


2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Erhard Weiher

Zusammenfassung Ein Blick auf die deutschsprachige Diskussion um Spiritual Care zeigt: Die Konzepte sind noch rar, die Grundlagen und Methoden spiritueller Kommunikation im Berufsalltag darstellen und entfalten. Dabei betonen so gut wie alle Stellungnahmen der Gesundheitsfachberufe die Wichtigkeit der Spiritualität in ihrer Arbeit. Der folgende Beitrag lenkt den Blick von der Metaebene der Diskussion um Spiritualität auf die Mikroebene der konkreten Situationen, die die Angehörigen der versorgenden Berufe in Krankenhaus, Altenheim und Palliative Care antreffen. In diesem Beitrag wird ein Begriff von Spiritualität vorgestellt, der nicht nur der Hochform dieser Dimension, sondern auch der im Berufsalltag viel öfter indirekt begegnenden Form Rechnung trägt. Zudem findet man in der Literatur die konkrete Ausgestaltung von Spiritual Care oft nur umrisshaft und rudimentär dargestellt. Es braucht daher sowohl Verstehens- wie Anwendungskonzepte, die für die alltägliche Begegnungspraxis der Gesundheitsfachberufe hilfreich sind. Insofern versteht sich der hier vorgelegte Begriff von Spiritualität und der damit verbundene Ansatz der „symbolischen Kommunikation“ als Beitrag zum aktuellen Spiritual-Care-Diskurs.


2021 ◽  
pp. 241-247
Author(s):  
E. Alessandra Strada

Clinical psychologists with specialist knowledge and skills in palliative care can be described as palliative psychologists. Whether as core members of a palliative care team or as consultants, palliative psychologists can become involved soon after a diagnosis of serious illness and continue to provide care during treatment, transitions of care, during the dying process, and in bereavement. The distress patients and family caregivers may experience is on a continuum and may involve both psychological and spiritual factors. When the patient and family coping strategies become depleted or are inadequate to face the challenges imposed by illness, suffering can ensue. The palliative psychologist may offer assessment and management of anxiety, depression, and other types of psychological distress. Grief reactions should always receive special and ongoing attention to determine whether the distress is manageable or whether psychological or psychiatric intervention is warranted. Because of the ongoing interplay of psychological and spiritual concerns, palliative psychologists can effectively use spiritual screening and the spiritual history to understand spiritual and existential needs, and help integrate spiritual care into the psychotherapy session. This offers the opportunity to collaborate with spiritual care providers in the psychospiritual care of the patient and the family. Maintaining professional self-care is also a mandate for palliative psychologists and includes the timely recognition of risk factors for professional distress, protective factors, and meaningful interventions.


Author(s):  
Mary Ann Cohen ◽  
Joseph Z. Lux

Palliative care of persons with HIV and AIDS has changed over the course of the first three decades of the pandemic. The most radical shifts occurred in the second decade with the introduction of combination antiretroviral therapy and other advances in HIV care. In the United States and throughout the world, progress in prevention of HIV transmission has not kept pace with progress in treatment, thus the population of persons living with AIDS continues to grow. Furthermore, economic, psychiatric, social, and political barriers leave many persons without access to adequate HIV care. As a result, persons who lack access to care may need palliative care for late-stage AIDS while persons with access to AIDS treatments are more likely to need palliative care for multimorbid medical illnesses such as cardiovascular disease, cancer, pulmonary disease, and renal disease. Palliative care of persons with HIV and AIDS cannot be confined to the end of life. We present palliative care on a continuum as part of an effort to alleviate suffering and attend to pain, emotional distress, and existential anxiety during the course of the illness. We will provide guidelines for psychiatric and palliative care and pain management to help persons with AIDS cope better with their illnesses and live their lives to the fullest extent, and minimize pain and suffering for them and their loved ones. This chapter reviews basic concepts and definitions of palliative and spiritual care, as well as the distinct challenges facing clinicians involved in HIV palliative care. Finally, issues such as bereavement, cultural sensitivity, communication, and psychiatric contributions to common physical symptom control are reviewed. The terms palliative care and palliative medicine are often used interchangeably. Modern palliative care has evolved from the hospice movement into a more expansive network of clinical care delivery systems with components of home care and hospital-based services (Butler et al., 1996; Stjernsward and Papallona, 1998). Palliative care must meet the needs of the “whole person,” including the physical, psychological, social, and spiritual aspects of suffering (World Health Organization, 1990).


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