Support group for families with children in a pediatric intensive care unit

ABSTRACT Objective: To describe the process of creating and implementing a support group for families with children in a pediatric intensive care unit. Methods: A professional experience report described using a management and planning tool. Results: This is a pioneering initiative in the hospital. The application of the tool enabled the delineation of the scope, justification, location, frequency, responsible persons, approach, and budget. After its implementation, the group enables significant interaction between health professionals-families and families-families, favoring the formation of therapeutic bonds and stimulating social and emotional support networks. Conclusion: The tool effectively planned the group and highlighted its effects on family coping and the relationships between professionals and families.

Parent Mental Health and Family Coping over Two Years after the Birth of a Child with Acute Neonatal Seizures

Little is known about parent and family well-being after acute neonatal seizures. In thus study, we aimed to characterize parent mental health and family coping over the first two years after their child’s neonatal seizures. Parents of 303 children with acute neonatal seizures from nine pediatric hospitals completed surveys at discharge and 12-, 18- and 24-months corrected age. Outcomes included parental anxiety, depression, quality of life, impact on the family, post-traumatic stress and post-traumatic growth. We used linear mixed effect regression models and multivariate analysis to examine relationships among predictors and outcomes. At the two-year timepoint, parents reported clinically significant anxiety (31.5%), depression (11.7%) and post-traumatic stress (23.7%). Parents reported moderately high quality of life and positive personal change over time despite ongoing challenges to family coping. Families of children with longer neonatal hospitalization, functional impairment, post-neonatal epilepsy, receiving developmental support services and families of color reported poorer parental mental health and family coping. Parents of color were more likely to report symptoms of post-traumatic stress and positive personal change. Clinicians caring for children with neonatal seizures should be aware of lasting risks to parent mental health and family coping. Universal screening would enable timely referral for support services to mitigate further risk to family well-being and child development.

Cultural competence in multi-family psychoeducation groups: The experiences of Russian-speaking immigrant mothers of adults with severe mental illness

The successful integration of cultural competence with evidence-based practices in mental health services is still limited for particular cultural populations. The current study explored culturally adapted family psychoeducation intervention for immigrants from the former Soviet Union (FSU) in Israel who care for a family member with severe mental illness (SMI). Semi-structured in-depth interviews were conducted with 18 immigrant mothers about their experience of taking part in Russian-speaking multi-family psychoeducation groups (MFPGs). Qualitative content analysis revealed five salient processes and changes that participants attributed to their engagement in the intervention: 1) from a language barrier to utilization of and satisfaction with services; 2) from a lack of information to acquiring new mental health knowledge; 3) from harboring a family secret to exposure and sharing; 4) from social isolation to cultural belonging and support; 5) from families blurring boundaries to physical and emotional separation. The results showed that these changes—linguistic, cognitive, emotional, socio-cultural and relational—improved family coping and recovery. Implications for cultural adaptation of family psychoeducation for Russian-speaking immigrants are discussed.

Families Playing Animal Crossing Together: Coping With Video Games During the COVID-19 Pandemic

The COVID-19 pandemic was stressful for everyone, particularly for families who had to supervise and support children, facilitate remote schooling, and manage work and home life. We consider how families coped with pandemic-related stress using the video game Animal Crossing: New Horizons. Combining a family coping framework with theorizing about media as a coping tool, this interview study of 27 families (33 parents and 37 children) found that parents and children individual coped with pandemic-related stress with media. Parents engaged in protective buffering of their children with media, taking on individual responsibility to cope with a collective problem. Families engaged in communal coping, whereby media helped the family cope with a collective problem, taking on shared ownership and responsibility. We provide evidence for video games as coping tools, but with the novel consideration of family coping with media.

FAMILY COPING STRATEGIES IN THE MIDST OF CORONA CRISIS

The family as the unit in the social system has an important role and becomes the first social environment to introduce love, affection, social culture, and religion. When the world is suffering from the COVID-19 pandemic, the families are also affected by some impacts included: family health problems; family economic; family harmonization; family socio-psychology; and socio-culture. The family health is composed of fundamental dimensions: family social climate; family integrity; family functioning; family resistance and family coping. The family coping concept is the capacity of the family to confront, mobilize, and act on stressful events. This article illustrates the aspects of family health and coping strategies in the midst of the COVID-19 in Indonesia. It aims to inform and be the reference for further study related to the family adaptation in the corona crisis. We reviewed many works of literature in the form of articles from various journals. During the COVID-19 pandemic, families must be able to survive. COVID-19 pandemic does not only affect physical but also mental health. The way to deal with the events depend on family characteristics, the severity of the events and family support. There are two types of coping strategies that families in Indonesia usually adopt including reducing expense and increasing income.

Validating the family coping questionnaire for eating disorders for caregivers of Japanese patients with eating disorders: association between coping strategies and psychological characteristics

Background Eating disorders (ED) can adversely affect the psychological health of patients’ caregivers. The present study aimed to validate a Japanese version of the Family Coping Questionnaire for Eating Disorders (FCQ-ED-J) and investigate the association between the coping strategies and psychological states of the caregivers of ED patients. Methods The caregivers completed the FCQ-ED-J and the Profile of Mood States. The FCQ-ED measures the coping strategies of caregivers of ED patients to the ED symptom-related behaviors. As confirmatory factor analysis did not yield an adequate model fit, the factor structure of the FCQ-ED-J was analyzed using exploratory factor analysis. Subsequently, the reliability and validity of the FCQ-ED-J were examined using Cronbach’s alpha and Pearson’s correlation coefficients in relation to the Profile of Mood States. Results Data from 150 caregivers, including 91 mothers and 34 fathers, was analyzed (mean age 51.1 years, SD = 12.0). The FCQ-ED-J, with 13 items grouped across four subscales [“response to binge-eating” (factor 1), “response to frequent weighing” (factor 2), “response to too much physical exercise” (factor 3), and “response to abusing laxatives and/or diuretics” (factor 4)] had Cronbach’s alpha values representing acceptable to good internal consistency (0.71–0.85). Each subscale of the FCQ-ED-J was significantly correlated with the Profile of Mood States subscales. Conclusions The FCQ-ED-J had sufficient reliability and validity. The Japanese caregivers’ responses to the patient’s ED symptom-related behavior were associated with their psychological states. Thus, the FCQ-ED-J may offer insight into more effective and reasonable care by caregivers for ED patients. Plain English summary The Family Coping Questionnaire has been used by researchers to assess the coping strategies of the relatives of patients. The present study aimed to validate a Japanese version of the Family Coping Questionnaire for Eating Disorders (FCQ-ED-J) and investigate the association between the coping strategies and psychological states of the caregivers of ED patients. Data from 150 caregivers, including 91 mothers and 34 fathers, were analyzed. The FCQ-ED-J comprised 13 items grouped into four subscales, with acceptable to good internal consistency (Cronbach’s alpha values between 0.71 and 0.85). All subscales of the FCQ-ED-J were found to be statistically significantly correlated with the profile of mood states (POMS) subscales. The Japanese caregivers’ responses to the patient’s ED symptom-related behavior were associated with their psychological states. Thus, the FCQ-ED-J can be utilized to help caregivers provide more effective and reasonable psychological care and support to ED patients.

FAMILY NURSING CARE IN THE CASE OF DIABETES MELLITUS WITH NURSING PROBLEMS READINESS TO INCREASE FAMILY COUPLING IN THE VILLAGE BANJAREJO, SUKODADI DISTRICT, LAMONGAN REGENCY

Introduction : Family is an important aspect in nursing. Family members need care, supervision, and attention if they suffer from health problems such as Diabetes Mellitus. Families must have effective and competent coping to overcome health problems of family members. Global DM prevalence in 2019 an estimated 9,3% (463 million people). DM patients in Lamongan regency are 1,4% with a total of 4,138 cases per year and are ranked 4th in Java Province. According to an integrated disease surveillance report based on Puskesmas in Lamongan. The percentade of DM in the last 2 years was 12 cases, based on data from Banjarejo village, Sukodadi. District, Lamongan Regency in 2020 as many as 6 patients from 450 patients. Method : Method this research uses a descriptive method in the form of a case study to axplore the problem of family nursing care in the case of Diabetes Mellitus with nursing problems of increasing family coping readiness in Banjarejo village, Sukodadi district, Lamongan regency. The approach used is a nursing care approach that includes assessment, nursing diagnosis, planning,implementation, and evaluation. Result : Patients usually then do things that are not allowed in the treatment process, such as not maintaining a pattern of nutrition, activity, and wound care. Discussion: The role of the family is needed because it has a duty in health so that they understand the health problems of family members with each other so that they can have a positive impact.

Postpartum Mother Psychosocial Conditions With Covid-19 Isolation

Background: Postpartum mothers with COVID-19 isolation can experience feelings of anxiety about being infected and afraid of death, loneliness, loss and sadness so that it can have an impact on the mother's psychosocial condition which can increase to stress and trauma, confusion and anger due to having to undergo the delivery process and self-isolate without family support, Not allowed to be visited or meet anyone. If this condition is allowed to continue without proper treatment, it can result in a psychotic condition Objectives: To identify maternal psychosocial conditions in postpartum mothers in the COVID 19 isolation room Methods: 100 postpartum mothers who were selected according to inclusion and exclusion criteria. The instrument used was a questionnaire on the characteristics of the respondents; the social support questionnaire which is a modification in the Indonesian language of the postpartum support system questionnaire and the family coping questionnaire; and a questionnaire to measure maternal psychosocial conditions using the Edinburgh Postpartum Depression Scale (EPDS). Results: A total of 43% of mothers experienced psychosocial problems, namely major depression. Factors associated with postpartum maternal psychosocial conditions with COVID19 isolation were work, economic status, parity status and social support (p <0.05). The factor that most influenced maternal psychosocial conditions in postpartum mothers with COVID 19 isolation was social support (OR 4.024; 95% CI; 1.601-10.112) Conclusion: Social support is a dominant factor affecting postpartum maternal psychosocial conditions.

Coping with Multiple Chronic Conditions in the Family Context: A Meta-Synthesis

This study was to collect, synthesize, and interpret the current qualitative evidence from studies that investigated family coping among people with multiple chronic conditions (MCCs). A meta-synthesis approach was used to report this study. A systematic search was performed in five electronic databases, including CINAHL, EMBASE, PsycINFO, Web of Science, and PubMed from January 2000 to December 2020. The PRISMA flow chart and Joanna Briggs Institute Qualitative Assessment and Review Instrument checklist are integrated into the meta-synthesis. A total of ten eligible studies including data from 381 participants were identified. Three meta-themes were identified in the synthesis: (1) family role maintenance in MCCs management, (2) coping as a family, and (3) be frustrated with family interactions. This meta-synthesis indicated the importance of maintaining social roles and family support within family interactions for coping with MCCs. It also demonstrated the frustrations in the family coping process experienced by people with MCCs. Health care professionals should understand the interactions between people with MCCs and their family members that may impact people’s coping. Such an understanding may contribute to the development of supportive programs such as family-based interventions for people with MCCs.