Unmet needs and health care utilization in young adults with cerebral palsy

2008 ◽  
Vol 30 (17) ◽  
pp. 1254-1262 ◽  
Author(s):  
Channah Nieuwenhuijsen ◽  
Yvette van der Laar ◽  
Mireille Donkervoort ◽  
Wilbert Nieuwstraten ◽  
Marij E. Roebroeck ◽  
...  
Lupus ◽  
2020 ◽  
Vol 29 (10) ◽  
pp. 1206-1215
Author(s):  
Sara L Haro ◽  
Erica F Lawson ◽  
Aimee O Hersh

Background Individuals with childhood-onset systemic lupus erythematosus (cSLE) must transfer from pediatric to adult care. The goal of this study was to examine disease activity and health-care utilization among young adults with cSLE who are undergoing or have recently completed the transfer to adult care. Methods The Pediatric Lupus Outcomes Study (PLOS) is a prospective longitudinal cohort study of young adults aged 18–30 diagnosed with cSLE. We conducted a cross-sectional analysis comparing 47 participants under the care of pediatric rheumatologists to 38 who had completed transfer to adult care. Demographics, disease manifestations, health- care utilization and transition readiness were compared between groups. Results Those in the post-transfer group had significantly lower medication usage and were less likely to have seen a rheumatologist in the past year. Disease manifestations, flare rates, and hospitalizations were similar between groups. Nearly a quarter of patients who had transferred to adult care reported difficulties with the process. Conclusion Post-transfer patients had lower health-care utilization as evidenced by less medication usage and lack of rheumatology follow-up, in spite of the fact that disease activity was similar in both groups. Future studies will assess longitudinal changes in disease activity and damage in this population.


2014 ◽  
Vol 54 (6) ◽  
pp. 663-671 ◽  
Author(s):  
Josephine S. Lau ◽  
Sally H. Adams ◽  
W. John Boscardin ◽  
Charles E. Irwin

2020 ◽  
Vol 145 (2) ◽  
pp. AB112
Author(s):  
Priya Patel ◽  
Andrea Apter ◽  
Scott Appel

2021 ◽  
Vol 72 (4) ◽  
pp. 421-428
Author(s):  
Rie Sakai-Bizmark ◽  
Eliza J. Webber ◽  
Dennys Estevez ◽  
Mary Murillo ◽  
Emily H. Marr ◽  
...  

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