Psychosocial sequelae after acquired brain injury: A 5-year follow-up

2020 ◽  
pp. 1-17
Author(s):  
Chalotte Glintborg ◽  
Tia G. B. Hansen
Keyword(s):  
Brain Injury ◽  
Acquired Brain Injury ◽  
Psychosocial Sequelae

scholarly journals Three-Year Follow-Up Results of a Residential Community Reintegration Program for Patients With Chronic Acquired Brain Injury

2012 ◽  
Vol 93 (5) ◽  
pp. 908-911 ◽  
Author(s):  
Gert J. Geurtsen ◽  
Caroline M. van Heugten ◽  
Juan D. Martina ◽  
Antonius C. Rietveld ◽  
Ron Meijer ◽  
...  
Keyword(s):  
Brain Injury ◽  
Acquired Brain Injury ◽  
Community Reintegration ◽  
Residential Community

Serving Students With Acquired Brain Injury: Understanding Long-Term Need and Outcomes After the BrainSTEPS Program

2021 ◽  
pp. 1-14
Author(s):  
Jessica Salley Riccardi ◽  
Libby Crook ◽  
Brenda Eagan-Johnson ◽  
Monica Vaccaro ◽  
Angela H. Ciccia
Keyword(s):  
Brain Injury ◽  
Regular Education ◽  
Acquired Brain Injury ◽  
Transition Services ◽  
Student Outcome ◽  
Severe Injuries ◽  
School Based ◽  
Wide Range

Purpose: The purpose of this study was to inform school-based services for children with acquired brain injury (ABI) by describing and analyzing functional student-outcome data from a state-wide, school-based, school re-entry consultation program, BrainSTEPS (Strategies Teaching Educators, Parents, and Students), in Pennsylvania. Method: A nonexperimental, retrospective analysis was conducted with data collected during a pilot follow-up survey for BrainSTEPS. Caregivers reported on 337 students with ABI participating in BrainSTEPS. Results: Most students post-ABI who were participating in BrainSTEPS were enrolled in regular education and reported no ongoing symptoms, as well as no parent perception of need for additional BrainSTEPS consultation during the time period of the follow-up survey. Current receipt of therapy was significantly associated with injury type, χ 2 (1, n = 329) = 16.72, p < .001. A multiple logistic regression was significant ( p < .001) in predicting the need for additional BrainSTEPS consultation. More severe injuries, educational placement postinjury of regular education with a 504 plan (compared to regular education), and current receipt of therapy significantly increased the odds of need for consultation. Conclusions: Due to the wide range of experiences of students in this sample, hospital-to-school transition services, educational supports and services, and long-term follow-up must be individualized for children with ABI. Speech-language pathologists are critical members of the school-based academic team for students with ABI to decrease long-term unmet needs.

scholarly journals An Integrative Neuro-Psychotherapy Treatment to Foster the Adjustment in Acquired Brain Injury Patients—A Randomized Controlled Study

2020 ◽  
Vol 9 (6) ◽  
pp. 1684
Author(s):  
Antoine Urech ◽  
Tobias Krieger ◽  
Eveline Frischknecht ◽  
Franziska Stalder-Lüthy ◽  
Martin grosse Holtforth ◽  
...  
Keyword(s):  
Depressive Symptoms ◽  
Brain Injury ◽  
Brain Injuries ◽  
Controlled Trial ◽  
Acquired Brain Injury ◽  
Post Treatment ◽  
Controlled Study ◽  
Randomized Controlled ◽  
Treatment Standard

Adjustment disorders (AjD) with depressive symptoms following an acquired brain injury (ABI) is a common phenomenon. Although brain injuries are increasing more and more, research on psychological therapies is comparably scarce. The present study compared, by means of a randomized controlled trial (RCT), a newly developed integrative treatment (Standard PLUS) to a standard neuropsychological treatment (Standard). Primary outcomes were depressive symptoms assessed with the Beck Depression Inventory (BDI-II) at post-treatment and 6-month follow-up assessment. In total, 25 patients (80% after a stroke) were randomized to one of the two conditions. Intention-to-treat analyses showed that the two groups did not significantly differ either at post-treatment nor at follow-up assessment regarding depressive symptoms. Both treatments showed large within-group effect sizes on depressive symptoms. Regarding secondary outcomes, patients in the Standard PLUS condition reported more emotion regulation skills at post-assessment than in the control condition. However, this difference was not present anymore at follow-up assessment. Both treatments showed medium to large within-group effects sizes on most measures for patients suffering from an AjD after ABI. More research with larger samples is needed to investigate who profits from which intervention.

scholarly journals myMoves Program: Feasibility and Acceptability Study of a Remotely Delivered Self-Management Program for Increasing Physical Activity Among Adults With Acquired Brain Injury Living in the Community

2016 ◽  
Vol 96 (12) ◽  
pp. 1982-1993 ◽  
Author(s):  
Taryn M. Jones ◽  
Blake F. Dear ◽  
Julia M. Hush ◽  
Nickolai Titov ◽  
Catherine M. Dean
Keyword(s):  
Physical Activity ◽  
Brain Injury ◽  
Large Scale ◽  
Acquired Brain Injury ◽  
Management Program ◽  
Small Sample ◽  
Self Management ◽  
Activity Data ◽  
Study Objective

Abstract Background People living with acquired brain injury (ABI) are more likely to be physically inactive and highly sedentary and, therefore, to have increased risks of morbidity and mortality. However, many adults with ABI experience barriers to participation in effective physical activity interventions. Remotely delivered self-management programs focused on teaching patients how to improve and maintain their physical activity levels have the potential to improve the overall health of adults with ABI. Objective The study objective was to evaluate the acceptability and feasibility of a remotely delivered self-management program aimed at increasing physical activity among adults who dwell in the community and have ABI. Design A single-group design involving comparison of baseline measures with those taken immediately after intervention and at a 3-month follow-up was used in this study. Methods The myMoves Program comprises 6 modules delivered over 8 weeks via email. Participants were provided with regular weekly contact with an experienced physical therapist via email and telephone. The primary outcomes were the feasibility (participation, attrition, clinician time, accessibility, and adverse events) and acceptability (satisfaction, worthiness of time, and recommendation) of the myMoves Program. The secondary outcomes were objective physical activity data collected from accelerometers, physical activity self-efficacy, psychological distress, and participation. Results Twenty-four participants commenced the program (20 with stroke, 4 with traumatic injury), and outcomes were collected for 23 and 22 participants immediately after the program and at a 3-month follow-up, respectively. The program required very little clinician contact time, with an average of 32.8 minutes (SD=22.8) per participant during the 8-week program. Acceptability was very high, with more than 95% of participants being either very satisfied or satisfied with the myMoves Program and stating that it was worth their time. All participants stated that they would recommend the program to others with ABI. Limitations The results were obtained from a small sample; hence, the results may not be generalizable to a larger ABI population. Conclusions A remotely delivered self-management program aimed at increasing physical activity is feasible and acceptable for adults with ABI. Further large-scale efficacy trials are warranted.

Use It or Lose It? A 5-Year Follow-up Study of Goal Management Training in Patients with Acquired Brain Injury

2019 ◽  
Vol 25 (10) ◽  
pp. 1082-1087
Author(s):  
Sveinung Tornås ◽  
Marianne Løvstad ◽  
Anne-Kristin Solbakk ◽  
Anne-Kristine Schanke ◽  
Jan Stubberud
Keyword(s):  
Quality Of Life ◽  
Brain Injury ◽  
Daily Life ◽  
Acquired Brain Injury ◽  
Management Training ◽  
Post Treatment ◽  
Goal Management ◽  
Goal Management Training

AbstractObjectives:To determine the perceived 5-year outcome of Goal Management Training (GMT) for individuals with chronic acquired brain injury and executive dysfunction, when compared to a nonspecific psychoeducational intervention (Brain Health Workshop, BHW).Methods:Of the 67 subjects in the initial randomized controlled trial [Tornås et al. (2016). Journal of the International Neuropsychological Society, 1–17], 50 (GMT, n = 21; BHW, n = 29) subjects returned written consent and questionnaires (54% male, age 45.8 ± 10.9 years). The 5-year follow-up consisted of two questionnaires, including the Behavior Rating Inventory of Executive Function for daily life executive function (EF) and Quality of Life after Brain Injury to assess health-related quality of life (HRQoL). Changes related to daily life EF and HRQoL were assessed pre-treatment, post-treatment, 6-month follow-up, and 5-year follow-up. Data were analyzed using a 2 × 4 mixed-design ANOVA.Results:The findings indicate that GMT is efficacious in improving EF and HRQoL 6-month post-treatment. However, these changes failed to remain significant at 5-year follow-up.Conclusions:Data from 50 participants receiving either GMT or BHW suggested that the significant GMT-related improvements on perceived EF and HRQoL observed at 6-month follow-up were no longer present at 5-year follow-up. These findings indicate a need to promote maintenance of interventions post-treatment.

scholarly journals Predictive Factors of Self-Reported Quality of Life in Acquired Brain Injury: One-Year Follow-Up

2021 ◽  
Vol 18 (3) ◽  
pp. 927
Author(s):  
Alba Aza ◽  
Miguel Á. Verdugo ◽  
María Begoña Orgaz ◽  
Antonio M. Amor ◽  
María Fernández
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Brain Injury ◽  
Community Integration ◽  
Acquired Brain Injury ◽  
Self Awareness ◽  
Calidad De Vida ◽  
One Year

Background: The sequelae and disabilities that follow an acquired brain injury (ABI) may negatively affect quality of life (QoL). The main objective of the study is to describe the QoL after an ABI and identify the predictors of a better QoL. Methods: Prospective cohort study with follow-up measurement after one-year. The sample comprised 203 adults with ABIs (64% male) aged 18–86 years (M = 53.01, SD = 14.44). Stroke was the main etiology of the injury (55.7%), followed by a TBI (32.8%), and the average time since injury was 8 years (M = 8.25, SD = 7.83, range = 0.5–47.5). Patients assessed their QoL through the scale Calidad de Vida en Daño Cerebral (CAVIDACE self-reported version; “quality of life in brain injury” in English), an ABI-specific tool based on the eight-domain QoL model. Other variables measured were: depression, self-awareness, community integration, resilience, and social support at baseline and one-year follow-up. Results: The studied factors showed few significant changes over time. The analyses showed statistically significant differences in QoL scores in several sociodemographic (age, civil status, education, legal capacity, and dependency), injury-related (time, location, and comorbidity), rehabilitation, and personal-social variables (self-awareness, depression, social support, resilience, and community integration). The levels of dependency, depression, and satisfaction with social support were independent predictors of the total QoL score one-year follow-up. Conclusions: QoL after ABI depends on multiple elements that must be considered. There are factors such as satisfaction with social support, depression, community integration, and resilience that must be monitored throughout the rehabilitation process.

scholarly journals ”Hvis man havde set mig som menneske fremfor bare min skade” – Indefra-perspektiver på dansk neurorehabilitering

2018 ◽  
Vol 2 (1) ◽  
Author(s):  
Chalotte Glintborg
Keyword(s):  
Brain Injury ◽  
Empirical Data ◽  
Acquired Brain Injury ◽  
Human Being ◽  
Study Analysis ◽  
Neurological Disability ◽  
Rehabilitation Process ◽  
Follow Up Study ◽  
Master Status

Øvrig forfatter: Dorthe Birkmose, cand.psych., selvstændig psykolog og kursusleder.  ResuméFormålet med denne artikel er at se nærmere på, hvordan mennesker oplever at blive mødt i hjerneskaderehabiliteringen i Danmark. Empirisk trækkes der på interviews med de 82 personer, der indgik i ph.d.-afhandlingen ”Grib mennesket” (Glintborg, 2015) samt et opfølgningsstudie efter 5 år. Analyserne trækker på diskurspsykologi og narrativ teori til at udforske fortællinger og diskurser om personer med erhvervede hjerneskader. Analyserne viser, at det individuelle aspekt kan blive skubbet til side af et for stort fokus på hjerneskaden. Konklusionen er, at der er et behov for en professionalisme, der i højere grad balancerer den neurofaglige viden med indefra-perspektivet hos det enkelte menneske.AbstraktThe aim of this study was to explore how Danish adults with an acquired brain injury (ABI) experience encounters with professionals during their rehabilitation process. The study draws on empirical data from 82 adults with moderate to severe ABI collected as part of a Ph.D. project (Glintborg, 2015) and a 5-year follow up study. Analysis reveal that once diagnosed with ABI, this label can take a master status in encounters with professionals. Professionals' reification of the diagnosis of brain injury can be oppressive because it subjugates humanity such that everything a person does can be interpreted as part of the neurological disability. We conclude that there is a need for a new kind of professionalism that balance the diagnostic lens with a lens on the person as a human being.

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