The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability – a pilot study

2021 ◽  
pp. 1-7
Author(s):  
Katia De Gaetano ◽  
Donatella Saviola ◽  
Domenica Brunetti ◽  
Antonio De Tanti
Keyword(s):  
Intellectual Disability ◽  
Pilot Study ◽  
Parent Stress ◽  
Families With Children

Assessing the impact of a virtual support group on adoptive parent stress and competence: Results from an urban/rural pilot study

2021 ◽  
Author(s):  
J. Jay Miller ◽  
Morgan Cooley ◽  
Chunling Niu ◽  
Melissa Segress ◽  
Jessica Fletcher ◽  
...  
Keyword(s):  
Pilot Study ◽  
Support Group ◽  
Parent Stress ◽  
Adoptive Parent ◽  
Urban Rural ◽  
Virtual Support ◽  
The Impact

A qualitative study about quality of life in Brazilian families with children who have severe or profound intellectual disability

2018 ◽  
Vol 32 (2) ◽  
pp. 413-426 ◽  
Author(s):  
Stephania A. Rodrigues ◽  
Bruno J. B. Fontanella ◽  
Lucimar R. S. de Avó ◽  
Carla M. R. Germano ◽  
Débora G. Melo
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Qualitative Study ◽  
Families With Children

Medicaid Personal Care Services for Children With Intellectual Disabilities: What Assistance Is Provided? When Is Assistance Provided?

2014 ◽  
Vol 52 (1) ◽  
pp. 24-31 ◽  
Author(s):  
Timothy R. Elliott ◽  
Ashweeta Patnaik ◽  
Emily Naiser ◽  
Constance J. Fournier ◽  
Darcy K. McMaughan ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Assessment Procedure ◽  
Care Planning ◽  
Personal Care ◽  
Planning Tool ◽  
School Services ◽  
Care Services ◽  
Service Patterns ◽  
Policies And Programs ◽  
Families With Children

Abstract We report on the nature and timing of services provided to children with an intellectual disability (ID) identified by a new comprehensive assessment and care planning tool used to evaluate children's needs for Medicaid Personal Care Services (PCS) in Texas. The new assessment procedure resulted from a legal settlement with the advocacy community. Participants in the study were 1,109 children ages 4–20 with an intellectual disability diagnosis who were assessed between January and April of 2010. The need for assistance is higher on Saturday and Sunday, when school services are not available. We report differences in service patterns for children who vary in ID severity. Finally, we consider the implications of our results for policies and programs that serve families with children with an ID.

scholarly journals Preventing Childhood Obesity Through a Mindfulness-Based Parent Stress Intervention: A Randomized Pilot Study

2018 ◽  
Vol 202 ◽  
pp. 136-142.e1 ◽  
Author(s):  
Ania M. Jastreboff ◽  
Tara M. Chaplin ◽  
Sheridan Finnie ◽  
Mary Savoye ◽  
Matthew Stults-Kolehmainen ◽  
...  
Keyword(s):  
Childhood Obesity ◽  
Pilot Study ◽  
Parent Stress ◽  
Stress Intervention

scholarly journals Family-centered practices in home-based support for families with children with an intellectual disability: Judgments of parents and professionals

2019 ◽  
pp. 174462951989774 ◽  
Author(s):  
Lien Vanderkerken ◽  
Mieke Heyvaert ◽  
Patrick Onghena ◽  
Bea Maes
Keyword(s):  
Intellectual Disability ◽  
Educational Level ◽  
Home Based ◽  
The Family ◽  
Parental Autonomy ◽  
Meaning Interpretation ◽  
Families With Children ◽  
Family Centered

Background: The realization of the family-centered approach (FCA) in home-based support (HBS) for families with children with an intellectual disability (ID) in Flanders was investigated, and parents’ and family workers’ perspectives were compared. The relation between parents’ educational level, the family worker’s education, and his/her experience in HBS; and parents’ and family workers’ judgments on the realization of the FCA was considered. Method: Parents ( N = 58 families) and family workers ( N = 46) completed the helpgiving practices scale and the enabling practices scale. Results: The FCA was largely present, parents rated its realization higher than family workers. Considering family workers’ answers, parents’ educational level appeared an important factor for parental autonomy. Conclusions: The study confirms recent research on the realization of the FCA. Including different perspectives, a nuanced view on the realization of the FCA was obtained. Further research on the concrete meaning, interpretation, and elaboration of the FCA is needed.

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