Personal disaster preparedness of people with chronic obstructive pulmonary disease: Development and validation of a self-report questionnaire

Author(s):  
Madeline Laberge ◽  
Cheryl Heykoop ◽  
Pat G. Camp
2021 ◽  
pp. 174239532110003
Author(s):  
A Carole Gardener ◽  
Caroline Moore ◽  
Morag Farquhar ◽  
Gail Ewing ◽  
Efthalia Massou ◽  
...  

Objectives To understand how people with Chronic Obstructive Pulmonary Disease (COPD) disavow their support needs and the impact on care. Methods Two stage mixed-method design. Stage 1 involved sub-analyses of data from a mixed-method population-based longitudinal study exploring the needs of patients with advanced COPD. Using adapted criteria from mental health research, we identified 21 patients who disavowed their needs from the 235 patient cohort. Qualitative interview transcripts and self-report measures were analysed to compare these patients with the remaining cohort. In stage 2 focus groups (n = 2) with primary healthcare practitioners (n = 9) explored the implications of Stage 1 findings. Results Patients who disavowed their support needs described non-compliance with symptom management and avoidance of future care planning (qualitative data). Analysis of self-report measures of mental and physical health found this group reported fewer needs than the remaining sample yet wanted more GP contact. The link between risk factors and healthcare professional involvement present in the rest of the sample was missing for these patients. Focus group data suggested practitioners found these patients challenging. Discussion This study identified patients with COPD who disavow their support needs, but who also desire more GP contact. GPs report finding these patients challenging to engage.


Pulmonology ◽  
2020 ◽  
Author(s):  
Rafael Golpe ◽  
Cristóbal Esteban ◽  
Juan Marco Figueira-GonÇalves ◽  
Carlos Antonio Amado-Diago ◽  
Nagore Blanco-Cid ◽  
...  

2010 ◽  
Vol 63 (3-4) ◽  
pp. 179-182 ◽  
Author(s):  
Marija Mitkovic ◽  
Lidija Ristic ◽  
Olivera Zikic ◽  
Vuk Milosevic ◽  
Grozdanko Grbesa

Introduction The aim of the study was to investigate illness perception in patients with chronic obstructive pulmonary disease (COPD), and to explore its relation to socio-demographic and illness/treatment-related characteristics. Material and methods 44 consecutive COPD patients answered the general questionnaire (which identified data on gender, age, education, economic status, employment, personal estimate of family relations quality) and IPQ-R (which evaluates the illness perception components). The data were statistically processed using T-test, Mann-Whitney U-test, one way anova, and correlation analysis. Results COPD patients perceived their illness predominantely negatively. The markers of negative illness perception were female gender, older age, medium economic status, being employed, and high number of hospital treatments. The self report of good family relations was associated with both positive (strong belief in personal control) and negative illness perception (belief in serious consequences). Believing that external causes were predominantly responsible for the illness onset was related to the positive illness representation and to a lower education level Conclusion Illness perception in COPD patients is negative and associated with certain socio-demographic and illness/treatment-related characteristics; this may have implications for detecting and modifying negative perception patterns in patients at risk.


2013 ◽  
Vol 2013 (1) ◽  
pp. 44-56
Author(s):  
L. V. Dolinchuk ◽  
◽  
A. V. Basanets ◽  
T. A. Andrushchenko ◽  
◽  
...  

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