Limitations in Life Participation and Independence Due to Secondary Conditions

2009 ◽  
Vol 114 (6) ◽  
pp. 437-448 ◽  
Author(s):  
Stella Koritsas ◽  
Teresa Iacono
Keyword(s):  
Health Care ◽  
Down Syndrome ◽  
Cerebral Palsy ◽  
Adults With Autism ◽  
Secondary Conditions ◽  
Changes Over Time ◽  
Over Time

Abstract The effects of secondary conditions across adults with autism, Down syndrome, and cerebral palsy were explored in terms of overall limitation in life participation and independence, changes over time, and the degree and nature of limitation in specific secondary conditions. Information was obtained for 35 adults with autism, 49 with Down syndrome, and 29 with cerebral palsy (N  =  113). Caregivers completed a questionnaire exploring secondary conditions on two occasions. Participants with cerebral palsy experienced the greatest overall limitations of the three groups. This finding is due to several secondary conditions. There were no changes in limitation scores over time. Implications related to health care for these groups are discussed.

Maternal age-specific rates for down syndrome: Changes over time

1988 ◽  
Vol 29 (4) ◽  
pp. 917-927 ◽  
Author(s):  
P. A. Baird ◽  
A. D. Sadovnick ◽  
John M. Optiz ◽  
James F. Reynolds
Keyword(s):  
Down Syndrome ◽  
Maternal Age ◽  
Changes Over Time ◽  
Over Time

scholarly journals Lifestyle coaches as a central professional in the health care network? Dynamic changes over time using a network analysis

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Celeste E. van Rinsum ◽  
Sanne M. P. L. Gerards ◽  
Geert M. Rutten ◽  
Ien A. M. van de Goor ◽  
Stef P. J. Kremers ◽  
...  
Keyword(s):  
Health Care ◽  
Network Analysis ◽  
Municipal Government ◽  
Overweight And Obesity ◽  
Network Dynamic ◽  
Central Position ◽  
Public Health Services ◽  
Dutch Health ◽  
Changes Over Time ◽  
Over Time

Abstract Background Overweight and obesity are problems that are increasing globally in both children as well as adults, and may be prevented by adopting a healthier lifestyle. Lifestyle coaches counsel overweight and obese children (and their parents) as well as adults in initiating and maintaining healthier lifestyle behaviours. It is currently unclear whether this novel professional in the Dutch health care system functions as a linchpin in networks that evolve around lifestyle-related health problems. The aim of the present study is to investigate the formation and development of networks of lifestyle coaches and their positions within these networks. Methods In this longitudinal study, key professionals and professionals within relevant organisations in the Coaching on Lifestyle (CooL) care networks were asked to fill in three online questionnaires. Respondents were asked to indicate whether they collaborated with each of the specified professionals in the context of CooL. The overall network structures and the central role of the lifestyle coaches were examined by using network analysis. Results The results showed that the networks in three out of four regions were relatively centralised, but that none of the networks were dense, and that the professionals seemed to collaborate less with others over time. Half of the lifestyle coaches had a high number of collaborations and a central position within their networks, which also increased over time. In half of the regions, the lifestyle coaches had increased their role as consultants, while their role as gatekeeper and liaison decreased over time. In most regions, the sector of lifestyle coaches had a central position in their networks in just one measurement. Other central sectors were the local sports organisation, public health services, youth health care and the municipal government. Conclusions Overall, we cannot conclude that more central and denser networks were formed during the study period. In addition, the lifestyle coaches were not often positioned as a central sector within these networks. Entrepreneurial, network and brokering competences are required for lifestyle coaches to build up denser networks. Trial registration NTR6208; date registered: 13–01-2017; retrospectively registered; Netherlands Trial Register.

Systematic Evaluation of Two Years of Ethics Reflection Groups. Changes Over Time Regarding Employees’ Attitudes, User Involvement, Team Cooperation and the Handling of Disagreement

2021 ◽  
Vol 66 (Special Issue) ◽  
pp. 126-127
Author(s):  
Bert Molewijk ◽  
◽  
Reidar Pedersen ◽  
Almar Kok ◽  
Reidun Førde ◽  
...  
Keyword(s):  
Health Care ◽  
Research Question ◽  
User Involvement ◽  
Systematic Evaluation ◽  
Reflection Groups ◽  
Team Cooperation ◽  
Changes Over Time ◽  
The Impact ◽  
Over Time ◽  
Ethics Reflection

"Background: Ethics reflection groups (ERG) or moral case deliberations (MCD) are increasingly used in health care as a form of clinical ethics support (CES). ERGs are often evaluated with a focus on evaluating ERG itself yet not on the impact of or change due to ERGs. Within a larger study implementation and impact of ERG was studied with use of various qualitative and qualitative research methodologies. In this presentation we present findings of the quantitative research. Research question: Are there changes over time after two years of ERG regarding employees’ normative attitudes with respect to the use of coercion, user involvement during the use of coercion, team cooperation and the handling of disagreement? Research methods: Repeated cross-sectional survey at seven wards within three different Norwegian mental health care institutions (T0-T1-T2). Results: In total, 817 surveys were included in the analyses. Of these, only 7.6 % (N= 62) have responded at all three points in time, while 76.8 % (N= 628) responded only once. Over time, adjusted for ward and profession, respondents agreed less that coercion is a form of care or security. Furthermore, respondents thought they involved patients and their family significantly more often in situations of coercion and they reported that the constructive of disagreement within the team significantly improved. More frequent ERG participation seemed associated with a more critical attitude towards the use of coercion and higher scores for user involvement, team cooperation and the constructive handling of disagreement, yet differences between ERG participation were generally small in absolute terms. Conclusion: Structural participation in ERG seems to contribute to changes in attitudes, user involvement and team cooperation. Studying changes over time and trying to find a relationship between CES interventions and outcome is difficult yet important and need to be further developed in future CES evaluation research. "

scholarly journals Changes Over Time in High Out-of-Pocket Health Care Burden in U.S. Adults With Diabetes, 2001–2011

Diabetes Care ◽  
2014 ◽  
Vol 37 (6) ◽  
pp. 1629-1635 ◽  
Author(s):  
Rui Li ◽  
Lawrence E. Barker ◽  
Sundar Shrestha ◽  
Ping Zhang ◽  
O. Kenrick Duru ◽  
...  
Keyword(s):  
Health Care ◽  
Care Burden ◽  
Health Care Burden ◽  
Changes Over Time ◽  
Over Time

scholarly journals Lifestyle coaches as a central professional in the health care network? Dynamic changes over time using a network analysis

2020 ◽  
Author(s):  
Celeste E van Rinsum ◽  
Sanne MPL Gerards ◽  
Geert M Rutten ◽  
Ien AM van de Goor ◽  
Stef PJ Kremers ◽  
...  
Keyword(s):  
Health Care ◽  
Network Analysis ◽  
Municipal Government ◽  
Overweight And Obesity ◽  
Network Dynamic ◽  
Central Position ◽  
Public Health Services ◽  
Dutch Health ◽  
Changes Over Time ◽  
Over Time

Abstract Background Overweight and obesity are problems that are increasing globally in both children as well as adults, and may be prevented by adopting a healthier lifestyle. Lifestyle coaches counsel overweight and obese children (and their parents) as well as adults in initiating and maintaining healthier lifestyle behaviours. It is currently unclear whether this novel professional in the Dutch health care system functions as a linchpin in networks that evolve around lifestyle-related health problems. The aim of the present study is to investigate the formation and development of networks of lifestyle coaches and their positions within these networks. Methods In this longitudinal study, key professionals and professionals within relevant organisations in the Coaching on Lifestyle (CooL) care networks were asked to fill in three online questionnaires. Respondents were asked to indicate whether they collaborated with each of the specified professionals in the context of CooL. The overall network structures and the central role of the lifestyle coaches were examined by using network analysis. Results The results showed that the networks in three out of four regions were relatively centralised, but that none of the networks were dense, and that the professionals seemed to collaborate less with others over time. Half of the lifestyle coaches had a high number of collaborations and a central position within their networks, which also increased over time. In half of the regions, the lifestyle coaches had increased their role as consultants, while their role as gatekeeper and liaison decreased over time. In most regions, the sector of lifestyle coaches had a central position in their networks in just one measurement. Other central sectors were the local sports organisation, public health services, youth health care and the municipal government. Conclusions Overall, we cannot conclude that more central and denser networks were formed during the study period. In addition, the lifestyle coaches were not often positioned as a central sector within these networks. Entrepreneurial, network and brokering competences are required for lifestyle coaches to build up denser networks. Trial registration: NTR6208; date registered: 13–01-2017; retrospectively registered; Netherlands Trial Register.

Percutaneous Tracheostomy: A Multidisciplinary Approach

2008 ◽  
Vol 18 (2) ◽  
pp. 87-98 ◽  
Author(s):  
Vinciya Pandian ◽  
Thai Tran Nguyen ◽  
Marek Mirski ◽  
Nasir Islam Bhatti
Keyword(s):  
Health Care ◽  
Quality Assurance ◽  
Data Collection ◽  
Health Care Professionals ◽  
Multidisciplinary Approach ◽  
Percutaneous Tracheostomy ◽  
Johns Hopkins Hospital ◽  
Prospective Data ◽  
Comprehensive Service ◽  
Over Time

Abstract The techniques of performing a tracheostomy has transformed over time. Percutaneous tracheostomy is gaining popularity over open tracheostomy given its advantages and as a result the number of bedside tracheostomies has increased necessitating the need for a Percutaneous Tracheostomy Program. The Percutaneous Tracheostomy Program at the Johns Hopkins Hospital is a comprehensive service that provides care to patients before, during, and after a tracheostomy with a multidisciplinary approach aimed at decreasing complications. Education is provided to patients, families, and health-care professionals who are involved in the management of a tracheostomy. Ongoing prospective data collection serves as a tool for Quality Assurance.

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