Surveys of Cancer Patients and Cancer Care Providers Regarding Complementary Therapy Use, Communication and Information Needs

2014 ◽  
Vol 20 (5) ◽  
pp. A98-A98 ◽  
Author(s):  
Ngaire King ◽  
Lynda Balneaves ◽  
Cynthia Card ◽  
Jill Nation ◽  
Thao Nguyen ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Cancer Care ◽  
Information Needs ◽  
Complementary Therapy ◽  
Care Providers

scholarly journals Surveys of Cancer Patients and Cancer Health Care Providers Regarding Complementary Therapy Use, Communication, and Information Needs

2015 ◽  
Vol 14 (6) ◽  
pp. 515-524 ◽  
Author(s):  
Ngaire King ◽  
Lynda G. Balneaves ◽  
Gregory T. Levin ◽  
Thao Nguyen ◽  
Jill G. Nation ◽  
...  
Keyword(s):  
Health Care ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Information Needs ◽  
Complementary Therapy ◽  
Care Providers

Cancer Patients' Information Needs across the Cancer Care Continuum: Evidence from the Cancer Information Service

2005 ◽  
Vol 10 (sup1) ◽  
pp. 15-34 ◽  
Author(s):  
Linda Squiers ◽  
Lila J. Finney Rutten ◽  
Katherine Treiman ◽  
Mary Anne Bright ◽  
Bradford Hesse
Keyword(s):  
Cancer Patients ◽  
Cancer Care ◽  
Information Needs ◽  
Information Service ◽  
Cancer Information ◽  
Cancer Information Service ◽  
Care Continuum ◽  
Cancer Care Continuum

scholarly journals Acupuncture as a complementary therapy for cancer care: acceptability and preferences of patients and informal caregivers

2020 ◽  
Author(s):  
Tessa Lefebvre ◽  
Laura Tack ◽  
Virginie Blieck ◽  
Lieselot Cool ◽  
Hans Pottel ◽  
...  
Keyword(s):  
Side Effects ◽  
Cancer Patients ◽  
Cancer Care ◽  
Informal Caregivers ◽  
Participation Rate ◽  
Complementary Therapy ◽  
Care Clinic ◽  
Supportive Cancer Care ◽  
Number Of Patients ◽  
To Receive

Abstract Background: Acupuncture provides a possible complementary therapy which can be used alongside or following cancer treatment to relieve side-effects for cancer patients and survivors, such as pain and depression. Equally, it can provide relief from symptoms such as anxiety and sleep disturbance, which are recognised as significant issues among caregivers of those with cancer. The aim of this study was to explore the acceptability and preferences of cancer patients, disease survivors and their informal caregivers in relation to acupuncture.Methods: A questionnaire was developed to explore acceptability and preferences of cancer patients, disease survivors and their caregivers in relation to acupuncture, including motivations to use acupuncture, preferred symptoms to be addressed, and practical issues (location; cost).Results: A participation rate of 94.5% was obtained, with 116 participating patients and survivors, and 54 caregivers. Acceptability of acupuncture was around 1/3 for patients (34.5%; 40/116) and almost half for informal caregivers (48.0%; 26/54). In terms of preferences, the day care clinic was the favoured location for patients (52.5%; 21/40) to undergo acupuncture, while there was no specific preference on location observed for caregivers. A large number of patients indicated they would be willing to pay to receive the complementary therapy (60%; 24/40). Symptoms of fatigue, feeling listless, and pain were most often identified as complaints patients and survivors would use acupuncture for (60.0%, 57.5%, and 47.5% respectively). For informal caregivers, 48.0% (26/54) expressed an interest in using acupuncture for their pain, stress and sleeping difficulties.Conclusions: This study indicates that many cancer patients, disease survivors and informal caregivers would accept acupuncture as a complementary therapy. They could further identify many symptoms they felt this therapy could relieve. This openness to acupuncture, and expressed preferences provide the foundations for this complementary therapy to be incorporated into holistic and supportive cancer care, both for patients and those supporting them.

Fear of receiving less effective care: A barrier to effective cancer care cost communication.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e18339-e18339
Author(s):  
Sokbom Kang ◽  
Yelee Yu
Keyword(s):  
Effective Treatment ◽  
Cancer Patients ◽  
Cancer Care ◽  
Financial Burden ◽  
Considerable Proportion ◽  
Care Providers ◽  
Financial Status ◽  
Cost Effective Treatment ◽  
The Cost ◽  
To Receive

e18339 Background: Increasing financial burden in cancer care promoted cost communication as an intervention to the problem. We explored patients’ attitudes and concerns for the physician-patient communication of the costs of cancer care. Methods: From an oncology outpatient clinic, patients were recruited and interviewed using a 29-item questionnaire. The questionnaire includes basic and financial characteristics, attitudes toward cost-communication, and experience of cost-communication with oncologists. Results: Among 292 patients with gynecologic cancer, 68% were found to have an income below the nation’s average households income. Although the majority (81%) of patients have a positive attitude toward patient-physician cancer care cost-communication, however, only 19% of them wanted to discuss the cost with their physicians - 33% of them did not want to disclose their financial status to health care providers and 48% wanted to discuss the cost with other providers than their physicians. In addition, while 87% preferred to be informed about costs for various treatment options, 86% of them did not want to receive cost-effective treatment and preferred to receive the most effective treatment regardless of their financial status. Compared with non-cancer patients (n = 83), significantly more patients had a negative attitude to disclosing their financial status especially to their physician (22% vs. 11%, P = 0.024). Conclusions: A considerable proportion of cancer patients had concerns that cost communication with their physician may interfere with their opportunity to access the best care options. To facilitate cost communication, oncologists should understand such concerns and making a thoughtful effort to relieve the concern during cost communication.

Survey to evaluate quality of cancer patient care: A questionnaire based analysis in a tertiary hospital.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e18320-e18320
Author(s):  
Haritha Ackula ◽  
Ying Ning ◽  
Vishal Jindal ◽  
Shekhar Patil ◽  
Ahmad Daniyal Siddiqui
Keyword(s):  
Health Care ◽  
Cancer Patient ◽  
Patient Care ◽  
Cancer Patients ◽  
Cancer Care ◽  
Primary Care Providers ◽  
Inpatient Service ◽  
Care Providers ◽  
Goals Of Care ◽  
Effective Care

e18320 Background: As the burden of cancer is on the rise, there is a need to understand the logistics in caring for cancer patients. Internists and nurses are integral part of cancer care team, alongside oncologists. Our aim was to assess their knowledge, attitude and practice in order to identify areas of strength and limitation to help devise opportunities to enhance care. Methods: A close ended cross-sectional survey was conducted among internal medicine physicians, residents and nurses. We developed 36 questions broadly based on cancer-care and distributed them randomly. Additionally, subjects were asked to list factors limiting their ability to provide effective care. We semi quantitatively graded the depth of awareness amongst participants. A total of 95 health care providers were included in the final analysis. Results: Only 62% of participants were accurate in knowledge based questions. About 57% believed all cancer patients benefit from less aggressive treatment and considered chemotherapy side-effects to be the most common cause of hospitalization. Total of 94% reported effective care coordination by visiting nurses, primary care providers in outpatient settings decrease readmissions. Seventy percent thought a dedicated inpatient service run by Oncologists would be better for cancer patient care, with 96% preferring co-management. Around 80% felt they were better able to manage decompensated heart failure and fulminant liver disease than oncological emergencies like neutropenic fever. All the attendings (100%) were comfortable discussing new cancer diagnosis compared to 65% residents and 60% nurses. However 58% of them would like the health care proxy to be involved in all goals of care decisions, irrespective of patient’s capacity. Conclusions: Surprisingly, the baseline knowledge about cancer-care is suboptimal and there is a significant gap in expected versus real cancer-care delivery. Most commonly encountered factors hindering patient-care were lack of awareness of cancer illness trajectories and unclear goals of care with inter-provider disparities/gaps in understanding them. Initiatives such as targeted education, shared care plan and engaging patients at every step is crucial.

Perceptions of cancer patients and their caregivers regarding COVID-19 pandemic in Ethiopia.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24116-e24116
Author(s):  
Aynalem Abraha Woldemariam ◽  
Nataliya Berbyuk Lindström ◽  
Rune Andersson ◽  
Adamu Addissie
Keyword(s):  
Cancer Patients ◽  
Cancer Care ◽  
Information Needs ◽  
Addis Ababa ◽  
Cross Sectional Study ◽  
Ethical Review ◽  
Cross Sectional ◽  
Tikur Anbessa Specialized Hospital ◽  
Oncology Care ◽  
The Impact

e24116 Background: Limited research is available about COVID 19 pandemic in Ethiopia in general and in relation to cancer care in particular. Ethiopia reported the first COVID-19 in March, 2020. The number of cases is increasing, putting much pressure on oncology care. This study examines what the Ethiopian cancer patients and their caregivers knew about COVID 19 after the initial stages of the pandemic. It also assesses the information needs, psychological experiences as well as the impact of pandemic on oncologist-patient-caregiver communication and treatment process. Methods: A cross-sectional study was conducted among 200 participants (100 cancer patients and 100 caregivers) at the initial stage of pandemic (May 1 - June 30, 2020) at Tikur Anbessa Specialized Hospital (TASH), Addis Ababa, Ethiopia. Data was collected using a pre-tested, structured questionnaire to assess knowledge and perceptions on COVID-19. Ethics approval was obtained from the Ethical Review Board of TASH (04/14/2015) and the Ethical Review Board of Western Sweden (DNR 520-18). Results: The results indicate that though both cancer patients and their caregivers show a high awareness of and knowledge about COVID 19, they need more information about the risks specific to cancer patients. The respondents are also concerned about the risks of pandemic outbreak in Ethiopia and its impact on availability of cancer care treatments in the country. The respondents report experiencing psychological concerns in relation to the pandemic. The higher educated patients and caregivers report being more concerned than the lower educated respondents. Delays in appointments and therapy are the main concerns in relation to cancer care. Further, both patients and caregivers experience that the restrictions on the number of caregivers present during interactions with oncologists negatively influence communication, resulting in relatives being excluded and patients experiencing loneliness and lack of support. Conclusions: Getting a better insight into knowledge and awareness of COVID-19 among cancer patients and their caregivers is essential for managing the effects of pandemic in cancer care. To our knowledge, there was no similar study in Ethiopia. The results of the study contribute to insights into patient and caregiver awareness of COVID 19, essential for adoption of health care protective practices, providing information and managing oncologist-patient-caregiver communication.

scholarly journals The role of family physicians in cancer care: perspectives of primary and specialty care providers

2017 ◽  
Vol 24 (2) ◽  
pp. 75 ◽  
Author(s):  
J. Easley ◽  
B. Miedema ◽  
M.A. O'Brien ◽  
J. Carroll ◽  
D. Manca ◽  
...  
Keyword(s):  
Health Care ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Cancer Care ◽  
Psychosocial Care ◽  
Family Physicians ◽  
Further Education ◽  
Theory Approach ◽  
Care Providers

Background Currently, the specific role of family physicians (fps) in the care of people with cancer is not well defined. Our goal was to explore physician perspectives and contextual factors related to the coordination of cancer care and the role of fps.Methods Using a constructivist grounded theory approach, we conducted telephone interviews with 58 primary and cancer specialist health care providers from across Canada.Results The participants—21 fps, 15 surgeons, 12 medical oncologists, 6 radiation oncologists, and 4 general practitioners in oncology—were asked to describe both the role that fps currently play and the role that, in their opinion, fps should play in the future care of cancer patients across the cancer continuum. Participants identified 3 key roles: coordinating cancer care, managing comorbidities, and providing psychosocial care to patients and their families. However, fps and specialists discussed many challenges that prevent fps from fully performing those roles:The fps described communication problems resulting from not being kept “in the loop” because they weren’t copied on patient reports and also the lack of clearly defined roles for all the various health care providers involved in providing care to cancer patients.The specialists expressed concerns about a lack of patient access to fp care, leaving specialists to fill the care gaps.The fps and specialists both recommended additional training and education for fps in survivorship care, cancer screening, genetic testing, and new cancer treatments.Conclusions Better communication, more collaboration, and further education are needed to enhance the role of fps in the care of cancer patients.

scholarly journals Cancer Care Delivery Challenges Amidst Coronavirus Disease – 19 (COVID-19) Outbreak: Specific Precautions for Cancer Patients and Cancer Care Providers to Prevent Spread

2020 ◽  
Vol 21 (3) ◽  
pp. 569-573 ◽  
Author(s):  
Abhishek Shankar ◽  
Deepak Saini ◽  
Shubham Roy ◽  
Alireza Mosavi Jarrahi ◽  
Abhijit Chakraborty ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Cancer Care ◽  
Care Delivery ◽  
Care Providers

scholarly journals “To learn what cancer is, press 1”: A Descriptive study of the Implementation of an Interactive Voice Response (IVR) System for Cancer Awareness in Uganda (Preprint)

2020 ◽  
Author(s):  
Johnblack K Kabukye ◽  
Onaedo Ilozumba ◽  
Jacqueline EW Broerse ◽  
Nicolette de Keizer ◽  
Ronald Cornet
Keyword(s):  
Cancer Patients ◽  
Cancer Care ◽  
Information Needs ◽  
Interactive Voice Response ◽  
Healthcare Providers ◽  
Cost Of Care ◽  
Cancer Information ◽  
Free Access ◽  
Cancer Awareness ◽  
Voice Response

BACKGROUND Cancer awareness is crucial for effective and satisfactory cancer care and prevention. However, cancer awareness in Uganda is low, and access to cancer information is limited. OBJECTIVE In this paper we describe an mHealth intervention in the form of an Interactive voice response (IVR) system for addressing the low cancer awareness in Uganda. Specifically, we (i) describe cancer information needs, (ii) describe the development of the cancer awareness messages and the IVR system for disseminating these messages, and (iii) explore user acceptance and usage of the IVR system. METHODS We conducted interviews and focus group discussions with cancer healthcare providers, cancer patients, caregivers and survivors, administrators and lay citizens, to understand the cancer awareness situation in Uganda (perceptions, beliefs, information needs and challenges to accessing cancer information), and opinions about IVR. We then developed an IVR system to address the cancer awareness needs, tested the system with cancer patients, caregivers and survivors during co-creation workshops, and then implemented and evaluated the system through qualitative telephone surveys and quantitative analysis of system usage data (call records). RESULTS The cancer messages cover general topics such as what cancer is, what causes it (risk factors), cancer screening and diagnosis, and cancer treatment. They also provide practical information on what to expect during cancer care (e.g., duration and cost of care), address myths and misconceptions that were identified, and information on COVID-19 which was added following the outbreak. The IVR system is accessible through a multi-channel toll-free telephone line. In addition to the pre-recorded voice messages, the system allows callers to leave a voicemail or to speak directly to a member of the clinical team. In the six months since go-live, 2411 calls had been made to the system, from 794 unique telephone numbers and lasting a total of 6856 minutes. Call volumes peaked following advertisement of the system and following lockdowns due to COVID-19 outbreak. Participants were generally familiar with IVR technology, and caller feedback was largely positive. Cited benefits include convenience, toll-free access, and detailed information. Recommendations for improvement of the system include adding live agents and marketing of the system to target users. CONCLUSIONS IVR technology provides an acceptable and accessible way for provision of cancer information to patients and the general public in Uganda, live agents who are knowledgeable about cancer should be added to the IVR if possible so that individualized questions can be answered in real time.

Trends in the cost of the futile cancer care near the end of life.

2013 ◽  
Vol 31 (31_suppl) ◽  
pp. 126-126 ◽  
Author(s):  
Wender Lin ◽  
Chi-Jeng Hsieh
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Cancer Care ◽  
Health Resources ◽  
Claim Data ◽  
Care Providers ◽  
Aggressive Cancer ◽  
Futile Treatment ◽  
The Cost

126 Background: Aggressive cancer care near the end of life may not only represent a quality-of-care issue, but also a futility issue. Under the constraint of health resources, it is of interest to know the cost trends of futile treatment for cancer patients near the end of their life. Methods: The definition of potential medical futility for cancer patients near the end of their life was developed based on the RAND/UCLA Appropriateness Method. Nine experts or academics from medical, political, social, or legal fields built a consensus that treatment after 7 days in the intensive care unit following a cardiopulmonary resuscitation for cancer patients who died within 3 months is probably futile. Based on this definition, we used death registry and Taiwan’s National Health Insurance claim data from 2000-2001 and 2009-2010 respectively to estimate the cost of potential futile treatment for cancer patients near the end of their life in 2001 and 2010. Results: The percentage of cancer patients receiving potentially futile treatment near the end of their life reduced from 2.68% in 2001 (883/32,993) to 1.58% in 2010 (649/41,046). The cost of potentially futile cancer care also decreased from $283 million NTD (New Taiwan Dollar) in 2001 to $255 million NTD in 2010 (1USD=30NTD). Nevertheless, the per capita cost of potentially futile cancer care slightly increased from $320 thousand NTD to $393 thousand NTD. Conclusions: Although the cost of potentially futile cancer care for patients near the end of life is not huge in Taiwan, its trend of decrease may indicate that supportive but not aggressive cancer care is more and more prevailing and acceptable by patients, their family, as well as health care providers.

Sign in / Sign up

Export Citation Format

Share Document